Guest guest Posted August 21, 2002 Report Share Posted August 21, 2002 Diane, I'd still push SSI--then you can take him to the hospital that you want to. How much longer do they think that will take? Sandi, 's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 Diane, With SSI comes Medicaid. Do they accept Medicaid at that hospital? You know Bri qualified, but we don't get any money. Anyway, I'm over it, but I learned at that time, we could do the " Beckett " thing. Not get the money, but get the Medicaid. Because I am on SSDI, he is on Medicaid anyway--so I felt there wouldn't be an advantage. It's handled a little differently, but I think it's basically the same. So, that's why I was asking: wouldn't the Children's Hospital accept Medicaid? I would call his SSI worker and start pushing. You have some new diagnoses. This time, with my review, my worked is NICE. Yes, you read right, she's nice. She told me she is going to push for a review only once every seven years instead of three to four. And when I get this new diagnosis in writing, she almost guaranteed me she could do that. It's worth a try, some of them aren't bad. You could always ask to speak to the supervisor. Sometimes, the squeaky Mom gets things done. I try nice first, when that doesn't work, I use waaaaay assertiveness; with a smile of course. Hang in there-- Sandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 I am going to call the SSI agency today to notify them of this insurance problem. We won't get our determination until December. Very frustrating. I don't know if that would make a difference anyhow, they don't pay the hospital bills for me. Although he does have his Children's Special Health Care Services insurance, but I just don't know if they would pay for the whole cost of treating Kody at the hospital. I think they would just say that there is other hospitals available for him (never mind the fact that they stink). Needless to say, I am a bit depressed today. Diane, Mom to Kody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 > Diane, > With SSI comes Medicaid. Do they accept Medicaid at that hospital? Yes....BUT here you can't get medicaid if you have private insurance available to you.....always a catch, huh???? And he does get a form of medicaid, the Children's special health care insurance supplement is through medicaid. But again, it is based on a primary insurance being billed first. I think that in this case, since there are alternatives available (albeit bad alternatives) then the CSHCS insurance will not okay us to go continue at the hospital. But believe me, I am going to really try hard!!! My Mom made the smart suggestion that if we do have to go to this other hospital, to call and have Kody come down and tour it, meet the nurses, see the rooms etc and ask tons of questions about their knowledge about PID. Good idea....think I'll do that. Anyone ever interview a hospital? LOL Diane, Mom to Kody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 Have you written a letter to the Medical Director of the hospital or the BOD. If Kody is double covered maybe due to hardship they would be willing to accept what you have. A hospital must accept your state coverage and not bill you for anything else . It is against the law to bill you if you are on medicaid. I know because I have to write off alot of accounts. They have to make you sign a waiver notifying you that it is not covered at all by medical coupons and you have to choose to pay for it. Write a letter to challenge them. Also you may want to check in with the Insurance Commissioners Office in your state. We have a program in Wa that I do believe is state wide that is called SHIBA. It stands for Statewide Health Insurance Benefits Advisors. Our agencey provides staff to work with families who are having difficulties getting care or things paid for by insurance companies. Just some thoughts. If you have more questions feel free to contact me offline. BARBIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2002 Report Share Posted August 25, 2002 To You, My Sisters by Maureen K. Higgins - submitted by Tricia Luker Many of you I have never even met face to face, but I've searched you out every day. I've looked for you on the Internet, on playgrounds and in grocery stores. I've become an expert at identifying you. You are well worn. You are stronger than you ever wanted to be. Your words ring experience, experience you culled with your very heart and soul. You are compassionate beyond the expectations of this world. You are my " sisters. " Yes, you and I, my friend, are sisters in a sorority. A very elite sorority. We are special. Just like any other sorority, we were chosen to be members. Some of us were invited to join immediately, some not for months or even years. Some of us even tried to refuse membership, but to no avail. We were initiated in neurologist's offices and NICU units, in obstetrician's offices, in emergency rooms, and during ultrasounds. We were initiated with somber telephone calls, consultations, evaluations, blood tests, x-rays, MRI films, and heart surgeries. All of us have one thing in common. One day things were fine. We were pregnant, or we had just given birth, or we were nursing our newborn, or we were playing with our toddler. Yes, one minute everything was fine. Then, whether it happened in an instant, as it often does, or over the course of a few weeks or months, our entire lives changed. Something wasn't quite right. Then we found ourselves mothers of children with special needs. We are united, we sisters, regardless of the diversity of our children's special needs. Some of our children undergo chemotherapy. Some need respirators and ventilators. Some are unable to talk, some are unable to walk. Some eat through feeding tubes. Some live in a different world. We do not discriminate against those mothers whose children's needs are not as " special " as our child's. We have mutual respect and empathy for all the women who walk in our shoes. We are knowledgeable. We have educated ourselves with whatever materials we could find. We know " the " specialists in the field. We know " the " neurologists, " the " hospitals, " the " wonder drugs, " the " treatments. We know " the " tests that need to be done, we know " the " degenerative and progressive diseases and we hold our breath while our children are tested for them. Without formal education, we could become board certified in neurology, endocrinology, and pschylogy. We have taken on our insurance companies and school boards to get what our children need to survive, and to flourish. We have prevailed upon the State to include augmentative communication devices in special education classes and mainstream schools for our children with cerebral palsy. We have labored to prove to insurance companies the medical necessity of gait trainers and other adaptive equipment for our children with spinal cord defects. We have sued municipalities to have our children properly classified so they could receive education and evaluation commensurate with their diagnosis. We have learned to deal with the rest of the world, even if that means walking away from it. We have tolerated scorn in supermarkets during " tantrums " and gritted our teeth while discipline was advocated by the person behind us on line. We have tolerated inane suggestions and home remedies from well-meaning strangers. We have tolerated mothers of children without special needs complaining about chicken pox and ear infections. We have learned that many of our closest friends can't understand what it's like to be in our sorority, and don't even want to try. We have our own personal copies of Perl Kingsley's " A Trip To Holland " and Erma Bombeck's " The Special Mother " . We keep them by our bedside and read and reread them during our toughest hours. We have coped with holidays. We have found ways to get our physically handicapped children to the neighbors' front doors on Halloween, and we have found ways to help our deaf children form the words, " trick or treat. " We have accepted that our children with sensory dysfunction will never wear velvet or lace on Christmas. We have painted a canvas of lights and a blazing Yule log with our words for our blind children. We have pureed turkey on Thanksgiving. We have bought white chocolate bunnies for Easter. And all the while, we have tried to create a festive atmosphere for the rest of our family. We've gotten up every morning since our journey began wondering how we'd make it through another day, and gone to bed every evening not sure how we did it. We've mourned the fact that we never got to relax and sip red wine in Italy. We've mourned the fact that our trip to Holland has required much more baggage than we ever imagined when we first visited the travel agent. And we've mourned because we left for the airport without most of the things we needed for the trip. But we, sisters, we keep the faith always. We never stop believing. Our love for our special children and our belief in all that they will achieve in life knows no bounds. We dream of them scoring touchdowns and extra points and home runs. We visualize them running sprints and marathons. We dream of them planting vegetable seeds, riding horses and chopping down trees. We hear their angelic voices singing Christmas carols. We see their palettes smeared with watercolors, and their fingers flying over ivory keys in a concert hall. We are amazed at the grace of their pirouettes. We never, never stop believing in all they will accomplish as they pass through this world. But in the meantime, my sisters, the most important thing we do, is hold tight to their little hands as together, we special mothers and our special children, reach for the stars. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 My Nephew left for Afghanistan this afternoon... Helen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 i will be keeping your nephew in my thoughts and be praying for his safe return home evelynangelbear1129@... wrote: My Nephew left for Afghanistan this afternoon... Helen Brings words and photos together (easily) with PhotoMail - it's free and works with . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 My thoughts and prayers are with you and your nephew. I know how having a loved one off on deployment can be.. My husband was in Iraq in march of 2003. stephanie From: [mailto: ] On Behalf Of evelyn Sent: Saturday, March 11, 2006 7:05 PM Subject: Re: ( i will be keeping your nephew in my thoughts and be praying for his safe return home evelyn angelbear1129@... wrote: My Nephew left for Afghanistan this afternoon... Helen Brings words and photos together (easily) with PhotoMail - it's free and works with . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2006 Report Share Posted March 19, 2006 Thank-You Anne God Bless him and all the men who serve with him Anne (V) (V) (V) (V) (V)\|/ \|/ \|/ \|/ \|/^^^^^^^^^^^^^^^^^^^ THINK SPRING !!!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2006 Report Share Posted March 19, 2006 Thank-You... His name is ... i will be keeping your nephew in my thoughts and be praying for his safe return home evelyn (V) (V) (V) (V) (V)\|/ \|/ \|/ \|/ \|/^^^^^^^^^^^^^^^^^^^ THINK SPRING !!!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2006 Report Share Posted March 19, 2006 Thank-You My thoughts and prayers are with you and your nephew. I know how having a loved one off on deployment can be.. My husband was in Iraq in march of 2003. stephanie (V) (V) (V) (V) (V)\|/ \|/ \|/ \|/ \|/^^^^^^^^^^^^^^^^^^^ THINK SPRING !!!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2006 Report Share Posted March 19, 2006 Thank-You As will I Helen. love, (V) (V) (V) (V) (V)\|/ \|/ \|/ \|/ \|/^^^^^^^^^^^^^^^^^^^ THINK SPRING !!!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2006 Report Share Posted December 12, 2006 sorry to hear about your grandpa! hugs, to you and I will light a candle and pray for your family Helen.. love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2006 Report Share Posted December 12, 2006 Sorry to hear about your Grandpa Helen. My thoughts and prayers are with you. Best to you and your family in this trying time. HopeDegenerative Disease Informationhttp://www.2betrhealth.com epilepsyhealth@... Saskatchewan, Canada1 306 648-2642 (CST) ( Grapa's gone... He passed away tonight... Helen "When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2006 Report Share Posted December 12, 2006 I will be thinking and praying for you and your family. G Grapa's gone... He passed away tonight... Helen "When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate." .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 Dear Helen, I know this is very late, but you have my condolences on the passing of Grapa's. You've had a rough couple of months (at least) and you've been in my prayers. It must be a relief to know that he is not suffering anymore. It is hard to let go of the ones we love. You will stay in my prayers. Love ; ) Willow --- angelbear1129@... wrote: > Grapa's gone... He passed away tonight... > Helen > > > " When life's problems seem overwhelming, > look around and see what other people are coping > with. > You may consider yourself fortunate. " > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 Dear Helen, I know this is very late, but you have my condolences on the passing of Grapa's. You've had a rough couple of months (at least) and you've been in my prayers. It must be a relief to know that he is not suffering anymore. It is hard to let go of the ones we love. You will stay in my prayers. Love ; ) Willow --- angelbear1129@... wrote: > Grapa's gone... He passed away tonight... > Helen > > > " When life's problems seem overwhelming, > look around and see what other people are coping > with. > You may consider yourself fortunate. " > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 Thanks Willow Dear Helen,I know this is very late, but you have my condolenceson the passing of Grapa's. You've had a rough coupleof months (at least) and you've been in my prayers. Itmust be a relief to know that he is not sufferinganymore. It is hard to let go of the ones we love. Youwill stay in my prayers.Love ; )Willow "When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 Thanks Willow Dear Helen,I know this is very late, but you have my condolenceson the passing of Grapa's. You've had a rough coupleof months (at least) and you've been in my prayers. Itmust be a relief to know that he is not sufferinganymore. It is hard to let go of the ones we love. Youwill stay in my prayers.Love ; )Willow "When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate." Quote Link to comment Share on other sites More sharing options...
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