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Re: update on summer

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Hi Teela, I haven't had the pleasure of sending an

email to you yet, but I have been reading your posts

with interest for a while now. My son, Tommy had some

of the same symptoms that Summer has at precisely the

same age, and it really did interfere with life, not

just for the family, but for him! It was a great

relief when I finally felt comfortable enough to agree

to an SSRI and it began to take away so many of the

issues that had become larger than life at our house.

I wish that I had had the benefit of this group at

that time, as his Doctors did not seem to pay much

attention to my sons sensory problems, yet some of

those problems were preventing him from having much

quality of life. It is really great that you found

this group when Summer was so young. Hang in there!

--- Teela Blue <teelablue@...> wrote:

> Well summer had her monthly appointment and it was a

> little discouraging. the dr. myself and the daycare

> have really seen a back slide in symptoms returning

> for Summer and we are waiting to see if it is just

> the

> waxing and waning process or if she is in need of an

> additional med. He is treating her very

> conservatively

> as she is 4 1/2 and his youngest patient. He is

> talking about continuing her Trazadone at night and

> starting Luvox for the morning. Her sensory issues

> are

> going out of control again and I am getting alot of

> wild emotions and anger from her. Lots of I don't

> like

> you don't talk to me, don't look at me etc. summer

> is

> also starting to dwell on past losses such as the

> Hamster that died two years ago and her grandmothers

> dog who died 1 year ago and also the cat she was

> afraid of and we had to find a home for as it

> constantly attacked people. I am crossing my fingers

> that this is just a stage but it is getting worse

> daily. Hugs Teela

> I would be interested in checking out the sid group

> is anyone knows the address. I feel like this is a

> big

> part of Summer's issues also.

>

>

_______________________________________________________

>

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Hi Teela,

I've had a very busy few weeks with my private practice and have very

little time for the list - but I have been reading along faithfully!!

Don't dwell too much on the monthly appoitment being discouraging. Its a

very difficult process to begin treating our kids. You know that the

trazadone can help relieve some of her symptoms, so adding the Luvox may

help Summer get more relief. Remind the doc that the first line of treatment

for children is cbt with erp - and that meds are to augment this method of

treatment (and not the meds first!) Perhaps he needs to be reminded this???

Bring some literature with you to the next appoitment!

The Luvox may help calm her obsessions on death and past losses. The

suggested treatment for these kind of thoughts maybe difficult for you to

conduct with her, but you can try. Have her think (or maybe make a list)

about everything involved in the particular thought (ie. dead hampster) and

then slowly take away each thought until she can think of the situation

without it causing anxiety. It takes time, so dont expect a change in a day!

Most kids go through a stage where they tell us how much they dont like

us!! With kids like we have, the response could be: " Why thank you! " Its not

really Summer saying mean things, its a way of testing your response, and

possibly the ocd telling her to check (reasurance) your commitment to her.

Remember your humour! When Summer tells you not to look at her, remind her

that mommy's have to look at kids - they grow so fast that we dont want to

miss any moment! ;o) If she becomes oppositional, try reminding her that

ocd plays tricks on her - that she is a tough kid and she needs to stand up

to those mean thoughts. Try to play a game with her when she tells you to

stop doing something. Like Peek-a-Boo, perhaps?

I'm not sure how clear I'm being - so write if you want a more thorough

explanation.....

How are you doing? How exciting to hear that you're working on your G-1!!

Just think of all the places you will be able to go! How long will it be

until you can come here for coffee? ;o)

take care,

wendy in canada

=============================================

>Well summer had her monthly appointment and it was a little discouraging.

>the dr. myself and the daycare have really seen a back slide in symptoms

>returning for Summer and we are waiting to see if it is just the waxing and

>waning process or if she is in need of an

>additional med. He is treating her very conservatively as she is 4 1/2 and

>his youngest patient. He is talking about continuing her Trazadone at night

>and starting Luvox for the morning. Her sensory issues are going out of

>control again and I am getting alot of

>wild emotions and anger from her. Lots of I don't like you don't talk to

>me, don't look at me etc. summer is also starting to dwell on past losses

>such as the Hamster that died two years ago and her grandmothers dog who

>died 1 year ago and also the cat she was afraid of and we had to find a

>home for as it constantly attacked people. I am crossing my fingers that

>this is just a stage but it is getting worse daily. Hugs Teela

> I would be interested in checking out the sid group

>is anyone knows the address. I feel like this is a big

>part of Summer's issues also.

_________________________________________________________________________

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thanks and for responding to my post.

Summer's dr wants us doing erp but he hasn't really

talked about cbt. As for the dwelling on past losses

he said I am to show no emotion and to change the

subject so it doesn't reassert the importance of it

and cause more obsessing. I guess I am a little

uncomfortable with this as I want her to be able to

express emotions and see emotions express as well as

allow her to feel sad but I don't want her to obsess

either.

The other night summer was dreaming and was saying

" you'll get used to it " this the term that we use when

we are trying to get used to the feel of socks or

other sensory issues. well that simplifies it but it

is generally what is eventually said or see if you get

used to it. Anyways I was a little bothered that this

is what she has going on for her while she sleeps. Can

our children get no peace?

I am excited about my G1 and has a lesson today! Yay.

I will be by for a coffee in about 12 months. Pencil

me in will ya! Hugs Teela

_______________________________________________________

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Hi Teela, I don't remember if anyone provided the address for the SID group

but I think I remember it was also through e-groups. You can probably go to

the e-groups home page and search for it there.

I'm sorry to read that Summer is having worsening problems but I think you

may be on the right track considering an SSRI for her. One thing an SSRI

can do is smooth out the hills and valleys so Summer is not so completely at

their mercy. I will caution you that some doctors are uncomfortable

prescribing an SSRI for a small child at an adequate dose to reduce

symptoms. An SSRI can also reduce her symptoms to a level at which she has

a fair shot at successful E & RP. You may find as I did that you can

successfully lower Summer's SSRI after E & RP.

When experiencing anxiety, Kellen says the sort of things you describe

Summer saying, and she makes short, jerky motions. This happens much less

than it used to, before her OCD was adequately treated. My daughter also

spent an entire year obsessing about death, which is disturbing in such a

young child and I can sympathize here. I used to wish she'd wash her hands,

line her things up or just about anything else rather than talk endlessly of

death, also dismemberment, mutilation, etc., all things which were creepy

coming from such a little girl.

Given her diagnosis, I think it's unfortunately doubtful that Summer's

simply going through a stage, though obsessions and compulsions can abruptly

change and give this impression. I can't quote facts here, but based on our

experience and others' I've read on the list, it seems young kids lead the

list when it comes to quick-change O's and C's.

Let us know how things go,

Kathy R in Indiana

----- Original Message -----

From: " Teela Blue " <teelablue@...>

> Well summer had her monthly appointment and it was a

> little discouraging. the dr. myself and the daycare

> have really seen a back slide in symptoms returning

> for Summer and we are waiting to see if it is just the

> waxing and waning process or if she is in need of an

> additional med. He is treating her very conservatively

> as she is 4 1/2 and his youngest patient. He is

> talking about continuing her Trazadone at night and

> starting Luvox for the morning. Her sensory issues are

> going out of control again and I am getting alot of

> wild emotions and anger from her. Lots of I don't like

> you don't talk to me, don't look at me etc. summer is

> also starting to dwell on past losses such as the

> Hamster that died two years ago and her grandmothers

> dog who died 1 year ago and also the cat she was

> afraid of and we had to find a home for as it

> constantly attacked people. I am crossing my fingers

> that this is just a stage but it is getting worse

> daily. Hugs Teela

> I would be interested in checking out the sid group

> is anyone knows the address. I feel like this is a big

> part of Summer's issues also.

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Kathy wrote:

> change and give this impression. I can't quote facts here, but based on our

> experience and others' I've read on the list, it seems young kids lead the

> list when it comes to quick-change O's and C's.

>

Boy howdy, is this ever true for us with andra (age 7). Almost as

soon as we get an exposure designed for some things, she's on to

something else!

Lesli

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