WELCOME__Bab__TINA__LINDA__MELISSA__

[Guest guest]

Welcome Bab__TINA__LINDA__MELISSA__,

First off, sorry for the group welcome, I'm a little behind as usual...

I'm Helen, 55 from NW Ohio... Welcome to the group, there are Lots of nice folks on here that will listen and do understand what your going through... No one here will judge you!!! Let us know about your self's and how you cope with your days...

Bab, what is MG??? I'm not thinking correctly tonight and can not remember what it stands for, sorry... I deal with a few ailments also...

((( Welcoming Hugs )))Helen

My Ailments:1-F.M.S.--Fibromyalgia 2-C.F.S.--Chronic Fatigue Syndrome 3-S.L.E.--Systematic Lupus Erthematosis 4-M.V.P.--Mitral Valve Prolapse 5-Hypethyroidism/Graves Disease 6-Hyatal Hernia 7-Acid Reflux--(Gerd) 8-Migrains 9-Poly Neuropathy 10-Osteoporosis 11-Osteoarthritis 12-Hypertension 13-Degenerative Arthritis in head,neck, shoulders, spinal column, arms 14-R.L.S.--Restless Leg Syndrome 15-Hypoglycemia 16-I.B.S.--Irritable Bowel Syndrome 17-Arrthymia's--P.B.Cs--P.A.Cs--Ventricular Tachycardia-One other I dont remember the name of 18-Emphysema19-M.P.S.--Myofacial Pain Syndrome20-Polymyalgia21-T.M.J.--Temporomandibular Joint Disorder22-Corneal Leukoma23-Chronic Sinusitis24-Idiopathic Edema25-PSVT--Paroxysmal-Supraventricular Tachycardia WHAT HAS HAPPENED: Blind in Left Eye--eye accident-age 3 Rheumatic Fever--almost died-age 17 Pericarditis--almost died-age 17Light Stroke-age 27Goiter Bad/Graves Disease--almost died-age 28Full Hysterectomy-age 40 Gall Bladder out Diseased--almost died-age 48 Anemic twice real bad

[Guest guest]

Hi Helen, Thank you for the welcome! I Have Crohn's Disease and I have had a total of 17 surgeries 6 in the last year ....5 in the last 5 months....They have left my stomach open and everytime it closes I develope another abcess...they say it is all a part of the disease..and it takes forever for it to heal anyways because I am on daily immunosupressants as well as I go every 8 weeks and have IV immunosuppression...I cannot even walk or move without living on steroids because every joint in my body has arthritis...and everytime they have tries to lower the meds I cannot walk...I have alot of trouble with food and eating....there are so many foods that I cannot tolerate and then the foods I can eat it seems to make me sick....I went 9 weeks after my first surgery in feb. without eating due to severe pain and lost 42 pounds....weight is a big issue as the doctors want to make sure that I maintain a healthy weight...The steroids help

in that area ...more from the swelling then food intake....Currently I just had my last surgery about 3 weeks ago so I am currently packing my stomach twice a day and it has recently become infected again...I have to take B 12 shots twice a week...I am always run down and tired...I have about 10 on a good day up to 30 bowel movements a day...About 20 to 30 minutes after I eat I am in the bathroom...I struggle most days just to get up out of bed but I know I have to take care of my children so I have no choice but to keep moving...My kids are older so there is some freedom as to what they can do but still they need their mother...I lost my job and have been unable to get any help with this at all and my husband has been working 12 to 14 hours a day just to make up what we lost...So it is frustrating to say the least. Thank you for this group! Tina

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