Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 joy, she is an absolute little doll baby! so so cute. how old is she again? am glad to see her back is looking so well and happy to see her skin healed nicely after the breakdown . i am glad we never had that issue with lexi. it looks so painful for them. her back is looking awesome though! good luck to you guys and wishes for straight little spines everywhere :-) tracey Pictures of Solana I finally got around to posting some, I picked a ton out but down sized them all so they barely took much room. There's a lot though, all from the beginning of our casting journey in Nov. of last year up until now- including our lovely 1st trip to Shriner's & back =) Take care, ~Joy ( & Sol) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 What a precious little girl!!! She looks like she so happy! I am so sorry that her skin looked like that, WOW! I was really worried about Evan's the last few days, starting to look like that as well. Wish we could've met up on our last trip-Maybe next time! Thanks for sharing. and Evan - In infantile scoliosis treatment , " mosunshinebaby " <mosunshinebaby@...> wrote: > > I finally got around to posting some, I picked a ton out but down > sized them all so they barely took much room. There's a lot though, > all from the beginning of our casting journey in Nov. of last year up > until now- including our lovely 1st trip to Shriner's & back =) > > Take care, > ~Joy ( & Sol) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Hi Joy, She's such a cutie! On the pics from the second casting, what kind of tape is at the bottom of the cast? Did the nurses put that on or is that something you did? Thanks _____ From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of mosunshinebaby Sent: Thursday, June 08, 2006 10:35 PM infantile scoliosis treatment Subject: Pictures of Solana I finally got around to posting some, I picked a ton out but down sized them all so they barely took much room. There's a lot though, all from the beginning of our casting journey in Nov. of last year up until now- including our lovely 1st trip to Shriner's & back =) Take care, ~Joy ( & Sol) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Hi Tracey, Thank you for the thoughts & wishes! She's 20 mos. now. Yeah the skin medicated wet bandages she was completely fine & happy. I removed them the next day in the bath tub w/the shower sprayer to help in case of sticking but none of it stuck and it was all completely hardened over, I couldn't believe it, and she wasn't in any discomfort @ all again (after the initial removal of the cast) which made it easier (even though it LOOKED horrible). Medicated neosporin & non stick gauze I covered it with for a few days but then it was fine. But yeah, difintiely not something I'd wish for anyone! And if it was the tape I used that aided to it I learned my lesson! It seems awhile since I've seen you post, how is Lexi doing? Take care, joy > > joy, > > she is an absolute little doll baby! so so cute. how old is she again? am glad to see her back is looking so well and happy to see her skin healed nicely after the breakdown . i am glad we never had that issue with lexi. it looks so painful for them. her back is looking awesome though! good luck to you guys and wishes for straight little spines everywhere :-) > > tracey > Pictures of Solana > > > I finally got around to posting some, I picked a ton out but down > sized them all so they barely took much room. There's a lot though, > all from the beginning of our casting journey in Nov. of last year up > until now- including our lovely 1st trip to Shriner's & back =) > > Take care, > ~Joy ( & Sol) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Thanks ! I'm glad his was okay too, not fun but glad it's over with.. we had the worst case scenario the first time around w/the first cast & the aftermath, this one has been nothing but a breeze so far, hasn't limited her in any regard 1 bit & yes her hapiness & contentness is 100% normal too unlike in the first one. Yeah too bad it didn't work out, maybe sometime. I'm actually looking forward to going back, getting her new one & results you know! You guys take care! ~Joy > > > > I finally got around to posting some, I picked a ton out but down > > sized them all so they barely took much room. There's a lot though, > > all from the beginning of our casting journey in Nov. of last year up > > until now- including our lovely 1st trip to Shriner's & back =) > > > > Take care, > > ~Joy ( & Sol) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Hi , thank you! The nurses put that orange tape on (is that the tape you're referring to?). I don't think that will be a problem though with the skin not being able to breathe, especially because there's no contact w/water in this one. And I think, if I'm not mistaken, I saw that Ian's last cast was totally covered in that orange tape & don't think his skin was affected at all, I'd like to check w/ on that though out of interest, would really make it easy to keep clean & wiped down if I were able to have it all covered w/that. Take care! ~Joy > > Hi Joy, > > She's such a cutie! On the pics from the second casting, what kind of > tape is at the bottom of the cast? Did the nurses put that on or is that > something you did? > > Thanks > > > > > > _____ > > From: infantile scoliosis treatment > [mailto:infantile scoliosis treatment ] On Behalf Of mosunshinebaby > Sent: Thursday, June 08, 2006 10:35 PM > infantile scoliosis treatment > Subject: Pictures of Solana > > > > I finally got around to posting some, I picked a ton out but down > sized them all so they barely took much room. There's a lot though, > all from the beginning of our casting journey in Nov. of last year up > until now- including our lovely 1st trip to Shriner's & back =) > > Take care, > ~Joy ( & Sol) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 you know it is amazing how quickly their skin can heal. we were told by dr. sander's and even lexi's brace guy that we want that skin toughened up a little at least to handle the stresses the casts and braces put on it. glad to hear she is doing great. lexi is blowing and going as usual! her brace is getting great results and i am happy to be able to take her to the pool everyday. she starts swim lessons next week and we are excited! unlike her 5 yr old brother who was slow to become a water baby, lexi has NO fear. she is already jumping off the side and letting us catch her. she has no problem with putting her face in though and she is learning how to handle the blowing out part. it is hard to teach that to a 2 yr old. other than that, i am hoping time in the water helps the back the way i have heard it can. take care! tracey Pictures of Solana > > > I finally got around to posting some, I picked a ton out but down > sized them all so they barely took much room. There's a lot though, > all from the beginning of our casting journey in Nov. of last year up > until now- including our lovely 1st trip to Shriner's & back =) > > Take care, > ~Joy ( & Sol) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Such fun, so glad you guys are at that point & able to enjoy swimming w/her again, can't wait! Glad to hear she's doing well. Just out of curiousity, after getting into a brace how often do they f/u on her, when do you go back for a check up, & then what do you know? Will she get one more brace maybe? Just curious what they told you from here.. And I wish I could remember how many casts she was in over what ages, I'll see if your pics give that, just curious what we might expect even though I know every child is different! > > > > joy, > > > > she is an absolute little doll baby! so so cute. how old is she > again? am glad to see her back is looking so well and happy to see > her skin healed nicely after the breakdown . i am glad we never had > that issue with lexi. it looks so painful for them. her back is > looking awesome though! good luck to you guys and wishes for > straight little spines everywhere :-) > > > > tracey > > Pictures of Solana > > > > > > I finally got around to posting some, I picked a ton out but > down > > sized them all so they barely took much room. There's a lot > though, > > all from the beginning of our casting journey in Nov. of last > year up > > until now- including our lovely 1st trip to Shriner's & back =) > > > > Take care, > > ~Joy ( & Sol) > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 They are great photo's - She is adorable!!!!! Jacki > > I finally got around to posting some, I picked a ton out but down > sized them all so they barely took much room. There's a lot though, > all from the beginning of our casting journey in Nov. of last year up > until now- including our lovely 1st trip to Shriner's & back =) > > Take care, > ~Joy ( & Sol) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 well, we see her orthotist every 3-4 weeks for brace checks. he is very thorough to make sure it is always fitting properly and everything is where it should be. although, he gave us a 45 min tutorial when she first got it and what to look for.....he is very particular and likes to see it himself which makes me happy! when we see him he always does a little exam on her spine. he will show me where her vertebrae are now able to be felt where they weren't before and we know from that some of the rotation is coming out of her spine. like i said before, her compensatory curve is now 0 and her thoracic is about 8 based on last film a month ago. as for the next brace.....we do not know when that will be. we planned on doing one last month but the brace she is took care of more rotation than he expected so the brace we were going to do was postponed. it would have been made to attack more rotation than just curve. we never expected so much correction on the rotation from this brace, but we got it along with the curve correction itself. as for how many more...we don't know that either. like we have all learned i think....there is no magic way of knowing when/ if they come off whether or not they will hold. lexi is still very flexible, so we are in it for a long haul i think. within the next 6 months we have talked about wearing it only 20 hours a day instead of the 23 now, and monitor very closely what the curve is doing. lexi was only in one cast which was done at 22 months and then she had one done by miss mehta which was a cast, but was removable, so i guess you could count that as 2. then of course we braced for hand surgery, and are sticking with it now since the results are positive. still all for casting though!! i will never disagree with it. tracey Pictures of Solana > > > > > > I finally got around to posting some, I picked a ton out but > down > > sized them all so they barely took much room. There's a lot > though, > > all from the beginning of our casting journey in Nov. of last > year up > > until now- including our lovely 1st trip to Shriner's & back =) > > > > Take care, > > ~Joy ( & Sol) > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Thank you Jacki! > > > > I finally got around to posting some, I picked a ton out but down > > sized them all so they barely took much room. There's a lot though, > > all from the beginning of our casting journey in Nov. of last year > up > > until now- including our lovely 1st trip to Shriner's & back =) > > > > Take care, > > ~Joy ( & Sol) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Well that's just so great Tracey, so great she doing so well w/her brace! Thanks so much for the info.. I do know it's such a wait and see process, I hope things continue to go so great for you guys & she continues on the great path, nice she got such great correction w/her few casts! Take care, best wishes through the rest of your journey! ~Joy > > > > > > joy, > > > > > > she is an absolute little doll baby! so so cute. how old is > she > > again? am glad to see her back is looking so well and happy to > see > > her skin healed nicely after the breakdown . i am glad we never > had > > that issue with lexi. it looks so painful for them. her back is > > looking awesome though! good luck to you guys and wishes for > > straight little spines everywhere :-) > > > > > > tracey > > > Pictures of Solana > > > > > > > > > I finally got around to posting some, I picked a ton out but > > down > > > sized them all so they barely took much room. There's a lot > > though, > > > all from the beginning of our casting journey in Nov. of last > > year up > > > until now- including our lovely 1st trip to Shriner's & back > =) > > > > > > Take care, > > > ~Joy ( & Sol) > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Joy, Ian had no skin issues at all (his skin actually looked better than it did with the plaster casts & moleskin). Noelle (12-2-01) Ian (8-15-04) Pictures of Solana > > > > I finally got around to posting some, I picked a ton out but down > sized them all so they barely took much room. There's a lot though, > all from the beginning of our casting journey in Nov. of last year up > until now- including our lovely 1st trip to Shriner's & back =) > > Take care, > ~Joy ( & Sol) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Joy, I finally got to look through your photos. Solana is a doll! She looks a lot like you (and her big sister as well). I wanted to cry when I saw her skin breakdown from the first cast. Poor baby. I hope you have better luck this time. I should have taped the top of the shirt down like you did! Maybe I still will. He threw up and and went down his neck and now I have a brown shirt. Luckily, it seemed to absorb the stink. Hmmm...I may tape those straps down when he comes home (he is in PA with visiting his grandma this weekend). Anyway, it was nice to finally put some faces with names!! Noelle (12-2-01) Ian (8-15-04) Pictures of Solana I finally got around to posting some, I picked a ton out but down sized them all so they barely took much room. There's a lot though, all from the beginning of our casting journey in Nov. of last year up until now- including our lovely 1st trip to Shriner's & back =) Take care, ~Joy ( & Sol) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 Joy, Your daughters are adorable. Great pics. We had similar breakdown of the skin after the first cast, but around her hips/tummy. Let me know how the taped shirt goes, I'm thinking of doing the same for Marissa, gives her shoulders a break, wouldn't look so much like a boxer, haha. Take care, Jerry and Marissa Pictures of Solana I finally got around to posting some, I picked a ton out but down sized them all so they barely took much room. There's a lot though, all from the beginning of our casting journey in Nov. of last year up until now- including our lovely 1st trip to Shriner's & back =) Take care, ~Joy ( & Sol) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 Thank you Jerry! That's too bad marissa had bad breakdown too, were the able to recast her immediately the following day? I would hate for it to happen again & have to stay longer than expected, I thought about having it done here again before we go for that reason (of being able to view her skin first) but have since figured it would probably be better to stick to the true idea of less than a 24 hr. time period between casts. Did they use the undershirt on Marissa in her last cast? I'm wondering if that might aid to the prevention of that? So far having the shirt taped has been great, I think she's cooler too & probably feels more free you know, plus it's out of the way of shirts or tanks you know. I'm able to clean the tummy hole just fine w/a wet wash cloth. And the shirts holding great w/the tape, I used that breathable waterproof that they gave me around her hip/potty area and tucked it over & under so I can always wipe that part down when changing her (which prevent urine smell or what not... so far). Luckily haven't noticed any break down or red spots either.. we still have a month to go though. Take care! ~Joy > > Joy, > Your daughters are adorable. Great pics. We had similar breakdown of the skin after the first cast, but around her hips/tummy. Let me know how the taped shirt goes, I'm thinking of doing the same for Marissa, gives her shoulders a break, wouldn't look so much like a boxer, haha. > Take care, > Jerry and Marissa > Pictures of Solana > > > I finally got around to posting some, I picked a ton out but down > sized them all so they barely took much room. There's a lot though, > all from the beginning of our casting journey in Nov. of last year up > until now- including our lovely 1st trip to Shriner's & back =) > > Take care, > ~Joy ( & Sol) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 Thank you ! She is quite the sweet heart! But aren't they all?!! And awe, I know, was very sad. I was so shocked on the initial removal having to basically peel it off, was horrible, after the shock I was holding tears back & wiping them too, while trying to be stong for her. It was hard though, just glad it's over with & hopefully won't have to deal w/it again, thanks for the wishes! She hasn't had anymore breathing issues either, I know it was the cast, the pain underneath, probably poor circulation, frustration from both, uncomfortable etc.. I'm sure of it. She's been so happy & content in this like it's no different from not having it, I'm so greatful! Yeah, it's amazing how stretchy that thing is, I stretched it quite a bit an actually trimmed quite a bit off before taping it, and now it's nice & comfortably snug on her. Maybe you can end up trimming the brown part off too? I did that w/some of the diaper area part that got dirty. And yeah it's nice to have the straps out of the way you know, can wipe her neck & chest area well, wear certain shirts & tanks w/out it being in the way. Hope all is well w/you guys & Ian, enjoy your time off!! =) Take care, Joy > > Joy, > > I finally got to look through your photos. Solana is a doll! She looks a lot like you (and her big sister as well). > > I wanted to cry when I saw her skin breakdown from the first cast. Poor baby. I hope you have better luck this time. > > I should have taped the top of the shirt down like you did! Maybe I still will. He threw up and and went down his neck and now I have a brown shirt. Luckily, it seemed to absorb the stink. Hmmm...I may tape those straps down when he comes home (he is in PA with visiting his grandma this weekend). > > Anyway, it was nice to finally put some faces with names!! > > > Noelle (12-2-01) > Ian (8-15-04) > Pictures of Solana > > > I finally got around to posting some, I picked a ton out but down > sized them all so they barely took much room. There's a lot though, > all from the beginning of our casting journey in Nov. of last year up > until now- including our lovely 1st trip to Shriner's & back =) > > Take care, > ~Joy ( & Sol) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 Oh, I am definitely cutting the straps when he gets home. Luckily, that is the only part that got soiled. I have the bottom taped up already, but never thought about cutting the straps. He will look a lot better in tank tops too if I cut those straps. Thanks for the idea . Noelle (12-2-01) Ian (8-15-04) Pictures of Solana > > > I finally got around to posting some, I picked a ton out but down > sized them all so they barely took much room. There's a lot though, > all from the beginning of our casting journey in Nov. of last year up > until now- including our lovely 1st trip to Shriner's & back =) > > Take care, > ~Joy ( & Sol) > > > > > > Quote Link to comment Share on other sites More sharing options...
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