Guest guest Posted January 12, 2001 Report Share Posted January 12, 2001 Hi Teela, I haven't had the pleasure of sending an email to you yet, but I have been reading your posts with interest for a while now. My son, Tommy had some of the same symptoms that Summer has at precisely the same age, and it really did interfere with life, not just for the family, but for him! It was a great relief when I finally felt comfortable enough to agree to an SSRI and it began to take away so many of the issues that had become larger than life at our house. I wish that I had had the benefit of this group at that time, as his Doctors did not seem to pay much attention to my sons sensory problems, yet some of those problems were preventing him from having much quality of life. It is really great that you found this group when Summer was so young. Hang in there! --- Teela Blue <teelablue@...> wrote: > Well summer had her monthly appointment and it was a > little discouraging. the dr. myself and the daycare > have really seen a back slide in symptoms returning > for Summer and we are waiting to see if it is just > the > waxing and waning process or if she is in need of an > additional med. He is treating her very > conservatively > as she is 4 1/2 and his youngest patient. He is > talking about continuing her Trazadone at night and > starting Luvox for the morning. Her sensory issues > are > going out of control again and I am getting alot of > wild emotions and anger from her. Lots of I don't > like > you don't talk to me, don't look at me etc. summer > is > also starting to dwell on past losses such as the > Hamster that died two years ago and her grandmothers > dog who died 1 year ago and also the cat she was > afraid of and we had to find a home for as it > constantly attacked people. I am crossing my fingers > that this is just a stage but it is getting worse > daily. Hugs Teela > I would be interested in checking out the sid group > is anyone knows the address. I feel like this is a > big > part of Summer's issues also. > > _______________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2001 Report Share Posted January 13, 2001 Hi Teela, I've had a very busy few weeks with my private practice and have very little time for the list - but I have been reading along faithfully!! Don't dwell too much on the monthly appoitment being discouraging. Its a very difficult process to begin treating our kids. You know that the trazadone can help relieve some of her symptoms, so adding the Luvox may help Summer get more relief. Remind the doc that the first line of treatment for children is cbt with erp - and that meds are to augment this method of treatment (and not the meds first!) Perhaps he needs to be reminded this??? Bring some literature with you to the next appoitment! The Luvox may help calm her obsessions on death and past losses. The suggested treatment for these kind of thoughts maybe difficult for you to conduct with her, but you can try. Have her think (or maybe make a list) about everything involved in the particular thought (ie. dead hampster) and then slowly take away each thought until she can think of the situation without it causing anxiety. It takes time, so dont expect a change in a day! Most kids go through a stage where they tell us how much they dont like us!! With kids like we have, the response could be: " Why thank you! " Its not really Summer saying mean things, its a way of testing your response, and possibly the ocd telling her to check (reasurance) your commitment to her. Remember your humour! When Summer tells you not to look at her, remind her that mommy's have to look at kids - they grow so fast that we dont want to miss any moment! ;o) If she becomes oppositional, try reminding her that ocd plays tricks on her - that she is a tough kid and she needs to stand up to those mean thoughts. Try to play a game with her when she tells you to stop doing something. Like Peek-a-Boo, perhaps? I'm not sure how clear I'm being - so write if you want a more thorough explanation..... How are you doing? How exciting to hear that you're working on your G-1!! Just think of all the places you will be able to go! How long will it be until you can come here for coffee? ;o) take care, wendy in canada ============================================= >Well summer had her monthly appointment and it was a little discouraging. >the dr. myself and the daycare have really seen a back slide in symptoms >returning for Summer and we are waiting to see if it is just the waxing and >waning process or if she is in need of an >additional med. He is treating her very conservatively as she is 4 1/2 and >his youngest patient. He is talking about continuing her Trazadone at night >and starting Luvox for the morning. Her sensory issues are going out of >control again and I am getting alot of >wild emotions and anger from her. Lots of I don't like you don't talk to >me, don't look at me etc. summer is also starting to dwell on past losses >such as the Hamster that died two years ago and her grandmothers dog who >died 1 year ago and also the cat she was afraid of and we had to find a >home for as it constantly attacked people. I am crossing my fingers that >this is just a stage but it is getting worse daily. Hugs Teela > I would be interested in checking out the sid group >is anyone knows the address. I feel like this is a big >part of Summer's issues also. _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2001 Report Share Posted January 13, 2001 thanks and for responding to my post. Summer's dr wants us doing erp but he hasn't really talked about cbt. As for the dwelling on past losses he said I am to show no emotion and to change the subject so it doesn't reassert the importance of it and cause more obsessing. I guess I am a little uncomfortable with this as I want her to be able to express emotions and see emotions express as well as allow her to feel sad but I don't want her to obsess either. The other night summer was dreaming and was saying " you'll get used to it " this the term that we use when we are trying to get used to the feel of socks or other sensory issues. well that simplifies it but it is generally what is eventually said or see if you get used to it. Anyways I was a little bothered that this is what she has going on for her while she sleeps. Can our children get no peace? I am excited about my G1 and has a lesson today! Yay. I will be by for a coffee in about 12 months. Pencil me in will ya! Hugs Teela _______________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2001 Report Share Posted January 13, 2001 Hi Teela, I don't remember if anyone provided the address for the SID group but I think I remember it was also through e-groups. You can probably go to the e-groups home page and search for it there. I'm sorry to read that Summer is having worsening problems but I think you may be on the right track considering an SSRI for her. One thing an SSRI can do is smooth out the hills and valleys so Summer is not so completely at their mercy. I will caution you that some doctors are uncomfortable prescribing an SSRI for a small child at an adequate dose to reduce symptoms. An SSRI can also reduce her symptoms to a level at which she has a fair shot at successful E & RP. You may find as I did that you can successfully lower Summer's SSRI after E & RP. When experiencing anxiety, Kellen says the sort of things you describe Summer saying, and she makes short, jerky motions. This happens much less than it used to, before her OCD was adequately treated. My daughter also spent an entire year obsessing about death, which is disturbing in such a young child and I can sympathize here. I used to wish she'd wash her hands, line her things up or just about anything else rather than talk endlessly of death, also dismemberment, mutilation, etc., all things which were creepy coming from such a little girl. Given her diagnosis, I think it's unfortunately doubtful that Summer's simply going through a stage, though obsessions and compulsions can abruptly change and give this impression. I can't quote facts here, but based on our experience and others' I've read on the list, it seems young kids lead the list when it comes to quick-change O's and C's. Let us know how things go, Kathy R in Indiana ----- Original Message ----- From: " Teela Blue " <teelablue@...> > Well summer had her monthly appointment and it was a > little discouraging. the dr. myself and the daycare > have really seen a back slide in symptoms returning > for Summer and we are waiting to see if it is just the > waxing and waning process or if she is in need of an > additional med. He is treating her very conservatively > as she is 4 1/2 and his youngest patient. He is > talking about continuing her Trazadone at night and > starting Luvox for the morning. Her sensory issues are > going out of control again and I am getting alot of > wild emotions and anger from her. Lots of I don't like > you don't talk to me, don't look at me etc. summer is > also starting to dwell on past losses such as the > Hamster that died two years ago and her grandmothers > dog who died 1 year ago and also the cat she was > afraid of and we had to find a home for as it > constantly attacked people. I am crossing my fingers > that this is just a stage but it is getting worse > daily. Hugs Teela > I would be interested in checking out the sid group > is anyone knows the address. I feel like this is a big > part of Summer's issues also. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2001 Report Share Posted January 14, 2001 Kathy wrote: > change and give this impression. I can't quote facts here, but based on our > experience and others' I've read on the list, it seems young kids lead the > list when it comes to quick-change O's and C's. > Boy howdy, is this ever true for us with andra (age 7). Almost as soon as we get an exposure designed for some things, she's on to something else! Lesli Quote Link to comment Share on other sites More sharing options...
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