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Answers for Joanna

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Hi Joanna. We all have different experiences but share a lot too. I

was so amazed when I read what you said about being double jointed and

the ballerina tiptoe thing! I was able to stand on my toes - the flat

knuckle part like ballerina toe shoes and was/am double jointed in my

hands, etc. I just never thought about it having anything at all to do

with CMT. You said you were afraid to learn too much about CMT-it is

scary especially the not knowing what to expect with progression, pain,

etc. However, I really think that knowledge brings power and if you

are a little prepared things won't seem so terrifying. We all feel

these things-it is just such a relief to be able to share these

thoughts/feelings/experiences.

Deb

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