Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Hi, My daughter Nora, was diagnosed with CMT at age 12 and I have seen a number of changes in how she has dealt with her CMT over the years. She is now 18 and will be heading off to college in late August. I think being diagnosed at age 16 would be much more difficult for a kid than at an earlier age. Those teen years are so hard. Nora is more accepting in some ways of her CMT now than she was even a few years ago in terms of sharing the information with others. While in high school, she rarely told anyone about it. She did tell her boyfriend. Now she even makes jokes about her limitations, which would have been unthinkable a year or so ago. Of course, I worry about how she will deal with this when she goes off to college (Earlham College, a small liberal Quaker-affiliated college in Richmond, Indiana). However, as she doesn't hesitate to tell me, I have to let go and let her deal with things. ;-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2005 Report Share Posted July 17, 2005 My daughter was diagnosed when she was 6. She had a very hard time in school. She had to wear braces for 2 yrs. and was teased unmercifully by some of the kids in her class. Today she is 24 with 2 kids and is doing very well. She has never denied her condition. She has always been truthful about it although she had a hard time finding work because of her CMT. She has a job that is understanding and a fiance that loves her and the kids. Sometimes I wish that she would have been a little older when diagnosed maybe then she wouldn't have been so teased. Sharon Quote Link to comment Share on other sites More sharing options...
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