Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 Hello Diane B. Welcome! There are other parents on this list with similar kids to Tyson - which might be a big relief to you! I also think there is another parent from Kansas City, but i'm not sure. > I'm looking at CBT but don't know if it will help the kind of obsessive thoughts Tyson has. < You definatly want to find a cognitive behavioural therapist who has experience dealing with ocd in adolesents. With obsessions, like you have described, loop tapes (a tape recording of the worst case scenario that plays continuously) is often used. Paradoxical answers are also fun to use - confirms to the kids that we are really 'nuts'!. People living with ocd learn to exhist with a certain degree of uncertainty, its that level that treatment can help with. Take care, wendy, in canada ________________________________________________________________________________\ _____ Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 Hi Diane: Welcome to the list. Most of us are parents of kids with assorted alphabet soup such as Tyson. It certainly does complicate treatment. I am well aware that SSRIs cause mania in people that are bipolar, however, they are often prescribed along with mood stabilizers, but doubt that they would be in a high enough dose to treat the ocd. I would be leary, however, of using Adderall -- it can greatly exacerbate ocd symptoms as well as tics. My son (12 with OCD, MDD, PDD-NOS, ADHD and some other things) was on Adderall and ended up in the hospital because he became so incapacitated by the anxiety and ocd symptoms. He was taken off Adderall and put on Risperdal (while continuing on Prozac) and within 24 hours he was a different person. Now, if he needs something to help him focus, he takes Ritalin, but only on an as needed basis. I have several friends with BP kids -- if you would like to contact them, email me off-list. Jule in Cleveland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 Hi! You'll see from the recent posts that I too am new here. It seems to be a wonderful, supportive place, with loads of good advise flying around, and I hope it will bring you comfort. It sounds like you and your son are having a truly terrible time. I'm sorry I'm unable to offer practical advise, but I don't have much experience to share yet! I can identify with the OCD and dysgraphia - my son has those too (he's 12). The dysgraphia is so frustrating for us - he often knows the work inside out, but getting it onto paper-----! He uses an Alphasmart quite a bit now, which seems to help, when he manages to remember to print things out then hand them in!!! Good luck in everything, and I look forward to 'meeting' you again here. Jenni in Seattle > Hi, my name is Diane and I just subscribed to the > list. I have a sixteen year old that is pretty > complicated wrt. his diagnosis's's's. He has > Tourette, ADHD, OCD, Bipolar, Dysgraphia and > likely Asperger (he hasn't been formally diagnosed > with Asperger). Of all these, the OCD is the > absolute worst and makes his life miserable every > hour of the day. It takes the form of intrusive > thoughts (that he's stolen something, that his > wrestling figures belong to someone else, etc). > Unfortunately SSRI trials have lead to > hospitalizations as they cause mania with is the > irritable, mean kind. Right now he is taking > Lithium 2400mg/day, Risperdal 1.5mg, Klonopin 1mg, > and Adderall 20 + 15/day. I know that many of you > have had similar circumstances and are very > knowledgable about treatments of OCD. I will look > forward to reading posts and getting to know you. > I am a teacher, at-risk students, at a local high > school, recently divorced, and Tyson is my only > child. I'm looking at CBT but don't know if it > will help the kind of obsessive thoughts Tyson > has. Hoping that someday there will be an OCD med > he can take! Diane Bonner, Kansas City > > > > _________________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 To those with children with writing difficulties - My son (27) has been using a speech-to-text program called ViaVoice which is put out by IBM. He is using it because he doesn't want to " contaminate " his computer by touching it when he writes, but it seems to be a prety efficient program. You have to set it up by reading certain passages into it and correcting any spelling problems before using it. I can see this program being very useful for doing homework. It comes in both PC and Mac versions. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 Jackie...this sounds so good! Thanks. I " l look it up. jackie48hr@... wrote: > To those with children with writing difficulties > - > My son (27) has been using a > speech-to-text program called ViaVoice > which is put out by IBM. He is using it because > he doesn't want to > " contaminate " his computer by touching it when > he writes, but it seems to be > a prety efficient program. You have to set it > up by reading certain passages > into it and correcting any spelling problems > before using it. I can see this > program being very useful for doing homework. > It comes in both PC and Mac > versions. > Jackie > > eGroups Sponsor [Click Here!] > > You may subscribe to the OCD-L by emailing > listserv@... . In the body of your > message write: subscribe OCD-L your name. You > may subscribe to the Parents of Adults with OCD > List at > parentsofadultswithOCD > . You may access the files, links, and > archives for our list at > . > Our list advisors are Tamar Chansky, Ph.D., and > Aureen Pinto Wagner, Ph.D. Our list moderators > are Birkhan, Kathy Hammes, Jule Monnens, > Gail Pesses, Kathy , Roman, and > Jackie Stout. Subscription issues, problems, > or suggestions may be addressed to Louis > Harkins, list owner, at louisharkins@... > . > > _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 Jule... thanks for your post. Wrt to the Adderall, we go round and round on that subject. Tyson definately needs something for his severe hyperactivity. (Increasing his Risperdal doesn't help this although Risperdal controls his tics very well... When the doctor first tried him on Adderall, Tyson felt strongly that it helped the OCD which is contrary to what we expected. At the time, his doctor thought that maybe the Adderall helped him think more clearly and that helped him fight the OCD better. But I'm not sure about that now. We did take him off during the summer, but there wasn't a great deal of change in OCD's... and of course with school starting again, and increased stress, (and adding the Adderall) the OCD is worse. The school likes the Adderall! Does anyone here know which stimulant med has the least possibility of exaserbating OCD? And is the therapeutic response to the different stimulants quite similar so that one doesn't necessarily work better than another for most people? Questions, Questions! Thanks, Diane j.monnens@... wrote: > > > Hi Diane: > > Welcome to the list. Most of us are parents of > kids with assorted alphabet soup > such as Tyson. It certainly does complicate > treatment. I am well aware that > SSRIs cause mania in people that are bipolar, > however, they are often prescribed > along with mood stabilizers, but doubt that they > would be in a high enough dose > to treat the ocd. I would be leary, however, of > using Adderall -- it can > greatly exacerbate ocd symptoms as well as > tics. My son (12 with OCD, MDD, > PDD-NOS, ADHD and some other things) was on > Adderall and ended up in the > hospital because he became so incapacitated by > the anxiety and ocd symptoms. He > was taken off Adderall and put on Risperdal > (while continuing on Prozac) and > within 24 hours he was a different person. Now, > if he needs something to help > him focus, he takes Ritalin, but only on an as > needed basis. I have several > friends with BP kids -- if you would like to > contact them, email me off-list. > > Jule in Cleveland > > > > eGroups Sponsor [Click Here!] > > You may subscribe to the OCD-L by emailing > listserv@... . In the body of your > message write: subscribe OCD-L your name. You > may subscribe to the Parents of Adults with OCD > List at > parentsofadultswithOCD > . You may access the files, links, and > archives for our list at > . > Our list advisors are Tamar Chansky, Ph.D., and > Aureen Pinto Wagner, Ph.D. Our list moderators > are Birkhan, Kathy Hammes, Jule Monnens, > Gail Pesses, Kathy , Roman, and > Jackie Stout. Subscription issues, problems, > or suggestions may be addressed to Louis > Harkins, list owner, at louisharkins@... > . > > _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2000 Report Share Posted December 6, 2000 Hello Diane and welcome to the list. With your child's complicated diagnoses, you certainly need an experienced child pharmacologist--are you happy with his doctor and the way his dxes are being treated? Was your child taking a mood stabilizer (like Lithium) while trying SSRIs? I have no personal experience here but I have read that though SSRIs can cause mania in bipolar kids, when paired with a mood stabilizer these kids can do well. If SSRIs are not an option, his other route to relief from OCD symptoms is Exposure and Response Prevention which can be used to diminish obsessive thoughts as well as ritual compulsions. This can take the form of loop tapes, on which the obsessive scenerio is played out, your son listens to this until his anxiety falls and he is bored with it. Kathy R. in Indiana new to list --hello! > Hi, my name is Diane and I just subscribed to the > list. I have a sixteen year old that is pretty > complicated wrt. his diagnosis's's's. He has > Tourette, ADHD, OCD, Bipolar, Dysgraphia and > likely Asperger (he hasn't been formally diagnosed > with Asperger). Of all these, the OCD is the > absolute worst and makes his life miserable every > hour of the day. It takes the form of intrusive > thoughts (that he's stolen something, that his > wrestling figures belong to someone else, etc). > Unfortunately SSRI trials have lead to > hospitalizations as they cause mania with is the > irritable, mean kind. Right now he is taking > Lithium 2400mg/day, Risperdal 1.5mg, Klonopin 1mg, > and Adderall 20 + 15/day. I know that many of you > have had similar circumstances and are very > knowledgable about treatments of OCD. I will look > forward to reading posts and getting to know you. > I am a teacher, at-risk students, at a local high > school, recently divorced, and Tyson is my only > child. I'm looking at CBT but don't know if it > will help the kind of obsessive thoughts Tyson > has. Hoping that someday there will be an OCD med > he can take! Diane Bonner, Kansas City > > > > > _________________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2000 Report Share Posted December 7, 2000 Diane- Josh is ADHD & OCD--He takes Resperdal & we add in Ritalin to get rid of some of the eating & Boost it's effect. He also takes Prozac at night. We do still get meltdowns..But the ODC seems to be much less. more managable. Unfortunately it is more to take..but with low doses spread out..it seems to be working...Joy -- Joy- Mom to 13 (CP, Mosaic for s Syndrome, Bilateral Cataracts-left eye / IOL & Developmental delays ) & Josh 11 ( SID, OCD, ADHD) PATH Parent Resource Library- CT From: Diane Bonner <dianebonner_2000@...> Jule... thanks for your post. Wrt to the Adderall, we go round and round on that subject. Tyson definately needs something for his severe hyperactivity. (Increasing his Risperdal doesn't help this although Risperdal controls his tics very well... When the doctor first tried him on Adderall, Tyson felt strongly that it helped the OCD which is contrary to what we expected. At the time, his doctor thought that maybe the Adderall helped him think more clearly and that helped him fight the OCD better. But I'm not sure about that now. We did take him off during the summer, but there wasn't a great deal of change in OCD's... and of course with school starting again, and increased stress, (and adding the Adderall) the OCD is worse. The school likes the Adderall! Does anyone here know which stimulant med has the least possibility of exaserbating OCD? And is the therapeutic response to the different stimulants quite similar so that one doesn't necessarily work better than another for most people? Questions, Questions! Thanks, Diane Quote Link to comment Share on other sites More sharing options...
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