Jaeden's trip to SLC

October 15, 2005

Hello,

Jaeden's trip to SLC to get another cast has been changed. We are

going on Nov 7th but we are going to get the cast cut off and get

reevaluated for the titanium rib. And the cast is going to stay off.

Jaeden is at a point now where he is unable to continue casting. He

will be put in a brace until we can get the surgery. We will see Dr.

Santora on the 10th @ 10am to evaluate Jaeden's scoliosis and to go

over what Dr @ Primary Children's decides. Help us pray that he

will accept Jaeden. We need all the support we can get!! Hope

everyone is well. Talk to you all soon

Love,

Amy and Jaeden (2years 10months)

October 16, 2005

Hi Amy

Yours and Jaeden's story sounds like ours! We are getting Siobhan's

cast off on Nov. 14th, and are going for an evaluation with Dr

on Nov 15 and 16.

When did the plan change? Did you speak to Dr D'Astous? Or some one

else?

It sounds like we'll just miss each other. Let us know how Jaedan

gets on.

Jacki

>

> Hello,

> Jaeden's trip to SLC to get another cast has been changed. We are

> going on Nov 7th but we are going to get the cast cut off and get

> reevaluated for the titanium rib. And the cast is going to stay

off.

> Jaeden is at a point now where he is unable to continue casting.

He

> will be put in a brace until we can get the surgery. We will see

Dr.

> Santora on the 10th @ 10am to evaluate Jaeden's scoliosis and to

go

> over what Dr @ Primary Children's decides. Help us pray

that he

> will accept Jaeden. We need all the support we can get!! Hope

> everyone is well. Talk to you all soon

>

> Love,

> Amy and Jaeden (2years 10months)

>

October 16, 2005

Hi Amy,

We'll be at PCMC on Nov. 10. That is Braydon's next

VEPTR expansion surgery. Maybe we'll get to see you

and Jaeden again. Good luck with everything!

Carmell

mom to Kara 19, idiopathic scoliosis, Blake 15, GERD and Braydon 10, VACTERL,

GERD, DGE, Titanium Rib Project patient #137 (dbl implant 8/01), thoracic

insufficiency, rib anomalies, congenital scoliosis (fusion surgery 5/96),

missing coccyx, fatty filum/TC (released 4/99), anal stenosis, chronic

constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney,

ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic

bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion,

clubfoot with 8 toes (reconstructed 2/96, 3/96, 1/97, 3/04), pes cavus, single

umblilical artery, tonsil-adnoidectomy and ear tubes (3/98), etc.

http://carmellb-ivil.tripod.com/myfamily/

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- PC Magazine Editors' Choice 2005

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October 16, 2005