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Re: Digest Number 252

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Louis Harkins

Louis, I have not looked at Edna Foa's treatment manual but I am very familiar

with the treatment which is excellent. In general following treatment manuals

by the letter works best for folks who have OCD and nothing else- no depression,

other anxieties etc- so for the small percentage of people who fit that category

step by step manual treatment is great. For others the manual is a guide, but

you need the flexibility to deal with other issues as they emerge. The key to

any successful treatment though is that the child (whether 6 or 16) feels in

charge of the challenges and sees some benefit to him taking them and feels

supported by the therapist. Sometimes when there is OCD and social phobia I

find that kids are very afraid to leave the isolation of OCD (though it is

miserable) because they fear they can't make it socially a)because they have

fears, distortions etc about that and B) because they have missed out on years

of practice so there may be some actual skill

deficits- social fears can be treated- often it can be helpful in a group

situation. Perhaps his fears about recovery and what life may be like for him

could be discussed with his therapist. I guess my question is how was your son

disappointed in his therapy thus far? Finding out the answers to that question

may lead you in the right direction, e.g., does your son need to give the

therapist some feedback about what's working and what's not... does he not feel

listened to respected by etc the therapist- sometimes that can be remedied,

sometimes not.

Best wishes,

Tamar Chansky, Ph.D.

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  • 3 months later...

Dear Readers,

I would greatly appreciate any advise you can give me on how to prepare our

family, friends , and ourselves for the great possibility that our 15 month

old

may have achondroplasia. I do not write this with the intention of making any

one

angry or hurt , I just don't know what to do. From what I have read so far we

fall in the majority of not haveing any short statured persons in or family

and I do not personally know anyone of short stature to turn to for advise.

We have two other children ages 9 and 8, that we will have to explain all

this to but how do we do that

so they understand? What do I change as far as the house goes? I know there

are books out there and I have some coming but I have learned form experence

with other things word of mouth sometimes can give you a wealth of

information that books either forget or don't think nessary. I hope I have

not offended anyone I am at the begining of this journey and kind of at a

loss of what to do until we get test results as far as preparing myself .

Thank you ahead of time for your understanding and help.

sincerely,

Ang

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  • 2 months later...
Guest guest

Welcome Kelli to the list! I just have one set of b/g twins, Eli and Milo.

Eli has DS, Milo doesn't. So you're not alone. I also have a son, Logan who

will be 6 in June. My twins are 3 1/2, they'll be 4 in September. So

WELCOME!!

And Bonnie, sounds like you and Nick are doing great. Cutting teeth...isn't

it nice to have something " normal " to worry about??? Glad to hear he's

continuing to improve.

Love to all from Debbi

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  • 5 weeks later...
  • 1 month later...
Guest guest

Hi everyone,

I unsubscribed for now..going to chicago. back Mon pm..too much mail to read.

when I come back, I'll have to get serious about diet and this!!

for now, I'm off to the windy city for some partying with the family for my

niece's wedding!!

Ellen

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  • 1 month later...
Guest guest

mary,

when he dumps, do you make him clean it up himself....... or do you or dh

just do it for him....... ashton used to be a dumper too.....choc milk on my

clean floors, or koolaid or sticky orange juice on carpet.......ikes so i

finally started making her clean it up, i sit with her while she scrubs, mops

, wipes, whatever......she rarely dumps now cuz she hates to clean.....lmao

learned her lesson

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In a message dated 7/5/00 10:08:11 AM Eastern Daylight Time,

karen.cornell@... writes:

<< Also,

I'd loved to know where each of us is from.

, Chgo area, son 31yrs old >>

Philadelphia, .

Donna

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Guest guest

Sherry, what is th Sundberg-Partington method? Do they have a website?

Beth and Sharon, your talk of and Tim dumping things over is facinating -

someone once told me this is an important developemental stage - the issue of

course is how to allow stages and still teach appropriate behavior. Joan, I

want to be part of the Risperdal sur vey please - but I'm not sure how to access

when time comes. Thanks (I don't remember who) for the camera info. for 4

exposures of each shot. I love the idea of seeing all our kids (photos on the

digest) - would like to see all the families and our sons and daughtersl. Also,

I'd loved to know where each of us is from.

, Chgo area, son 31yrs old

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Guest guest

> Beth and Sharon, your talk of and Tim dumping things over is

> facinating -

> someone once told me this is an important developemental stage - the

> issue of

> course is how to allow stages and still teach appropriate behavior.

>

>

matt also loves to dump, always has. I talked to his preschool teacher

( " normal " preschool that actively practiced inclusion) and she assured me

that it was a stage that he would grow out of soon. BULL! He is still

stuck, at almost 10 years old! It is a repetitive motion, and I think it

helps him to " organize " his world when he doesnt' know what is going on.

IF things aren't going as he " planned " or if he doesn't understand, he

tends to dump more. At least he knows what will happen (whatever will

come flowing out of the cup, off the table, etc... and someone will come

running, most likely yelling! What a great trick!

S

________________________________________________________________

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LEah,

I do make him clean up, most times. We have been doing this for many

years. He actually gags when he has to touch a wet towel from cleaning it

up. Sometimes he " spits up " a little, I make him clean that up too. He

just doens't seem to learn! Really, we have found NO negative dicipline

that will work with him. Positives work somewhat, but prevention seems to

be the key.

S

On Wed, 5 Jul 2000 11:25:44 EDT okieleah@... writes:

> mary,

> when he dumps, do you make him clean it up himself....... or do you

> or dh

> just do it for him....... ashton used to be a dumper too.....choc

> milk on my

> clean floors, or koolaid or sticky orange juice on carpet.......ikes

> so i

> finally started making her clean it up, i sit with her while she

> scrubs, mops

> , wipes, whatever......she rarely dumps now cuz she hates to

> clean.....lmao

> learned her lesson

>

>

------------------------------------------------------------------------

> 0% Introductory APR!

> Instant Approval!

> Aria Visa - get yours today.

> 1/6035/13/_/691668/_/962810777/

>

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>

>

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Guest guest

When we first moved to this house, Andy would take his soda can (with

straw) into the living room and then dump it on the carpet (or drop it). We

taught him to keep it in the kitchen by putting a symbol on the counter

that said, " Put Pop Here " and then one on the doorway out of the kitchen

that said, " No pop " It took a lot of prompting and only little scolding.

Maybe a social story or small visual reminder about what you want him to do??

Kids are so hard to figure out.

j

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Guest guest

mary, he sounds quite the challenge, lmao but they are all in their own

way!!!!!!!!!! some things work for others and some dont.....i guess thats why

most of u sare so quick on our toes......take care, leah

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<<iowa, all our lives, shawna, nathan 8yrs w/ds pdd, nicholas 7yrs, and spouse

geoff.>>

You know, has a fixation with Star Trek. He learned where Iowa was when I

told him Captain Kirk was from Iowa....

Loriann

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Guest guest

i remember nathan now 8yrs w/ds pdd doing that we had many cups with lids

for quite a while, he still does it occasionally but when he gets in trouble

and has allready made a mess and i scold him he sweetly says " sorry " so i

think he is getting it some, hmmmm shawna.

>From: J Stolz <stolzfamily@...>

>Reply-egroups

>egroups

>Subject: Re: Digest Number 252

>Date: Wed, 5 Jul 2000 08:16:37 -0700

>

>

>

>

> > Beth and Sharon, your talk of and Tim dumping things over is

> > facinating -

> > someone once told me this is an important developemental stage - the

> > issue of

> > course is how to allow stages and still teach appropriate behavior.

> >

> >

>

>matt also loves to dump, always has. I talked to his preschool teacher

>( " normal " preschool that actively practiced inclusion) and she assured me

>that it was a stage that he would grow out of soon. BULL! He is still

>stuck, at almost 10 years old! It is a repetitive motion, and I think it

>helps him to " organize " his world when he doesnt' know what is going on.

>IF things aren't going as he " planned " or if he doesn't understand, he

>tends to dump more. At least he knows what will happen (whatever will

>come flowing out of the cup, off the table, etc... and someone will come

>running, most likely yelling! What a great trick!

> S

>________________________________________________________________

>YOU'RE PAYING TOO MUCH FOR THE INTERNET!

>Juno now offers FREE Internet Access!

>Try it today - there's no risk! For your FREE software, visit:

>http://dl.www.juno.com/get/tagj.

>

>------------------------------------------------------------------------

>Free Conference Calling with Firetalk!

>Click Here!

>1/5480/13/_/691668/_/962810248/

>------------------------------------------------------------------------

>

>

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Guest guest

i agree this helped with nathan in potty training tooo, its easier to use

the toilet then to shower and change clothes, just as it is easier to set

his cups in sink or leave them alone, sometimes he drinks his brother's or

ohters drink so we are still working on that one, oh oh, i have a handy hint

in the pottypoopy area, we use babywipes for bm's toilet paper is too messy

and is harder to use for both my boys, the wipes are cleaner, do a better

job, and cheaper in the long run, but do to nathan's poor FMS he had

troubles getting one wipe at a time, now pampers make those One-Ups! the

wipes come out like kleenexes do it has to be a mom invention,lol, and

nathan hasnt had one bm accident since se've tried them and kept getting

them, now we are working on the night time training pray it goes ok for us,

shawna.

>From: okieleah@...

>Reply-egroups

>egroups

>Subject: Re: Digest Number 252

>Date: Wed, 5 Jul 2000 11:25:44 EDT

>

>mary,

>when he dumps, do you make him clean it up himself....... or do you or dh

>just do it for him....... ashton used to be a dumper too.....choc milk on

>my

>clean floors, or koolaid or sticky orange juice on carpet.......ikes so i

>finally started making her clean it up, i sit with her while she scrubs,

>mops

>, wipes, whatever......she rarely dumps now cuz she hates to clean.....lmao

>learned her lesson

>

>------------------------------------------------------------------------

>0% Introductory APR!

>Instant Approval!

>Aria Visa - get yours today.

>1/6035/13/_/691668/_/962810777/

>------------------------------------------------------------------------

>

>

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Guest guest

we also only alow drinks and food in the kitchen, to help we have a tv in

there just for those times so then both of my boys are eager to keep the

food and drinks in where they belong, and no more fits, but only for then

during family meals the tv is off, and the boys are ok with the rules and

everyone is happy, and my carpet stays clean lol, at least from food lol,

shawna

>From: " Joan E. Guthrie Medlen " <jmedlen@...>

>Reply-egroups

>egroups

>Subject: Re: Digest Number 252

>Date: Wed, 05 Jul 2000 09:58:40 -0700

>

>When we first moved to this house, Andy would take his soda can (with

>straw) into the living room and then dump it on the carpet (or drop it). We

>taught him to keep it in the kitchen by putting a symbol on the counter

>that said, " Put Pop Here " and then one on the doorway out of the kitchen

>that said, " No pop " It took a lot of prompting and only little scolding.

>

>Maybe a social story or small visual reminder about what you want him to

>do??

>

>Kids are so hard to figure out.

>

>j

>

>------------------------------------------------------------------------

>Get 6 months of FREE* MSN Internet access!

>1/5727/13/_/691668/_/962816382/

>------------------------------------------------------------------------

>

>

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Guest guest

iowa, all our lives, shawna, nathan 8yrs w/ds pdd, nicholas 7yrs, and spouse

geoff.

>From: duffey48@...

>Reply-egroups

>egroups

>Subject: Re: Digest Number 252

>Date: Wed, 5 Jul 2000 13:56:23 EDT

>

>In a message dated 7/5/00 10:08:11 AM Eastern Daylight Time,

>karen.cornell@... writes:

>

><< Also,

> I'd loved to know where each of us is from.

>

> , Chgo area, son 31yrs old >>

>

>Philadelphia, .

>Donna

>

>------------------------------------------------------------------------

>Life's too short to send boring email. Let SuperSig come to the rescue.

>1/6137/13/_/691668/_/962819799/

>------------------------------------------------------------------------

>

>

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  • 1 month later...
  • 5 months later...

I'm not an expert, but you sound just like me. My TSH's are always up, which is

supposed to mean hypo, but I always feel hyper. My endo thought Hashitoxicosis,

but my antibodies were normal, but I just had a test that showed they were

abnormal, so I need to see which is right. I'm taking .25 micrograms (the

lowest) of Synthroid, and that's brogh my TSH's to just slightly elevated, but I

still feel hyper often. I hate the dizziness and the anxiety feeling the most.

If you'd like to chat, my email is marcia21@....

hyperthyroidismegroups wrote:

> There are 2 messages in this issue.

Topics in this digest:

1. New member-please help

From: " gin "

2. Re: New member-please help

From: daisyelaine@...

________________________________________________________________________

________________________________________________________________________

Message: 1

Date: Tue, 16 Jan 2001 02:00:54 -0000

From: " gin "

Subject: New member-please help

Hi, my name is Katee and I have been told that I have a hyperthyroid

since last year. My dr is now wanting to give me a radio active pill

of some sort to " kill " my thyroid, but my blood tests never shows its

hyper. The up takes and scans do, though.

I have read some information about hypo and hyper and I have

characteristics of both, and that REALLY confuses me. Symptoms that

my dr says are related are dry skin, weight gain, feeling dizzy at

times, nervous shakes and just being very hyper at times. And then,

even though I'm very hyper, I am very tired and fatigued 90% of the

time.

I'm really confused and don't know anyone that has gone through this

and don't know what to do/expect. Please write back and let me know

what you think and if you have had this treatment.

Thanks!

________________________________________________________________________

________________________________________________________________________

Message: 2

Date: Tue, 16 Jan 2001 00:41:45 EST

From: daisyelaine@...

Subject: Re: New member-please help

Hi Katee,

Please don't have the radioiodine treatment based on this sketchy diagnosis.

Depending on what your lab results are, it's likely that you could have

Hashitoxicosis, an autoimmune hypothyroid disorder in which symptoms of

hyperthyroidism also occur. Laboratory tests, especially tests for thyroid

autoantibodies, can help with the diagnosis. Keep reading all you can before

opting for aggressive treatment.

Visit my Web Site at http://daisyelaine_co.tripod.com/gravesdisease/

________________________________________________________________________

________________________________________________________________________

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  • 3 months later...
Guest guest

, I am paced 95% of the time, set for 75 bpm. I was originally set

for 50, but felt truly awful when my heart rate would go that low. Profound

fatigue is apparently a side effect of sotalol, although not a common one.

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, I am paced 95% of the time, set for 75 bpm. I was originally set

for 50, but felt truly awful when my heart rate would go that low. Profound

fatigue is apparently a side effect of sotalol, although not a common one.

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  • 1 month later...
Guest guest

Hi Everyone,

Well tomorrow is the big day. We meet with the director of child services

for Bobby's 2nd IEP. Keep your finger's crossed. I'll keep you posted.

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  • 3 years later...
Guest guest

Well Sandy I went to see my surgeon yesterday and he insisted upon

removing .25 cc so I am now at 2.25 cc and I feel a lot better. He

chided me about waiting as he explained that pbing is not good. I

really did not want to get an unfill because I was losing so well, but

I recognize that I have some habits that I have to change first. One

is not eating while I am preparing food---often by the time I sit down,

I have eaten half my allotment. Also I eat too fast and this is a

habit that will take constant vigilance and correction. The other is

grazing after 4 pm until dinner. This one requires that I change my

lifestyle. I must leave the office at 5:30 pm and not wait too late

for dinner. Anyway as my Doc says slower is better. Thirty-eight

pounds in 12 weeks in pretty good as I have not been down at this week

in many years.

Sage

342/306/175

On Tuesday, April 19, 2005, at 03:18 AM,

wrote:

>

>

> There are 5 messages in this issue.

>

> Topics in this digest:

>

> 1. Advice please!

> From: " nsand208 " <nsand208@...>

> 2. Re: Advice please!

> From: Dan Lester <honu@...>

> 3. Re: Advice please!

> From: bchapman53@...

> 4. Re: Advice please!

> From: " Sandy " <MoonshadowRN@...>

> 5. Drug question (xpost)

> From: Mrmrssoso@...

>

>

> _______________________________________________________________________

> _

> _______________________________________________________________________

> _

>

> Message: 1

> Date: Tue, 19 Apr 2005 00:50:19 -0000

> From: " nsand208 " <nsand208@...>

> Subject: Advice please!

>

>

>

> I hope you experienced bandsters can help me with this. I was banded

> 7 weeks ago, lost 25 pounds in the first 5 weeks but have been

> fluctuating around the same weight for the last 2 weeks. I was

> thinking that this means it's time for my first fill, yet tonight I

> had one of those unpleasant episodes with the " food stuck in my

> esophagus " feeling and mid-chest pain for a couple of hours, making me

> feel like I don't want to be more restricted than I already am. In

> all honesty, my lack of ongoing weight loss MAY be lack of exercise or

> possibly some hormonal " grazing " behavior, although I'm still eating

> FAR less than I used to. . .

>

> Please help me decide what to do! I have my next surgeon appointment

> in 9 days.

>

> Thank you!!

>

> N.

>

>

>

>

>

>

>

>

> _______________________________________________________________________

> _

> _______________________________________________________________________

> _

>

> Message: 2

> Date: Mon, 18 Apr 2005 22:02:24 -0600

> From: Dan Lester <honu@...>

> Subject: Re: Advice please!

>

> Well, even if you're not tight, it is possible to get something stuck

> if you take too big a bite, don't chew it well, etc. Plus some of us

> are tight from Day One. I didn't have a fill for almost six months.

> Yes, lack of exercise will hurt. Grazing will hurt even more. The

> eating less is keeping you from gaining, but you need to eat less than

> that to lose, especially without exercise. And of course hormones and

> such can make you retain water at " that time of the month " , etc, so

> that can be two or three pounds right there. And then there's salty

> food, constipation, and all sorts of other factors that can mislead

> you from day to day or week to week.

>

> dan

>

> Monday, April 18, 2005, 6:50:19 PM, you wrote:

>

> n> In

> n> all honesty, my lack of ongoing weight loss MAY be

> n> lack of exercise or

> n> possibly some hormonal " grazing " behavior, although

> n> I'm still eating

> n> FAR less than I used to. . .

>

>

> Dan Lester, Boise, ID honu@... www.mylapband.tk

> Dr. Ortiz, Tijuana, 4/28/03

> 323/209/199 Age 62 Fair is whatever God decides to do.

>

>

>

> _______________________________________________________________________

> _

> _______________________________________________________________________

> _

>

> Message: 3

> Date: Tue, 19 Apr 2005 00:04:37 EDT

> From: bchapman53@...

> Subject: Re: Advice please!

>

> N., you need to give your body a chance to catch up with losing 25

> lbs. in 5

> weeks. before you decide if you need a fill or not. That is a

> tremendous

> weight loss and the fact that you haven't lost any in the last 2 weeks

> doesn't

> mean anything. I haven't had a continuing loss since my surgery

> either. The

> scale may not move for weeks and then I'll have a 5 lb. loss. I am

> very pleased

> to lose the weight slowly. I don't want my skin to sag down to the

> floor and

> so far it's not. So be patient with yourself and don't concentrate

> on the

> scale so much. I know, easier said than done but try to concentrate on

> how you

> feel and your clothes getting larger. You may know in 9 days if you

> need a

> fill -- most of us get one after 2 months or so -- but we are all

> different. I

> only got a fill of 1.1cc and that was in January and I still am

> tight. You

> need to listen to your body and speak with your doctor about it

> during your

> appt. Good luck.

>

> Barb in , FL

> Dr. Grossbard 10/22/04

> 284/215/160

>

>

>

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