Re: Head Positioner

[Guest guest]

-Hi ,

I used a total body support for the infant seat and the stroller. you

can do a search for : total body support. At one point I had like four

of them in my house, swing, stroller infant seat. I found it worked

pretty well. We also had to pad the high chair so that Gabi could sit

up to eat. For the crib, for the first year I drove myself crazy and

every time I put Gabi down in a different position. first on her back

then on her side then on her other side, every time she woke up. Some

people sew a roll of rice (?)inthe back of the pajamas, so the baby

won't keep rolling on and resting on the same flat spot on their head

that is from the torticollis. They can tell you how to sew it at

torticolliskids.com does Evan have his head flat on the one side?

Gabi has a little flatness. They told me at cranial technologies,

where they make the helmet for the plagio that it was a good thing

that I drove myself nutty repositioning her, that it saved her head

shape. They usually give a free eval of head shape if you are

interested. I went here in chicago , they were very good. Sorry if I

have already posted this before, as I write this it seems

familiar....

]-- In infantile scoliosis treatment , " basketsnboyds "

<basketsnboyds@y...> wrote:

>

> Evan has torticollis and I'm trying to find a positioner for the

> carseat and possibly another one for in his crib. Any ideas would be

> appreciated!

> Thanks.

>

>

> Evan 8/7/05

>

[Guest guest]

I haven't read this-very helpful to me! I have the total support thing for his carseat which I transfer to the swing! He finds a way to end up on his back w/his head the wrong way every time, no matter how I position him as he falls asleep. I will check out that website. He does have some flatness on his right side and he really prefers it that way, so I have a hard enough time awake, let alone sleeping! Where can you get the free eval? My ped and physical therapist say Evan's isn't TOO bad, they say some babies w/torticollis have awfully mis-shaped heads. thanks again. ansiosamjm <usameza@...> wrote: -Hi ,I used a total body support for the infant seat and the stroller. you can do a search for : total body support. At one point

I had like four of them in my house, swing, stroller infant seat. I found it worked pretty well. We also had to pad the high chair so that Gabi could sit up to eat. For the crib, for the first year I drove myself crazy and every time I put Gabi down in a different position. first on her back then on her side then on her other side, every time she woke up. Some people sew a roll of rice (?)inthe back of the pajamas, so the baby won't keep rolling on and resting on the same flat spot on their head that is from the torticollis. They can tell you how to sew it at torticolliskids.com does Evan have his head flat on the one side? Gabi has a little flatness. They told me at cranial technologies, where they make the helmet for the plagio that it was a good thing that I drove myself nutty repositioning her, that it saved her head shape. They usually give a free eval of head shape

if you are interested. I went here in chicago , they were very good. Sorry if I have already posted this before, as I write this it seems familiar.... ]-- In infantile scoliosis treatment , "basketsnboyds" <basketsnboyds@y...> wrote:>> Evan has torticollis and I'm trying to find a positioner for the > carseat and possibly another one for in his crib. Any ideas would be > appreciated!> Thanks. > > > Evan 8/7/05>

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[Guest guest]

Hi ,

My son has torticollis as well. Have you seen a physical therapist? My son

sees one once a week and the exercises that she does with him, along with

what we have been taught to do at home, have really helped. My son, Liam,

started to get a flat head because of this, so we've just had to position

everything to the opposite side that he favors so that he has to turn his

head/neck that way which in turn helps those muscles and helps the

torticollis. Our neurologist/neurosurgeon never recommended a positioner or

helmet but recommended that we use rolled towels/blankets instead and that

seemed to help. We were told any type of positioner in the crib was a SIDS

hazzard, however, I know there are medical positioners that can be obtained,

via a prescription, through a PT, neurosurgeon or pediatrician. Hope this

helps - good luck!

Liam 3/25/05

>From: " basketsnboyds " <basketsnboyds@...>

>Reply-infantile scoliosis treatment

>infantile scoliosis treatment

>Subject: Head Positioner

>Date: Tue, 17 Jan 2006 20:04:46 -0000

>

>Evan has torticollis and I'm trying to find a positioner for the

>carseat and possibly another one for in his crib. Any ideas would be

>appreciated!

>Thanks.

>

>

>Evan 8/7/05

>

>

>

[Guest guest]

,

you can get the eval at cranial technologies. I think if you do a

search you will come up with it. The sleeping position makes me

nervous, I never did the roll on the pajamas, I was afraid that she

would roll on her stomach and not be able to move her head, because

of the hemi in her neck and then not be able to breathe. She can't

turn her head as far to the left and at three years old, Inever find

her sleeping on her tummy. I am guessing bc she can not turn her

head good??? But I have heard of other people doing it;;; We

also did the cranial sacral therapy, which seemed to help her tight

muscles...They were going to fuse her neck, because of the hemi in

her neck, but I did not want this, led to a more than a few

arguments with dh..that's another story tho. her neck does not have

torticollis now. Do you think the torticollis could be a

compensatory curve? Did he have it since birth? Can you see it

since the beginning first Pics?

> >

> > Evan has torticollis and I'm trying to find a positioner for the

> > carseat and possibly another one for in his crib. Any ideas

would be

> > appreciated!

> > Thanks.

> >

> >

> > Evan 8/7/05

> >

>

>

>

>

>

>

>

[Guest guest]

,

I do agree with , (wow, there are a lot of s on this

group) I remember that I had bought a sleep positioner for the crib

for Gabi, but then I threw it away, I was afraid that she would get

stuck in the upside down position and suffocate on the little head

pillow thing. I decided I would rather she have a flat head and be

breathing!!! Then I couldnt give it to anyone, cause I was worried

something would happen to their baby, so I just threw it away...

Someone told me to be careful of the infant seat positioners too,

something about that if they turn their head completely to one side

that the pillow should not be right up against the face, so they

have plenty of room to breathe, no matter how they turn their head.

My dd was so little that her face did not come up to close to the

sides of the car seat and pillows of the support thing. I guess it

makes sense that if you shouldn't put them on a soft comforter, you

would not want a soft pillowy thing up near their face either????

All this stuff could really get a person nutty, as you can see...

>

> Hi ,

>

> My son has torticollis as well. Have you seen a physical

therapist? My son

> sees one once a week and the exercises that she does with him,

along with

> what we have been taught to do at home, have really helped. My

son, Liam,

> started to get a flat head because of this, so we've just had to

position

> everything to the opposite side that he favors so that he has to

turn his

> head/neck that way which in turn helps those muscles and helps the

> torticollis. Our neurologist/neurosurgeon never recommended a

positioner or

> helmet but recommended that we use rolled towels/blankets instead

and that

> seemed to help. We were told any type of positioner in the crib

was a SIDS

> hazzard, however, I know there are medical positioners that can be

obtained,

> via a prescription, through a PT, neurosurgeon or pediatrician.

Hope this

> helps - good luck!

>

>

> Liam 3/25/05

>

>

> >From: " basketsnboyds " <basketsnboyds@y...>

> >Reply-infantile scoliosis treatment

> >infantile scoliosis treatment

> >Subject: Head Positioner

> >Date: Tue, 17 Jan 2006 20:04:46 -0000

> >

> >Evan has torticollis and I'm trying to find a positioner for the

> >carseat and possibly another one for in his crib. Any ideas would

be

> >appreciated!

> >Thanks.

> >

> >

> >Evan 8/7/05

> >

> >

> >

>

[Guest guest]

Have you looked into the Amby beds? They are a sling bed and our daughter did wonderfully in it! Her head never flattened even tho she could not sit for a very long time. I think the Amby Bed was wonderful! Just a passing thought Beth ansiosamjm <usameza@...> wrote: , I do agree with , (wow, there are a lot of s on this group) I remember that I had bought a sleep positioner for the crib for Gabi, but then I threw it away, I was afraid that she would get stuck in the upside down position and suffocate on the little head pillow thing. I decided I would rather she have a flat head and be breathing!!! Then I couldnt give it to anyone, cause I was worried something would happen to

their baby, so I just threw it away... Someone told me to be careful of the infant seat positioners too, something about that if they turn their head completely to one side that the pillow should not be right up against the face, so they have plenty of room to breathe, no matter how they turn their head. My dd was so little that her face did not come up to close to the sides of the car seat and pillows of the support thing. I guess it makes sense that if you shouldn't put them on a soft comforter, you would not want a soft pillowy thing up near their face either???? All this stuff could really get a person nutty, as you can see... > > Hi , > > My son has torticollis as well. Have you seen a physical therapist? My son > sees one once

a week and the exercises that she does with him, along with > what we have been taught to do at home, have really helped. My son, Liam, > started to get a flat head because of this, so we've just had to position > everything to the opposite side that he favors so that he has to turn his > head/neck that way which in turn helps those muscles and helps the > torticollis. Our neurologist/neurosurgeon never recommended a positioner or > helmet but recommended that we use rolled towels/blankets instead and that > seemed to help. We were told any type of positioner in the crib was a SIDS > hazzard, however, I know there are medical positioners that can be obtained, > via a prescription, through a PT, neurosurgeon or pediatrician. Hope this > helps - good luck! > > > Liam 3/25/05 > > > >From: "basketsnboyds" <basketsnboyds@y...> > >Reply-infantile scoliosis treatment > >infantile scoliosis treatment > >Subject: Head Positioner > >Date: Tue, 17 Jan 2006 20:04:46 -0000 > > > >Evan has torticollis and I'm trying to find a positioner for the > >carseat and possibly another one for in his crib. Any ideas would be > >appreciated! > >Thanks. > > > > > >Evan 8/7/05 > > > > > > >

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[Guest guest]

Thanks so much! Evan is a big boy and our PT did recommend the towel/blanket thing-when we go anywhere we have like 4 blanket/towel rolls to keep him positioned correctly! I got a thing that helps keep him positioned and our PT ok'd it, so I got another one for the carseat and then one of the set of things that goes over the straps in the carseat to help keep their heads upright- NOTHING for in the bed, Our PT recommended that we kind of let him "rest" at night b/c we work all day. I completely agree w/you all, I just wanted to get other Mom's input as to what you all did. Thanks for all of the wonderful ideas. -Evan's MOMansiosamjm <usameza@...> wrote: ,I do agree with , (wow, there are a lot of s on this group) I remember that I had bought a sleep positioner

for the crib for Gabi, but then I threw it away, I was afraid that she would get stuck in the upside down position and suffocate on the little head pillow thing. I decided I would rather she have a flat head and be breathing!!! Then I couldnt give it to anyone, cause I was worried something would happen to their baby, so I just threw it away... Someone told me to be careful of the infant seat positioners too, something about that if they turn their head completely to one side that the pillow should not be right up against the face, so they have plenty of room to breathe, no matter how they turn their head. My dd was so little that her face did not come up to close to the sides of the car seat and pillows of the support thing. I guess it makes sense that if you shouldn't put them on a soft comforter, you would not want a soft pillowy thing up near their face either???? All this stuff could really

get a person nutty, as you can see...>> Hi ,> > My son has torticollis as well. Have you seen a physical therapist? My son > sees one once a week and the exercises that she does with him, along with > what we have been taught to do at home, have really helped. My son, Liam, > started to get a flat head because of this, so we've just had to position > everything to the opposite side that he favors so that he has to turn his > head/neck that way which in turn helps those muscles and helps the > torticollis. Our neurologist/neurosurgeon never recommended a positioner or > helmet but recommended that we use rolled towels/blankets instead and that > seemed to help. We were told any type of positioner in the crib was a SIDS >

hazzard, however, I know there are medical positioners that can be obtained, > via a prescription, through a PT, neurosurgeon or pediatrician. Hope this > helps - good luck! > > > Liam 3/25/05> > > >From: "basketsnboyds" <basketsnboyds@y...>> >Reply-infantile scoliosis treatment > >infantile scoliosis treatment > >Subject: Head Positioner> >Date: Tue, 17 Jan 2006 20:04:46 -0000> >> >Evan has torticollis and I'm trying to find a positioner for the> >carseat and possibly another one for in his crib. Any ideas would be> >appreciated!> >Thanks.> >> >> >Evan 8/7/05> >> >> >>

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[Guest guest]

I was going to suggest a PT as well. has torticollis and saw a PT once a week. In actuality, and GOD BLESS HER, the PT "found" the scoliosis and sent us on that journey.

Gail

Head Positioner>Date: Tue, 17 Jan 2006 20:04:46 -0000>>Evan has torticollis and I'm trying to find a positioner for the>carseat and possibly another one for in his crib. Any ideas would be>appreciated!>Thanks.>>>Evan 8/7/05>>>

[Guest guest]

Hi , Thanks for your message on my phone. I am sorry I wasn't there but we were out nearly all day. If you wish you can email me at bert.daz@... and I will be happy to chat. It is hard to organize the time difference as we are 16 hrs ahead of SLC here in Brisbane. I do check my emails every day though so I can get back to you within 24 hrs usually. I also have a son Liam, though his back is fine and it is my daughter Bridget who has infantile scolosis. I look forward to hearing from you. Everyone on this group is very helpful and supportive. Good luck Bert and Bridget O'Donovan <moosie45@...> wrote: Hi ,My

son has torticollis as well. Have you seen a physical therapist? My son sees one once a week and the exercises that she does with him, along with what we have been taught to do at home, have really helped. My son, Liam, started to get a flat head because of this, so we've just had to position everything to the opposite side that he favors so that he has to turn his head/neck that way which in turn helps those muscles and helps the torticollis. Our neurologist/neurosurgeon never recommended a positioner or helmet but recommended that we use rolled towels/blankets instead and that seemed to help. We were told any type of positioner in the crib was a SIDS hazzard, however, I know there are medical positioners that can be obtained, via a prescription, through a PT, neurosurgeon or pediatrician. Hope this helps - good luck! :)Liam 3/25/05>From: "basketsnboyds"

<basketsnboyds@...>>Reply-infantile scoliosis treatment >infantile scoliosis treatment >Subject: Head Positioner>Date: Tue, 17 Jan 2006 20:04:46 -0000>>Evan has torticollis and I'm trying to find a positioner for the>carseat and possibly another one for in his crib. Any ideas would be>appreciated!>Thanks.>>>Evan 8/7/05>>>

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[Guest guest]

Hi I e-mailed you back but didn't leave you a message on your phone! I was thankful that someone seemed to have some good ideas and not even sure what my other e-mail said, but thanks so much for the offer to chat. I'll be in touch. I actually decided to not get a positioner for the bed, the therapist said for him to "rest"at night and I ordered something similar to the one I already have for his carseat, etc . Thanks again! Evan 8/7/05bert lehane <bert_lehane@...> wrote: Hi , Thanks for your message on my phone. I am sorry I wasn't there but we were out nearly all day. If you wish you can email me at bert.daz@... and I will be happy to chat. It is hard

to organize the time difference as we are 16 hrs ahead of SLC here in Brisbane. I do check my emails every day though so I can get back to you within 24 hrs usually. I also have a son Liam, though his back is fine and it is my daughter Bridget who has infantile scolosis. I look forward to hearing from you. Everyone on this group is very helpful and supportive. Good luck Bert and Bridget O'Donovan <moosie45@...> wrote: Hi ,My son has torticollis as well. Have you seen a physical therapist? My son sees one once a week and the exercises that she does with him, along with what we have been taught to do at home, have really helped. My son, Liam, started to get a flat head because of this, so

we've just had to position everything to the opposite side that he favors so that he has to turn his head/neck that way which in turn helps those muscles and helps the torticollis. Our neurologist/neurosurgeon never recommended a positioner or helmet but recommended that we use rolled towels/blankets instead and that seemed to help. We were told any type of positioner in the crib was a SIDS hazzard, however, I know there are medical positioners that can be obtained, via a prescription, through a PT, neurosurgeon or pediatrician. Hope this helps - good luck! :)Liam 3/25/05>From: "basketsnboyds" <basketsnboyds@...>>Reply-infantile scoliosis treatment >infantile scoliosis treatment >Subject: Head Positioner>Date: Tue, 17 Jan 2006 20:04:46 -0000>>Evan has torticollis and I'm trying to find a positioner for

the>carseat and possibly another one for in his crib. Any ideas would be>appreciated!>Thanks.>>>Evan 8/7/05>>> Photos – Showcase holiday pictures in hardcoverPhoto Books. You design it and we’ll bind it! __________________________________________________

[Guest guest]

I looked up their web-site-thanks. I'll talk tohis PT and see what she thinks. I agree,the sleeping position is scarry, I don't think its a compensatory curve b/c the x-rays and MRI show that neck looks ok, and they say its muscular, but I am going to ask Dr. when we go. I didn't notice it at birth, more like 4weeks or so. Maybe it was there and we didn't notice, but that would show congenital and they say its infantile idiopathic. Thanks so much for your ideas and input!ansiosamjm <usameza@...> wrote: ,you can get the eval at cranial technologies. I think if you do a search you will come up with it. The sleeping position makes me nervous, I never did the roll on the pajamas, I was afraid that she would roll on her stomach and not be able to move her head, because of the hemi

in her neck and then not be able to breathe. She can't turn her head as far to the left and at three years old, Inever find her sleeping on her tummy. I am guessing bc she can not turn her head good??? But I have heard of other people doing it;;; We also did the cranial sacral therapy, which seemed to help her tight muscles...They were going to fuse her neck, because of the hemi in her neck, but I did not want this, led to a more than a few arguments with dh..that's another story tho. her neck does not have torticollis now. Do you think the torticollis could be a compensatory curve? Did he have it since birth? Can you see it since the beginning first Pics? > >> > Evan has torticollis and I'm trying to find a positioner for the > > carseat and possibly another one for in his crib. Any ideas would be > > appreciated!> > Thanks. > > > > > > Evan 8/7/05> >> > > > > > >

[Guest guest]

And all of the ped. ortho's we've seen say the torticollis isn't related in ANY way to the scoli or the laryngealmylacia or the pneumonia that is recurring etc-NOTHING is related in any way. Have I told you all that the PT nor the PED noticed Evan's scoli? A wonderful friend of mine who is an RN noticed it. J Evan's Mom ansiosamjm <usameza@...> wrote: Hi,us too! OUr PT for the torticollis found the scoli as well. On our group for torticollis (torticolliskids.com) there have been so many interesting causes for torticollis: eye problems, requiring eye surgery, not PT for the neck, brain tumors, requiring brain surgery, brain abmormalities, CP, low muscle tone, Klippel-Feil, incomplete formation of C1, scoliosis, Chiari malformations, spinal cord cysts

to name the ones I can think of. All of these people started out with their pedi reassuring them they would be fine with some stretching! >> Hi Gail,> > That's sooo interesting - Liam's PT "found" his scoliosis as well, which in > turn started us on our journey too! Thank God for PT's!! > > > Liam 3/25/05> > > >From: "Gail M. Kimball" <gmkimball@f...>> >Reply-infantile scoliosis treatment > ><infantile scoliosis treatment >> >Subject: Re: Head Positioner> >Date: Wed, 18 Jan 2006 07:12:49 -0500> >> >I was going to suggest a PT as well. has torticollis and saw a PT once > >a week. In actuality, and GOD BLESS HER, the PT "found"

the scoliosis and > >sent us on that journey.> >> >Gail> > Head Positioner> > >Date: Tue, 17 Jan 2006 20:04:46 -0000> > >> > >Evan has torticollis and I'm trying to find a positioner for the> > >carseat and possibly another one for in his crib. Any ideas would be> > >appreciated!> > >Thanks.> > >> > >> > >Evan 8/7/05> > >> > >> > >> >> >> >> >> >------------------------------------------------------------------------------> > !

GROUPS LINKS> >> > a.. Visit your group "infantile scoliosis treatment" on the web.> >> > b..