Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 >Many have concerns about what would happen with increased government control of health programs on the example of Medicaid, but that concern is really about the problem of corruption, "regulatory capture"-- meaning that industry now controls our regulatory agencies-- and the revolving door between government and industry.< And the same industry is trying to make access to natural products illegal. Take away our right to choose something besides their poisons! It is all so corrupt and I doubt it will ever change. I heard that if the national health care is passed they will force ALL of us to go to the "doctor" and believe me there is ullterior motives. They want us all on their psycotropic, alzherimer's causing, cancer causing drugs. C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2008 Report Share Posted June 5, 2008 "Here is a group working for health care in New York State. Clearly, we need a national plan. These stories are incredibly moving and horrifying."These stories are moving, and there are millions more.The other issue is that our health care system is gradually demolishing the nation's industrial base.General Motors largest supplier is health insurance, and it has to cover not only workers on the line but vast numbers of retired workers. You have to assume the same for Ford and Chrysler. It's estimated that this adds about $2,500 at least to the cost of each car.This "health care tax" is not levied on Mercedes Benz or Toyota. Even in the US plants that make some of their products, the workers are fresh hires, and there are no armies of pensioners with health care needs. Toyota, by the way, is earning a reputation for getting rid of employees at US plants with health care problems.In essence, we "tax" domestic industries, and subsidize foreign competition. The corrosive effect of this aberrant health care system is demolishing the industrial base of the nation.JB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2009 Report Share Posted June 28, 2009 this does border on political talk and I say that because everyone has a different viewpoint about this healthcare bill that's before Congress now. Also I have asked before that broadcast emails not be sent to the group. If the email is PID specific and can apply to treatment related to immune deficiency then it should be sent directly to the group. This email was dessiminated amongst 5 different groups that are no where near related to each other. Ursula Holleman - wearing the moderator hat. ________________________________ > BipolarParentsT ; bphomeschoolers@...; bBpparent4@...; OurBPKids ; > From: mother5590@... > Date: Sun, 28 Jun 2009 10:16:12 -0700 > Subject: Health CARE > > > > > > > > > > > > > > > > > > > > > > > > > > > > I hope it is OK for me to pass my story on to each of you. I feel an urgency that each of you in my opinion may relate to in some way. > > I am personally disabled ( spinal cord injury) > > and the parent of two children with complex disabilities from birth. > > These are NO fault of their own. But we all have a life of potential > > roadblocks due to the lack of services and expense of their care in Oklahoma and across our country. > > I am on Social Security Disability Insurance and want to return to work as an RN but cannot. If I take advantage of my disability policy through AFLAC or the Social Security > > " Ticket to Work " plan I would lose my sons insurance. I am on > > Medicare and am not getting the care I need because of the cost of > > co-pays with my income on Social Security being inadequate to live. > > AND....I recently had to move my children back to Washington state to > > receive healthcare that they cannot receive here in Oklahoma. I am > > still here waiting to > > sell my home separated from my family. > > For these reasons I have become > > active in an Organization I would like each of you to become aware of. > > It is the National Patient Advocate Foundation. They have fielded 9 million calls this year and have helped 48,000 people by advocating for patients through case managers > > or paying out co-pays and deductibles or negotiating with hospitals or > > providers regarding payment or services. If you know someone who needs > > help or want to volunteer please contact : > > Patient Advocate Foundation > > > > 700 Thimble Shoals Blvd., Suite > > 200 > > Newport News, > > VA 23606 > > 757-952-1371 > > 1-800-532-5274 > > 757-952-2475 fax > > www.patientadvocate.org > > > > I had the privilege this week to visit Washington DC > > and met with our Representatives both from Oklahoma and Washington > > State with the support and on > > behalf of the Patient Advocates Foundation. Here is the message we gave. > > > > 1. PASS a health care plan THIS year and implement it in 2010. ( the current plan will not go into effect until 2013 or 2014. ( unacceptable)******* > > > > 2. Eliminate ALL > > pre-existing clauses for ALL Americans so that we can ALL pursue our dreams and become > > productive citizens in the United States of America. ( this seems to have non partisan support) > > > > 3. > > CAP copays and deductibles so that we can each individually pay for our > > health care based on our incomes. ( possibly around 2-10% of income) > > > > My story is complex and I believe exemplifies the stories of MANY Americans in one way or another. > > I > > also learned that 64% of all bankruptcies in America are for Medical > > reasons. And that up to 50% of foreclosures were caused in part by > > medical bills. > > Problems around Health Care > > are pervasive in our country we need to give it the energy it needs > > right now in creating a system that can help each of us move forward in > > our lives. > > > > PLEASE call your Representatives in Washington > > and let them know that you want our children to have a future and to be > > able to choose their futures and not be encumbered by the roadblocks of > > the lack of health care in their lives. > > > > http://www.house.gov AND http://www.senate.gov to express your story and to implore them to pass a bill this year. Remember to address all 3 KEY issues that I outlined above. > > > > Together we can be heard!!!! > > > > Sincerely, > > Barbie Jimenez, Broken Arrow, OK > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2009 Report Share Posted June 28, 2009 I had NO intention of being offensive but have been with this group for over 10 years and have watched so many struggle with healtcare issues. I wanted to make sure people knew what was happening out there and how my personal experience had translated into being able to find an advocacy group as well as an opportunity to speak out with my Representatives. There is NO political slant on my email. It is up to the person to share what they will with their Representatives. But there is urgency to express their opinion if there is a belief we need to pass legislation this year. It is hard to know what is unacceptable sometimes with this group. I have seen some unusual situations that have been called out that I did not understand over the years. So again sorry for sharing my excitement about the power of Democracy in our country. BARBIEÂ Â From: Ursula Holleman <uahollem@...> Subject: RE: Health CARE Date: Sunday, June 28, 2009, 3:03 PM this does border on political talk and I say that because everyone has a different viewpoint about this healthcare bill that's before Congress now. Also I have asked before that broadcast emails not be sent to the group. If the email is PID specific and can apply to treatment related to immune deficiency then it should be sent directly to the group. This email was dessiminated amongst 5 different groups that are no where near related to each other. Ursula Holleman - wearing the moderator hat. ____________ _________ _________ __ > BipolarParentsT; bphomeschoolers@ my.bpkids. org; bBpparent4my (DOT) bpkids.org; OurBPKids@grou ps.com; groups (DOT) com > From: mother5590 (DOT) com > Date: Sun, 28 Jun 2009 10:16:12 -0700 > Subject: Health CARE > > > > > > > > > > > > > > > > > > > > > > > > > > > > I hope it is OK for me to pass my story on to each of you. I feel an urgency that each of you in my opinion may relate to in some way. > > I am personally disabled ( spinal cord injury) > > and the parent of two children with complex disabilities from birth. > > These are NO fault of their own. But we all have a life of potential > > roadblocks due to the lack of services and expense of their care in Oklahoma and across our country. > > I am on Social Security Disability Insurance and want to return to work as an RN but cannot. If I take advantage of my disability policy through AFLAC or the Social Security > > " Ticket to Work " plan I would lose my sons insurance. I am on > > Medicare and am not getting the care I need because of the cost of > > co-pays with my income on Social Security being inadequate to live. > > AND....I recently had to move my children back to Washington state to > > receive healthcare that they cannot receive here in Oklahoma. I am > > still here waiting to > > sell my home separated from my family. > > For these reasons I have become > > active in an Organization I would like each of you to become aware of. > > It is the National Patient Advocate Foundation. They have fielded 9 million calls this year and have helped 48,000 people by advocating for patients through case managers > > or paying out co-pays and deductibles or negotiating with hospitals or > > providers regarding payment or services. If you know someone who needs > > help or want to volunteer please contact : > > Patient Advocate Foundation > > > > 700 Thimble Shoals Blvd., Suite > > 200 > > Newport News, > > VA 23606 > > 757-952-1371 > > 1-800-532-5274 > > 757-952-2475 fax > > www.patientadvocate .org > > > > I had the privilege this week to visit Washington DC > > and met with our Representatives both from Oklahoma and Washington > > State with the support and on > > behalf of the Patient Advocates Foundation. Here is the message we gave. > > > > 1. PASS a health care plan THIS year and implement it in 2010. ( the current plan will not go into effect until 2013 or 2014. ( unacceptable) ******* > > > > 2. Eliminate ALL > > pre-existing clauses for ALL Americans so that we can ALL pursue our dreams and become > > productive citizens in the United States of America. ( this seems to have non partisan support) > > > > 3. > > CAP copays and deductibles so that we can each individually pay for our > > health care based on our incomes. ( possibly around 2-10% of income) > > > > My story is complex and I believe exemplifies the stories of MANY Americans in one way or another. > > I > > also learned that 64% of all bankruptcies in America are for Medical > > reasons. And that up to 50% of foreclosures were caused in part by > > medical bills. > > Problems around Health Care > > are pervasive in our country we need to give it the energy it needs > > right now in creating a system that can help each of us move forward in > > our lives. > > > > PLEASE call your Representatives in Washington > > and let them know that you want our children to have a future and to be > > able to choose their futures and not be encumbered by the roadblocks of > > the lack of health care in their lives. > > > > http://www.house. gov AND http://www.senate. gov to express your story and to implore them to pass a bill this year. Remember to address all 3 KEY issues that I outlined above. > > > > Together we can be heard!!!! > > > > Sincerely, > > Barbie Jimenez, Broken Arrow, OK > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2009 Report Share Posted June 28, 2009 I completely agree that this is political. If you want to email me personally on my beliefs, please feel free but I'm guessing Ursula doesn't want that to continue on here. Thank you Ursula for stopping something before it turned into a heated debate - there are many other places to have such a discussion but here shouldn't be one of them. Mom to , 6 - mito causing lots of issues including ID Meredith, 4 - mito causing lots of issues including ID , 9 - healthy Baby Madison - coming in less than 5 weeks at this point - yay! From: [mailto: ] On Behalf Of Barbara Jimenez Sent: Sunday, June 28, 2009 4:35 PM Subject: RE: Health CARE I had NO intention of being offensive but have been with this group for over 10 years and have watched so many struggle with healtcare issues. I wanted to make sure people knew what was happening out there and how my personal experience had translated into being able to find an advocacy group as well as an opportunity to speak out with my Representatives. There is NO political slant on my email. It is up to the person to share what they will with their Representatives. But there is urgency to express their opinion if there is a belief we need to pass legislation this year. It is hard to know what is unacceptable sometimes with this group. I have seen some unusual situations that have been called out that I did not understand over the years. So again sorry for sharing my excitement about the power of Democracy in our country. BARBIE From: Ursula Holleman <uahollem@... <mailto:uahollem%40msn.com> > Subject: RE: Health CARE <mailto:%40> Date: Sunday, June 28, 2009, 3:03 PM this does border on political talk and I say that because everyone has a different viewpoint about this healthcare bill that's before Congress now. Also I have asked before that broadcast emails not be sent to the group. If the email is PID specific and can apply to treatment related to immune deficiency then it should be sent directly to the group. This email was dessiminated amongst 5 different groups that are no where near related to each other. Ursula Holleman - wearing the moderator hat. ____________ _________ _________ __ > BipolarParentsT; bphomeschoolers@ my.bpkids. org; bBpparent4my (DOT) bpkids.org; OurBPKids@grou ps.com; groups (DOT) com > From: mother5590 (DOT) com > Date: Sun, 28 Jun 2009 10:16:12 -0700 > Subject: Health CARE > > > > > > > > > > > > > > > > > > > > > > > > > > > > I hope it is OK for me to pass my story on to each of you. I feel an urgency that each of you in my opinion may relate to in some way. > > I am personally disabled ( spinal cord injury) > > and the parent of two children with complex disabilities from birth. > > These are NO fault of their own. But we all have a life of potential > > roadblocks due to the lack of services and expense of their care in Oklahoma and across our country. > > I am on Social Security Disability Insurance and want to return to work as an RN but cannot. If I take advantage of my disability policy through AFLAC or the Social Security > > " Ticket to Work " plan I would lose my sons insurance. I am on > > Medicare and am not getting the care I need because of the cost of > > co-pays with my income on Social Security being inadequate to live. > > AND....I recently had to move my children back to Washington state to > > receive healthcare that they cannot receive here in Oklahoma. I am > > still here waiting to > > sell my home separated from my family. > > For these reasons I have become > > active in an Organization I would like each of you to become aware of. > > It is the National Patient Advocate Foundation. They have fielded 9 million calls this year and have helped 48,000 people by advocating for patients through case managers > > or paying out co-pays and deductibles or negotiating with hospitals or > > providers regarding payment or services. If you know someone who needs > > help or want to volunteer please contact : > > Patient Advocate Foundation > > > > 700 Thimble Shoals Blvd., Suite > > 200 > > Newport News, > > VA 23606 > > 757-952-1371 > > 1-800-532-5274 > > 757-952-2475 fax > > www.patientadvocate .org > > > > I had the privilege this week to visit Washington DC > > and met with our Representatives both from Oklahoma and Washington > > State with the support and on > > behalf of the Patient Advocates Foundation. Here is the message we gave. > > > > 1. PASS a health care plan THIS year and implement it in 2010. ( the current plan will not go into effect until 2013 or 2014. ( unacceptable) ******* > > > > 2. Eliminate ALL > > pre-existing clauses for ALL Americans so that we can ALL pursue our dreams and become > > productive citizens in the United States of America. ( this seems to have non partisan support) > > > > 3. > > CAP copays and deductibles so that we can each individually pay for our > > health care based on our incomes. ( possibly around 2-10% of income) > > > > My story is complex and I believe exemplifies the stories of MANY Americans in one way or another. > > I > > also learned that 64% of all bankruptcies in America are for Medical > > reasons. And that up to 50% of foreclosures were caused in part by > > medical bills. > > Problems around Health Care > > are pervasive in our country we need to give it the energy it needs > > right now in creating a system that can help each of us move forward in > > our lives. > > > > PLEASE call your Representatives in Washington > > and let them know that you want our children to have a future and to be > > able to choose their futures and not be encumbered by the roadblocks of > > the lack of health care in their lives. > > > > http://www.house. gov AND http://www.senate. gov to express your story and to implore them to pass a bill this year. Remember to address all 3 KEY issues that I outlined above. > > > > Together we can be heard!!!! > > > > Sincerely, > > Barbie Jimenez, Broken Arrow, OK > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2009 Report Share Posted June 28, 2009 I completely agree that this is political. If you want to email me personally on my beliefs, please feel free but I'm guessing Ursula doesn't want that to continue on here. Thank you Ursula for stopping something before it turned into a heated debate - there are many other places to have such a discussion but here shouldn't be one of them. Mom to , 6 - mito causing lots of issues including ID Meredith, 4 - mito causing lots of issues including ID , 9 - healthy Baby Madison - coming in less than 5 weeks at this point - yay! From: [mailto: ] On Behalf Of Barbara Jimenez Sent: Sunday, June 28, 2009 4:35 PM Subject: RE: Health CARE I had NO intention of being offensive but have been with this group for over 10 years and have watched so many struggle with healtcare issues. I wanted to make sure people knew what was happening out there and how my personal experience had translated into being able to find an advocacy group as well as an opportunity to speak out with my Representatives. There is NO political slant on my email. It is up to the person to share what they will with their Representatives. But there is urgency to express their opinion if there is a belief we need to pass legislation this year. It is hard to know what is unacceptable sometimes with this group. I have seen some unusual situations that have been called out that I did not understand over the years. So again sorry for sharing my excitement about the power of Democracy in our country. BARBIE From: Ursula Holleman <uahollem@... <mailto:uahollem%40msn.com> > Subject: RE: Health CARE <mailto:%40> Date: Sunday, June 28, 2009, 3:03 PM this does border on political talk and I say that because everyone has a different viewpoint about this healthcare bill that's before Congress now. Also I have asked before that broadcast emails not be sent to the group. If the email is PID specific and can apply to treatment related to immune deficiency then it should be sent directly to the group. This email was dessiminated amongst 5 different groups that are no where near related to each other. Ursula Holleman - wearing the moderator hat. ____________ _________ _________ __ > BipolarParentsT; bphomeschoolers@ my.bpkids. org; bBpparent4my (DOT) bpkids.org; OurBPKids@grou ps.com; groups (DOT) com > From: mother5590 (DOT) com > Date: Sun, 28 Jun 2009 10:16:12 -0700 > Subject: Health CARE > > > > > > > > > > > > > > > > > > > > > > > > > > > > I hope it is OK for me to pass my story on to each of you. I feel an urgency that each of you in my opinion may relate to in some way. > > I am personally disabled ( spinal cord injury) > > and the parent of two children with complex disabilities from birth. > > These are NO fault of their own. But we all have a life of potential > > roadblocks due to the lack of services and expense of their care in Oklahoma and across our country. > > I am on Social Security Disability Insurance and want to return to work as an RN but cannot. If I take advantage of my disability policy through AFLAC or the Social Security > > " Ticket to Work " plan I would lose my sons insurance. I am on > > Medicare and am not getting the care I need because of the cost of > > co-pays with my income on Social Security being inadequate to live. > > AND....I recently had to move my children back to Washington state to > > receive healthcare that they cannot receive here in Oklahoma. I am > > still here waiting to > > sell my home separated from my family. > > For these reasons I have become > > active in an Organization I would like each of you to become aware of. > > It is the National Patient Advocate Foundation. They have fielded 9 million calls this year and have helped 48,000 people by advocating for patients through case managers > > or paying out co-pays and deductibles or negotiating with hospitals or > > providers regarding payment or services. If you know someone who needs > > help or want to volunteer please contact : > > Patient Advocate Foundation > > > > 700 Thimble Shoals Blvd., Suite > > 200 > > Newport News, > > VA 23606 > > 757-952-1371 > > 1-800-532-5274 > > 757-952-2475 fax > > www.patientadvocate .org > > > > I had the privilege this week to visit Washington DC > > and met with our Representatives both from Oklahoma and Washington > > State with the support and on > > behalf of the Patient Advocates Foundation. Here is the message we gave. > > > > 1. PASS a health care plan THIS year and implement it in 2010. ( the current plan will not go into effect until 2013 or 2014. ( unacceptable) ******* > > > > 2. Eliminate ALL > > pre-existing clauses for ALL Americans so that we can ALL pursue our dreams and become > > productive citizens in the United States of America. ( this seems to have non partisan support) > > > > 3. > > CAP copays and deductibles so that we can each individually pay for our > > health care based on our incomes. ( possibly around 2-10% of income) > > > > My story is complex and I believe exemplifies the stories of MANY Americans in one way or another. > > I > > also learned that 64% of all bankruptcies in America are for Medical > > reasons. And that up to 50% of foreclosures were caused in part by > > medical bills. > > Problems around Health Care > > are pervasive in our country we need to give it the energy it needs > > right now in creating a system that can help each of us move forward in > > our lives. > > > > PLEASE call your Representatives in Washington > > and let them know that you want our children to have a future and to be > > able to choose their futures and not be encumbered by the roadblocks of > > the lack of health care in their lives. > > > > http://www.house. gov AND http://www.senate. gov to express your story and to implore them to pass a bill this year. Remember to address all 3 KEY issues that I outlined above. > > > > Together we can be heard!!!! > > > > Sincerely, > > Barbie Jimenez, Broken Arrow, OK > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2009 Report Share Posted June 28, 2009 sorry you feel that way. I had no political intent. I express NO side except for struggle for existence for myself and my children. BARBIE  From: Ursula Holleman <uahollemmsn (DOT) com <mailto:uahollem% 40msn.com> > Subject: RE: Health CARE groups (DOT) com <mailto:% 40groups. com> Date: Sunday, June 28, 2009, 3:03 PM this does border on political talk and I say that because everyone has a different viewpoint about this healthcare bill that's before Congress now. Also I have asked before that broadcast emails not be sent to the group. If the email is PID specific and can apply to treatment related to immune deficiency then it should be sent directly to the group. This email was dessiminated amongst 5 different groups that are no where near related to each other. Ursula Holleman - wearing the moderator hat. ____________ _________ _________ __ > BipolarParentsT; bphomeschoolers@ my.bpkids. org; bBpparent4my (DOT) bpkids.org; OurBPKids@grou ps.com; groups (DOT) com > From: mother5590 (DOT) com > Date: Sun, 28 Jun 2009 10:16:12 -0700 > Subject: Health CARE > > > > > > > > > > > > > > > > > > > > > > > > > > > > I hope it is OK for me to pass my story on to each of you. I feel an urgency that each of you in my opinion may relate to in some way. > > I am personally disabled ( spinal cord injury) > > and the parent of two children with complex disabilities from birth. > > These are NO fault of their own. But we all have a life of potential > > roadblocks due to the lack of services and expense of their care in Oklahoma and across our country. > > I am on Social Security Disability Insurance and want to return to work as an RN but cannot. If I take advantage of my disability policy through AFLAC or the Social Security > > " Ticket to Work " plan I would lose my sons insurance. I am on > > Medicare and am not getting the care I need because of the cost of > > co-pays with my income on Social Security being inadequate to live. > > AND....I recently had to move my children back to Washington state to > > receive healthcare that they cannot receive here in Oklahoma. I am > > still here waiting to > > sell my home separated from my family. > > For these reasons I have become > > active in an Organization I would like each of you to become aware of. > > It is the National Patient Advocate Foundation. They have fielded 9 million calls this year and have helped 48,000 people by advocating for patients through case managers > > or paying out co-pays and deductibles or negotiating with hospitals or > > providers regarding payment or services. If you know someone who needs > > help or want to volunteer please contact : > > Patient Advocate Foundation > > > > 700 Thimble Shoals Blvd., Suite > > 200 > > Newport News, > > VA 23606 > > 757-952-1371 > > 1-800-532-5274 > > 757-952-2475 fax > > www.patientadvocate .org > > > > I had the privilege this week to visit Washington DC > > and met with our Representatives both from Oklahoma and Washington > > State with the support and on > > behalf of the Patient Advocates Foundation. Here is the message we gave. > > > > 1. PASS a health care plan THIS year and implement it in 2010. ( the current plan will not go into effect until 2013 or 2014. ( unacceptable) ******* > > > > 2. Eliminate ALL > > pre-existing clauses for ALL Americans so that we can ALL pursue our dreams and become > > productive citizens in the United States of America. ( this seems to have non partisan support) > > > > 3. > > CAP copays and deductibles so that we can each individually pay for our > > health care based on our incomes. ( possibly around 2-10% of income) > > > > My story is complex and I believe exemplifies the stories of MANY Americans in one way or another. > > I > > also learned that 64% of all bankruptcies in America are for Medical > > reasons. And that up to 50% of foreclosures were caused in part by > > medical bills. > > Problems around Health Care > > are pervasive in our country we need to give it the energy it needs > > right now in creating a system that can help each of us move forward in > > our lives. > > > > PLEASE call your Representatives in Washington > > and let them know that you want our children to have a future and to be > > able to choose their futures and not be encumbered by the roadblocks of > > the lack of health care in their lives. > > > > http://www.house. gov AND http://www.senate. gov to express your story and to implore them to pass a bill this year. Remember to address all 3 KEY issues that I outlined above. > > > > Together we can be heard!!!! > > > > Sincerely, > > Barbie Jimenez, Broken Arrow, OK > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2009 Report Share Posted June 28, 2009 sorry you feel that way. I had no political intent. I express NO side except for struggle for existence for myself and my children. BARBIE  From: Ursula Holleman <uahollemmsn (DOT) com <mailto:uahollem% 40msn.com> > Subject: RE: Health CARE groups (DOT) com <mailto:% 40groups. com> Date: Sunday, June 28, 2009, 3:03 PM this does border on political talk and I say that because everyone has a different viewpoint about this healthcare bill that's before Congress now. Also I have asked before that broadcast emails not be sent to the group. If the email is PID specific and can apply to treatment related to immune deficiency then it should be sent directly to the group. This email was dessiminated amongst 5 different groups that are no where near related to each other. Ursula Holleman - wearing the moderator hat. ____________ _________ _________ __ > BipolarParentsT; bphomeschoolers@ my.bpkids. org; bBpparent4my (DOT) bpkids.org; OurBPKids@grou ps.com; groups (DOT) com > From: mother5590 (DOT) com > Date: Sun, 28 Jun 2009 10:16:12 -0700 > Subject: Health CARE > > > > > > > > > > > > > > > > > > > > > > > > > > > > I hope it is OK for me to pass my story on to each of you. I feel an urgency that each of you in my opinion may relate to in some way. > > I am personally disabled ( spinal cord injury) > > and the parent of two children with complex disabilities from birth. > > These are NO fault of their own. But we all have a life of potential > > roadblocks due to the lack of services and expense of their care in Oklahoma and across our country. > > I am on Social Security Disability Insurance and want to return to work as an RN but cannot. If I take advantage of my disability policy through AFLAC or the Social Security > > " Ticket to Work " plan I would lose my sons insurance. I am on > > Medicare and am not getting the care I need because of the cost of > > co-pays with my income on Social Security being inadequate to live. > > AND....I recently had to move my children back to Washington state to > > receive healthcare that they cannot receive here in Oklahoma. I am > > still here waiting to > > sell my home separated from my family. > > For these reasons I have become > > active in an Organization I would like each of you to become aware of. > > It is the National Patient Advocate Foundation. They have fielded 9 million calls this year and have helped 48,000 people by advocating for patients through case managers > > or paying out co-pays and deductibles or negotiating with hospitals or > > providers regarding payment or services. If you know someone who needs > > help or want to volunteer please contact : > > Patient Advocate Foundation > > > > 700 Thimble Shoals Blvd., Suite > > 200 > > Newport News, > > VA 23606 > > 757-952-1371 > > 1-800-532-5274 > > 757-952-2475 fax > > www.patientadvocate .org > > > > I had the privilege this week to visit Washington DC > > and met with our Representatives both from Oklahoma and Washington > > State with the support and on > > behalf of the Patient Advocates Foundation. Here is the message we gave. > > > > 1. PASS a health care plan THIS year and implement it in 2010. ( the current plan will not go into effect until 2013 or 2014. ( unacceptable) ******* > > > > 2. Eliminate ALL > > pre-existing clauses for ALL Americans so that we can ALL pursue our dreams and become > > productive citizens in the United States of America. ( this seems to have non partisan support) > > > > 3. > > CAP copays and deductibles so that we can each individually pay for our > > health care based on our incomes. ( possibly around 2-10% of income) > > > > My story is complex and I believe exemplifies the stories of MANY Americans in one way or another. > > I > > also learned that 64% of all bankruptcies in America are for Medical > > reasons. And that up to 50% of foreclosures were caused in part by > > medical bills. > > Problems around Health Care > > are pervasive in our country we need to give it the energy it needs > > right now in creating a system that can help each of us move forward in > > our lives. > > > > PLEASE call your Representatives in Washington > > and let them know that you want our children to have a future and to be > > able to choose their futures and not be encumbered by the roadblocks of > > the lack of health care in their lives. > > > > http://www.house. gov AND http://www.senate. gov to express your story and to implore them to pass a bill this year. Remember to address all 3 KEY issues that I outlined above. > > > > Together we can be heard!!!! > > > > Sincerely, > > Barbie Jimenez, Broken Arrow, OK > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2009 Report Share Posted June 29, 2009 I hope we all understand what is at stake here. Like it or not we are looking at an entirely new healthcare system with our new president. The rules are going to change. there is no questioning that. I see that we as a PIDD community have two choices. We can get involved in the fray or be left at the station when the train leaves. Just sticking our heads in the sand thinking it will not happen is not a logical option for any of us. We been unsuccessfully trying for three years to get the change made in Medicare. We have tried to get Medicare change from what most people in or out of the PIDD community publicly agree was an unintended consequence of bad legislation. The reason our bill is so important now is, that it get included with any new healthcare legislation. If we don't get our IgG Medicare Access bill into the new legislation, we could all be in the same board as the current Medicare problem . . no home infusions. That's all of us, private insurance too . . . . not just those on Medicare will have to go to a hospital for our infusions forever. What we are looking for is to get our bill (S701 HR2002) included in the new legislation . . what happens in the new legislation could effect all PID patients, not just those on Medicare. It is much easier on us to get right in the original bill than to have to try and get it changed down the road. Please everyone. It is important that your congressional representative and both senators hear for each of you and as many of you friends and relatives as you can muster. It is happening now . . not later. pick up the phone and call their office and leave a message with the healthcare aid. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2009 Report Share Posted June 29, 2009 I hope we all understand what is at stake here. Like it or not we are looking at an entirely new healthcare system with our new president. The rules are going to change. there is no questioning that. I see that we as a PIDD community have two choices. We can get involved in the fray or be left at the station when the train leaves. Just sticking our heads in the sand thinking it will not happen is not a logical option for any of us. We been unsuccessfully trying for three years to get the change made in Medicare. We have tried to get Medicare change from what most people in or out of the PIDD community publicly agree was an unintended consequence of bad legislation. The reason our bill is so important now is, that it get included with any new healthcare legislation. If we don't get our IgG Medicare Access bill into the new legislation, we could all be in the same board as the current Medicare problem . . no home infusions. That's all of us, private insurance too . . . . not just those on Medicare will have to go to a hospital for our infusions forever. What we are looking for is to get our bill (S701 HR2002) included in the new legislation . . what happens in the new legislation could effect all PID patients, not just those on Medicare. It is much easier on us to get right in the original bill than to have to try and get it changed down the road. Please everyone. It is important that your congressional representative and both senators hear for each of you and as many of you friends and relatives as you can muster. It is happening now . . not later. pick up the phone and call their office and leave a message with the healthcare aid. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2009 Report Share Posted June 30, 2009 Heathcare and politics go hand in hand--trying to separate them is doing a disservice to the members of the group, as many of the problems we go through in trying to access the healthcare we need could be solved by the getting laws that we need passed--problems solved by 'politics'. It's extremely important that we all come together and share information and ideas on how to access the medical care we need--this way, maybe someone else won't have to suffer as much because we can learn through each other's story. Anyone who is offended by political discussions is trying to bury their head in the sand. The reason big coporations spend thousands of dollars on lobbyists every years is because getting laws passed in their favor helps their business--patients should be joining together to do the same thing. Since we can't afford lobbyists, then we have to do it the old fashioned way--pounding the payment ourselves. We can't escape law--it's the basic foundation through which a civilization functions. What we need to do, is to shape the law so that it's condusive to the needs of the people its serving--specifically in our case, write better laws so those who need medical care can get the medical care that they need. Right now, most of the laws on the books are written to support the business interests of the insurance companies, and not the needs of the people. It's going to be a fight to change this. We PID patients can help guide the way these laws should be written due to our extensive experience in the healthcare industry. It's okay if we don't all agree--our experiences have been different, we're not all going to have the same thing to say. This makes it all the more important that we speak up and 'disagree' with one another, so that we can learn from one another in the process. It makes me feel priviledged to belong to a group where a member has dedecicated so much of her time and effort to help her fellow man by fighting to get better laws past for us--in inspite of so much personal suffering. Thank you for taking so much time to meet with representatives in Congress. Thank you for taking the time to wage this fight. We need as many warriors as we can right now, and I'm very grateful to have such a dedicated one on our side. It's time to bring politics back to the people, and this will only happen if the people stand up and speak out for their interests. Thank you for waging this fight. Warmly, T. L. Kittle In , Ursula Holleman <uahollem@...> wrote: > > > this does border on political talk and I say that because everyone has a different viewpoint about this healthcare bill that's before Congress now. Also I have asked before that broadcast emails not be sent to the group. If the email is PID specific and can apply to treatment related to immune deficiency then it should be sent directly to the group. This email was dessiminated amongst 5 different groups that are no where near related to each other. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2009 Report Share Posted June 30, 2009 Heathcare and politics go hand in hand--trying to separate them is doing a disservice to the members of the group, as many of the problems we go through in trying to access the healthcare we need could be solved by the getting laws that we need passed--problems solved by 'politics'. It's extremely important that we all come together and share information and ideas on how to access the medical care we need--this way, maybe someone else won't have to suffer as much because we can learn through each other's story. Anyone who is offended by political discussions is trying to bury their head in the sand. The reason big coporations spend thousands of dollars on lobbyists every years is because getting laws passed in their favor helps their business--patients should be joining together to do the same thing. Since we can't afford lobbyists, then we have to do it the old fashioned way--pounding the payment ourselves. We can't escape law--it's the basic foundation through which a civilization functions. What we need to do, is to shape the law so that it's condusive to the needs of the people its serving--specifically in our case, write better laws so those who need medical care can get the medical care that they need. Right now, most of the laws on the books are written to support the business interests of the insurance companies, and not the needs of the people. It's going to be a fight to change this. We PID patients can help guide the way these laws should be written due to our extensive experience in the healthcare industry. It's okay if we don't all agree--our experiences have been different, we're not all going to have the same thing to say. This makes it all the more important that we speak up and 'disagree' with one another, so that we can learn from one another in the process. It makes me feel priviledged to belong to a group where a member has dedecicated so much of her time and effort to help her fellow man by fighting to get better laws past for us--in inspite of so much personal suffering. Thank you for taking so much time to meet with representatives in Congress. Thank you for taking the time to wage this fight. We need as many warriors as we can right now, and I'm very grateful to have such a dedicated one on our side. It's time to bring politics back to the people, and this will only happen if the people stand up and speak out for their interests. Thank you for waging this fight. Warmly, T. L. Kittle In , Ursula Holleman <uahollem@...> wrote: > > > this does border on political talk and I say that because everyone has a different viewpoint about this healthcare bill that's before Congress now. Also I have asked before that broadcast emails not be sent to the group. If the email is PID specific and can apply to treatment related to immune deficiency then it should be sent directly to the group. This email was dessiminated amongst 5 different groups that are no where near related to each other. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2009 Report Share Posted June 30, 2009 Thank YOU! I am pleased to have been given the opportunity through the wonderful Patient Advocate Foundation. They are working VERY hard to help people access care and pay their bills. They are REAL PEOPLE like each of us that have banded together to help others get the care they need. They have NO agenda except to help REFORM our system whatever that means to each individual. BARBIE  > > > this does border on political talk and I say that because everyone has a different viewpoint about this healthcare bill that's before Congress now. Also I have asked before that broadcast emails not be sent to the group. If the email is PID specific and can apply to treatment related to immune deficiency then it should be sent directly to the group. This email was dessiminated amongst 5 different groups that are no where near related to each other. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2009 Report Share Posted June 30, 2009 general politics regarding healthcare - Yes. Specific bills - No. Ursula Holleman mom to (16) and Macey (14) www.caringbridge.org/visit/maceyholleman ________________________________ > > From: tl_kittle@... > Date: Tue, 30 Jun 2009 06:51:08 +0000 > Subject: Re: Health CARE > > > > > > > > > > > > > > > > > > > > > > > > > > > > Heathcare and politics go hand in hand--trying to separate them is doing a disservice to the members of the group, as many of the problems we go through in trying to access the healthcare we need could be solved by the getting laws that we need passed--problems solved by 'politics'. > > > > It's extremely important that we all come together and share information and ideas on how to access the medical care we need--this way, maybe someone else won't have to suffer as much because we can learn through each other's story. > > > > Anyone who is offended by political discussions is trying to bury their head in the sand. The reason big coporations spend thousands of dollars on lobbyists every years is because getting laws passed in their favor helps their business--patients should be joining together to do the same thing. > > > > Since we can't afford lobbyists, then we have to do it the old fashioned way--pounding the payment ourselves. > > > > We can't escape law--it's the basic foundation through which a civilization functions. > > > > What we need to do, is to shape the law so that it's condusive to the needs of the people its serving--specifically in our case, write better laws so those who need medical care can get the medical care that they need. Right now, most of the laws on the books are written to support the business interests of the insurance companies, and not the needs of the people. > > > > It's going to be a fight to change this. > > > > We PID patients can help guide the way these laws should be written due to our extensive experience in the healthcare industry. It's okay if we don't all agree--our experiences have been different, we're not all going to have the same thing to say. This makes it all the more important that we speak up and 'disagree' with one another, so that we can learn from one another in the process. > > > > It makes me feel priviledged to belong to a group where a member has dedecicated so much of her time and effort to help her fellow man by fighting to get better laws past for us--in inspite of so much personal suffering. > > > > Thank you for taking so much time to meet with representatives in Congress. Thank you for taking the time to wage this fight. We need as many warriors as we can right now, and I'm very grateful to have such a dedicated one on our side. > > > > It's time to bring politics back to the people, and this will only happen if the people stand up and speak out for their interests. > > > > Thank you for waging this fight. > > > > Warmly, > > > > T. L. Kittle > > > > In , Ursula Holleman wrote: > >> > >> > >> this does border on political talk and I say that because everyone has a different viewpoint about this healthcare bill that's before Congress now. Also I have asked before that broadcast emails not be sent to the group. If the email is PID specific and can apply to treatment related to immune deficiency then it should be sent directly to the group. This email was dessiminated amongst 5 different groups that are no where near related to each other. > >> > >> > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2009 Report Share Posted June 30, 2009 general politics regarding healthcare - Yes. Specific bills - No. Ursula Holleman mom to (16) and Macey (14) www.caringbridge.org/visit/maceyholleman ________________________________ > > From: tl_kittle@... > Date: Tue, 30 Jun 2009 06:51:08 +0000 > Subject: Re: Health CARE > > > > > > > > > > > > > > > > > > > > > > > > > > > > Heathcare and politics go hand in hand--trying to separate them is doing a disservice to the members of the group, as many of the problems we go through in trying to access the healthcare we need could be solved by the getting laws that we need passed--problems solved by 'politics'. > > > > It's extremely important that we all come together and share information and ideas on how to access the medical care we need--this way, maybe someone else won't have to suffer as much because we can learn through each other's story. > > > > Anyone who is offended by political discussions is trying to bury their head in the sand. The reason big coporations spend thousands of dollars on lobbyists every years is because getting laws passed in their favor helps their business--patients should be joining together to do the same thing. > > > > Since we can't afford lobbyists, then we have to do it the old fashioned way--pounding the payment ourselves. > > > > We can't escape law--it's the basic foundation through which a civilization functions. > > > > What we need to do, is to shape the law so that it's condusive to the needs of the people its serving--specifically in our case, write better laws so those who need medical care can get the medical care that they need. Right now, most of the laws on the books are written to support the business interests of the insurance companies, and not the needs of the people. > > > > It's going to be a fight to change this. > > > > We PID patients can help guide the way these laws should be written due to our extensive experience in the healthcare industry. It's okay if we don't all agree--our experiences have been different, we're not all going to have the same thing to say. This makes it all the more important that we speak up and 'disagree' with one another, so that we can learn from one another in the process. > > > > It makes me feel priviledged to belong to a group where a member has dedecicated so much of her time and effort to help her fellow man by fighting to get better laws past for us--in inspite of so much personal suffering. > > > > Thank you for taking so much time to meet with representatives in Congress. Thank you for taking the time to wage this fight. We need as many warriors as we can right now, and I'm very grateful to have such a dedicated one on our side. > > > > It's time to bring politics back to the people, and this will only happen if the people stand up and speak out for their interests. > > > > Thank you for waging this fight. > > > > Warmly, > > > > T. L. Kittle > > > > In , Ursula Holleman wrote: > >> > >> > >> this does border on political talk and I say that because everyone has a different viewpoint about this healthcare bill that's before Congress now. Also I have asked before that broadcast emails not be sent to the group. If the email is PID specific and can apply to treatment related to immune deficiency then it should be sent directly to the group. This email was dessiminated amongst 5 different groups that are no where near related to each other. > >> > >> > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2009 Report Share Posted June 30, 2009 If you go to Kaiser Family Foundation they have a link to look at ALL the plans out there now and you can do comparisons etc. http://www.kff.org if you need help finding anything else let me know personally. BARBIEÂ Â > >> > >> > >> this does border on political talk and I say that because everyone has a different viewpoint about this healthcare bill that's before Congress now. Also I have asked before that broadcast emails not be sent to the group. If the email is PID specific and can apply to treatment related to immune deficiency then it should be sent directly to the group. This email was dessiminated amongst 5 different groups that are no where near related to each other. > >> > >> > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2009 Report Share Posted July 1, 2009 I feel like I need to chime in here because this is a huge concern to most of us. While all of us want health care for our loved ones, we want quality care, not care that is administered but the government that is drowned in debt and deciding who is " worth saving & maintaining " and who is not. What is most concerning to us, as a PID family as well as a family with a child dependent on multiple high tech therapies that are indeed expensive is what happens when someone who doesn't know my son decides that the cost to maintain him is no longer " worth " spending the money on? Don't think for a minute that the discussion hasn't already begun on what medical spending is worth it and was isn't, it was in the president's speech last week. IVIG is expensive, we all know that. Don't think for a minute that at some point it won't be on the hit list. If you think having an HMO can be a hassle with having administrators making decisions as to what care you or your loved one can receive, try having someone equal to the SSI office or the motor vehicles department make those decisions. Personally, I want healthcare decisions that affect me & my family to be made between between myself and my physician, not someone from the government without medical training. Like I said, I understand that we all want the best care for our children with complex and difficult diseases, but, before you jump on board with any socialized medicine, I would encourage you to thoroughly look into what your giving up to get it. Jefferson once said " A government big enough to give you everything you want is big enough to take away everything you have. " I think in this case, this rings so true. Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2009 Report Share Posted July 1, 2009 Hi Patty and all- I think this is actually a great discussion because I too agree that my health care decisions need to be between an individual and their doctor. Within my practice, I regularly file HIPAA complaints with the Department of Health and Human Services, Office of Civil Rights and the Federal FPCO. Each agency has its own opinions about the proposed health care plan and the pros and cons. Funny how all this federal agencies have different opinions. HOWEVER, the one area where they all agree is social medicine. Not medicine like health care (doctors, specialists, hospitals) literally, medicine that is approved and the process with the FDA. Each one of these agencies believe that if medicine- from aspirin to IVIG were regulated at a cost-not simply based on supply and demand, or cost to recoup expenses from 10 years of trials to get FDA approval, that the overall health care system, and its consumers, would have access and their needs met. The more I research, the more I tend to agree. It is insane that IVIG for my son is $10,000 and that insulin is $50. But, it is supply and demand. Because it is a specialized need, pharma companies can negotiate the cost of a gram of IVIG with insurance companies, and that in turn determines the reinbursement rate for the insurance. The government based insurances also negotiate their rate too- just much lower. And, I know with our heath insurance, the infusion company charges about $8,000 a month, but the reinbursement rate is $2,500. Insulin is charged at $79 and reimbursed at $50. Does that not seem crazy to anyone else? Just my two cents, but really, I would also like other peoples thoughts on this.Is the issue access to heath care, or access to meds, or both? Can they be two separate issues, and if all medications were available through government regulation of cost, then would the quality of heath care, even private health care, increase? Discussions like this, I think, help foster ideas that turn into grassroots advocacy. On Wed, Jul 1, 2009 at 8:29 PM, Patty <pattywoods@...> wrote: > > > I feel like I need to chime in here because this is a huge concern to most > of us. While all of us want health care for our loved ones, we want quality > care, not care that is administered but the government that is drowned in > debt and deciding who is " worth saving & maintaining " and who is not. What > is most concerning to us, as a PID family as well as a family with a child > dependent on multiple high tech therapies that are indeed expensive is what > happens when someone who doesn't know my son decides that the cost to > maintain him is no longer " worth " spending the money on? Don't think for a > minute that the discussion hasn't already begun on what medical spending is > worth it and was isn't, it was in the president's speech last week. IVIG is > expensive, we all know that. Don't think for a minute that at some point it > won't be on the hit list. If you think having an HMO can be a hassle with > having administrators making decisions as to what care you or your loved one > can receive, try having someone equal to the SSI office or the motor > vehicles department make those decisions. > Personally, I want healthcare decisions that affect me & my family to be > made between between myself and my physician, not someone from the > government without medical training. > Like I said, I understand that we all want the best care for our children > with complex and difficult diseases, but, before you jump on board with any > socialized medicine, I would encourage you to thoroughly look into what your > giving up to get it. Jefferson once said " A government big enough to > give you everything you want is big enough to take away everything you > have. " I think in this case, this rings so true. > > Patty. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2010 Report Share Posted December 6, 2010 Hello all you wonderful people out there. If there is one subject that affects every one of us that is our health. What is the best way of taking care of our health? Let's take a brief look at some of our options for taking care of our health. Some people believe in preventative measures for taking care of their health. What exactly does this mean? Basically, it means eating a healthy diet, exercising properly, and living a healthy lifestyle. A yearly check-up is also a good way to know what shape you are in and to catch any developing illness … for details: Visit our website http://patientsafty.blogspot.com/ <http://patientsafty.blogspot.com/> Quote Link to comment Share on other sites More sharing options...
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