the latest saga

[Guest guest]

So, Owen's brace no longer fits (he's been out of it

since mid-Janurary to heal from surgery. I thought

that our local Shriners, since we have been there

already, would be able to make Owen a new brace to

wear until he is able to be casted. Our orthotist

said he could do it, but he would need an order from

the doctor (the one who said not to bother and just go

to the surgeon) So I called for the doctor and

basically convinced the nurse to get a new order for

us for a new brace- after 15 minutes of persuading.

All good, or so I thought. She calls me back saying

that his medical records are " off site " and may have

been closed since we are getting treatment from SLC.

umph. I thought I was getting somewhere, but no. By

the time they get the records (from wherever they

are), review them, do an office visit, write the

order, make the brace,... we will likely be a couple

of weeks away from the cast! nothing is ever easy.

As for flying with the ear infection- we told them we

could drive (that was our intial plan anyway) so

that's definitely not why they cancelled us. I think

they are just scared to do it. Which certainly

doesn't comfort me that much!

Thanks again for the support. It is very hard to get

family and friends to understand what it is like to

have a medically 'complicated' child. The stress and

concern. It's nice to know that there are people out

there who understand how much energy and emotion goes

into caring for our kids. And how something as

seemingly minor as postponing a treatment can really

throw you for a loop. So thanks to you all for

listening, as you are my electronic journal today.

allison

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