Guest guest Posted October 28, 2005 Report Share Posted October 28, 2005 Well, I an doesn't have a sunken chest, but he does have this hard boney protrusion sticking out. All of the orthos (including Dr. Khoury) have said it is nothing to worry about, but no one seems to know exactly what it is. Of course, I still worry and plan to ask Miss Mehta about it. Noelle (12-2-01)Ian (8-15-04) sunken chest? I was just wondering if there are any kiddos out therewth scoliosis and a pectus excavatum (sunken chest)?How about a tethered cord and a pectus?I always wonder if there is a connection between allthese traits, like has been discussed lately like bighead, difficult delivery,... all very interestingallison __________________________________ Start your day with - Make it your home page! http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2005 Report Share Posted October 28, 2005 How do you know about the sunken chest can you post a picture>> Delaney <adelaney4@...> wrote: I was just wondering if there are any kiddos out therewth scoliosis and a pectus excavatum (sunken chest)?How about a tethered cord and a pectus?I always wonder if there is a connection between allthese traits, like has been discussed lately like bighead, difficult delivery,... all very interestingallison __________________________________ Start your day with - Make it your home page! http://www./r/hs FareChase - Search multiple travel sites in one click. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2005 Report Share Posted October 28, 2005 Moriah did. Her chest cavity scooped inward and her sternum stuck out. It looked kind of like a ski slope or a nike swoosh. Once she had her halo and got some correction it went away, also putting on some weight helped. She has a little now, but that is also due to her 3 open heart surgeries. She's pretty much had cleavage since her first surgery. Shellie Claflin <noellesmommy@...> wrote: Well, I an doesn't have a sunken chest, but he does have this hard boney protrusion sticking out. All of the orthos (including Dr. Khoury) have said it is nothing to worry about, but no one seems to know exactly what it is. Of course, I still worry and plan to ask Miss Mehta about it. Noelle (12-2-01)Ian (8-15-04) sunken chest? I was just wondering if there are any kiddos out therewth scoliosis and a pectus excavatum (sunken chest)?How about a tethered cord and a pectus?I always wonder if there is a connection between allthese traits, like has been discussed lately like bighead, difficult delivery,... all very interestingallison __________________________________ Start your day with - Make it your home page! http://www./r/hs FareChase - Search multiple travel sites in one click. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2005 Report Share Posted October 28, 2005 Hi , did a great job explaining these various pectus issues. I just wanted to add that Braydon does have a small pectus excavatum. His sternum sinks into his chest at the bottom of the breatbone. His ribcage is so abnormal from the scoliosis that the sternum issues take a backseat. Any time you have a severe scoliosis, you are going to have changes in the chest. The spine is so three-dimensional that the chest/ribcage goes along for the ride when the spine rotates and curves. How can it not? It's all connected. Interesting topic tho. Betty - I'd love to hear about your chest surgery at age 9. How overwhelming for you, I'm sure. Was the surgery successful? Have you had any problems with lungs/heart due to the chest surgery or malformation? Also, I'm very interested in hearing from anyone who may have had a thoracoplasty (rib reduction). Braydon will need to have his rib hump reduced surgically one day and I've heard that it can be quite a painful recovery. Any thoughts? Thanks! Carmell mom to Kara 19, idiopathic scoliosis, Blake 15, GERD and Braydon 10, VACTERL, GERD, DGE, Titanium Rib Project patient #137 (dbl implant 8/01), thoracic insufficiency, rib anomalies, congenital scoliosis (fusion surgery 5/96), missing coccyx, fatty filum/TC (released 4/99), anal stenosis, chronic constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney, ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion, clubfoot with 8 toes (reconstructed 2/96, 3/96, 1/97, 3/04), pes cavus, single umblilical artery, tonsil-adnoidectomy and ear tubes (3/98), etc. http://carmellb-ivil.tripod.com/myfamily/ __________________________________ FareChase: Search multiple travel sites in one click. http://farechase. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2005 Report Share Posted October 28, 2005 Guess what, forgot to answer the other questions you had. Lol. The surgery was a success and I only have a heart murmur now but that’s nothing to what my chest and spine could have done. Betty Madison, WI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2005 Report Share Posted October 28, 2005 For got to mention that I do not recall having any pain afterwards. This is sort of funny, I was afraid to look at my chest because they had used the tape the kind that falls off. The scar had dried up blood under the tape where you couldn’t wash it with a washcloth. It looked ugly to me, now though it has faded away pretty much. The scar starts at the top where the rib cage begins and goes down to my belly button. Betty Madison, WI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2005 Report Share Posted October 28, 2005 Thanks again, Betty. I was curious about what they did. So glad to hear you don't remember feeling much pain. Good news! Those incisions can look overwhelming with dried blood and all. Glad everything worked out fine! Carmell mom to Kara 19, idiopathic scoliosis, Blake 15, GERD and Braydon 10, VACTERL, GERD, DGE, Titanium Rib Project patient #137 (dbl implant 8/01), thoracic insufficiency, rib anomalies, congenital scoliosis (fusion surgery 5/96), missing coccyx, fatty filum/TC (released 4/99), anal stenosis, chronic constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney, ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion, clubfoot with 8 toes (reconstructed 2/96, 3/96, 1/97, 3/04), pes cavus, single umblilical artery, tonsil-adnoidectomy and ear tubes (3/98), etc. http://carmellb-ivil.tripod.com/myfamily/ __________________________________ - PC Magazine Editors' Choice 2005 http://mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2005 Report Share Posted October 31, 2005 Hi , Sorry to chime in so late here, Iv'e been wanting to sit down and catch up on the posts but have only had time to skim. I had to write when I saw this one. Nick has pectus excavatum. He's always had it. Before we started with Shriners, his cardiologist said he may need surgery to repair it. (Nick also had patent ductus arteriosis) Anyway, since he's had two casts (in a brace now til next week) the pectus has improved alot. His chest is more flat instead of with the big dip in it. We believe that when he's done with casting, the pectus will be gone. Also, if I remember correctly, there was some discussion about this earlier too, Nick was c-section because he was folded in half trying to come out butt first. We're constantly being told he has a connective tissue disorder, but nobody can say which one. He's had certain tests done, and they end up ruling things out. My dad swears that he looked exactly like Nick when he was young, from head to toe, and my husband is starting to agree with him that he is just shaped like that. That would be great news! Anyway, I am always amazed at the similarities we keep finding between our kids, ctd's, heart issues, pectus, c-sections, oh, and someone mentioned (ctd related) the blue line across the nose, Nick has had that since birth also. It's so interesting, and somehow makes it not so scary, to know Nick is not alone. I always knew he wasn't alone, but when you're knee deep in dr's and tests, you get that feeling sometimes. Nick will be back in SLC next Monday, with Ray this time, to get rid of the brace and get his 3rd cast. They said he was too sick a few weeks ago to get his scheduled cast. Right now his big curve, (thoracic) is around 45, at least it was when we left! Happy Halloween to everyone! Jeanette > > I was just wondering if there are any kiddos out there > wth scoliosis and a pectus excavatum (sunken chest)? > How about a tethered cord and a pectus? > I always wonder if there is a connection between all > these traits, like has been discussed lately like big > head, difficult delivery,... all very interesting > allison > > > > __________________________________ > Start your day with - Make it your home page! > http://www./r/hs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2005 Report Share Posted October 31, 2005 Hi I have attached some pics of Mason's chest. His chest also petrudes outward. The docs have always related it to his heart surgeries and the way his sternum grew back together. But now that makes me wonder if it has something to do with the scoli or the kyphosis? MMM.. Let me know if Ian's chest looks something like this. Of course Mason's has some battle wounds on his. Take Care Jen and Mason Claflin <noellesmommy@...> wrote: Well, I an doesn't have a sunken chest, but he does have this hard boney protrusion sticking out. All of the orthos (including Dr. Khoury) have said it is nothing to worry about, but no one seems to know exactly what it is. Of course, I still worry and plan to ask Miss Mehta about it. Noelle (12-2-01)Ian (8-15-04) sunken chest? I was just wondering if there are any kiddos out therewth scoliosis and a pectus excavatum (sunken chest)?How about a tethered cord and a pectus?I always wonder if there is a connection between allthese traits, like has been discussed lately like bighead, difficult delivery,... all very interestingallison __________________________________ Start your day with - Make it your home page! http://www./r/hs FareChase - Search multiple travel sites in one click. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2005 Report Share Posted November 1, 2005 Hi Jeanette That is so interesting that Nick's pectus got better with the casts! Did Dr D (assuming that is who you see) mention that that might happen? I would be thrilled if we could have similar results! We are anxiously waiting for clearence to get casted- Mike and Dr D thought that Owen's pectus looked a little unusual and thought there may be a tether at his sternum. We still haven't gotten the CT results back yet, but his MRI showed symptoms of a potential tethered spinal cord. So we need to get that looked at before we go in for the cast. So thanks for the info and good luck with your next cast!! --- Ray and Jeanette <raymus@...> wrote: > Hi , > > Sorry to chime in so late here, Iv'e been wanting to > sit down and > catch up on the posts but have only had time to > skim. I had to > write when I saw this one. > > Nick has pectus excavatum. He's always had it. > Before we started > with Shriners, his cardiologist said he may need > surgery to repair > it. (Nick also had patent ductus arteriosis) > Anyway, since he's > had two casts (in a brace now til next week) the > pectus has improved > alot. His chest is more flat instead of with the > big dip in it. We > believe that when he's done with casting, the pectus > will be gone. > > Also, if I remember correctly, there was some > discussion about this > earlier too, Nick was c-section because he was > folded in half trying > to come out butt first. We're constantly being told > he has a > connective tissue disorder, but nobody can say which > one. He's had > certain tests done, and they end up ruling things > out. My dad > swears that he looked exactly like Nick when he was > young, from head > to toe, and my husband is starting to agree with him > that he is just > shaped like that. That would be great news! > > Anyway, I am always amazed at the similarities we > keep finding > between our kids, ctd's, heart issues, pectus, > c-sections, oh, and > someone mentioned (ctd related) the blue line across > the nose, Nick > has had that since birth also. It's so > interesting, and somehow > makes it not so scary, to know Nick is not alone. I > always knew he > wasn't alone, but when you're knee deep in dr's and > tests, you get > that feeling sometimes. > > Nick will be back in SLC next Monday, with Ray this > time, to get rid > of the brace and get his 3rd cast. They said he was > too sick a few > weeks ago to get his scheduled cast. Right now his > big curve, > (thoracic) is around 45, at least it was when we > left! > > Happy Halloween to everyone! > Jeanette > > > > > > > > I was just wondering if there are any kiddos out > there > > wth scoliosis and a pectus excavatum (sunken > chest)? > > How about a tethered cord and a pectus? > > I always wonder if there is a connection between > all > > these traits, like has been discussed lately like > big > > head, difficult delivery,... all very interesting > > allison > > > > > > > > __________________________________ > > Start your day with - Make it your home > page! > > http://www./r/hs > > > > > > > > __________________________________ - PC Magazine Editors' Choice 2005 http://mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2005 Report Share Posted November 1, 2005 HI thanks for checking in on us. Nope he still hasnt had his heart surgery. Doctors and their egos!! We're still trying to get everyone on the same page. And now Mase is sick so that is holding things back too. We went to the ortho mid-october and Mase's kyphosis is almost completely straight. It looks so amazingly different on the films. His scoli hasnt progressed any. We wont have to go back for followup until July. He will still have to wear his brace. But he doesnt care. Take Care Jen and Masonansiosamjm <usameza@...> wrote: Jen,How is Mason doing? Did he have his surgery yet? I was just thinking about you guys.> Well, I an doesn't have a sunken chest, but he does have this hard boney protrusion sticking out. All of the orthos (including Dr. Khoury) have said it is nothing to worry about, but no one seems to know exactly what it is. Of course, I still worry and plan to ask Miss Mehta about it.> > Noelle (12-2-01)> Ian (8-15-04)> sunken chest?> > > I was just wondering if there are any kiddos out there> wth scoliosis and a pectus excavatum (sunken chest)?> How about a tethered cord and a pectus?> I always wonder if there is a connection between all> these traits, like has been discussed lately like big> head, difficult delivery,... all very interesting> allison> > > > __________________________________ > Start your day with - Make it your home page! > http://www./r/hs> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2005 Report Share Posted November 2, 2005 Great News on Mase's scoliosis and Kyphosis Jen! Hopefully the little munchkin will be well soon. Keep us updated on his Heart Surgery. Jacki > > Well, I an doesn't have a sunken chest, but he does have this hard > boney protrusion sticking out. All of the orthos (including Dr. > Khoury) have said it is nothing to worry about, but no one seems to > know exactly what it is. Of course, I still worry and plan to ask > Miss Mehta about it. > > > > Noelle (12-2-01) > > Ian (8-15-04) > > sunken chest? > > > > > > I was just wondering if there are any kiddos out there > > wth scoliosis and a pectus excavatum (sunken chest)? > > How about a tethered cord and a pectus? > > I always wonder if there is a connection between all > > these traits, like has been discussed lately like big > > head, difficult delivery,... all very interesting > > allison > > > > > > > > __________________________________ > > Start your day with - Make it your home page! > > http://www./r/hs > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2005 Report Share Posted November 2, 2005 Thank You Jacki! Jen and Masonjabostock <jabostock@...> wrote: Great News on Mase's scoliosis and Kyphosis Jen!Hopefully the little munchkin will be well soon. Keep us updated on his Heart Surgery.Jacki> > Well, I an doesn't have a sunken chest, but he does have this hard > boney protrusion sticking out. All of the orthos (including Dr. > Khoury) have said it is nothing to worry about, but no one seems to > know exactly what it is. Of course, I still worry and plan to ask > Miss Mehta about it.> > > > Noelle (12-2-01)> > Ian (8-15-04)> > sunken chest?> > > > > > I was just wondering if there are any kiddos out there> > wth scoliosis and a pectus excavatum (sunken chest)?> > How about a tethered cord and a pectus?> > I always wonder if there is a connection between all> > these traits, like has been discussed lately like big> > head, difficult delivery,... all very interesting> > allison> > > > > > > > __________________________________ > > Start your day with - Make it your home page! > > http://www./r/hs> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2007 Report Share Posted May 31, 2007 My son has pectus excavatum. He was just put in his first cast when Dr. examined him he commented that this was the first time he casted a child with pectus excavatum. Not sure if it is related to the scoliosis or not. The sunken chest runs in our family-both sides actually. What do you think? \Jill > > I was just wondering if there are any kiddos out there > wth scoliosis and a pectus excavatum (sunken chest)? > How about a tethered cord and a pectus? > I always wonder if there is a connection between all > these traits, like has been discussed lately like big > head, difficult delivery,... all very interesting > allison > > > > __________________________________ > Start your day with Yahoo! - Make it your home page! > http://www.yahoo.com/r/hs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2007 Report Share Posted June 1, 2007 Jill, My daughter see Dr. and was in casts for 10 months. She was in a brace for a year and now nothing!!! has a pectus excavatum. At birth, it was quite severe. After her first cast, it reduced dramatically. still has a small pectus but nothing to worry about. Maybe Dr. just forget about her pectus. The casting seemed to improve her pectus. I too asked about the connection but was told many times that there is not one. I will never be convinced that this is the case. But good news is that did fabulous in her casts. Good luck to you. Annie > > > > I was just wondering if there are any kiddos out there > > wth scoliosis and a pectus excavatum (sunken chest)? > > How about a tethered cord and a pectus? > > I always wonder if there is a connection between all > > these traits, like has been discussed lately like big > > head, difficult delivery,... all very interesting > > allison > > > > > > > > __________________________________ > > Start your day with Yahoo! - Make it your home page! > > http://www.yahoo.com/r/hs > > > Quote Link to comment Share on other sites More sharing options...
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