New help Update Doctors today

April 23, 2005

it's been a very long mentally exhausting day. We went to Langley

at 6:45 this morning and it all started around 7:30. The Doctor

started ordering tests and wanted her to be admitted to Portsmouth

Navel hospital for an MRI. The first few test were for Leukemia soon

as she said that word I lost it. Needless to say it scared the hell

out of me then it was we also need to make sure there are no tumors

not being picked up on the test with the MRI. So we were there until

10:30 waiting for all the paperwork to get done for NMCP. And the

doctor was making calls back and forth trying to make sure the

specialist would be the one seeing her cause I guess it's a training

hospital. Plus NMCP was wanting her transported by ambulance and

Langley was saying that wasn't needed and we as the parents didn't

want that as we needed to come home and grab so more stuff before

heading over there I only had a few diapers with me nothing to last

a stay in the hospital. Well finally the our doctor told us to go

ahead and go home get your stuff together and she would call us as

soon as she got in touch with the specialist and weather we could

drive her or have her transported. Well I was pissed to say the

least when hubby got the call on his cell phone about 45 minutes

after getting home telling us that there's been another change the

specialist doesn't want to admit her but wants to wait until Tuesday

to see her. So she now has an appt at NMCP Tuesday at 8 am and will

have the MRI then he seems to think that it's just scoliosis and no

tumors I was shocked as two peds at Langley both wanted her seen

today and this guy who hasn't seen her records or her x-rays decides

it's ok to wait even longer this has already been going on 3 weeks.

Another thing the peds doctor did say we are looking at surgery. Her

Diagnose is Acute Progressive Scoliosis. We have copies of the x-ray

and I took a few pictures of her back the best I could she didn't

want to stand still so I'm going to up load them. The x-ray I

couldn't scan it so we took a picture. They didn't tell us any % of

the curve so hopefully I'll know more Tuesday.

Did all of you go through the scare of possible cancer and tumors

too?

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