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Roll Call!

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I am here, I just moved

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a

From:

[mailto: ] On Behalf Of GRAMDONE2@...

Sent: Friday, March 03, 2006 11:34

PM

Subject: Re: Roll

Call!

I am ok just

mild flare ups from the weather and have been helping my pregnant daughter out

lately

Billie

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i am okay, i just moved on Tuesday and just got my internet back on friday

Hugs

a

>

> List has been awful quiet, is everyone okay?

>

>

> --

> No virus found in this outgoing message.

> Checked by AVG Free Edition.

> Version: 7.1.375 / Virus Database: 268.1.2/274 - Release Date: 3/3/2006

>

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Hello, I have been sick alot lately I have been getting hives everyday and I have been getting Nausea with throwing up everyday. channing Kum <heatherlkum@...> wrote: List has been awful quiet, is everyone okay?

Bring photos to life! New PhotoMail makes sharing a breeze.

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Im doing alright, just a lot of trouble with part time job and Im gonna have to quit. I had to call in today and got a nasty piussed off response, forget it, I dont need all this drama! Hope everyone else out there is good, I have not posted much with exhaustion from trying to juggle a crazy work schedule

take care all

Colleen

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Hi I am here, a semi new member that doesn't write much. Doing semi ok as usual. Nothing much new, docs recently put me on morphine but nothing stops the leg pain at night except a hot bath!

love,

45 w/fibro

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here, just really busy what with hubby starting new career as long haul trucker and my learning to do the housework all on my own as well as needing to be available to go with my inlaws on their schedule when I need to go shopping - this all has led to my being more tired than normal during the last about 9 weeks since hubby started his 3 weeks of trucking classes, then 2 weeks OTJ training in a parking lot and now he is on his second of 6 weeks of OTJ over the road training.

T. aka Pegasus

-- RE: Roll Call!

I am here, I just moved

Hugs

a

From: [mailto: ] On Behalf Of GRAMDONE2@...Sent: Friday, March 03, 2006 11:34 PM Subject: Re: Roll Call!

I am ok just mild flare ups from the weather and have been helping my pregnant daughter out lately

Billie

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Hi ,

I'm here... Haven't been feeling well, will try and get back into the swing of things... Trying to get the house cleaned up for company coming to stay for a week from Texas... Just takes me so darn long to do even the littlest tasks... Still have two more quilts to finish, # 35 & # 36, then all family members will have a memory quilt from me, haven't had the gumption to do them either... Made Saedi an Irish costume for school last week... She is doing Ireland as her country and wearing the traditional clothing from past times is extra credit, so she helped me get her one made... In turn she helped Grama with some of the house chores, which they do all the time any ways...

Getting up to 60* here this next weekend, hopefully that will help with the pains that have been so severe... Fibro, Lupus, Degenerative arthritis have all been flaring :o(

Sorry to the list for being neglectful, will try and do better here...

How you doing ???

((( SpringTime Hugs )))Mom/Helen

List has been awful quiet, is everyone okay?

"When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate."

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  • 3 years later...

Hi! I'm Maurita, I have 5 bio boys, 3 diagnosed with IgA def, Wesley, 15,

, 13, and , 11. Lucas, 5, has never been sick enough to be

tested. , 17mos, was born with a serious heart condition. He's had

a hemi-fontan (heart surgery), last December, and will need another heart

surgery when he's between 3 and 4, possibly more issues after that one,

hopefully NOT leading to a heart transplant as the only option. We have 2

lovely daughters from Haiti, 10 and 7, who are strong and healthy. We have

5 precious Liberian children, home for just over a year now, one with Post

Polio Syndrome, and one with a seizure disorder, which we are looking to our

dear naturopath to deal with it. They are Abigail, 15, Seraphina (with the

PPO), 13, Venece (w/sd) 13, Tikvah, 11, and Micah, 9. They are all quite

healthy. The PID boys and I (I also have the Iga, along with Celiac and

APA) are doing quite well. We moved to WA state a little over 5 years ago,

got our own cow, and have been extremely healthy ever since! We've learned a

lot about real foods. This is why you rarely hear from me! We have

virtually no issues that all of you do, I wish I could share our good

health with you!!

We home educate, and our lives are very full. Wesley and are in

Civil Air Patrol, and is becoming a computer expert. The others are

busy learning to read, and getting used to America. It is an unusual

calling we have, and it is quite an adventure!!! It will be fun to read

many of your stories!!

Warmly, Maurita Klement

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Hi! I'm Maurita, I have 5 bio boys, 3 diagnosed with IgA def, Wesley, 15,

, 13, and , 11. Lucas, 5, has never been sick enough to be

tested. , 17mos, was born with a serious heart condition. He's had

a hemi-fontan (heart surgery), last December, and will need another heart

surgery when he's between 3 and 4, possibly more issues after that one,

hopefully NOT leading to a heart transplant as the only option. We have 2

lovely daughters from Haiti, 10 and 7, who are strong and healthy. We have

5 precious Liberian children, home for just over a year now, one with Post

Polio Syndrome, and one with a seizure disorder, which we are looking to our

dear naturopath to deal with it. They are Abigail, 15, Seraphina (with the

PPO), 13, Venece (w/sd) 13, Tikvah, 11, and Micah, 9. They are all quite

healthy. The PID boys and I (I also have the Iga, along with Celiac and

APA) are doing quite well. We moved to WA state a little over 5 years ago,

got our own cow, and have been extremely healthy ever since! We've learned a

lot about real foods. This is why you rarely hear from me! We have

virtually no issues that all of you do, I wish I could share our good

health with you!!

We home educate, and our lives are very full. Wesley and are in

Civil Air Patrol, and is becoming a computer expert. The others are

busy learning to read, and getting used to America. It is an unusual

calling we have, and it is quite an adventure!!! It will be fun to read

many of your stories!!

Warmly, Maurita Klement

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  • 2 weeks later...

From: [mailto: ] On Behalf Of

CYNDITK

Sent: Monday, November 23, 2009 3:09 PM

Subject: Roll Call!

Name: Lorri Kraft

> > General Location/state/city: Seattle, WA area

pid Pumpkin:

> > Age: 19

> > Grade: college age

> > School Status: no school works part time

> > SIblings & Ages: one Rebekah 21

> > Diagnosis: CVID, low IgA

> > How Long Since Diagnosis: 15 YEARS

> > Treatment: Just IVIG BI WEEKLY

> > Additional Health Concerns: JOINT ISSUES

> > Best Website for dealing with all this PI stuff: IDF

> > Best resource you've found: this group

> > Best PI Tip: don't give up the fight

> >

> > Tell us a little about yourself/your child, or anything!

I'm use to work with behavior disorder students got hurt recently now

looking for a job. Ready for a change my body can’t take restraining kids

anymore!

> >

>

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