Sorry

[Guest guest]

hi jenn!! don't worry about poofing on us..we all understand the hectic day to

day routines with kids!! sounds like you are quite busy.

to your questions, all i can say in relation to those is about the weight

gain. our daughter lexi who is now almost 3 in november has been a terrible

weight gainer!! :-)

to date, she is 24 lbs. up until we hit this point about a month ago, she hung

on to the 21 lb mark for the last year and few months. now, i will say from

birth until about a year old she suffered from severe reflux, which contributed

to poor weight gain in that first year. since then though it has been an uphill

battle to get weight on her and it doesn't help she is one finicky eater. one

thing that our nutritionist suggested was that we mix tahini in her foods. this

is all natural and can be bought in grocery stores which sell some specialty

foods. it is nothing more than ground sesame seeds and has the consistency of

peanut butter ( a tad bit runnier though ) and virtually tasteless. i mix it in

her mashed potatoes and macaroni and cheese. it will pack on some fat calories.

ask your nutritionist about it.

i used to worry myself sick about lexi's weight and all her docs told me that

if we at least got some good food in here along with a daily vitamin ( which i

used to have to sneak poly vi sol, made by enfamil into her water ) that she

would be fine. it wasn't like she was malnutritioned in anyway. she was getting

some food in here. now she takes a chewable vitamin and i finally have her

eating a few fruits which she has never done before. i take that fruit

opportunity to make smoothies and shakes, but she still isn't big on them. one

big staple of her diet is peanut butter which will help with the weight gain.

again ask your nutritionist though....i can't remember if they have to be 2 now

to have peanut butter or if they changed it to 1 year.

good luck and keep us posted when you can!

mjgcj <mjgcj@...> wrote:

That I joined and then disappeared! Life is hectic We have had the

Early Childhood Educator, Speech Therapist (who actually visits my

son), a nutritionist come to visit this week, and PT is tomorrow...My

daughter has gained about a half pound in the last week which is GREAT

news...I do have some questions, though...

1) Have you found that your child has had trouble gaining and/or

mainting their weight?

2) Has your child experienced any developmental delays?

3) When you were first going in for the actual testing and diagnosis,

what sorts of questions did you ask that you feel are absolutely vital

to ask? Any questions that you wished you had asked?

We go in for a neuro appointment on the 9th and I really want to be as

prepared as possible. Her ortho appointment is on the 25th.

I am sorry for not responding to much, I am still trying to figure out

who is who and trying to get up to date on all of your stories. I

will say that you are an incredible group and thanks for letting me

join!

Jenn

mom to Gabe (5), Caleb (4), Jonah (2) and Brenna (13 mos, tentative

diagnosis of scoliosis)

[Guest guest]

Hi Jenn,

Sounds like your life is crazy right now. Hang in there. In regards to Cole,

he is a horrible weight gainer too. He is 17 months and weighs maybe 21 lbs. He

has not been on the charts until last Dr. appt. at which we finally made it to

the 1st% for weight. He also is a finicky eater, and I try to give him as much

high fat foods as possible and I let him snack whenever. But, he still seems to

gain slow. He is in the 50th % for highth, which is O.K., but all my other kids

(his twin included) are in the 95%+ for highth and my husband and I are very

tall. He is about 3 inches shorter than his brother. So there is definitely a

growth issue. He has been 1-2 months with physical milestone, but I attribute it

to lugging around a cast.

Not sure why you are seeing a neurologist (for the MRI?), but the ortho will

be the one to answer all you questions regarding scoliosis. Also, I'm sure you

know all this, but what you want to know is: idiopathic vs. congenital, COBB,

RVAD, placement of the curve. single curve or double. That is the main stuff.

Make sure you get an MRI which will tell you if it is idiopathic or congenital.

After you get this info. you will have many more questions. The parents on this

group are amazing and a wealth of info. that you will find no where else. Good

luck with everything.

and Cole

PS: what state do you live in?

mjgcj <mjgcj@...> wrote:

That I joined and then disappeared! Life is hectic We have had the

Early Childhood Educator, Speech Therapist (who actually visits my

son), a nutritionist come to visit this week, and PT is tomorrow...My

daughter has gained about a half pound in the last week which is GREAT

news...I do have some questions, though...

1) Have you found that your child has had trouble gaining and/or

mainting their weight?

2) Has your child experienced any developmental delays?

3) When you were first going in for the actual testing and diagnosis,

what sorts of questions did you ask that you feel are absolutely vital

to ask? Any questions that you wished you had asked?

We go in for a neuro appointment on the 9th and I really want to be as

prepared as possible. Her ortho appointment is on the 25th.

I am sorry for not responding to much, I am still trying to figure out

who is who and trying to get up to date on all of your stories. I

will say that you are an incredible group and thanks for letting me

join!

Jenn

mom to Gabe (5), Caleb (4), Jonah (2) and Brenna (13 mos, tentative

diagnosis of scoliosis)

---------------------------------

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[Guest guest]

Hi Jenn-I am fairly new to the group as well. I am also a SAHM with twin boys.

and . got his first cast Monday, July 17.

And I thought I had my hands full. You are a busy mom.

In regards to eating problems and weight gain...............

has always had eating problems. He never took a bottle well. There were

some days I struggled to get him to drink 10 oz of formula. I was so excited

when they started eating baby/table food thinking it would be better.........not

so much.

Some days he eats really well and others I go absolutely crazy trying to get

him to eat. And he doesn't drink much either. The boys will be 16 months on

August 11 and barely weighs 20 lbs. He is very long and skinny. With his

cast on he looks so much longer. His doctor finally at this last visit said

she was not worried about his weight. Told us to do whatever we can to get him

to gain weight. So I give him/them ANYTHING. I mean anything-I add butter to

lots of stuff they eat. I have tried Carnation Instant Breakfast to milk,

pudding, cereal(baby cereal when he was younger), ice cream, etc. Just a few

ideas. The way I feel about eating is if he is hungry he will eat. Plus I give

lots of snacks all day long. It does get a little easier, at least for me it

did, when they get older.

As far as other questions............let me say first of all that you are

extremely lucky you found this site. Read as much as you can on the site and

the questions will come to you. Unfortunately we did not find the site until

right before got his cast and you know there is not much info out there on

infantile scoliosis. Read as much as you can on the site and ask ANY question

that enters your mind.

These parents in the group have been through tons that you and I are just

about to or are going through right now. You have found a good place.

I wish you the best for little Brenna.

Tasha/

mjgcj <mjgcj@...> wrote:

That I joined and then disappeared! Life is hectic We have had the

Early Childhood Educator, Speech Therapist (who actually visits my

son), a nutritionist come to visit this week, and PT is tomorrow...My

daughter has gained about a half pound in the last week which is GREAT

news...I do have some questions, though...

1) Have you found that your child has had trouble gaining and/or

mainting their weight?

2) Has your child experienced any developmental delays?

3) When you were first going in for the actual testing and diagnosis,

what sorts of questions did you ask that you feel are absolutely vital

to ask? Any questions that you wished you had asked?

We go in for a neuro appointment on the 9th and I really want to be as

prepared as possible. Her ortho appointment is on the 25th.

I am sorry for not responding to much, I am still trying to figure out

who is who and trying to get up to date on all of your stories. I

will say that you are an incredible group and thanks for letting me

join!

Jenn

mom to Gabe (5), Caleb (4), Jonah (2) and Brenna (13 mos, tentative

diagnosis of scoliosis)

---------------------------------

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[Guest guest]

Jenn,

Moriah always had trouble gaining weight. She still does and is on a

prescription med. to make her have an appetite. I have seen that on

www.infantilescoliosis.org. in the information section is a link called calorie

boosters. Maybe there is something there that would work.

Shellie

mjgcj <mjgcj@...> wrote:

That I joined and then disappeared! Life is hectic We have had the

Early Childhood Educator, Speech Therapist (who actually visits my

son), a nutritionist come to visit this week, and PT is tomorrow...My

daughter has gained about a half pound in the last week which is GREAT

news...I do have some questions, though...

1) Have you found that your child has had trouble gaining and/or

mainting their weight?

2) Has your child experienced any developmental delays?

3) When you were first going in for the actual testing and diagnosis,

what sorts of questions did you ask that you feel are absolutely vital

to ask? Any questions that you wished you had asked?

We go in for a neuro appointment on the 9th and I really want to be as

prepared as possible. Her ortho appointment is on the 25th.

I am sorry for not responding to much, I am still trying to figure out

who is who and trying to get up to date on all of your stories. I

will say that you are an incredible group and thanks for letting me

join!

Jenn

mom to Gabe (5), Caleb (4), Jonah (2) and Brenna (13 mos, tentative

diagnosis of scoliosis)

---------------------------------

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+

countries) for 2¢/min or less.

[Guest guest]

,

I didn't realize you had twins? Both boys? Are does Cole have a twin sister?

I also have twins-boys, and

How does Cole's twin feel about the cast? How long has he had his cast?

Baird <michelle_r_baird@...> wrote:

Hi Jenn,

Sounds like your life is crazy right now. Hang in there. In regards to Cole, he

is a horrible weight gainer too. He is 17 months and weighs maybe 21 lbs. He has

not been on the charts until last Dr. appt. at which we finally made it to the

1st% for weight. He also is a finicky eater, and I try to give him as much high

fat foods as possible and I let him snack whenever. But, he still seems to gain

slow. He is in the 50th % for highth, which is O.K., but all my other kids (his

twin included) are in the 95%+ for highth and my husband and I are very tall. He

is about 3 inches shorter than his brother. So there is definitely a growth

issue. He has been 1-2 months with physical milestone, but I attribute it to

lugging around a cast.

Not sure why you are seeing a neurologist (for the MRI?), but the ortho will be

the one to answer all you questions regarding scoliosis. Also, I'm sure you know

all this, but what you want to know is: idiopathic vs. congenital, COBB, RVAD,

placement of the curve. single curve or double. That is the main stuff. Make

sure you get an MRI which will tell you if it is idiopathic or congenital. After

you get this info. you will have many more questions. The parents on this group

are amazing and a wealth of info. that you will find no where else. Good luck

with everything.

and Cole

PS: what state do you live in?

mjgcj <mjgcj@...> wrote:

That I joined and then disappeared! Life is hectic We have had the

Early Childhood Educator, Speech Therapist (who actually visits my

son), a nutritionist come to visit this week, and PT is tomorrow...My

daughter has gained about a half pound in the last week which is GREAT

news...I do have some questions, though...

1) Have you found that your child has had trouble gaining and/or

mainting their weight?

2) Has your child experienced any developmental delays?

3) When you were first going in for the actual testing and diagnosis,

what sorts of questions did you ask that you feel are absolutely vital

to ask? Any questions that you wished you had asked?

We go in for a neuro appointment on the 9th and I really want to be as

prepared as possible. Her ortho appointment is on the 25th.

I am sorry for not responding to much, I am still trying to figure out

who is who and trying to get up to date on all of your stories. I

will say that you are an incredible group and thanks for letting me

join!

Jenn

mom to Gabe (5), Caleb (4), Jonah (2) and Brenna (13 mos, tentative

diagnosis of scoliosis)

---------------------------------

How low will we go? Check out Messenger’s low PC-to-Phone call rates.

[Guest guest]

Hi Jenn:

My daughter had all of the therapist there were through the birth to 3 program.

(she is now 3 and1/2) hang in there I know it is hectic- we had some sort of

therapy every weekday for 2 years! I never related the two but now that you

have brought it up-- my daughter was off the charts in height and weight from

birth - 9 months. at 9 months she stopped gaining weight, but kept growing in

height which seemed fine because she was large. However at 12 months the doctor

became concerned and she has had trouble gaining maintaining weight since

then--maybe not incidentally we discovered her scoliosis about the same time--

we noticed it and it was diagnosed at her 12 month appointment. I think she is

just going to be a tall lanky kid, as she is not a picky eater. She does have

constipation and her unwillingness to eat at times seems to follow her

constipation.

She has delays in all avenues-- speech, physical and possibly cognitive--hard to

tell because of the speech and physical delays. I hope you will find an answer,

but all I can tell you is be prepared not to. They have been unable to diagnose

any specific problem for us --they have thankfully ruled out a lot of things.

The best that the geneticist could tell us was that he thinks she has a mild

form of a genetic disorder that is very rare. So we have learned to live it and

hope for the best, but the uncertainty made me nuts for a while.

Good luck,

E

________________________________

From: infantile scoliosis treatment

[mailto:infantile scoliosis treatment ] On Behalf Of Baird

Sent: Thursday, July 27, 2006 8:47 AM

infantile scoliosis treatment

Subject: Re: Sorry

Hi Jenn,

Sounds like your life is crazy right now. Hang in there. In regards to Cole, he

is a horrible weight gainer too. He is 17 months and weighs maybe 21 lbs. He has

not been on the charts until last Dr. appt. at which we finally made it to the

1st% for weight. He also is a finicky eater, and I try to give him as much high

fat foods as possible and I let him snack whenever. But, he still seems to gain

slow. He is in the 50th % for highth, which is O.K., but all my other kids (his

twin included) are in the 95%+ for highth and my husband and I are very tall. He

is about 3 inches shorter than his brother. So there is definitely a growth

issue. He has been 1-2 months with physical milestone, but I attribute it to

lugging around a cast.

Not sure why you are seeing a neurologist (for the MRI?), but the ortho will be

the one to answer all you questions regarding scoliosis. Also, I'm sure you know

all this, but what you want to know is: idiopathic vs. congenital, COBB, RVAD,

placement of the curve. single curve or double. That is the main stuff. Make

sure you get an MRI which will tell you if it is idiopathic or congenital. After

you get this info. you will have many more questions. The parents on this group

are amazing and a wealth of info. that you will find no where else. Good luck

with everything.

and Cole

PS: what state do you live in?

mjgcj <mjgcj@... <mailto:mjgcj%40> > wrote:

That I joined and then disappeared! Life is hectic We have had the

Early Childhood Educator, Speech Therapist (who actually visits my

son), a nutritionist come to visit this week, and PT is tomorrow...My

daughter has gained about a half pound in the last week which is GREAT

news...I do have some questions, though...

1) Have you found that your child has had trouble gaining and/or

mainting their weight?

2) Has your child experienced any developmental delays?

3) When you were first going in for the actual testing and diagnosis,

what sorts of questions did you ask that you feel are absolutely vital

to ask? Any questions that you wished you had asked?

We go in for a neuro appointment on the 9th and I really want to be as

prepared as possible. Her ortho appointment is on the 25th.

I am sorry for not responding to much, I am still trying to figure out

who is who and trying to get up to date on all of your stories. I

will say that you are an incredible group and thanks for letting me

join!

Jenn

mom to Gabe (5), Caleb (4), Jonah (2) and Brenna (13 mos, tentative

diagnosis of scoliosis)

---------------------------------

How low will we go? Check out Messenger's low PC-to-Phone call rates.

[Guest guest]

The twins are both boys. Jack and Cole will be 17 months Aug. 9th. Almost the

same as yours. I don't think Jack really pays any attention to Cole's cast. He

has had it on for about 9 months. He was 8 months when he got it on. He has it

off for 5 weeks right now though.

Take care,

Tasha Fontenot <ryanswalk@...> wrote:

,

I didn't realize you had twins? Both boys? Are does Cole have a twin sister?

I also have twins-boys, and

How does Cole's twin feel about the cast? How long has he had his cast?

Baird <michelle_r_baird@...> wrote:

Hi Jenn,

Sounds like your life is crazy right now. Hang in there. In regards to Cole, he

is a horrible weight gainer too. He is 17 months and weighs maybe 21 lbs. He has

not been on the charts until last Dr. appt. at which we finally made it to the

1st% for weight. He also is a finicky eater, and I try to give him as much high

fat foods as possible and I let him snack whenever. But, he still seems to gain

slow. He is in the 50th % for highth, which is O.K., but all my other kids (his

twin included) are in the 95%+ for highth and my husband and I are very tall. He

is about 3 inches shorter than his brother. So there is definitely a growth

issue. He has been 1-2 months with physical milestone, but I attribute it to

lugging around a cast.

Not sure why you are seeing a neurologist (for the MRI?), but the ortho will be

the one to answer all you questions regarding scoliosis. Also, I'm sure you know

all this, but what you want to know is: idiopathic vs. congenital, COBB, RVAD,

placement of the curve. single curve or double. That is the main stuff. Make

sure you get an MRI which will tell you if it is idiopathic or congenital. After

you get this info. you will have many more questions. The parents on this group

are amazing and a wealth of info. that you will find no where else. Good luck

with everything.

and Cole

PS: what state do you live in?

mjgcj <mjgcj@...> wrote:

That I joined and then disappeared! Life is hectic We have had the

Early Childhood Educator, Speech Therapist (who actually visits my

son), a nutritionist come to visit this week, and PT is tomorrow...My

daughter has gained about a half pound in the last week which is GREAT

news...I do have some questions, though...

1) Have you found that your child has had trouble gaining and/or

mainting their weight?

2) Has your child experienced any developmental delays?

3) When you were first going in for the actual testing and diagnosis,

what sorts of questions did you ask that you feel are absolutely vital

to ask? Any questions that you wished you had asked?

We go in for a neuro appointment on the 9th and I really want to be as

prepared as possible. Her ortho appointment is on the 25th.

I am sorry for not responding to much, I am still trying to figure out

who is who and trying to get up to date on all of your stories. I

will say that you are an incredible group and thanks for letting me

join!

Jenn

mom to Gabe (5), Caleb (4), Jonah (2) and Brenna (13 mos, tentative

diagnosis of scoliosis)

---------------------------------

How low will we go? Check out Messenger’s low PC-to-Phone call rates.

[Guest guest]

My daughter just turned three. She was 8lbs 7oz at birth and

stayed " chubby " until around nine months of age too. Since then we

have struggled with her weight. She was diagnosed at seven months

and received her first brace at nine months (she still wears a

brace). She is getting taller (25th percentile for height and 5th

for weight, barely)but struggles to gain weight. She is so skinny

and she also has had digestive issues and constipation too. We have

also worked with a nutritionist. She's great but still no real

progress. I feel so alone with these issues and have always

wondered if any body else had them as well. I worry about her

because pnemonia has been an issue too and she really won't eat

during these spells, very concerning to me at times.

Oh, we're transitioning from a birth to three program to an infant

preschool program right now. We just went thru the testing stage.

She did test at age level she's just overly stimulated all the time

like she's on a constant sugar high (she gets distracted so easily

and has a hard time staying on task), she's sensitive to sounds,

light, and smell they strongly think the has a sensory disorder.

We're suppose to see a OT to get her tested for it. I'm honestly

just starting to learn about this disorder. But what I have read

about it, it sounds like her almost to a tee.

> That I joined and then disappeared! Life is hectic We have had the

> Early Childhood Educator, Speech Therapist (who actually visits my

> son), a nutritionist come to visit this week, and PT is

tomorrow...My

> daughter has gained about a half pound in the last week which is

GREAT

> news...I do have some questions, though...

>

> 1) Have you found that your child has had trouble gaining and/or

> mainting their weight?

> 2) Has your child experienced any developmental delays?

> 3) When you were first going in for the actual testing and

diagnosis,

> what sorts of questions did you ask that you feel are absolutely

vital

> to ask? Any questions that you wished you had asked?

>

> We go in for a neuro appointment on the 9th and I really want to

be as

> prepared as possible. Her ortho appointment is on the 25th.

>

> I am sorry for not responding to much, I am still trying to figure

out

> who is who and trying to get up to date on all of your stories. I

> will say that you are an incredible group and thanks for letting

me

> join!

> Jenn

> mom to Gabe (5), Caleb (4), Jonah (2) and Brenna (13 mos,

tentative

> diagnosis of scoliosis)

>

>

> ---------------------------------

> How low will we go? Check out Messenger's low PC-to-Phone

call rates.

>

>

[Guest guest]

Thank you for sharing, I know what you feel like with the feeling alone

on the issues--one more issue which I didn't mention but will throw out

there since our daughters seem to be so similar is that she has pronated

ankles which she wears little braces for as well.

My one good hot summer calorie packing tip is to line the ice cream cone

with peanut butter before putting the ice cream in it! Every high fat

bite is eaten!

Feel free to email me privately if you have other questions or concerns,

<mailto:ccesser@...> cesser@...

E

________________________________

From: infantile scoliosis treatment

[mailto:infantile scoliosis treatment ] On Behalf Of amberdslape

Sent: Tuesday, August 01, 2006 2:56 PM

infantile scoliosis treatment

Subject: Re: Sorry

My daughter just turned three. She was 8lbs 7oz at birth and

stayed " chubby " until around nine months of age too. Since then we

have struggled with her weight. She was diagnosed at seven months

and received her first brace at nine months (she still wears a

brace). She is getting taller (25th percentile for height and 5th

for weight, barely)but struggles to gain weight. She is so skinny

and she also has had digestive issues and constipation too. We have

also worked with a nutritionist. She's great but still no real

progress. I feel so alone with these issues and have always

wondered if any body else had them as well. I worry about her

because pnemonia has been an issue too and she really won't eat

during these spells, very concerning to me at times.

Oh, we're transitioning from a birth to three program to an infant

preschool program right now. We just went thru the testing stage.

She did test at age level she's just overly stimulated all the time

like she's on a constant sugar high (she gets distracted so easily

and has a hard time staying on task), she's sensitive to sounds,

light, and smell they strongly think the has a sensory disorder.

We're suppose to see a OT to get her tested for it. I'm honestly

just starting to learn about this disorder. But what I have read

about it, it sounds like her almost to a tee.

> That I joined and then disappeared! Life is hectic We have had the

> Early Childhood Educator, Speech Therapist (who actually visits my

> son), a nutritionist come to visit this week, and PT is

tomorrow...My

> daughter has gained about a half pound in the last week which is

GREAT

> news...I do have some questions, though...

>

> 1) Have you found that your child has had trouble gaining and/or

> mainting their weight?

> 2) Has your child experienced any developmental delays?

> 3) When you were first going in for the actual testing and

diagnosis,

> what sorts of questions did you ask that you feel are absolutely

vital

> to ask? Any questions that you wished you had asked?

>

> We go in for a neuro appointment on the 9th and I really want to

be as

> prepared as possible. Her ortho appointment is on the 25th.

>

> I am sorry for not responding to much, I am still trying to figure

out

> who is who and trying to get up to date on all of your stories. I

> will say that you are an incredible group and thanks for letting

me

> join!

> Jenn

> mom to Gabe (5), Caleb (4), Jonah (2) and Brenna (13 mos,

tentative

> diagnosis of scoliosis)

>

>

> ---------------------------------

> How low will we go? Check out Messenger's low PC-to-Phone

call rates.

>

>

[Guest guest]

Didn't realize that message was for Dr. Chansky. Wouldn't have answered if I

had known.

Dr. Chansky

Hello--I have been on this list for quite awhile and have received a

lot of helpful information. I have a 12 yr. old daughter who has OCD

and a fear of vomiting. She had an onset at age 7 and has been severe

enough in the past to require hospitalization and a feeding tube due

to not eating because of her high level of anxiety. She is

functioning fairly well on 60 mgs. Prozac and 2.5 mgs. of Zyprexa.

I have been unable to find a therapist that does ERP with a child this

age and I would like to try some exposures myself. Her psychiatrist

thinks she gets enough exposures in the " real world " but said to try

whatever I wanted. So, not a lot of help there. Whenever my daughter

hears the word vomit, she can be highly anxious for the rest of the

day. So, we are ready to try some exposures at home. I know I am not

a trained therapist, but we aren't getting anywhere with trying to

keep her symptom free with meds only.

Anyway, we are making a CD with her own voice recording her worst

vomit fears and also sounds, etc. from the web that she can listen to.

Everything I read says to " wait until her anxiety level peaks and is

lowered " before stopping the exposure. Does this typically happen

within a certain time frame? A half hour? An hour? I would hate to

have her listen to this tape longer than she has to! We are going to

do other exposures as well. Is this a daily thing? It seems our

psychiatrist's idea of just hearing about vomit periodically hasn't

helped at all and I would like to do something regularly to help her

lessen her fear.

I did read the case on worry wise kids and it helped a lot as my

daughter is very similar. Any advice you can give so I can be a help

to her and not make things worse would be helpful. I know there are

others on the list with vomit issues as well.

Thank you.

Dina

________________________________________________________________________

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[Guest guest]

dina

I sadly only find time (or remember) right as she's going to bed -

thank God it doesn't screw up bedtime but yes with 4 here as well I

can only do it once a day (plus dealing with ocd in general) sigh -

not enough hours in the day - but luckily it only takes her a few

minutes 10 max- good luck

eileen

Dina <dina.n.jones@...>:

> Imogene--it's fine! We all tend to pipe in even if it's not a question

> directed at us because as parents we have so much experience. Thanks

> for your insight. I have no idea how we'll carve out so much time in

> our day. I have 4 kids! ugh.

>

> Dina

>

[Guest guest]

dina

I sadly only find time (or remember) right as she's going to bed -

thank God it doesn't screw up bedtime but yes with 4 here as well I

can only do it once a day (plus dealing with ocd in general) sigh -

not enough hours in the day - but luckily it only takes her a few

minutes 10 max- good luck

eileen

Dina <dina.n.jones@...>:

> Imogene--it's fine! We all tend to pipe in even if it's not a question

> directed at us because as parents we have so much experience. Thanks

> for your insight. I have no idea how we'll carve out so much time in

> our day. I have 4 kids! ugh.

>

> Dina

>

[Guest guest]

Butch, Listen hon, we ALL have been down while on tx or not,, it happens and thats what a support group is about... I DO understand that you dont want to bring the group down and I appreciate that, but thats what we are here for,, to help and to support... so dont you stop posting,,, jaxbutchholland2002 <butchholland2002@...> wrote: Hey Jax,Sheena and who else runs this site, Also to everyone on site if you post this. There is no need to post unless you want. If I haven't

already I will start writing sad and depressing post's, I do not want to do that so I think in my case if ok by you all I will only respond if something catch's my eye or tugs at my heart. I will try and keep things brief and upbeat "if possible".I am worried I will where out my welcome here and do not want to, this has been a very helpfull site for me. The problem is I used to be this fun loveing happy guy that everyone liked to hang with. I found life and dove in eyes wide open and had an unbelievable adventure.There was nothing I could not do. Positive thaughts bring positive results. I went from a ninth grade drop out to running highly scientific research ships, I owned or managed small and large buisness's and corporations,I was living proof it can be done if you set your mind to it. Now that I have been fighting this fight for so long I have been beaten down and become this miserable person that I don't even

like. I try and try but it's just not working,I know I will eventually spread this poisen to your site if I am not carefull.I very much want to be part of this and do solemly swear to keep posts short and positive.My life has been amazing and have no regrets.Thank you so much,I have not given up I just know me.Hope you all have half the adventure I have had in life,It truly is an amazing thing.take care....ButchJackie

[Guest guest]

Like Jackie said , we are here to support no matter what . And we all go through times when we need each other , that is our purpose .

sorry

Hey Jax,Sheena and who else runs this site, Also to everyone on site if you post this. There is no need to post unless you want. If I haven't already I will start writing sad and depressing post's, I do not want to do that so I think in my case if ok by you all I will only respond if something catch's my eye or tugs at my heart. I will try and keep things brief and upbeat "if possible".I am worried I will where out my welcome here and do not want to, this has been a very helpfull site for me. The problem is I used to be this fun loveing happy guy that everyone liked to hang with. I found life and dove in eyes wide open and had an unbelievable adventure.There was nothing I could not do. Positive thaughts bring positive results. I went from a ninth grade drop out to running highly scientific research ships, I owned or managed small and large buisness's and corporations,I was living proof it can be done if you set your mind to it. Now that I have been fighting this fight for so long I have been beaten down and become this miserable person that I don't even like. I try and try but it's just not working,I know I will eventually spread this poisen to your site if I am not carefull.I very much want to be part of this and do solemly swear to keep posts short and positive.My life has been amazing and have no regrets.Thank you so much,I have not given up I just know me.Hope you all have half the adventure I have had in life,It truly is an amazing thing.take care....Butch

[Guest guest]

Hi Butch, Honey I know what it is like to get depressed by this disease. Seems like it is a never ending battle against it . And we all struggle against depression getting overwhelmed by the enormity of the imformation, treatments both good and bad. So you are in good company hon. Never fear what you say in this group. I am oldest owner of this group and the buck stops here. LOL But each and everyone of the owners of this group has been there and done that. So fear not, spout away,vent away and we will understand. Love Janetbutchholland2002 <butchholland2002@...> wrote: Hey Jax,Sheena and who else runs this site, Also to everyone on site if you post this. There is no need to post unless you want. If I haven't already I will start writing sad and depressing post's, I do not want to do that so I think in my case if ok by you all I will only respond if something catch's my eye or tugs at my heart. I will try and keep things brief and upbeat "if possible".I am worried I will where out my welcome here and do not want to, this has been a very helpfull site for me. The problem is I used to be this fun loveing happy guy that everyone liked to hang with. I found life and dove in eyes wide open and had an

unbelievable adventure.There was nothing I could not do. Positive thaughts bring positive results. I went from a ninth grade drop out to running highly scientific research ships, I owned or managed small and large buisness's and corporations,I was living proof it can be done if you set your mind to it. Now that I have been fighting this fight for so long I have been beaten down and become this miserable person that I don't even like. I try and try but it's just not working,I know I will eventually spread this poisen to your site if I am not carefull.I very much want to be part of this and do solemly swear to keep posts short and positive.My life has been amazing and have no regrets.Thank you so much,I have not given up I just know me.Hope you all have half the adventure I have had in life,It truly is an amazing thing.take care....ButchTake the ordinary things of life, and make them your own. Do the impossible with a smile

[Guest guest]

Sorry you are having such a tough time. Hugs from mepatricia <pandas2@...> wrote: Hi all, sorry didn't make it for group chat missed all the fun!! Slept most of day away and then fell asleep at 5 and didn't get up til this AM. Don't think its tx I usually do that when major stress hits me crazy I know. I know stress is bad but things aren't to great right now. Need to focus and not dwell on things I have no control over. WW

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Autos.

[Guest guest]

Sorry you are having such a tough time. Hugs from mepatricia <pandas2@...> wrote: Hi all, sorry didn't make it for group chat missed all the fun!! Slept most of day away and then fell asleep at 5 and didn't get up til this AM. Don't think its tx I usually do that when major stress hits me crazy I know. I know stress is bad but things aren't to great right now. Need to focus and not dwell on things I have no control over. WW

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Autos.

[Guest guest]

Ww Honey We Missed Ya But We Dont Count Off For

Attendance Or Spelling. And Dont Worry We Will Just

Boot You Out Next Week! Hugs Honey! d

--- Hepatitis CSupportGroupForDummies

<pandas2@...> wrote:

> Hi all, sorry didn't make it for group chat missed

all the fun!! Slept most of day away and then fell

asleep at 5 and didn't get up til this AM. Don't

think its tx I usually do that when major stress hits

me crazy I know. I know stress is bad but things

aren't to great right now. Need to focus and not

dwell on things I have no control over. WW

__________________________________________________

[Guest guest]

That sounds like a plan booting me out LOL. Cracked me up last time one minute I was there and then poof I was gone. Glad you don't count off for attendance or spelling. Have spell check use it once in awhile. Hugs to all....WWdannegrl <dannegrl2003@...> wrote: Ww Honey We Missed Ya But We Dont Count Off ForAttendance Or Spelling. And Dont Worry We Will JustBoot You Out Next Week! Hugs Honey! d--- Hepatitis CSupportGroupForDummies <pandas2sbcglobal (DOT) net> wrote:> Hi all, sorry didn't make it for group chat missedall the fun!! Slept most of day away and then fellasleep at 5 and didn't get up til this AM. Don'tthink its tx I usually do that when major stress hitsme crazy I know. I know stress is bad but thingsaren't to great right now. Need to focus and notdwell on things I have no control over. WW__________________________________________________

[Guest guest]

I dont know you or what happened but your mail has a hint of goodbye and I messed up again,I pray to God that your not leaveing I need all of you guys,I know i dont write much and sometimes I dont even read much but I srue hope your there when i need someone Just say whats on your mind remember if offend one person you may have brought about some clarity for many others <> wrote: im sry. about my post. i was angry. I probably should keep my mouth shut.Good luck and God bless you all.

Thanks for the information. Best Wishes

Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos more.

[Guest guest]

I dont know you or what happened but your mail has a hint of goodbye and I messed up again,I pray to God that your not leaveing I need all of you guys,I know i dont write much and sometimes I dont even read much but I srue hope your there when i need someone Just say whats on your mind remember if offend one person you may have brought about some clarity for many others <> wrote: im sry. about my post. i was angry. I probably should keep my mouth shut.Good luck and God bless you all.

Thanks for the information. Best Wishes

Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos more.

[Guest guest]

I dont know you or what happened but your mail has a hint of goodbye and I messed up again,I pray to God that your not leaveing I need all of you guys,I know i dont write much and sometimes I dont even read much but I srue hope your there when i need someone Just say whats on your mind remember if offend one person you may have brought about some clarity for many others <> wrote: im sry. about my post. i was angry. I probably should keep my mouth shut.Good luck and God bless you all.

Thanks for the information. Best Wishes

Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos more.

[Guest guest]

, It's not necessary to say that, but I know how you feel. I hope you will believe me when I say I didn't mean any type of attack on you..at all. I'm sorry it came across that way. I haven't been able to sleep. I'm not going back to reread either post, but I mean it.. I have been known to get somewhat upset at at some folks that say things off the wall and could pose threat to newbies. As a newbie, you don't know shit from shinola! haha.. (I don't mean you...) I understand about the depression, me too. I understand about about family, the people you should8 be able to count on most, and then after talking to them and answering borderline yelling type questions, and hanging up, then realizing you've morphed into the 8 yr. old you use to be, clutching your self, and rocking back and forth rapidly on the edge of the couch, that you once again, realize why you are so screwed up! (me.. not you) being called stupid , is a mean thing, from

those that should love you. OK Enough down memory lane. I was going to pu5t together some nice relaxing music for you, and now I can ask if it's OK? (to your pvt. email) Not my music, guys that are REALLY good, and have real sound people and stuff., I know you only from here, and the same is true for you.. and it's that way for most of us. I hope you will consider that I can be areal pain in the ass, when pushed to do so.. and that doesn't make it right. I had an altercation just last night at Wal Mart. With the "let me see your receipt guy. Too long to explain now. But anyway, , I would like to continue to think that I would not choose a newborn, or newbie to group, to hurt them in some way. I am speaking as much from my heart as I know how at this stage of maturing, that I did not mean to criticize you, Belittle;e you, be less than than what I tried to be.. which was looking out for you. I can See where it may have come across

another way, but I swear to you and God as my witness, it was nit to harm, but only to help you. I feel real bad about this whole thing. Running?? That was my feeble unsuccessful attempt at humor. I joke maybe a little too much sometimes, and I told my therap8st that, and she said " who told you you joke too much? I told her my brother,, and I had jus6t met her, and she said. well, F%^* & your brother!! hahaha. I hope to hear from you, . Del OH!! Can I send a coupla' songs? wrote: im sry. about my post. i was angry. I probably should keep my mouth shut.Good luck and God bless you all. Thanks for the information. Best Wishes

Looking for a deal? Find great prices on flights and hotels with Yahoo! FareChase.

[Guest guest]

, It's not necessary to say that, but I know how you feel. I hope you will believe me when I say I didn't mean any type of attack on you..at all. I'm sorry it came across that way. I haven't been able to sleep. I'm not going back to reread either post, but I mean it.. I have been known to get somewhat upset at at some folks that say things off the wall and could pose threat to newbies. As a newbie, you don't know shit from shinola! haha.. (I don't mean you...) I understand about the depression, me too. I understand about about family, the people you should8 be able to count on most, and then after talking to them and answering borderline yelling type questions, and hanging up, then realizing you've morphed into the 8 yr. old you use to be, clutching your self, and rocking back and forth rapidly on the edge of the couch, that you once again, realize why you are so screwed up! (me.. not you) being called stupid , is a mean thing, from

those that should love you. OK Enough down memory lane. I was going to pu5t together some nice relaxing music for you, and now I can ask if it's OK? (to your pvt. email) Not my music, guys that are REALLY good, and have real sound people and stuff., I know you only from here, and the same is true for you.. and it's that way for most of us. I hope you will consider that I can be areal pain in the ass, when pushed to do so.. and that doesn't make it right. I had an altercation just last night at Wal Mart. With the "let me see your receipt guy. Too long to explain now. But anyway, , I would like to continue to think that I would not choose a newborn, or newbie to group, to hurt them in some way. I am speaking as much from my heart as I know how at this stage of maturing, that I did not mean to criticize you, Belittle;e you, be less than than what I tried to be.. which was looking out for you. I can See where it may have come across

another way, but I swear to you and God as my witness, it was nit to harm, but only to help you. I feel real bad about this whole thing. Running?? That was my feeble unsuccessful attempt at humor. I joke maybe a little too much sometimes, and I told my therap8st that, and she said " who told you you joke too much? I told her my brother,, and I had jus6t met her, and she said. well, F%^* & your brother!! hahaha. I hope to hear from you, . Del OH!! Can I send a coupla' songs? wrote: im sry. about my post. i was angry. I probably should keep my mouth shut.Good luck and God bless you all. Thanks for the information. Best Wishes

Looking for a deal? Find great prices on flights and hotels with Yahoo! FareChase.

[Guest guest]

, It's not necessary to say that, but I know how you feel. I hope you will believe me when I say I didn't mean any type of attack on you..at all. I'm sorry it came across that way. I haven't been able to sleep. I'm not going back to reread either post, but I mean it.. I have been known to get somewhat upset at at some folks that say things off the wall and could pose threat to newbies. As a newbie, you don't know shit from shinola! haha.. (I don't mean you...) I understand about the depression, me too. I understand about about family, the people you should8 be able to count on most, and then after talking to them and answering borderline yelling type questions, and hanging up, then realizing you've morphed into the 8 yr. old you use to be, clutching your self, and rocking back and forth rapidly on the edge of the couch, that you once again, realize why you are so screwed up! (me.. not you) being called stupid , is a mean thing, from

those that should love you. OK Enough down memory lane. I was going to pu5t together some nice relaxing music for you, and now I can ask if it's OK? (to your pvt. email) Not my music, guys that are REALLY good, and have real sound people and stuff., I know you only from here, and the same is true for you.. and it's that way for most of us. I hope you will consider that I can be areal pain in the ass, when pushed to do so.. and that doesn't make it right. I had an altercation just last night at Wal Mart. With the "let me see your receipt guy. Too long to explain now. But anyway, , I would like to continue to think that I would not choose a newborn, or newbie to group, to hurt them in some way. I am speaking as much from my heart as I know how at this stage of maturing, that I did not mean to criticize you, Belittle;e you, be less than than what I tried to be.. which was looking out for you. I can See where it may have come across

another way, but I swear to you and God as my witness, it was nit to harm, but only to help you. I feel real bad about this whole thing. Running?? That was my feeble unsuccessful attempt at humor. I joke maybe a little too much sometimes, and I told my therap8st that, and she said " who told you you joke too much? I told her my brother,, and I had jus6t met her, and she said. well, F%^* & your brother!! hahaha. I hope to hear from you, . Del OH!! Can I send a coupla' songs? wrote: im sry. about my post. i was angry. I probably should keep my mouth shut.Good luck and God bless you all. Thanks for the information. Best Wishes

Looking for a deal? Find great prices on flights and hotels with Yahoo! FareChase.