Kidney stones

June 11, 2001

It is my understanding, from listening to Dr. Barefoot and others, that it is a

calcium deficiency and that the body draws calcium from the bones and in the

process it gets deposited in the kidneys. By supplementing with the right kind

of calcium it stops.

Not a doctor, just repeating what I have heard or read.

Donna

-----Original Message-----

How are kidney stones different from gallstones? There have been alot of

posts in the past on gallstones and the liver/gallstone cleanse. I have

done the cleanse myself with great results. Now I have a male friend who

has been suffering from kidney stones for about a month. He has been in and

out of the hospital doing all sorts of testing, has passed a few kidney

stones and now surgery has been suggested. He has passed stones that are

completely made up of calcium and some that contain uric acid. Why do they

formi in the first place? Is there anything that he should be supplementing

with that would prevent these stones from forming and is there anything such

as the liver/gallbladder cleanse that he should try instead of the surgery?

Thanks, Rose

June 11, 2001

Magnesium and vitamin B6 are the most important supplements to take to prevent

kidney stones, and of course, water.

jp

How are kidney stones different from gallstones? There have been alot of

posts in the past on gallstones and the liver/gallstone cleanse. I have

done the cleanse myself with great results. Now I have a male friend who

has been suffering from kidney stones for about a month. He has been in

and

out of the hospital doing all sorts of testing, has passed a few kidney

stones and now surgery has been suggested. He has passed stones that are

completely made up of calcium and some that contain uric acid. Why do

they

formi in the first place? Is there anything that he should be

supplementing

with that would prevent these stones from forming and is there anything

such

as the liver/gallbladder cleanse that he should try instead of the

surgery?

Thanks, Rose

June 12, 2001

Dear Rose,

He should take supplemental calcium and Vitamin D.

He should eat less meat (uric acid).

He should do the kidney cleanse:

KIDNEY CLEANSE

¼ cup dried Hydrangea root

¼ cup Gravel root

¼ cup Marshmallow root

Black cherry concentrate

4 bunches of fresh parsley

Goldenrod capsules or herb

Vegetable glycerine

Ginger capsules

Uva Ursi capsules

Vitamin B complex ( brewer's yeast tablets)

Magnesium oxide tablets (300 mg)

2 clean glass jars with lids

Procedure:

Soak the roots in 10 cups of clean cold water in a glass container

overnight.

Add black cherry concentrate, heat to boiling and simmer for 20 minutes.

Cool.

Pour the remainder through a bamboo or glass strainer into a glass jar and

refrigerate.

Rinse fresh parsley, then boil in 1 quart of water for ten minutes. Cool.

Discard parsley and refrigerate liquid.

Each morning, pour together ¾ cup of the root mixture and ½ cup parsley

water.

Add 20 drops of goldenrod tincture and 1 tablespoon of vegetable

glycerin. Keep cold, and drink in ¼ cup doses throughout the day.

Take one ginger capsule with each meal ( 3 per day ).

Take one Uva Ursi capsule at breakfast and two at supper.

Take one brewer's yeast tablet daily.

Take 300 mg magnesium oxide daily.

Best of Health!

Dr. Saul Pressman, DCh, LOH

Kidney Stones

> How are kidney stones different from gallstones? There have been alot of

> posts in the past on gallstones and the liver/gallstone cleanse. I have

> done the cleanse myself with great results. Now I have a male friend who

> has been suffering from kidney stones for about a month. He has been in

and

> out of the hospital doing all sorts of testing, has passed a few kidney

> stones and now surgery has been suggested. He has passed stones that are

> completely made up of calcium and some that contain uric acid. Why do

they

> formi in the first place? Is there anything that he should be

supplementing

> with that would prevent these stones from forming and is there anything

such

> as the liver/gallbladder cleanse that he should try instead of the

surgery?

> Thanks, Rose

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com

>

June 13, 2002

Just thought I'd mention that my husband passed his 3rd kidney stone on the

morning we were to leave for our 10th anniv. vacation. (last mon.) He was in

excruciating pain. Last time (only 2 years ago) they did surgery to remove

it. We are waiting on the lab results to see what we can do to prevent this

in the future. I'll be sure to pass any wisdom along as soon as I get

'enlightened' on this subject of peeing rocks.

Stay healthy

June 13, 2002

Thank you for sharing with us and welcome to the group. Some of the members

here do not have Still's but we treasure their friendship and dedication just

the same. I hope you have some better days. My name is Patty. I also take

Sulfasalazine. I found your information very informative. Good day with a

smile, Pattymelt

Kidney Stones

Texte du message écrit par INTERNET:Stillsdisease

><

Hi everybody, I don't know for sure if I got Still's but some criterias

match well some others don't for the moment I don't have systemic signs but

I have night sweats from time to time joints pain and some sore throat at

times neurtrophilic count is somtimes high.

My painful joints are generally spine hips fingers elbows and knees they

are mostly chronic but I have some very swift self remitting flares when I

work too much or when I get angry with some patients (I'm a French dental

surgeon), I noticed that urine is sometimes very cloudy specially in the

morning or when I have acute pain. I 'm currently under sulfasalazine

treatment but it doesn't work so much. Concerning your kidney stones you

certainly got to drink a lot, but the cloudy substance that I eliminate is

phosphate, dosing phosphate in the urine has no meaning because it is very

changing due to food diet and personnal reasons but remember that the

major component of bone is phosphate, so I personnaly think that I "

eliminate my bones " , therefore phosphaturia is raised in bone diseases.But

I already had oxalate kidney stones which are the most frequent ones seems

to me.

Ask your physician anyway, you can know that it is phosphate by pouring

vinegar in the sample, it turns normal. that's how they do in labs I think.

Have a good day

Visit the Still's Disease Message Board

http://disc.server.com/Indices/148599.html

June 14, 2002

Marilyn,

>Has he seen a dietician to help him control the levels with a

certain diet? I assume the doctors diagnosed the stones as being

from calcium.<

He hasn't seen a dietican yet. The doctor is sending the stones to be

analyzed. I guess I am just assuming it will be the calcium. I read

they were they most common.

> Does he go to a Kidney Stone Prevention Clinic? <

What is a Kidney Stone Prevention Clinic and how do you find one?

Thanks for your advice and sharing your experience. Every little

nugget of information helps us.

Nannette

June 14, 2002

>I'll be sure to pass any wisdom along as soon as I get

> 'enlightened' on this subject of peeing rocks.

>> Stay healthy

> <

I had to laugh at your last line (although I'm sure the guys don't

think it's funny) but that's literally what happened!

Nannette

June 14, 2002

> Ask your physician anyway, you can know that it is phosphate by

pouring > vinegar in the sample, it turns normal. that's how they do

in labs I think. Have a good day<

I'll have Andy ask about this when he sees the doctor again on

Monday. Thanks!

Nannette

June 14, 2002

In a message dated 6/14/2002 5:29:37 PM Eastern Daylight Time,

Stillsdisease writes:

> and will then send you to see the dietician and based on the results of

> these tests, the dietician will then look at the levels and if you are high

> in calcium, etc. then they will more or less tell you how much calcium you

> are allowed to eat daily and will also tell you from looking at the results

> as to how much magnesium or potassium you will need daily among other

> things. They also give you lists of different foods that would be say high

> in calcium or magnesium or oxalates, etc. They will tell you what foods to

> stay away from. So in other words they are reshaping your diet to prevent

> any more kidney stones from forming.

>

Yes, dietitians can help you with a diet for kidney stones, but we now know

that it may be a lack of calcium in a diet that causes calcium based kidney

stones and the most update nutrition info is NOT to restrict calcium, but to

get enough in your diet. Please see a dietitian in your area after the stones

have been analyzed so that the appropriate diet can be prescribed. Above

all, drink lots of water!

Good Luck-

Shelby

rsnz@...

June 14, 2002

What is a Kidney Stone Prevention Clinic and how do you find one

Nannette,

I don't remember if you said where you are from but I'm from Ontario, Canada and

here we have what you would call Kidney Stone Prevention Clinics here. What

happened is because I have had a couple of kidney stones on separate occasions,

the doctor's thought I should see a Kidney specialist who will monitor my kidney

levels among other things to try and prevent additional kidney stones from

forming. As in your hubby's case, once they diagnose what the stone is made of

then they can begin the prevention treatment. The Kidney prevention clinic is

represented by a Kidney specialist and a dietician. The Kidney specialist will

review the findings of your stone's results along with some urine and blood work

tests and will then send you to see the dietician and based on the results of

these tests, the dietician will then look at the levels and if you are high in

calcium, etc. then they will more or less tell you how much calcium you are

allowed to eat daily and will also tell you from looking at the results as to

how much magnesium or potassium you will need daily among other things. They

also give you lists of different foods that would be say high in calcium or

magnesium or oxalates, etc. They will tell you what foods to stay away from.

So in other words they are reshaping your diet to prevent any more kidney stones

from forming.

Then they will ask you to come back in six months but just before you go back

they will ask you to do a 24 hour urine collection along with lots of bloodwork.

When you go back to see the kidney specialist, he/she will review the blood work

and urine results to determine if there has been any change from the previous

test. He might even prescribed some medication for you if your test results do

not get better through the diet.

So more or less the Doctor and Dietician work hand in hand to try and help you

from getting more kidney stones thru diet and medication but they monitor you

every six months or so depending how well your readings/tests results are to

keep on top of things.

Usually, whoever is currently treating you for your kidney stones would normally

refer you to this Clinic but perhaps this only happens if you have had a

recurrent episode of them. Best to ask the doctor he is seeing now about it as

I'm sure if there is a Clinic in your area then this doctor would know and be

able to help you with that.

Gosh, I hope I explained this okay, I'm getting the feeling I didn't but if you

have any questions, just ask and I will try and answer them.

<now if I could just get online again so I can post this....arrggghhh, darn

connection problems>

Take care,

Marilyn

mhogg69@...

June 15, 2002

Hi: Marilyn

My wife and I live in Pennsylvania. Thanks for all the info on the

Kidney Stone Prevention Clinic. I will have to ask the Urologist. The

word is still out on the make up of my stones.

Thanks again

Andy

January 11, 2003

Hiya all

I was wondering if any of you suffer from or have had or know if people with

sma are more likely to get kidney stones?? After 2 very bad (and my first

ever) UTI's my doc is sending me for test as he thinks i have stones. Ive

read about the possible treatment for them, drugs or keyhole surgery, but

wanted to see if anyone had had them and if its common in us folks.

thanks

January 11, 2003

In a message dated 1/11/2003 10:53:12 AM Central Standard Time,

Canarymy@... writes:

> I was wondering if any of you suffer from or have had or know if people with

>

> sma are more likely to get kidney stones?? After 2 very bad (and my first

> ever) UTI's my doc is sending me for test as he thinks i have stones. Ive

> read about the possible treatment for them, drugs or keyhole surgery, but

> wanted to see if anyone had had them and if its common in us folks.

I had my first " bout " with them in July and holy hell, they're painful. I

had my first UTI when I was 18 and had them almost continuously for 3 years

or so. I used to hold my pee forever when I was a kid and never had one UTI.

My dr. said that recurrent bladder/kidney infections can cause kidney

stones, so that's where I'm at. I had 2 small stones in my right kidney as

of July, but I drank tons of water & think I flushed them out. All I can say

is drink water even when you feel like you're gonna pop and go pee as soon as

you feel the urge (not always realistic, I know.) Good luck!

January 11, 2003

Jordan (age 13, type II) has had a few kidney stones as well. The last time

they did something to isolate and break the stone so it could pass. I think

there may be something to SMA with kidney stones, but not sure.

Re: Kidney stones

Hiya all

I was wondering if any of you suffer from or have had or know if people with

sma are more likely to get kidney stones?? After 2 very bad (and my first

ever) UTI's my doc is sending me for test as he thinks i have stones. Ive

read about the possible treatment for them, drugs or keyhole surgery, but

wanted to see if anyone had had them and if its common in us folks.

thanks

January 13, 2003

Hi all:

MJ's friend, Liz, has congenital MD, and has kidney stones. She was told

that it is common in people who don't move around. They gave her a few

causes: 1) Spinal curve, 2) Inability to digest calcium, 3) g-tube, and 4)

Not enough liquids per day. With the calcium, they give Liz calcium

supplements since her bones are very weak but she has trouble breaking it

down so she develops kidney stones, so she is on another medicine to break

down the calcium. Just thought I'd add my 2cents.

http://photos./bshanson68</A> photos

http://www.our-sma-angels.com/Margaret/</A> new website

http://www.caringbridge.com/ny/mjpurk</A> journal

http://smilequilts.com/margaret.html</A> smile quilt

http://www.hugsandhope.com

A child is like a butterfly. Some can fly higher than others,

but each one flies the best it can. Why compare one against the other?

Each one is different. Each one is special. Each one is beautiful.

January 13, 2003

Thanks for all the info and shared thoughts on kidney stones. Am still in

pain and awaiting confirmation with tests but am feeling ok in myself -

drinking lots, which i always do and peeing often! My boss at work is being

mean about me taking time off <sigh> just something else to deal with but

will let you know how the tests go.

Cheers

July 5, 2003

Hey ,

My dad had awful kidney stones and his sister does too. Calcium is the

biggest culprit. My dad lived on Tums and Maalox and that did it to him.

My aunt has crohn's disease and does not have most of her small bowel to

absorb the minerals so they build up in the kidneys. I was addicted to Tums

for years so my kidneys are probably just waiting. I know how much pain you

must be in, I saw my Dad hit the floor once like a baby. NOt pretty. Hang

in there and we will be thinking of you!

ps. The main reason Prudential denied my claim is that they say my job as

a Supervisor was sedentary, therefore there is nothing preventing me from

sitting at a desk all day!!! I am going to fight these assholes but can use

any extra advice.

Luv ya

Lynn Renae Dudenhoefer

lynndude@...

-On any path that you may stroll,

-keep your angel in your soul!

-- KIDNEY STONES

Hello everybody,

I hope you all had a wonderful fourth of July and a pain free day.

I have a question for everyone. Has any medication that we take for Still's

cause Kidney stones or does it depend on our diet? I just got back from

9-1/2 hours in the emergency room after passing a stone " talk about

excruciating pain " , now I had alitttle taste of what my wife went through in

labor, except no down time between contractions. The doctors in there had no

understanding of Still's at all, they just looked at me as if I was crazy as

I tried to explain about fevers, elevated blood count, swollen liver and

spleen. The chest pain shortness of breath as my body stressed and the flare

hit. Well needless to say it was rough one. I am up and somewhat moving, but

my little ones are upset at not getting to shoot off fireworks, I am going

to try to remedy that tonight with a litttle help from my dad. I went to see

a new rhemy Thursday, I do not know if he is on the list, he works at St.

Louis University. His name is Dr. Terry , he was actually a college

roommate of my primary

care doctor. I did get some good news from Dr. , he said that I will

probably qualify for the TNF program, I will know more after two weeks after

the results of the 28 blood test he had done on me. He refers to me as his

mystery man. " I do not know if that is good or bad " . Well I have to go for

now the pain killer is wearing off and aterdrinking 24oz of Barrium and 3 CT

scans and what felt like 4 hours of labor, I am exhausted. If anybody knows

aything on kidney stones being brought on by Still's, or the med's we take I

sure would appreciate any type of feedback. Well everybody please take care!

Best Regards,

Brown

St. , MO.

July 5, 2003