H ~ re: Ian's resolving scoli

[Guest guest]

I tried responding to your message asking about Ian's resolving

scoliosis, but it got returned to me. I have had a lot of trouble

trying to respond to posts for some reason. Hopefully this one will

go through.

We went to Erie and saw Dr. Khoury. His original curve that was

measured by a doctor here in VA was 36 degrees and when they measured

him in Erie it was 29 degrees (RVAD 13). I should have told doctor K

that Ian was not laying perfectly straight and that he was moving

around in his first set of films, but didn't think of it at the time.

I am now thinking he was never actually at 36 degrees. He doesn't

look any better than he did when we were in Erie, so I am getting him

x-rayed in a on Friday even though Doctor K told us to wait until

August. I also want to discuss with this doctor a bony protrusion

that is on his ribcage. He also has one pretty large cafe-au-lait

spot. I am starting to really worry that he may have

neurofibromatosis.