Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 Carmell, There are so may things that I want to talk to you about, too! I am running late to pick Liv up from school, but I will give you a ring tomorrow. Thanks for everything Carmell. talk nsoon, HRH > Hi ! > > I was going to come to SLC today, but, looking out my > window, I'm not sure we're going to make it - too much > snow up here. > > I'm planning on calling you soon! I know you've had > family with you and that you've been getting > & quot;settled & quot;. Maybe next week when you are really bored, > I'll call. I have so many things I want to share, and > many questions I want to ask about Olivia and her > treatment, etc. > > Braydon will be at PCMP on Feb. 10 to have pre-op > testing (for his next VEPTR surgery) as well as > meeting with a pulminologist. He's been having > occasional episodes where he feels like he can't get > his breath. He says it feels like, & quot;there isn't > enough air around me & quot;. Hopefully its only because he > needs and expansion (replacement of both rods, > actually). His chestwall rod hasn't been expanded > since March 2005. > > We'll be in SLC a few other times having appointments > at the University hospital. I'm sure we'll catch up > with you at least once before Olivia's surgery. > > Leg length issues are only one of the things I think > you should keep an eye on. Remember that after the > VEPTR you'll have to lift her, or help her up, without > pulling on her arms or lifting under her armpits. You > learn how to lift/assist using their trunk or hips. > Things like this that sometimes & quot;they & quot; don't remember > to tell you. Also, things like post-op dressing and > care for the trip home. We'll chat later! > > I'm glad to hear Olivia is going to school. How does > she like it? Hopefully she's not too bored. How's > the piano lessons! I LOVE to play the piano. I have > two pianos in my house... very cool for Olivia. Keep > up the good work, both of you! > > Love ya, > Carmell > > > mom to Kara 19, idiopathic scoliosis, Blake 15, GERD and Braydon 10, > VACTERL, GERD, DGE, Titanium Rib Project patient #137 (dbl implant 8/01), > thoracic insufficiency, rib anomalies, congenital scoliosis (fusion > surgery 5/96), missing coccyx, fatty filum/TC (released 4/99), anal > stenosis, chronic constipation, horseshoe (cross-fused) kidney, dbl > ureter in left kidney, ureterocele (excized 6/95), kidney reflux > (reimplant surgery 1/97), neurogenic bladder, bilateral hip dysplasia, > right leg/foot dyplasia, tibial torsion, clubfoot with 8 toes > (reconstructed 2/96, 3/96, 1/97, 3/04), pes cavus, single umblilical > artery, tonsil-adnoidectomy and ear tubes (3/98), etc. > http://carmellb-ivil.tripod.com/myfamily/ > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2007 Report Share Posted March 23, 2007 Hi Guys, didn't call today. I will check in with her tomorrow if she doesn't call by mid morning. Usually no news is good news. They were pretty tired from yesterday. I wanted to give her some space today. Just keep praying. Love you guys shellie basketsnboyds wrote: Just wondering if or anyone knew how Olivia did today? I've had them on my mind all day.... Thanks and Evan --------------------------------- Expecting? Get great news right away with email Auto-Check. Try the Beta. Quote Link to comment Share on other sites More sharing options...
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