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I've been asked to help coordinate a conference for a major PID

organization

in the Southeast this Fall. I can't say who is giving it yet but it

is well

funded. They are wanting to know what topics the PID population

would like

to hear about and then we will research who would be best to discuss

them.

All names will be withheld and I am going to forward a very

straightforward list of topics.

Ursula

>

> Ursula -

>

>

>

> Can I ask what this information is being used for before I answer?

>

>

>

>

> Dayna

>

>

>

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I think I gained a ton from the life sessions I've attended. Parenting

issues (Liked this at the conference last year, but think it would be good

to break it up to smaller groups - maybe by age level - 1-6 6-10 11-13

14-18- very different issues for teens then 3 year olds - and while I want

to know what to look forward to - the time is so limited, I really need info

on dealing with issues NOW) The New study on kids and behavior Problems

with PIDD. School Rights. Dealing with Extended Family. Parenting Multiple

Children with PIDD. I'd love to see someone do a stress release seminar

for parents even on male//female differences in dealing with stress - I'm

thinking of the new parents and how hard this is on marriages. Dealing with

sibling issues. Nice to hear there will be a conference in our neck of the

woods - please let me know if I can be of any assistance Ursula.

Dayna

_____

From: [mailto: ] On Behalf Of

Ursula Holleman

Sent: Wednesday, April 05, 2006 7:29 PM

Subject: Re: Conference topics

I've been asked to help coordinate a conference for a major PID

organization

in the Southeast this Fall. I can't say who is giving it yet but it

is well

funded. They are wanting to know what topics the PID population

would like

to hear about and then we will research who would be best to discuss

them.

All names will be withheld and I am going to forward a very

straightforward list of topics.

Ursula

>

> Ursula -

>

>

>

> Can I ask what this information is being used for before I answer?

>

>

>

>

> Dayna

>

>

>

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

To unsubscribe -unsubscribegroups (DOT)

To search group archives go to:

/messages

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Ursula...

Topics on School Law IDEA/504 plans etc...this is a long session also..

I very much second Dayna's suggestions

Care protocols, etc would be helpful.....

Hope that helps.

Also, the gut/pid connection. That has seemed to be a big topic here lately

again.

Quoting Dayna S Fladhammer <fladfam@...>:

> I think I gained a ton from the life sessions I've attended. Parenting

> issues (Liked this at the conference last year, but think it would be good

> to break it up to smaller groups - maybe by age level - 1-6 6-10 11-13

> 14-18- very different issues for teens then 3 year olds - and while I want

> to know what to look forward to - the time is so limited, I really need info

> on dealing with issues NOW) The New study on kids and behavior Problems

> with PIDD. School Rights. Dealing with Extended Family. Parenting Multiple

> Children with PIDD. I'd love to see someone do a stress release seminar

> for parents even on male//female differences in dealing with stress - I'm

> thinking of the new parents and how hard this is on marriages. Dealing with

> sibling issues. Nice to hear there will be a conference in our neck of the

> woods - please let me know if I can be of any assistance Ursula.

>

> Dayna

>

> _____

>

> From: [mailto: ] On Behalf Of

> Ursula Holleman

> Sent: Wednesday, April 05, 2006 7:29 PM

>

> Subject: Re: Conference topics

>

>

>

> I've been asked to help coordinate a conference for a major PID

> organization

> in the Southeast this Fall. I can't say who is giving it yet but it

> is well

> funded. They are wanting to know what topics the PID population

> would like

> to hear about and then we will research who would be best to discuss

> them.

> All names will be withheld and I am going to forward a very

> straightforward list of topics.

>

> Ursula

>

>

>

> >

> > Ursula -

> >

> >

> >

> > Can I ask what this information is being used for before I answer?

> >

> >

> >

> >

> > Dayna

> >

> >

> >

>

>

>

>

>

> This forum is open to parents and caregivers of children diagnosed with a

> Primary Immune Deficiency. Opinions or medical advice stated here are the

> sole responsibility of the poster and should not be taken as professional

> advice.

>

> To unsubscribe -unsubscribegroups (DOT)

> To search group archives go to:

> /messages

>

>

>

>

>

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Still did not get my answer as to why these were needed-just wondering if

you are planning a conference or helping someone plan a conference? Are you

forwarding our responses to someone who is planning a conference? I was

waiting for a reply from Ursula before I shared my conference topics..

Here are my ideas-please let me know what they are being used for (just

being curious) - not that you can even use any of my topic ideas-but I would

like to know if you are forwarding them on---(not that I would ever know if

you hit the forward button..it would just be nice to have my question

answered) I have about 24 ideas listed below:

Would this be a conference geared for parents of PID kids? Or geared toward

parents and kids? Because if it is geared toward just the parents there

are several topics of interest.

* How to cope with more than one kid with PID emotionally &

financially.

* How to cope with PID kids and still have time for your marriage

relationship.

* How to plan financially for your PID kids when they leave the nest.

* How to plan for PID kids that may not be able to leave the nest.

* How to plan for the kids when they get older and may not qualify

for insurance.

* Dealing with families t hat don't get PID. (crash course on tips

to help families understand)

* Dealing with schools, IEPs, 504s and dealing with schools/teachers

that don't understand PIDs.

If there are kid topics, there would be some great ones-sibling issues-

* perhaps have a group meeting for siblings of children with PIDs.

* Also have a group for kids who are the only child in their family

who do not have a PID-I think these siblings have a hard time because they

are " normal " yet feel like they are not because all of their siblings have

PIDs and they do not.

* Siblings dealing with their fears about their PID brother/sister.

* PIDs kids dealing with their fears about the future.

* PID kids: coping with having a PID-age appropriate talks/break out

sessions

* For teenage PIDers and those going off to college: Coping with PID

while at college.

* Take that a step further and have one for parents and teens on how

to cope financially while the kid is in college, how to utilize their

insurance while in college and what to do when insurance benefits run out.

Even more topics:

* PID treatments-- have talks for parents and kids about the various

forms of treatment for the various PIDs. Something that Victory Junction

Gang Camp did that I thought was a great idea-- when we signed up, they

took a medical intake (from us and the doctors) and they had a resource

room. They took the time to have information printed out on the diseases

that each child had. They had information on the diseases, treatment and

then a bunch of financial self-help articles and articles/handouts on coping

with illnesses. You could do something like this for the conference & it

would be nice-especially for those who have signed up that do not know a lot

about the disease their child has.

* I know it would be too far to go to have talks about each specific

disease-but perhaps group them into " like " diseases and have an expert give

a talk along with a Q & A. These types of break out sessions have always

been helpful to families at conferences I have attended-- they get some

info and then are able to ask a few questions from the experts.

I think from our string of recent conversations these might be some decent

topics: PIDs and digestive wellness or illness-whatever-call it what you

want, but focus on digestive problems associated with PIDs and what parents

and patients can do to enhance digestive wellness in their children.

* Wound care in PIDs

* Oral care in PIDs

* Hospital coping strategies (you may want to ask parents of PIDers

to give this one) - how to cope during hospital stays and IVIG/treatment

days. (geared toward parental coping skills and children with PIDs coping

and siblings coping)

* Insurance and billing tips and strategies for keeping on top of

the " pile "

* SCIG- this would be a big one---

* How to find joy when dealing with a PID ...or life goes on and you

can still find joy and happiness.or you could call it, sure you'll still

have tears, but there is life after diagnosis with a PID-have parents and

PIDers give small break out sessions after the big talk by whomever---

these small groups could help the newly diagnosed with their fears about

never having what they consider a " normal " life.. help them to find a new

" normal " among the chaos of the new PID diagnosis.

* The healing power of humor

* Like above with the expert break out sessions for various disease

Q & A-you could have parents of various diseases available for Q & A sessions

(have a doctor willing to be present in case medical questions need

clarification, or to back the parent up)-have one, two or 3 for CVID

sessions throughout the day & the families/parents could just come in at

certain times and sit to chat-ditto for other PIDs...

Okay-these are my ideas-for what it is worth---

~Pattie Curran~

Piedmont Triad, NC

Elbridge Gerry--signer of the Declaration of Independence, Govenor of

Massachusetts and Vice President of the United States under

Madison....

Ever wonder where the term gerrymandering comes from? While serving as

governor of Massachusetts from 1810 to 1812, Elbridge Gerry helped enact a

law dividing the Bay State into political districts favorable to his own

party. This resulted in some odd shaped districts. One district looked like

a salamander, someone said. Someone else joked that it looked more like a

" gerrymander, " making a play on the governor's name. To this day, the

practice of drawing boundary lines to favor a political party or group is

called gerrymandering.

_____

From: Pattie Curran [mailto:Catholicmomof3@...]

Sent: Thursday, April 06, 2006 10:39 AM

' '

Subject: RE: Conference topics

Ursula, just out of curiosity, why do you ask?

If you could pick any topic to be discussed at a PID conference what

would it be?

Thanks

Ursula - moderator

_____

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See-that was my question-is Ursula planning a conference? Do you know, Xan?

I'd be willing to help, too.. not that I would be of great assistance, but I

was just curious and wanted to know before I sent my list of 24 conference

ideas on-(Just zapped those into cyberspace)-I thought it would be nice to

know the WHY behind the collection of conference topics...

~Pattie Curran~

Piedmont Triad, NC

Elbridge Gerry--signer of the Declaration of Independence, Govenor of

Massachusetts and Vice President of the United States under

Madison....

Ever wonder where the term gerrymandering comes from? While serving as

governor of Massachusetts from 1810 to 1812, Elbridge Gerry helped enact a

law dividing the Bay State into political districts favorable to his own

party. This resulted in some odd shaped districts. One district looked like

a salamander, someone said. Someone else joked that it looked more like a

" gerrymander, " making a play on the governor's name. To this day, the

practice of drawing boundary lines to favor a political party or group is

called gerrymandering.

_____

Hi Ursula. I think a good topic would be something that addresses the

change over from a child to teen to early adult. On how to help our

children change from being taken care of to being the self caretaker. A

scary thing for us all. But something that is starting to hit me full

force.

I would love to talk with you some more on this and I am open to help in any

way possible. Give me an e-mail when you can.

Hugs,

Xan

nxakmo@... or

xcm_idfhelps@...

_____

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YES! I forgot that one-I think more parents need to know about these care

protocols AND!!!! READY FOR THIS TOPIC!?

* Patients Bill of Rights -

I think that people need to be educated on this-especially after the fiasco

at our children's hospital this past year where they made some bogus policy

restricting kids from leaving their treatment rooms. I was able to get it

revoked-BECAUSE I knew the Patients Bill of Rights..

, I just zapped mine out about the same time and I have to say: GREAT

MINDS THINK ALIKE! <big grin>

~Pattie Curran~

Piedmont Triad, NC

Elbridge Gerry--signer of the Declaration of Independence, Govenor of

Massachusetts and Vice President of the United States under

Madison....

Ever wonder where the term gerrymandering comes from? While serving as

governor of Massachusetts from 1810 to 1812, Elbridge Gerry helped enact a

law dividing the Bay State into political districts favorable to his own

party. This resulted in some odd shaped districts. One district looked like

a salamander, someone said. Someone else joked that it looked more like a

" gerrymander, " making a play on the governor's name. To this day, the

practice of drawing boundary lines to favor a political party or group is

called gerrymandering.

_____

From: [mailto: ] On Behalf Of

lmschatz@...

Sent: Friday, April 07, 2006 9:34 AM

Subject: RE: Re: Conference topics

Ursula...

Topics on School Law IDEA/504 plans etc...this is a long session also..

I very much second Dayna's suggestions

Care protocols, etc would be helpful.....

Hope that helps.

Also, the gut/pid connection. That has seemed to be a big topic here lately

again.

Quoting Dayna S Fladhammer <fladfam@...>:

> I think I gained a ton from the life sessions I've attended. Parenting

> issues (Liked this at the conference last year, but think it would be good

> to break it up to smaller groups - maybe by age level - 1-6 6-10 11-13

> 14-18- very different issues for teens then 3 year olds - and while I want

> to know what to look forward to - the time is so limited, I really need

info

> on dealing with issues NOW) The New study on kids and behavior Problems

> with PIDD. School Rights. Dealing with Extended Family. Parenting

Multiple

> Children with PIDD. I'd love to see someone do a stress release seminar

> for parents even on male//female differences in dealing with stress - I'm

> thinking of the new parents and how hard this is on marriages. Dealing

with

> sibling issues. Nice to hear there will be a conference in our neck of

the

> woods - please let me know if I can be of any assistance Ursula.

>

> Dayna

>

> _____

>

> From: [mailto: ] On Behalf Of

> Ursula Holleman

> Sent: Wednesday, April 05, 2006 7:29 PM

>

> Subject: Re: Conference topics

>

>

>

> I've been asked to help coordinate a conference for a major PID

> organization

> in the Southeast this Fall. I can't say who is giving it yet but it

> is well

> funded. They are wanting to know what topics the PID population

> would like

> to hear about and then we will research who would be best to discuss

> them.

> All names will be withheld and I am going to forward a very

> straightforward list of topics.

>

> Ursula

>

>

>

> >

> > Ursula -

> >

> >

> >

> > Can I ask what this information is being used for before I answer?

> >

> >

> >

> >

> > Dayna

> >

> >

> >

>

>

>

>

>

> This forum is open to parents and caregivers of children diagnosed with a

> Primary Immune Deficiency. Opinions or medical advice stated here are the

> sole responsibility of the poster and should not be taken as professional

> advice.

>

> To unsubscribe -unsubscribegroups (DOT)

> To search group archives go to:

> /messages

>

>

>

>

>

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Hey guys -

I asked the same question - and Ursula replied - I'm guessing it did not go

through to everyone's email I have that problem a lot.

I've been asked to help coordinate a conference for a major PID

organization

in the Southeast this Fall. I can't say who is giving it yet but it

is well

funded. They are wanting to know what topics the PID population

would like

to hear about and then we will research who would be best to discuss

them.

All names will be withheld and I am going to forward a very

straightforward list of topics.

Ursula

I do not however, think she answered the question about who is on what brand

and having site reactions and why she wanted that info.

Dayna

_____

From: [mailto: ] On Behalf Of

sherrill c moseley, jr

Sent: Friday, April 07, 2006 7:08 AM

Subject: Conference Topics

Hi Pattie. I do not know exactly what Ursula has planned, but she sure has

gotten ALL of our attention. I think she is hoping to work with someone in

industry to have a " family type " conference, but to have topics that we ALL

are dealing with now. I am still interested to see where she is heading and

who she will be getting to speak. I think it is a good idea, expecially

since we are all at different levels of dealing with this disease. And

maybe that should be considered, to have more than one conference aimed at

age levels ( I think someone else suggested this also), or one for school

aged, or do a day for each. I know the cost and time is an issue, but even

us " old pros " who have been dealing with this for almost 12 years still have

ALOT of questions. I mean with age comes a new set of problems or concerns.

Anyway, that is my two cents worth again. Hope to hear from Ursula soon.

She has all of us excited about this.

Hugs,

Xan, mom to - 17 1/2 (It is his SENIOR PROM tonight) & Kaitlyn - 12

GOING on 30!!, CVID, Asthma, Chronic Sinusitis, & Reflux

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Hey guys -

I asked the same question - and Ursula replied - I'm guessing it did not go

through to everyone's email I have that problem a lot.

I've been asked to help coordinate a conference for a major PID

organization

in the Southeast this Fall. I can't say who is giving it yet but it

is well

funded. They are wanting to know what topics the PID population

would like

to hear about and then we will research who would be best to discuss

them.

All names will be withheld and I am going to forward a very

straightforward list of topics.

Ursula

I do not however, think she answered the question about who is on what brand

and having site reactions and why she wanted that info.

Dayna

_____

From: [mailto: ] On Behalf Of

sherrill c moseley, jr

Sent: Friday, April 07, 2006 7:08 AM

Subject: Conference Topics

Hi Pattie. I do not know exactly what Ursula has planned, but she sure has

gotten ALL of our attention. I think she is hoping to work with someone in

industry to have a " family type " conference, but to have topics that we ALL

are dealing with now. I am still interested to see where she is heading and

who she will be getting to speak. I think it is a good idea, expecially

since we are all at different levels of dealing with this disease. And

maybe that should be considered, to have more than one conference aimed at

age levels ( I think someone else suggested this also), or one for school

aged, or do a day for each. I know the cost and time is an issue, but even

us " old pros " who have been dealing with this for almost 12 years still have

ALOT of questions. I mean with age comes a new set of problems or concerns.

Anyway, that is my two cents worth again. Hope to hear from Ursula soon.

She has all of us excited about this.

Hugs,

Xan, mom to - 17 1/2 (It is his SENIOR PROM tonight) & Kaitlyn - 12

GOING on 30!!, CVID, Asthma, Chronic Sinusitis, & Reflux

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OH-brings another topic to mind!!!!

What happens to PID kids during puberty-or how does puberty affect PIDs.

I'm interested in this one! We've got a smattering of info on what happens

to SDSers during puberty-but I think it would be interesting across the

board to know - (my guys have SDS and low immunoglobulins-may or may not be

related)-but I would like to know how those hormones will affect the PID

once they start raging!

~Pattie Curran~

Piedmont Triad, NC

Elbridge Gerry--signer of the Declaration of Independence, Govenor of

Massachusetts and Vice President of the United States under

Madison....

Ever wonder where the term gerrymandering comes from? While serving as

governor of Massachusetts from 1810 to 1812, Elbridge Gerry helped enact a

law dividing the Bay State into political districts favorable to his own

party. This resulted in some odd shaped districts. One district looked like

a salamander, someone said. Someone else joked that it looked more like a

" gerrymander, " making a play on the governor's name. To this day, the

practice of drawing boundary lines to favor a political party or group is

called gerrymandering.

_____

From: [mailto: ] On Behalf Of

Nanashmar@...

Sent: Friday, April 07, 2006 11:27 AM

Subject: Conference Topics

I would like to see:

1. " Pre-teen " issues addressed to the kids. At the National Conf. they

put

the 12 year olds with the little kids. I wish my daughter had been in to

hear the talk directed to the teens. Issues like: how to deal with anxiety,

questions by other kids, depression......

2. More info on immune systems and auto immune issues. The dr that spoke at

the National Conference had more info then he had time to share.

3. What research is being done and how to become part of it.

L

Mom to Ashton 12 CVID, Asthma, Dyslexia & Marina 10 Asthma

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Thanks, Dayna-it never came though-groups has issues. I went back

through all of the emails (I have folders set up to make it easy) to

be sure and it wasn't there. Thanks for re-sending.

I find that I miss emails---- I get replies to emails that I never saw the

original-that's part of the reason I always leave what I am replying to in

my reply-I cut off the trailers, but leave the text I am replying to. I

have been confused at times because people reply to messages where I have

never seen the original and the original message isn't in their reply. I

know there are archives, but I never have tome to go to the groups website

to check out the messages I have missed!

Thanks again for re-sending--

~Pattie Curran~

Piedmont Triad, NC

Elbridge Gerry--signer of the Declaration of Independence, Govenor of

Massachusetts and Vice President of the United States under

Madison....

Ever wonder where the term gerrymandering comes from? While serving as

governor of Massachusetts from 1810 to 1812, Elbridge Gerry helped enact a

law dividing the Bay State into political districts favorable to his own

party. This resulted in some odd shaped districts. One district looked like

a salamander, someone said. Someone else joked that it looked more like a

" gerrymander, " making a play on the governor's name. To this day, the

practice of drawing boundary lines to favor a political party or group is

called gerrymandering.

_____

From: [mailto: ] On Behalf Of

Dayna S Fladhammer

Sent: Friday, April 07, 2006 10:40 AM

Subject: RE: Conference Topics

Hey guys -

I asked the same question - and Ursula replied - I'm guessing it did not go

through to everyone's email I have that problem a lot.

I've been asked to help coordinate a conference for a major PID

organization

in the Southeast this Fall. I can't say who is giving it yet but it

is well

funded. They are wanting to know what topics the PID population

would like

to hear about and then we will research who would be best to discuss

them.

All names will be withheld and I am going to forward a very

straightforward list of topics.

Ursula

I do not however, think she answered the question about who is on what brand

and having site reactions and why she wanted that info.

Dayna

_____

From: [mailto: ] On Behalf Of

sherrill c moseley, jr

Sent: Friday, April 07, 2006 7:08 AM

Subject: Conference Topics

Hi Pattie. I do not know exactly what Ursula has planned, but she sure has

gotten ALL of our attention. I think she is hoping to work with someone in

industry to have a " family type " conference, but to have topics that we ALL

are dealing with now. I am still interested to see where she is heading and

who she will be getting to speak. I think it is a good idea, expecially

since we are all at different levels of dealing with this disease. And

maybe that should be considered, to have more than one conference aimed at

age levels ( I think someone else suggested this also), or one for school

aged, or do a day for each. I know the cost and time is an issue, but even

us " old pros " who have been dealing with this for almost 12 years still have

ALOT of questions. I mean with age comes a new set of problems or concerns.

Anyway, that is my two cents worth again. Hope to hear from Ursula soon.

She has all of us excited about this.

Hugs,

Xan, mom to - 17 1/2 (It is his SENIOR PROM tonight) & Kaitlyn - 12

GOING on 30!!, CVID, Asthma, Chronic Sinusitis, & Reflux

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Ain't that the truth! LOL just when we seem to get things under our belt

and down pat..the kids grow and something else pops up!

~Pattie Curran~

Piedmont Triad, NC

Elbridge Gerry--signer of the Declaration of Independence, Govenor of

Massachusetts and Vice President of the United States under

Madison....

Ever wonder where the term gerrymandering comes from? While serving as

governor of Massachusetts from 1810 to 1812, Elbridge Gerry helped enact a

law dividing the Bay State into political districts favorable to his own

party. This resulted in some odd shaped districts. One district looked like

a salamander, someone said. Someone else joked that it looked more like a

" gerrymander, " making a play on the governor's name. To this day, the

practice of drawing boundary lines to favor a political party or group is

called gerrymandering.

_____

Hi Pattie. I do not know exactly what Ursula has planned, but she sure has

gotten ALL of our attention. I think she is hoping to work with someone in

industry to have a " family type " conference, but to have topics that we ALL

are dealing with now. I am still interested to see where she is heading and

who she will be getting to speak. I think it is a good idea, expecially

since we are all at different levels of dealing with this disease. And

maybe that should be considered, to have more than one conference aimed at

age levels ( I think someone else suggested this also), or one for school

aged, or do a day for each. I know the cost and time is an issue, but even

us " old pros " who have been dealing with this for almost 12 years still have

ALOT of questions. I mean with age comes a new set of problems or concerns.

Anyway, that is my two cents worth again. Hope to hear from Ursula soon.

She has all of us excited about this.

Hugs,

Xan, mom to - 17 1/2 (It is his SENIOR PROM tonight) & Kaitlyn - 12

GOING on 30!!, CVID, Asthma, Chronic Sinusitis, & Reflux

[

_____

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Pattie/Xan - I'm sorry. I originally replied to Dayna about why I needed

it. Here's the situation.

There will be a conference this fall that is being hosted by a national PID

organization. The conference will be here in the Southeast and I was asked

to help coordinate. This week I was asked to submit a list of topics that

might be discussed and then we'll work on who is best to invite to discuss

them.

I can not say yet who is sponsoring the conference but they are well funded

and it should be the first of many.

I very excited about the possibilities.

Ursula - mom to Macey (10,CVID) and (13)

http://members.cox.net/maceyh

Immune Deficiency Foundation http://www.primaryimmune.org

Pediatric PID email list

Modell Foundation http://jmfworld.org

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Darn. I thought I read Southwest last time. So bummed.

Hey - did you by chance see Patties post about the sub-q issue - is this

being asked for personal knowledge, or is information being passed on?

Dayna

_____

From: [mailto: ] On Behalf Of

Ursula Holleman

Sent: Friday, April 07, 2006 10:12 AM

Subject: Re: Conference Topics

Pattie/Xan - I'm sorry. I originally replied to Dayna about why I needed

it. Here's the situation.

There will be a conference this fall that is being hosted by a national PID

organization. The conference will be here in the Southeast and I was asked

to help coordinate. This week I was asked to submit a list of topics that

might be discussed and then we'll work on who is best to invite to discuss

them.

I can not say yet who is sponsoring the conference but they are well funded

and it should be the first of many.

I very excited about the possibilities.

Ursula - mom to Macey (10,CVID) and (13)

http://members.cox.net/maceyh

Immune Deficiency Foundation http://www.primaryimmune.org

Pediatric PID email list

Modell Foundation http://jmfworld.org

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

To unsubscribe -unsubscribegroups (DOT)

To search group archives go to:

/messages

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Gracias! Danya re-posted, too. Dumb has issues. I enjoy the

lists, but miss some emails!

Thanks for re-sending, Ursula!

~Pattie Curran~

Piedmont Triad, NC

Elbridge Gerry--signer of the Declaration of Independence, Govenor of

Massachusetts and Vice President of the United States under

Madison....

Ever wonder where the term gerrymandering comes from? While serving as

governor of Massachusetts from 1810 to 1812, Elbridge Gerry helped enact a

law dividing the Bay State into political districts favorable to his own

party. This resulted in some odd shaped districts. One district looked like

a salamander, someone said. Someone else joked that it looked more like a

" gerrymander, " making a play on the governor's name. To this day, the

practice of drawing boundary lines to favor a political party or group is

called gerrymandering.

_____

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I would like info on the kids taking over their own care as they go to

college, graduate, etc. Our immuno is very concerned that Conner will not

be able to get the care he needs as an adult, mostly due to fiancial

reasons. Thankfully we don't have to worry about that too much at the

moment!

Mom to Conner (11, possible combined immune deficiency, Asperger's, mild CP,

partial seizures, asthma, GERD, Hashimoto's disease and resolved adrenal

insufficiency),

Hayden (11, unknown PID, PDD-NOS, IBS and moderate hearing loss/aided),

Evan (11, unknown PID, asthma and mild hearing loss/unaided),

and Kelsey - (10, unknown PID, asthma)

Please visit us at www.caringbridge.org/in/connersmith

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I would like info on the kids taking over their own care as they go to

college, graduate, etc. Our immuno is very concerned that Conner will not

be able to get the care he needs as an adult, mostly due to fiancial

reasons. Thankfully we don't have to worry about that too much at the

moment!

Mom to Conner (11, possible combined immune deficiency, Asperger's, mild CP,

partial seizures, asthma, GERD, Hashimoto's disease and resolved adrenal

insufficiency),

Hayden (11, unknown PID, PDD-NOS, IBS and moderate hearing loss/aided),

Evan (11, unknown PID, asthma and mild hearing loss/unaided),

and Kelsey - (10, unknown PID, asthma)

Please visit us at www.caringbridge.org/in/connersmith

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  • 3 years later...
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Gracie,

Here is a power point that I used for a presentation at our local state yearly meeting. You'll need to personalize it. I've found it so much easier just to have something to work from.

Best of luck,Deane Peck MS.RD.LD/N.

From: gracielynn17 <gracielynn17@...>Subject: Conference Topics Date: Thursday, June 11, 2009, 7:48 AM

Colleages,I have been asked to speak at a local conference regarding p/o nutrition complications. However, I only see a very small amount of p/o patients; mostly I see pre-op. Does anyone have suggestions for topics that should be addressed? Does anyone have old slides they would be willing to share as a template (thought I'd ask in case any one was feeling very generous). Thank you in advance,Grace L Registered Dietitian | Diabetes EducatorBon Secours Richmond Health System | St. 's Diabetes Treatment Center5875 Bremo Road | Richmond, VA | 23226W: 804-287-7079 | F: 804-287-7839 | grace_miller@ bshsi.orgGood Help to Those in Need®

1 of 1 File(s)

Lap-Band

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You're so welcome:+)Sent from my BlackBerry Smartphone provided by AlltelFrom: Grace Date: Thu, 18 Jun 2009 19:11:24 -0700 (PDT)< >Subject: Re: Conference Topics Deane, Thank you sooo much! -GraceGrace L. RD, Diabetes EducatorBon Secours, St 's HospitalRichmond, VA 23235Work: (804) 287-7079Mobile: (740) 707-5997From: gracielynn17 <gracielynn17>Subject: [bariatricNutrition Dietitians] Conference TopicsBariatricNutritionD ietitiansDate: Thursday, June 11, 2009, 7:48 AMColleages,I have been asked to speak at a local conference regarding p/o nutrition complications. However, I only see a very small amount of p/o patients; mostly I see pre-op. Does anyone have suggestions for topics that should be addressed? Does anyone have old slides they would be willing to share as a template (thought I'd ask in case any one was feeling very generous). Thank you in advance,Grace L Registered Dietitian | Diabetes EducatorBon Secours Richmond Health System | St. 's Diabetes Treatment Center5875 Bremo Road | Richmond, VA | 23226W: 804-287-7079 | F: 804-287-7839 | grace_miller@ bshsi.orgGood Help to Those in Need®

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