Re: scoliosis article in Oprah mag.

[Guest guest]

Hi , actually took a trip to Ireland this last week and got to get some english magazines, believe it or not oprah. To tell you the truth, I was actually not to pleased with the article. Though I have to remember I am reading it through the eyes of a mother, and I as a mother would not have put into denial what my child needed, nor attempted to hide it. Deborah is raging her rage about her problem, and has appeared to not come to terms with what she has. I believe that if these kids are made to think positive about themselves and have the confidence to go out and tackle it with their head high, growing up with such anger and frustration as Deborah has, will hopefully not occur. She doesn´t realize how lucky she is, there are so many of these children out there with much worse conditions and deformities, that to be so angry and in such shame for what she has, makes me realize that she has not seen too much in this world. I

cannot judge her, she is the one suffering, but for those with scoliosis I only hope and pray that they will not end up with the same thoughts. We as moms are the only ones that can create a better world for these children, maybe Deborah is a good example of what happens to those whose parents attempt to hide there conditions, instead of attempting to make them feel apart of everyone else. Maybe some of us moms here on the group should write an inspirational story about our kids to Oprah, shed some light on those children that are growing up not thinking the scoliosis is something to be ashamed of, but something that makes them who they are. Well, that was my thought on the story, hope I didn´t sound too hard on Deborah, but that is how I took the story. Hope all is well, and definatly we will see you this summer. Take care, Kelli and Santiagoheather hyatt

<heather@...> wrote: Please check out the article titled "The Unlovely Bones" by Deborah , in the June issue of O magazine. She describes her life with progressive scoliosis, and how scoliosis took its toll physically and emotionally. Good reading.......Let me know what you think of the article, if you get a chance to read it.HRH

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[Guest guest]

Kelli,

I am so glad you brought this up, and I couldnt agree with you more! I was hoping that some of you out there would write to the editor of O magazine, to share your story. Naturally, the editor should be informed of early treatment and its benefits....But, what about the kids who can never get straight? I have run into quite a few kids with severe scoliosis on this journey, and so many of them are depessed and withdrawn by the time they hit their teens. I am not saying all of them....most of them. Its very sad. Being a teenager is very difficult...( I remember)......But, imagine a teen with a severe deformity. They have to be very secure to withstand all thats dealt to them in jr./high school. Im sure the constant ridicule, jokes, etc...can take a huge emotional toll.

I think Deborah needs an education on scoliosis. I think she should read Moriah, Kylie, and Olivias story. Maybe send her some photos, to show her that she didnt have it that bad. I am not making light of her difficult journey, just want share with her how bad scoliosis can be on an infant/small child. She really has no idea, and I think it would actually help her....It would help her to know how lucky she is.

Eventually, she could help us spread the word!.....(and get us on Oprah....LOL!)

HRH

**Glad you guys are doing well Kellie! Cant wait to meet you this Summer!

Re: scoliosis article in Oprah mag.

Hi , actually took a trip to Ireland this last week and got to get some english magazines, believe it or not oprah. To tell you the truth, I was actually not to pleased with the article. Though I have to remember I am reading it through the eyes of a mother, and I as a mother would not have put into denial what my child needed, nor attempted to hide it. Deborah is raging her rage about her problem, and has appeared to not come to terms with what she has. I believe that if these kids are made to think positive about themselves and have the confidence to go out and tackle it with their head high, growing up with such anger and frustration as Deborah has, will hopefully not occur. She doesn´t realize how lucky she is, there are so many of these children out there with much worse conditions and deformities, that to be so angry and in such shame for what she has, makes me realize that she has not seen too much in this world. I cannot judge her, she is the one suffering, but for those with scoliosis I only hope and pray that they will not end up with the same thoughts. We as moms are the only ones that can create a better world for these children, maybe Deborah is a good example of what happens to those whose parents attempt to hide there conditions, instead of attempting to make them feel apart of everyone else. Maybe some of us moms here on the group should write an inspirational story about our kids to Oprah, shed some light on those children that are growing up not thinking the scoliosis is something to be ashamed of, but something that makes them who they are. Well, that was my thought on the story, hope I didn´t sound too hard on Deborah, but that is how I took the story. Hope all is well, and definatly we will see you this summer.

Take care,

Kelli and Santiagoheather hyatt <heather@...> wrote:

Please check out the article titled "The Unlovely Bones" by Deborah , in the June issue of O magazine. She describes her life with progressive scoliosis, and how scoliosis took its toll physically and emotionally. Good reading.......Let me know what you think of the article, if you get a chance to read it.HRH

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[Guest guest]

, I was thinking the same thing. I bought the magazine after you mentioned the article. She mentioned that she might not be as bad today if her parents had decided to brace her upon diagnosis. I think her story is a great segue for infantile scoliosis (even though she had adolescent scoli) and early treatment. I'm going to e-mail the editors of O Magazine right now. This could be the "in" for ISOP! Thanks for bringing the article to our attention, & Jakeheather hyatt <heather@...> wrote: Kelli, I am

so glad you brought this up, and I couldnt agree with you more! I was hoping that some of you out there would write to the editor of O magazine, to share your story. Naturally, the editor should be informed of early treatment and its benefits....But, what about the kids who can never get straight? I have run into quite a few kids with severe scoliosis on this journey, and so many of them are depessed and withdrawn by the time they hit their teens. I am not saying all of them....most of them. Its very sad. Being a teenager is very difficult...( I remember)......But, imagine a teen with a severe deformity. They have to be very secure to withstand all thats dealt to them in jr./high school. Im sure the constant ridicule, jokes, etc...can take a huge emotional toll. I think Deborah needs an education on scoliosis. I think she

should read Moriah, Kylie, and Olivias story. Maybe send her some photos, to show her that she didnt have it that bad. I am not making light of her difficult journey, just want share with her how bad scoliosis can be on an infant/small child. She really has no idea, and I think it would actually help her....It would help her to know how lucky she is. Eventually, she could help us spread the word!.....(and get us on Oprah....LOL!) HRH **Glad you guys are doing well Kellie! Cant wait to meet you this Summer! Re: scoliosis article in Oprah mag. Hi , actually took a trip to Ireland this last week and got to get some english magazines, believe it or not oprah. To tell you the truth, I was actually not to pleased with the article. Though I have to remember I am reading it through the eyes of a mother, and I as a mother would not have put into denial what my child needed, nor attempted to hide

it. Deborah is raging her rage about her problem, and has appeared to not come to terms with what she has. I believe that if these kids are made to think positive about themselves and have the confidence to go out and tackle it with their head high, growing up with such anger and frustration as Deborah has, will hopefully not occur. She doesn´t realize how lucky she is, there are so many of these children out there with much worse conditions and deformities, that to be so angry and in such shame for what she has, makes me realize that she has not seen too much in this world. I cannot judge her, she is the one suffering, but for those with scoliosis I only hope and pray that they will not end up with the same thoughts. We as moms are the only ones that can create a better world for these children, maybe Deborah is a good example of what happens to those whose parents attempt to hide there conditions, instead of attempting to make them feel

apart of everyone else. Maybe some of us moms here on the group should write an inspirational story about our kids to Oprah, shed some light on those children that are growing up not thinking the scoliosis is something to be ashamed of, but something that makes them who they are. Well, that was my thought on the story, hope I didn´t sound too hard on Deborah, but that is how I took the story. Hope all is well, and definatly we will see you this summer. Take care, Kelli and Santiagoheather hyatt <heather@...> wrote: Please check out the article titled "The Unlovely Bones" by Deborah , in the June issue of O magazine. She describes her life with progressive scoliosis, and how scoliosis took its toll physically and emotionally. Good

reading.......Let me know what you think of the article, if you get a chance to read it.HRH Be a chatter box. Enjoy free PC-to-PC calls with Messenger with Voice.

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[Guest guest]

Jenn,

I have searched the mag for an editor addy, but cant find one....Is it right in front of me, or (?)

going crazy,

HRH

Re: scoliosis article in Oprah mag.

Hi , actually took a trip to Ireland this last week and got to get some english magazines, believe it or not oprah. To tell you the truth, I was actually not to pleased with the article. Though I have to remember I am reading it through the eyes of a mother, and I as a mother would not have put into denial what my child needed, nor attempted to hide it. Deborah is raging her rage about her problem, and has appeared to not come to terms with what she has. I believe that if these kids are made to think positive about themselves and have the confidence to go out and tackle it with their head high, growing up with such anger and frustration as Deborah has, will hopefully not occur. She doesn´t realize how lucky she is, there are so many of these children out there with much worse conditions and deformities, that to be so angry and in such shame for what she has, makes me realize that she has not seen too much in this world. I cannot judge her, she is the one suffering, but for those with scoliosis I only hope and pray that they will not end up with the same thoughts. We as moms are the only ones that can create a better world for these children, maybe Deborah is a good example of what happens to those whose parents attempt to hide there conditions, instead of attempting to make them feel apart of everyone else. Maybe some of us moms here on the group should write an inspirational story about our kids to Oprah, shed some light on those children that are growing up not thinking the scoliosis is something to be ashamed of, but something that makes them who they are. Well, that was my thought on the story, hope I didn´t sound too hard on Deborah, but that is how I took the story. Hope all is well, and definatly we will see you this summer.

Take care,

Kelli and Santiagoheather hyatt <heather@...> wrote:

Please check out the article titled "The Unlovely Bones" by Deborah , in the June issue of O magazine. She describes her life with progressive scoliosis, and how scoliosis took its toll physically and emotionally. Good reading.......Let me know what you think of the article, if you get a chance to read it.HRH

Be a chatter box. Enjoy free PC-to-PC calls with Messenger with Voice.

Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Messenger with Voice.

[Guest guest]

A friend emailed me this article and all I can say is "OMG! I can't believe that this woman's parents did nothing!" I found the article to be so negative, and while I respect the author for writing it and living with it, it really doesn't offer any hope to parents who are just starting out on the scoliosis journey. I truly wish Oprah Mag would have been a bit more on the ball and offered an opposing view as well from someone who has scoliosis, had treatment, and lives with that. I really think they could have done a lot of good if they had presented it that way. I am just speechless....Gail************************************************Mom to , 11/28/98 - ADHD/ODD/SIDand , 02/02/02 - Congenital Scoliosis, VATER Association, Torticollis, Klippel Feil Syndrome, Fused Ribs, VEPTR Recipient 3/21/05, and First VEPTR Patient at Cincinnati

Children's HospitalPut a little 'TLC' into your scrapbook! Independent TLC Scrapbooking Instructor www.topline-creations.com__________________________________________________

[Guest guest]

gail,

did you say your friend e-mailed you the article? would you

mind e-mailing it to the group to read or if you don't feel

comfortable doing that, to my e-mail address?

thanks,

deshea

---- Original message ----

>Date: Tue, 30 May 2006 07:42:18 -0700 (PDT)

>From: Gail Kimball <patsmum2000@...>

>Subject: Re: scoliosis article in Oprah

mag.

>infantile scoliosis treatment

>

> A friend emailed me this article and all I can say

> is " OMG! I can't believe that this woman's parents

> did nothing! "

>

> I found the article to be so negative, and while I

> respect the author for writing it and living with

> it, it really doesn't offer any hope to parents who

> are just starting out on the scoliosis journey.

>

> I truly wish Oprah Mag would have been a bit more on

> the ball and offered an opposing view as well from

> someone who has scoliosis, had treatment, and lives

> with that. I really think they could have done a lot

> of good if they had presented it that way.

>

> I am just speechless....

>

> Gail

> ************************************************

> Mom to , 11/28/98 - ADHD/ODD/SID

> and , 02/02/02 - Congenital Scoliosis, VATER

> Association, Torticollis, Klippel Feil Syndrome,

> Fused Ribs, VEPTR Recipient 3/21/05, and First VEPTR

> Patient at Cincinnati Children's Hospital

>

> Put a little 'TLC' into your scrapbook!

> Independent TLC Scrapbooking Instructor

> www.topline-creations.com

>

> __________________________________________________

>

[Guest guest]

I am also very interested in reading this article. If the link isn't

available, what issue is it so I can see if the library has it on

hand.

Thanks,

Jackie in Ohio

>

> gail,

>

> did you say your friend e-mailed you the article? would you

> mind e-mailing it to the group to read or if you don't feel

> comfortable doing that, to my e-mail address?

>

> thanks,

> deshea

>

> ---- Original message ----

> >Date: Tue, 30 May 2006 07:42:18 -0700 (PDT)

> >From: Gail Kimball <patsmum2000@...>

> >Subject: Re: scoliosis article in Oprah

> mag.

> >infantile scoliosis treatment

> >

> > A friend emailed me this article and all I can say

> > is " OMG! I can't believe that this woman's parents

> > did nothing! "

> >

> > I found the article to be so negative, and while I

> > respect the author for writing it and living with

> > it, it really doesn't offer any hope to parents who

> > are just starting out on the scoliosis journey.

> >

> > I truly wish Oprah Mag would have been a bit more on

> > the ball and offered an opposing view as well from

> > someone who has scoliosis, had treatment, and lives

> > with that. I really think they could have done a lot

> > of good if they had presented it that way.

> >

> > I am just speechless....

> >

> > Gail

> > ************************************************

> > Mom to , 11/28/98 - ADHD/ODD/SID

> > and , 02/02/02 - Congenital Scoliosis, VATER

> > Association, Torticollis, Klippel Feil Syndrome,

> > Fused Ribs, VEPTR Recipient 3/21/05, and First VEPTR

> > Patient at Cincinnati Children's Hospital

> >

> > Put a little 'TLC' into your scrapbook!

> > Independent TLC Scrapbooking Instructor

> > www.topline-creations.com

> >

> > __________________________________________________

> >

[Guest guest]

jackie,

it's in the june issue that is out right now. i might run by

the library tonight and take a look.

deshea

---- Original message ----

>Date: Tue, 30 May 2006 16:14:40 -0000

>From: " Jaqzy " <buckijackie@...>

>Subject: Re: scoliosis article in Oprah

mag.

>infantile scoliosis treatment

>

> I am also very interested in reading this article.

> If the link isn't

> available, what issue is it so I can see if the

> library has it on

> hand.

> Thanks,

> Jackie in Ohio

>

>

> >

> > gail,

> >

> > did you say your friend e-mailed you the article?

> would you

> > mind e-mailing it to the group to read or if you

> don't feel

> > comfortable doing that, to my e-mail address?

> >

> > thanks,

> > deshea

> >

> > ---- Original message ----

> > >Date: Tue, 30 May 2006 07:42:18 -0700 (PDT)

> > >From: Gail Kimball <patsmum2000@...>

> > >Subject: Re: scoliosis

> article in Oprah

> > mag.

> > >infantile scoliosis treatment

> > >

> > > A friend emailed me this article and all I can

> say

> > > is " OMG! I can't believe that this woman's

> parents

> > > did nothing! "

> > >

> > > I found the article to be so negative, and

> while I

> > > respect the author for writing it and living

> with

> > > it, it really doesn't offer any hope to

> parents who

> > > are just starting out on the scoliosis

> journey.

> > >

> > > I truly wish Oprah Mag would have been a bit

> more on

> > > the ball and offered an opposing view as well

> from

> > > someone who has scoliosis, had treatment, and

> lives

> > > with that. I really think they could have done

> a lot

> > > of good if they had presented it that way.

> > >

> > > I am just speechless....

> > >

> > > Gail

> > >

> ************************************************

> > > Mom to , 11/28/98 - ADHD/ODD/SID

> > > and , 02/02/02 - Congenital Scoliosis,

> VATER

> > > Association, Torticollis, Klippel Feil

> Syndrome,

> > > Fused Ribs, VEPTR Recipient 3/21/05, and First

> VEPTR

> > > Patient at Cincinnati Children's Hospital

> > >

> > > Put a little 'TLC' into your scrapbook!

> > > Independent TLC Scrapbooking Instructor

> > > www.topline-creations.com

> > >

> > >

> __________________________________________________

> > >

[Guest guest]

I posted the article that my friend took pics of and sent to me. It is not the greatest copy, but it is readable. It is in the files section of the main page. As I said, my opinion is that the article is negative. I have read on other boards that members thought it was inspiring, awesome, and needed. Yes, it is needed, but the flip side should be shown too. JMHO!!!!Gail Kimball <patsmum2000@...> wrote: A friend emailed me this article and all I can say is "OMG! I can't believe that this woman's parents did nothing!" I Gail************************************************Mom to , 11/28/98 - ADHD/ODD/SIDand , 02/02/02 - Congenital Scoliosis, VATER Association, Torticollis, Klippel Feil Syndrome, Fused Ribs, VEPTR

Recipient 3/21/05, and First VEPTR Patient at Cincinnati Children's HospitalPut a little 'TLC' into your scrapbook! Independent TLC Scrapbooking Instructor www.topline-creations.com

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

[Guest guest]

You can get on oprah.com and email the editors- I just did. I can't believe the sad, unfortunate way that was portrayed. Wow, I am speechless. It sounds to me like she's got a lot of other issues, Wouldn't it be awesome if Oprah did a show on this and then our precious little ones could show her/others, that there is hope?heather hyatt <heather@...> wrote: Jenn, I have searched the mag for an editor addy, but cant find one....Is it right in front of me, or (?) going crazy, HRH Re: scoliosis article in Oprah mag. Hi , actually took a trip to Ireland this last week and got to get some english magazines, believe it or not oprah. To tell you the truth, I was actually not to pleased with the article. Though I have to remember I am reading it through the eyes of a mother, and I as a mother would not have put into denial what my child needed, nor attempted to hide it. Deborah is raging her rage about her problem, and has appeared to not come to terms with what she has. I believe that if these kids are

made to think positive about themselves and have the confidence to go out and tackle it with their head high, growing up with such anger and frustration as Deborah has, will hopefully not occur. She doesn´t realize how lucky she is, there are so many of these children out there with much worse conditions and deformities, that to be so angry and in such shame for what she has, makes me realize that she has not seen too much in this world. I cannot judge her, she is the one suffering, but for those with scoliosis I only hope and pray that they will not end up with the same thoughts. We as moms are the only ones that can create a better world for these children, maybe Deborah is a good example of what happens to those whose parents attempt to hide there conditions, instead of attempting to make them feel apart of everyone else. Maybe some of us moms here on the group should write an inspirational story about our kids to Oprah, shed some light on

those children that are growing up not thinking the scoliosis is something to be ashamed of, but something that makes them who they are. Well, that was my thought on the story, hope I didn´t sound too hard on Deborah, but that is how I took the story. Hope all is well, and definatly we will see you this summer. Take care, Kelli and Santiagoheather hyatt <heather@...> wrote: Please check out the article titled "The Unlovely Bones" by Deborah , in the June issue of O magazine. She describes her life with progressive scoliosis, and how scoliosis took its toll physically and emotionally. Good reading.......Let me know what you think of the article, if you get a chance to read it.HRH Be

a chatter box. Enjoy free PC-to-PC calls with Messenger with Voice. Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Messenger with Voice.

Messenger with Voice. PC-to-Phone calls for ridiculously low rates.

[Guest guest]

Hey Gail I'm with you. I only read half the article and became steadily more annoyed with the author as I read. I am sorry that she grew up with such a chip on her shoulder and it's a shame she didn't accept and value herself for who she is and the talents and gifts she has. At the moment, Bridget is 5 and is happy to tell the world that she has a crooked back and her sister has crooked teeth and that just shows that everyone is different. I know this may not always be the case but I would be very sad if she ever grew up to feel as unhappy as the author of this article. I hope the article may stimulate an Oprah programme on Scoliosis but lets promote early treatment and the positive side rather than focusing on the negatives. Bert and Bridget Gail Kimball <patsmum2000@...> wrote: I posted the article that my friend took pics of and sent to me. It is not the greatest copy, but it is readable. It is in the files section of the main page. As I said, my opinion is that the article is negative. I have read on other boards that members thought it was inspiring, awesome, and needed. Yes, it is needed, but the flip side should be shown too. JMHO!!!!Gail Kimball <patsmum2000@...> wrote: A friend emailed me this article and all I can say is "OMG! I can't believe that this woman's parents did nothing!" I

Gail************************************************Mom to , 11/28/98 - ADHD/ODD/SIDand , 02/02/02 - Congenital Scoliosis, VATER Association, Torticollis, Klippel Feil Syndrome, Fused Ribs, VEPTR Recipient 3/21/05, and First VEPTR Patient at Cincinnati Children's HospitalPut a little 'TLC' into your scrapbook! Independent TLC Scrapbooking Instructor www.topline-creations.com Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

[Guest guest]

I agree that this woman definitely is bitter and with good cause considering her parent's did nothing. Of course in the article her mother at 90 refers to not wanting to have "lost" her then during surgery, which was way more risky than by todays standards. Having even worn a brace back then would have been a stigma, and the parent's themselves would have felt ashamed that "something" was wrong with their child, even though we know now there was nothing wrong. I am in no way defending the parent's actions, but when this woman was a child things were completely different than nowadays.

I wonder what this woman would think, if she knows about the treatment offered today, such as the casting? And what would she have done if she had had a child with scoliosis?

I'm with you Bridget.......Lexi loves her brace and refers to it as " her special cat brace" since it is leopard. I hope she doesn't resent us later in life for making her wear such a contraption, but where we are all different than this woman's parent's is we talk to our children and let them know what is going on. Plus todays society is a completely differen one that our children are gorwing up in.

Just my 2 cents! lol

Tracey

Re: scoliosis article in Oprah mag.

Hey Gail

I'm with you. I only read half the article and became steadily more annoyed with the author as I read. I am sorry that she grew up with such a chip on her shoulder and it's a shame she didn't accept and value herself for who she is and the talents and gifts she has.

At the moment, Bridget is 5 and is happy to tell the world that she has a crooked back and her sister has crooked teeth and that just shows that everyone is different. I know this may not always be the case but I would be very sad if she ever grew up to feel as unhappy as the author of this article.

I hope the article may stimulate an Oprah programme on Scoliosis but lets promote early treatment and the positive side rather than focusing on the negatives.

Bert and Bridget

Gail Kimball <patsmum2000@...> wrote:

I posted the article that my friend took pics of and sent to me. It is not the greatest copy, but it is readable. It is in the files section of the main page.

As I said, my opinion is that the article is negative. I have read on other boards that members thought it was inspiring, awesome, and needed. Yes, it is needed, but the flip side should be shown too. JMHO!!!!Gail Kimball <patsmum2000@...> wrote:

A friend emailed me this article and all I can say is "OMG! I can't believe that this woman's parents did nothing!"

I Gail************************************************Mom to , 11/28/98 - ADHD/ODD/SIDand , 02/02/02 - Congenital Scoliosis, VATER Association, Torticollis, Klippel Feil Syndrome, Fused Ribs, VEPTR Recipient 3/21/05, and First VEPTR Patient at Cincinnati Children's HospitalPut a little 'TLC' into your scrapbook! Independent TLC Scrapbooking Instructor www.topline-creations.com

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

[Guest guest]

HI Guys, I am having a terrible time getting the article. My computer won't let me open it when I download it from the group. If anyone has ideas I'm open. I would love to read it. and I focus so much on making sure Moriah has a postive attitude. I would love to write to this woman and encourage her to stop wasting her life (she's like 50 right?) and do something positive and constructive to help those like her. If anyone is willing to photocopy and mail it to me I'll email my address offline. Love you guys. I am so glad to "know" :0) other parents who have the brains to see that outward appearance does not define a person. We tell Mo it is who she is on the inside that makes her beautiful. That all the kids represented on this group are beautiful (or handsome for the guys!) because their parents teach them also. Love you guys, Shelliebert lehane <bert_lehane@...> wrote: Hey Gail I'm with you. I only read half the article and became steadily more annoyed with the author as I read. I am sorry that she grew up with such a chip on her shoulder and it's a shame she didn't accept and value herself for who she is and the talents and gifts she has. At the moment, Bridget is 5 and is happy to tell the world that she has a crooked back and her sister has crooked teeth and that just shows that everyone is different. I know this may not always be the case but I would be very sad if she ever grew up to feel as unhappy as the author of this article. I hope the article may stimulate an Oprah programme on Scoliosis but lets

promote early treatment and the positive side rather than focusing on the negatives. Bert and Bridget Gail Kimball <patsmum2000@...> wrote: I posted the article that my friend took pics of and sent to me. It is not the greatest copy, but it is readable. It is in the files section of the main page. As I said, my opinion is that the article is negative. I have read on other boards that members thought it was inspiring, awesome, and needed. Yes, it is needed, but the flip side should be shown too. JMHO!!!!Gail Kimball <patsmum2000@...> wrote: A friend emailed me this article and all I can say is "OMG! I can't believe that this woman's parents did nothing!" I Gail************************************************Mom to , 11/28/98 - ADHD/ODD/SIDand , 02/02/02 - Congenital Scoliosis, VATER Association, Torticollis, Klippel Feil Syndrome, Fused Ribs, VEPTR Recipient 3/21/05, and First VEPTR Patient at Cincinnati Children's HospitalPut a little 'TLC' into your scrapbook! Independent TLC Scrapbooking Instructor www.topline-creations.com Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. __________________________________________________

[Guest guest]

shellie,

it's a microsoft word document. i've attached it to this

e-mail as a pdf file. see if that works.

deshea

---- Original message ----

>Date: Wed, 31 May 2006 09:18:52 -0700 (PDT)

>From: Shellie Grant <shelliegrant@...>

>Subject: Re: scoliosis article in Oprah

mag.

>infantile scoliosis treatment

>

> HI Guys,

> I am having a terrible time getting the article. My

> computer won't let me open it when I download it

> from the group. If anyone has ideas I'm open. I

> would love to read it. and I focus so much

> on making sure Moriah has a postive attitude. I

> would love to write to this woman and encourage her

> to stop wasting her life (she's like 50 right?) and

> do something positive and constructive to help those

> like her. If anyone is willing to photocopy and

> mail it to me I'll email my address offline. Love

> you guys. I am so glad to " know " :0) other parents

> who have the brains to see that outward appearance

> does not define a person. We tell Mo it is who she

> is on the inside that makes her beautiful. That all

> the kids represented on this group are beautiful (or

> handsome for the guys!) because their parents teach

> them also.

>

> Love you guys,

> Shellie

>

> bert lehane <bert_lehane@...> wrote:

>

> Hey Gail

>

> I'm with you. I only read half the article and

> became steadily more annoyed with the author as I

> read. I am sorry that she grew up with such a

> chip on her shoulder and it's a shame she didn't

> accept and value herself for who she is and the

> talents and gifts she has.

>

> At the moment, Bridget is 5 and is happy to tell

> the world that she has a crooked back and her

> sister has crooked teeth and that just shows that

> everyone is different. I know this may not always

> be the case but I would be very sad if she ever

> grew up to feel as unhappy as the author of

> this article.

>

> I hope the article may stimulate an Oprah

> programme on Scoliosis but lets promote early

> treatment and the positive side rather than

> focusing on the negatives.

>

> Bert and Bridget

>

>

>

>

> Gail Kimball <patsmum2000@...> wrote:

>

> I posted the article that my friend took pics of

> and sent to me. It is not the greatest copy, but

> it is readable. It is in the files section of

> the main page.

>

> As I said, my opinion is that the article is

> negative. I have read on other boards that

> members thought it was inspiring, awesome, and

> needed. Yes, it is needed, but the flip side

> should be shown too. JMHO!!!!

>

> Gail Kimball <patsmum2000@...> wrote:

>

> A friend emailed me this article and all I can

> say is " OMG! I can't believe that this woman's

> parents did nothing! "

>

> I

>

> Gail

> ************************************************

> Mom to , 11/28/98 - ADHD/ODD/SID

> and , 02/02/02 - Congenital Scoliosis, VATER

> Association, Torticollis, Klippel Feil Syndrome,

> Fused Ribs, VEPTR Recipient 3/21/05, and First

> VEPTR Patient at Cincinnati Children's Hospital

>

> Put a little 'TLC' into your scrapbook!

> Independent TLC Scrapbooking Instructor

> www.topline-creations.com

>

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[Guest guest]

No, I couldn't find it either. So I went to Oprah.com, clicked on O,Magazine and sent a couple of messages to different departments. Hopefully it'll reach the powers that be. heather hyatt <heather@...> wrote: Jenn, I have searched the mag for an editor addy, but cant find one....Is it right in front of me, or (?) going crazy, HRH Re: scoliosis article in Oprah mag. Hi , actually took a trip to Ireland this last week and got to get some english magazines, believe it or not oprah. To tell you the truth, I was actually not to pleased with the article. Though I have to remember I am reading it through the eyes of a mother, and I as a mother would not have put into denial what my child needed, nor attempted to hide it. Deborah is raging her rage about her problem, and has appeared to not come to terms with what she has. I believe that if these kids are made to think positive about themselves and have the confidence to go out and tackle it with their head high, growing up with such anger and frustration as

Deborah has, will hopefully not occur. She doesn´t realize how lucky she is, there are so many of these children out there with much worse conditions and deformities, that to be so angry and in such shame for what she has, makes me realize that she has not seen too much in this world. I cannot judge her, she is the one suffering, but for those with scoliosis I only hope and pray that they will not end up with the same thoughts. We as moms are the only ones that can create a better world for these children, maybe Deborah is a good example of what happens to those whose parents attempt to hide there conditions, instead of attempting to make them feel apart of everyone else. Maybe some of us moms here on the group should write an inspirational story about our kids to Oprah, shed some light on those children that are growing up not thinking the scoliosis is something to be ashamed of, but something that makes them who they are. Well, that

was my thought on the story, hope I didn´t sound too hard on Deborah, but that is how I took the story. Hope all is well, and definatly we will see you this summer. Take care, Kelli and Santiagoheather hyatt <heather@...> wrote: Please check out the article titled "The Unlovely Bones" by Deborah , in the June issue of O magazine. She describes her life with progressive scoliosis, and how scoliosis took its toll physically and emotionally. Good reading.......Let me know what you think of the article, if you get a chance to read it.HRH Be a chatter box. Enjoy free PC-to-PC calls with

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[Guest guest]

Thanks Gail, I got it but it is teeny. I'll see if I can read it though. looks awesome cute at graduation. ShellieGail Kimball <patsmum2000@...> wrote: Shellie, I will email it to you directly. Shellie Grant <shelliegrant@...> wrote: HI Guys, I am having a terrible time getting the article. My computer won't let me open it when I download it from the group. If anyone has ideas I'm open. I would love to read it. Gail************************************************Mom to , 11/28/98 -

ADHD/ODD/SIDand , 02/02/02 - Congenital Scoliosis, VATER Association, Torticollis, Klippel Feil Syndrome, Fused Ribs, VEPTR Recipient 3/21/05, and First VEPTR Patient at Cincinnati Children's HospitalPut a little 'TLC' into your scrapbook! Independent TLC Scrapbooking Instructor www.topline-creations.com Do you ?Get on board. You're invited to try the new Beta. __________________________________________________