Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Hi everyone I am soory we have not been around for a while but after the whole thing on the site with the Worm.. I turned my emails off and have been trying to catch up. I have not read many posts I plan to do that before we get the next cast change in May...May 1st Let me give you the update on Adan Good news is Adan has achevied correction in this past year of casting in SLC He started May 2004 ( 1 year old) with 30 degrees grade 1 roation Than while waiting a very long time to get a cast he progressed to 38 in March 2005 We got the 1 st cast he was 12 degrees in the cast standing x ray The 2nd cast 12 degrees in the cast standing x ray 3rd cast 12 degrees standing x ray then we took an out of cast before the last cast and his rotation has improved siginficanly (so much he has no opening in the back of this cast) and he has gone to 25 degrees out of cast standing 24 hrs out with the rotation better this is all out of cast He is in his 4th cast now and is at 17 degrees For the 1st time in 4 casts he is higher but it is whitin range of error and his rotation and overall aligmnet look fantastic Dr D and Mike P wanted to give him a break this summer (they gave me the choice) and brace him they think they can get the same correction in a molded brace under general anesthia....... but we have decided to continue casting for a while longer we have done it a year and I am afarid to stop before his # are below 10 out of cast...I do hope it I will the day of that and hope it can be done whitin the next ccouple casts I am praying for zero but I do not know if it is possible he is 3 in May.What do you all think???? Jenn V Do you remeber how many mg of Vit C the gentisist told you to give in a daily basis for the conncetive tissue to get stronger?? I have to read how everyon else is doing with the casting but I feel the vibe that eveyone is doing well.. Natile and Stacey/ Thanks for all of the comfort and company at the hospital have you updated the group on Aubri? Hope all is well with everyone and is anyone getting a cast May 1 in Erie? Take care Chrisitine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 , Good to hear from you! It sounds like Adan is doing really well. Great news on the rotation. I can understand your concerns about taking him out of a cast until his numbers get a bit lower. I know with him being a bit older it might take more time, but I would think you could get his curve down lower...it just might take more time. Good luck with everything! Noelle (12-2-01)Ian (8-15-04) Adan's update Hi everyoneI am soory we have not been around for a while but after the whole thing on the site with the Worm.. I turned my emails off and have been trying to catch up. I have not read many posts I plan to do that before we get the next cast change in May...May 1st Let me give you the update on AdanGood news is Adan has achevied correction in this past year of casting in SLCHe started May 2004 ( 1 year old) with 30 degrees grade 1 roationThan while waiting a very long time to get a cast he progressed to 38 in March 2005We got the 1 st cast he was 12 degrees in the cast standing x ray The 2nd cast 12 degrees in the cast standing x ray3rd cast 12 degrees standing x ray thenwe took an out of cast before the last cast and his rotation has improved siginficanly (so much he has no opening in the back of this cast) and he has gone to 25 degrees out of cast standing 24 hrs out with the rotation better this is all out of castHe is in his 4th cast now and is at 17 degrees For the 1st time in 4 casts he is higher but it is whitin range of error and his rotation and overall aligmnet look fantasticDr D and Mike P wanted to give him a break this summer (they gave me the choice) and brace him they think they can get the same correction in a molded brace under general anesthia....... but we have decided to continue casting for a while longer we have done it a year and I am afarid to stop before his # are below 10 out of cast...I do hope it I will the day of that and hope it can be done whitin the next ccouple casts I am praying for zero but I do not know if it is possible he is 3 in May.What do you all think????Jenn VDo you remeber how many mg of Vit C the gentisist told you to give in a daily basis for the conncetive tissue to get stronger??I have to read how everyon else is doing with the casting but I feel the vibe that eveyone is doing well.. Natile and Stacey/ Thanks for all of the comfort and company at the hospital have you updated the group on Aubri?Hope all is well with everyone and is anyone getting a cast May 1 in Erie?Take careChrisitine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Hi , That's such great news about Adan, don't think you & I have spoke much but how fantastic the results Adan has attained thus far. I understand your wanting to keep him in the cast, IDK if I'd want to have it off with the #'s over 10 either, but that's great that the rotation is doing so well. I can't give you an opinion on whether I think full correction is possible, I don't have enough experience w/corrected cases, and my daughter is only in her first. Any feedback I've gotten from any Dr. on the chances of it actually correcting are grim when they're being honest, but then there are the ones I've read about here on on other Scoli. sites where they do attain full correction... I would base my outlook on what your Dr. seems to project you know. On another note, we will be in Erie on the 1st & 2nd of May, my daughter will be getting her cast off on the 1st, I'll have my other daughter with me too who will be 3 on April 30th, I'd love to meet you guys if we get the chance to get together. Depends on how up for it you & Adan will be if he's actually getting his cast ON the 1st.. to bad they couldn't have the off together on the same day, could swim or something. Is there a pool there or something did somebody say? Well let's k.i.t. and let me know if you're interested in meeting up while we're there too.. we can always play it by ear as well!! Take care & congrats again on the great results! Joy ( & Solana is my 18 mo. old daughter w/scoli.) > > Hi everyone > > I am soory we have not been around for a while but after the whole > thing on the site with the Worm.. I turned my emails off and have > been trying to catch up. I have not read many posts I plan to do > that before we get the next cast change in May...May 1st > Let me give you the update on Adan > > Good news is Adan has achevied correction in this past year of > casting in SLC > > He started May 2004 ( 1 year old) with 30 degrees grade 1 roation > Than while waiting a very long time to get a cast he progressed to > 38 in March 2005 > We got the 1 st cast he was 12 degrees in the cast standing x ray > The 2nd cast 12 degrees in the cast standing x ray > 3rd cast 12 degrees standing x ray then > we took an out of cast before the last cast and his rotation has > improved siginficanly (so much he has no opening in the back of this > cast) and he has gone to 25 degrees out of cast standing 24 hrs out > with the rotation better this is all out of cast > > He is in his 4th cast now and is at 17 degrees For the 1st time in 4 > casts he is higher but it is whitin range of error and his rotation > and overall aligmnet look fantastic > > Dr D and Mike P wanted to give him a break this summer (they gave me > the choice) and brace him they think they can get the same > correction in a molded brace under general anesthia....... but we > have decided to continue casting for a while longer we have done it > a year and I am afarid to stop before his # are below 10 out of > cast...I do hope it I will the day of that and hope it can be done > whitin the next ccouple casts I am praying for zero but I do not > know if it is possible he is 3 in May.What do you all think???? > > Jenn V > Do you remeber how many mg of Vit C the gentisist told you to give > in a daily basis for the conncetive tissue to get stronger?? > > I have to read how everyon else is doing with the casting but I feel > the vibe that eveyone is doing well.. > > Natile and Stacey/ Thanks for all of the comfort and > company at the hospital have you updated the group on Aubri? > > Hope all is well with everyone and is anyone getting a cast May 1 in > Erie? > > Take care > Chrisitine > Quote Link to comment Share on other sites More sharing options...
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