RE: update on summer- Kathy

[Guest guest]

You sound so positive and help put things in

perspective. I find lately I have been rationalizing

that it isn't so bad. Thankfully she doesn't have a

life threatening disease. I think you are probably

right about summer's dr being really cautious with her

meds. She is his youngest patient and he has told me

he wants to treat her conservatively. I am going to

give it to the end of Jan and if things seem the the

same or unchanged i am going to book a another appt.

prior to our monthly one. What are the side effects

with Luvox? Has anyone used this one with good

results? big Hugs Teela

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[Guest guest]

Hi Teela, I am positive primarily because I have been through what you are

going through now, and come out the other side with my daughter intact.

Deciding to treat OCD with meds in a small child is scary and a big

decision, no question. Conservative med treatment is fine so long as Summer

finds relief at low doses, but if not you may want to encourage her doctor

to consider raising her dose. We changed docs because Kel's first was only

comfortable prescribing Prozac, he'd had the most experience with this SSRI

in young kids, but for Kel this med was a disaster.

OCD is not life-threatening in the conventional sense, but it can be linked

to depression which certainly is. It also threatens quality of life and can

interfere with almost anything we humans consider important, necessary and

desireable in our life. It's a burden on anyone, but when a young child is

saddled with it, it can affect normal social development, interfere with

schooling and so on, all things that can have lifelong effects. You are

truly doing the right thing to explore every avenue to provide your daughter

relief. And as I always say, E & RP does as much or more than the meds to

reduce OCD symptoms.

Kellen took Luvox for about 10 months with good results. She had very few

side-effects on this med but it made her tired, which she never acclimated

to. This was the reason she was switched again to the Zoloft she currently

takes. Of course Summer's experience on this med may be different, it is

truly a curse IMO that finding the right SSRI and the right dose is trial

and error. Having decided to treat my daughter with an SSRI, I wanted

immediate confirmation I had made the right choice!

Kathy R in Indiana

----- Original Message -----

From: " Teela Blue " <teelablue@...>

> You sound so positive and help put things in

> perspective. I find lately I have been rationalizing

> that it isn't so bad. Thankfully she doesn't have a

> life threatening disease. I think you are probably

> right about summer's dr being really cautious with her

> meds. She is his youngest patient and he has told me

> he wants to treat her conservatively. I am going to

> give it to the end of Jan and if things seem the the

> same or unchanged i am going to book a another appt.

> prior to our monthly one. What are the side effects

> with Luvox? Has anyone used this one with good

> results? big Hugs Teela

[Guest guest]

I am definately going to start pushing for better

results with summer's dr. then. I really think her

life will be better. I want the same things for summer

that all parents want for their children and if it

takes meds then so be it. You inspire me when you say

that you have survived with your child intact! I

really like that phrase. Hugs Teela

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[Guest guest]

HI Teela:

Steve is also on Luvox, I think he is on 150 mg right now. THis dosage is

to treat his depression. He gets quite sleepy on Luvox. We tried to up

him to a more effective dosage for OCD but he complained that he felt

stupid. We noticed his OCD symptoms were less at the higher dosage. It

seems he prefers to do self-ER & P around more symptoms and stay on a lower

dosage.

Every child responds differently to meds. Starting low and going slow is

the best thing we have learned about meds. ALso check out the internet for

information on common and less common side effects. Jule also recommends

Dr. Wilens book on kids' medications. I have learned a lot about meds from

subscribing to our mother list the OCD-L where Dr. Jenike answer

medication questions regularly.

Good luck, take care, aloha, Kathy (h)

kathyh@...

At 08:18 PM 01/14/2001 -0500, you wrote:

>You sound so positive and help put things in

>perspective. I find lately I have been rationalizing

>that it isn't so bad. Thankfully she doesn't have a

>life threatening disease. I think you are probably

>right about summer's dr being really cautious with her

>meds. She is his youngest patient and he has told me

>he wants to treat her conservatively. I am going to

>give it to the end of Jan and if things seem the the

>same or unchanged i am going to book a another appt.

>prior to our monthly one. What are the side effects

>with Luvox? Has anyone used this one with good

>results? big Hugs Teela

[Guest guest]

I am a little concerned about the sleepiness I am

hearing about Luvox. Summer's dr wants to keep her on

Trazadone at night and Luvox for the daytime. I seems

she is already so emotional and not sleeping well as

it is the last thing she needs is to feel even

groggier. I will talk to him about it. Hugs Teela

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[Guest guest]

Teela,

I'm feeling the same way. just went back on Luvox and at only 50 mg

she is already complaining of the grogginess. And to top it all off, her

psychiatrist had to cancel all appointments for 3 weeks due to unexpected

back surgery. I guess this will force her to try to hang in there and see

if the side effects wear off. In the meantime, she starts with her new

therapist tomorrow. My greater hope is that through effective ER & P, maybe

she won't need the Luvox at all. The Wellbutrin and Zyprexa, along with

additional support from her dad and I seem to have been working pretty well.

Good luck.

Greta in Oregon

Re: update on summer- Kathy

I am a little concerned about the sleepiness I am

hearing about Luvox. Summer's dr wants to keep her on

Trazadone at night and Luvox for the daytime. I seems

she is already so emotional and not sleeping well as

it is the last thing she needs is to feel even

groggier. I will talk to him about it. Hugs Teela

_______________________________________________________

[Guest guest]

Hi Teela, this is Nikki in Orlando, I wanted to let you know that Luvox did not cause sleepiness in . Just the opposite, she had bad insomnia. So goes to show you that everybody responds differently. Best wishes,

Nikki

[Guest guest]

Hi Teela: Each child reacts differently to the

SSRI's. My & yr. old has taken Prozac, Paxil (2 days

only due to an extreme hyperactivity side effect) and

Celexa (for 6 weeks as it did nothing at all for his

symptoms). Although this is really scary territory,

Summer may not have a groggy reaction. I think that

Luvox is the only SSRI that has FDA approval for use

in young children. Zoloft may be close to being

approved, but I know that Luvox definitely does, which

could be why your Dr. chose this one for Summer. Hang

in there!

--- Teela Blue <teelablue@...> wrote:

> I am a little concerned about the sleepiness I am

> hearing about Luvox. Summer's dr wants to keep her

> on

> Trazadone at night and Luvox for the daytime. I

> seems

> she is already so emotional and not sleeping well as

> it is the last thing she needs is to feel even

> groggier. I will talk to him about it. Hugs Teela

>

>

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>