Adan's update

[Guest guest]

hi all

First I want to thank all of you that has helped me with all of my questions

Adan was put into a cast on Thurs and is doing well. They measured him around 35-38 thoracic Cobb and the lower compensatory of 23..RVAD of 9 going into the cast( May 2004..... 30 Degree Cobb no compensatory and (RVAD of 25-30 Boston). then in the cast he is 14/18 in the cast RV AD of 8..so great results .......

Thanks again to most importantly for this site and all the work and time you have committed to this........Crista, and Deshea and Tawney, Carmell I would not know what I have done with out your help.( and everyone else who has helped me along the way)

This cast seems very heavy I am measuring 6 pounds?? so He is still trying to learn how to get around

Things have been crazy so I have little time (He is still awake at 11 pm AWWWWAAAAh)

I will post more especially questions about care and his movement but for now I wanted to tell you how he is doing,...

If the new guys on the group need his stats and info to get the whole picture let me know...

Thanks again

, and Adananxietyfilledmom <cjhnelson@...> wrote:

Hello!Thanks again for all the words of encouragement and support. I have such a sense of relief now that were in her first cast. I know what to expect and she was helped so much! Dr. D warned me however that with a curve as significant as Eliana's was, she probably will need surgery at some point regardless, he said he was "guardingly optimistic" considering the amount of flexibility and correction attained in the first cast. He feels that we can at leaste buy her a good amount of time to grow in these casts before then. We are supposed to try to make it 10 to 12 weeks in this cast, which would put us there in June sometime. Is that a little long? or is that typical? She is doing pretty good...she still seems to need infants Motrin from time to time, but I think alot of it is frustration for her. She just learned to crawl

about 1-1/2 weeks before casting and now she is so limited, but I'm sure in no time she'll be stronger and mobile again. The diapering is INTERESTING to say the leaste! She has had pooh up the back twice already, thank heavens you can pull out enough of the little shirt to clean and dry it! I have to say in closing that I was very pleased with the hospital and staff at SLC, and I would highly recommend them!...and I never would have found this alternative to invasive surgery without this group, God bless you all, for helping me help my tiny one!Anxiety relived mom is right, LOL :-), mom of Eliana__________________________________________________

[Guest guest]

Hey ,

Congratulations to you and to Adan on the great improvement . I can't wait to see a picture of him in his cast. you are doing so well. Oh well everyone takes sometime to get used to their cast but he will work it out in no time and think of all the extra muscle tone carrying around those extra pounds will stack on.

Fantastic correction hey.

Bert and Bridgeernandez <christinehrph@...> wrote:

hi all

First I want to thank all of you that has helped me with all of my questions

Adan was put into a cast on Thurs and is doing well. They measured him around 35-38 thoracic Cobb and the lower compensatory of 23..RVAD of 9 going into the cast( May 2004..... 30 Degree Cobb no compensatory and (RVAD of 25-30 Boston). then in the cast he is 14/18 in the cast RV AD of 8..so great results .......

Thanks again to most importantly for this site and all the work and time you have committed to this........Crista, and Deshea and Tawney, Carmell I would not know what I have done with out your help.( and everyone else who has helped me along the way)

This cast seems very heavy I am measuring 6 pounds?? so He is still trying to learn how to get around

Things have been crazy so I have little time (He is still awake at 11 pm AWWWWAAAAh)

I will post more especially questions about care and his movement but for now I wanted to tell you how he is doing,...

If the new guys on the group need his stats and info to get the whole picture let me know...

Thanks again

, and Adananxietyfilledmom <cjhnelson@...> wrote:

Hello!Thanks again for all the words of encouragement and support. I have such a sense of relief now that were in her first cast. I know what to expect and she was helped so much! Dr. D warned me however that with a curve as significant as Eliana's was, she probably will need surgery at some point regardless, he said he was "guardingly optimistic" considering the amount of flexibility and correction attained in the first cast. He feels that we can at leaste buy her a good amount of time to grow in these casts before then. We are supposed to try to make it 10 to 12 weeks in this cast, which would put us there in June sometime. Is that a little long? or is that typical? She is doing pretty good...she still seems to need infants Motrin from time to time, but I think alot of it is frustration for her. She just learned to crawl

about 1-1/2 weeks before casting and now she is so limited, but I'm sure in no time she'll be stronger and mobile again. The diapering is INTERESTING to say the leaste! She has had pooh up the back twice already, thank heavens you can pull out enough of the little shirt to clean and dry it! I have to say in closing that I was very pleased with the hospital and staff at SLC, and I would highly recommend them!...and I never would have found this alternative to invasive surgery without this group, God bless you all, for helping me help my tiny one!Anxiety relived mom is right, LOL :-), mom of Eliana

__________________________________________________

[Guest guest]

Good job Adan and docs! That is awesome.

Make sure you take care of yourself .

Hugs,

Gail

Adan's update

hi all

First I want to thank all of you that has helped me with all of my questions

Adan was put into a cast on Thurs and is doing well. They measured him around 35-38 thoracic Cobb and the lower compensatory of 23..RVAD of 9 going into the cast( May 2004..... 30 Degree Cobb no compensatory and (RVAD of 25-30 Boston). then in the cast he is 14/18 in the cast RV AD of 8..so great results .......

Thanks again to most importantly for this site and all the work and time you have committed to this........Crista, and Deshea and Tawney, Carmell I would not know what I have done with out your help.( and everyone else who has helped me along the way)

This cast seems very heavy I am measuring 6 pounds?? so He is still trying to learn how to get around

Things have been crazy so I have little time (He is still awake at 11 pm AWWWWAAAAh)

I will post more especially questions about care and his movement but for now I wanted to tell you how he is doing,...

If the new guys on the group need his stats and info to get the whole picture let me know...

Thanks again

, and Adananxietyfilledmom <cjhnelson@...> wrote:

Hello!Thanks again for all the words of encouragement and support. I have such a sense of relief now that were in her first cast. I know what to expect and she was helped so much! Dr. D warned me however that with a curve as significant as Eliana's was, she probably will need surgery at some point regardless, he said he was "guardingly optimistic" considering the amount of flexibility and correction attained in the first cast. He feels that we can at leaste buy her a good amount of time to grow in these casts before then. We are supposed to try to make it 10 to 12 weeks in this cast, which would put us there in June sometime. Is that a little long? or is that typical? She is doing pretty good...she still seems to need infants Motrin from time to time, but I think alot of it is frustration for her. She just learned to crawl about 1-1/2 weeks before casting and now she is so limited, but I'm sure in no time she'll be stronger and mobile again. The diapering is INTERESTING to say the leaste! She has had pooh up the back twice already, thank heavens you can pull out enough of the little shirt to clean and dry it! I have to say in closing that I was very pleased with the hospital and staff at SLC, and I would highly recommend them!...and I never would have found this alternative to invasive surgery without this group, God bless you all, for helping me help my tiny one!Anxiety relived mom is right, LOL :-), mom of Eliana

__________________________________________________

[Guest guest]

I put a picture of Adan and Tyler in July as well as the sun safe out he wears to the beach it works really good for sand and is made for the Beach so it not too hot <christinehrph@...> wrote:

Hi all

Thanks Bert for reminding me we have been soo behind

I am going to post pictures

Adan had his 2nd cast applied with the same results of a curve but I think it looks worse ( mean the 1 st looked better in the xray) in the xray the "overall alignment" but I am not an expert at reading xrays maybe he was moving. They seem to get the original thoracic curve to look good but the compensatory lumbar always gives it a worse appearance

His original curves were 38/24 RVAD 9 then 1st cast 14/18 RVAD 8 now

14/12 They told me they do not measure the RVAD anymore after the 1st cast ??????i am not sure why not. He said the rotation was a 1 out 0f 4 ( 1 least 4 worse)

I guess it may take Adan more than 3 months to get better traction

The only thing that bothered me was Mike was not part of the team like usually he was away so ....

Thanks for listing ang and your interest

Does anyone the name of the device they measure the curve in the x rays with is called?

I want to measure my x rays at home

*****ALSO Adan has had a hard time with falling in the casts he always bangs his head when he falls forward like he trips then his body goes down then the head bangs the ground..he has had too many falls already that have produced large eggs on his head....any suggestions beside helmet??

Also when measuring the curve for and RVAD how do they do it??

Good luck to all of you going from procedures in this and next month

Thanks again for all your your time

bert lehane <bert_lehane@...> wrote:

Bridget was toilet training while she was in a brace and a cast. I pretty much put her straight into undies and we just went for it. The only time we had problems with the cast getting wet was when she was asleep and then we used the hair dryer on cool to dry it out. It is a bit messy but not much that can be done really. I think they actually have to feel wet and uncomfortable before they make a conscious decision to go and do it somewhere else.

Good luck and hey , did I miss Adan's cast update? How did it go?

Love Bertand Bridge <christinehrph@...> wrote:

Hi Jen

I do not have you new phone # and I would love to be able to ask you some questions

if it is still OK Can you email your # again

Thanks

I really appreciate it

christinehrph@...Jennifer <jenstewart73@...> wrote:

-

I potty trained Madison while in a cast. I used the Pampers First Steps and panty liners on the lower inside portion of the cast to help avoid any messes. I also put velcro on the front and back bottom of the cast and knit rite shirt. This helped keep the shirt out of the way. I found she was confusing the first step and the shirt on which one to try to pull down.

She was able to get to the potty and pull the First Step down in time for successful potty going. The Feel and Learns from Pampers also help out a lot too. She will be able to feel when she's wet; hopefully, teaching when it's time to go. To teach her what it meant to "go", I let her run around in the back yard with nothing on until she went outside. Not exactly scientific or classy....but it worked. Good Luck!!!

Jendmlmlm <dmayes1@...> wrote:

Hi! My daughter, , is 2 1/2 and I would like to start potty training soon. Does anyone have any helpful hints that you have learned potty training your toddler in a cast?The biggest challenge that I see is:'s diaper tends to come out from under the cast. We use a larger diaper on the outside to hold the smaller diaper up under the cast. (Wonderful advise from a mom on this site!) When bends over, the outside diaper will come down below the cast unless she has on a shirt that snaps between the legs. So we have a shirt to unsnap between her legs, a large diaper to remove and a small diaper to remove! I'm not even sure that I would be able to hold it while I did all that - I am sure that will have already taken care of business before that process is over!Any

pointers?Thanks, and

Start your day with - make it your home page

Start your day with - make it your home page

__________________________________________________

[Guest guest]

christine,where did you get that outfit?  i would like to take lucas to the beach again, but i'm nervous about the sand.thanks,desheaOn Jul 25, 2005, at 1:29 PM, wrote: I put a picture of Adan and Tyler in July as well as the sun safe out he wears to the beach it works really good for sand and is made for the Beach so it not too hot <christinehrph@...> wrote: Hi all   Thanks Bert for reminding me we have been soo behind   I am going to post pictures   Adan had his 2nd cast applied with the same results of a curve but I think it looks worse ( mean the 1 st looked better in the xray) in the xray the "overall alignment" but I am not an expert at reading xrays maybe he was moving. They seem to get the original thoracic curve to look good but the compensatory lumbar always gives it a worse appearance His original curves were 38/24 RVAD 9 then 1st cast 14/18 RVAD 8 now 14/12 They told me they do not measure the RVAD anymore after the 1st cast ??????i am not sure why not. He said the rotation was a 1 out 0f 4 ( 1 least 4 worse) I guess it may take Adan more than 3 months to get better traction The only thing that bothered me was Mike was not part of the team like usually he was away so ....   Thanks for listing ang and your interest Does anyone the name of the device they measure the curve in the x rays with is called? I want to measure my x rays at home     *****ALSO Adan has had a hard time with falling in the casts he always bangs his head when he falls forward like he trips then his body goes down then the head bangs the ground..he has had too many falls already that have produced large eggs on his head....any suggestions beside helmet??   Also when measuring the curve for and RVAD how do they do it??   Good luck to all of you going from procedures in this and next month   Thanks again for all your your time bert lehane <bert_lehane@...> wrote: Bridget was toilet training while she was in a brace and a cast. I pretty much put her straight into undies and we just went for it.  The only time we had problems with the cast getting wet was when she was asleep and then we used the hair dryer on cool to dry it out.  It is a bit messy but not much that can be done really. I think they actually have to feel wet and uncomfortable before they make a conscious decision to go and do it somewhere else.   Good luck and hey , did I miss Adan's cast update?   How did it go?   Love Bertand Bridge <christinehrph@...> wrote: Hi Jen   I do not have you new phone # and I would love to be able to ask you some questions if it is still OK Can you email your # again   Thanks I really appreciate it christinehrph@...Jennifer <jenstewart73@...> wrote: -       I potty trained Madison while in a cast.  I used the Pampers First Steps and panty liners on the lower inside portion of the cast to help avoid any messes.  I also put velcro on the front and back bottom of the cast and knit rite shirt.  This helped keep the shirt out of the way.  I found she was confusing the first step and the shirt on which one to try to pull down.       She was able to get to the potty and pull the First Step down in time for successful potty going.  The Feel and Learns from Pampers also help out a lot too.  She will be able to feel when she's wet; hopefully, teaching when it's time to go.  To teach her what it meant to "go", I let her run around in the back yard with nothing on until she went outside.  Not exactly scientific or classy....but it worked.  Good Luck!!!   Jendmlmlm <dmayes1@...> wrote: Hi!  My daughter, , is 2 1/2 and I would like to start potty training soon.  Does anyone have any helpful hints that you have learned potty training your toddler in a cast?The biggest challenge that I see is:'s diaper tends to come out from under the cast.  We use a larger diaper on the outside to hold the smaller diaper up under the cast.  (Wonderful advise from a mom on this site!) When bends over, the outside diaper will come down below the cast unless she has on a shirt that snaps between the legs.  So we have a shirt to unsnap between her legs, a large diaper to remove and a small diaper to remove!  I'm not even sure that I would be able to hold it while I did all that - I am sure that will have already taken care of business before that process is over!Any pointers?Thanks, and Start your day with - make it your home page Start your day with - make it your home page __________________________________________________

[Guest guest]

It is great!!!! it goes almost all the way to the neck I put small thin washcloths around the top in case the threw sand but he did not.

The company is SUN SAFE and it has a UVB/UVA of like 50 plus

I believe I got mine thru the catalog one step ahead but you may be able to get it cheaper on another site...try my Simon for price comparison

Lets get together next week!!

I am sure things will work out great for Lucas tomorrow I will be thinking of him and you.

XXOO

and Adan"Deshea L. " <deshea@...> wrote:

christine,

where did you get that outfit? i would like to take lucas to the beach again, but i'm nervous about the sand.

thanks,

deshea

On Jul 25, 2005, at 1:29 PM, wrote:

I put a picture of Adan and Tyler in July as well as the sun safe out he wears to the beach it works really good for sand and is made for the Beach so it not too hot <christinehrph@...> wrote:

Hi all

Thanks Bert for reminding me we have been soo behind

I am going to post pictures

Adan had his 2nd cast applied with the same results of a curve but I think it looks worse ( mean the 1 st looked better in the xray) in the xray the "overall alignment" but I am not an expert at reading xrays maybe he was moving. They seem to get the original thoracic curve to look good but the compensatory lumbar always gives it a worse appearance

His original curves were 38/24 RVAD 9 then 1st cast 14/18 RVAD 8 now

14/12 They told me they do not measure the RVAD anymore after the 1st cast ??????i am not sure why not. He said the rotation was a 1 out 0f 4 ( 1 least 4 worse)

I guess it may take Adan more than 3 months to get better traction

The only thing that bothered me was Mike was not part of the team like usually he was away so ....

Thanks for listing ang and your interest

Does anyone the name of the device they measure the curve in the x rays with is called?

I want to measure my x rays at home

*****ALSO Adan has had a hard time with falling in the casts he always bangs his head when he falls forward like he trips then his body goes down then the head bangs the ground..he has had too many falls already that have produced large eggs on his head....any suggestions beside helmet??

Also when measuring the curve for and RVAD how do they do it??

Good luck to all of you going from procedures in this and next month

Thanks again for all your your time

bert lehane <bert_lehane@...> wrote:

Bridget was toilet training while she was in a brace and a cast. I pretty much put her straight into undies and we just went for it. The only time we had problems with the cast getting wet was when she was asleep and then we used the hair dryer on cool to dry it out. It is a bit messy but not much that can be done really. I think they actually have to feel wet and uncomfortable before they make a conscious decision to go and do it somewhere else.

Good luck and hey , did I miss Adan's cast update? How did it go?

Love Bertand Bridge <christinehrph@...> wrote:

Hi Jen

I do not have you new phone # and I would love to be able to ask you some questions

if it is still OK Can you email your # again

Thanks

I really appreciate it

christinehrph@...Jennifer <jenstewart73@...> wrote:

-

I potty trained Madison while in a cast. I used the Pampers First Steps and panty liners on the lower inside portion of the cast to help avoid any messes. I also put velcro on the front and back bottom of the cast and knit rite shirt. This helped keep the shirt out of the way. I found she was confusing the first step and the shirt on which one to try to pull down.

She was able to get to the potty and pull the First Step down in time for successful potty going. The Feel and Learns from Pampers also help out a lot too. She will be able to feel when she's wet; hopefully, teaching when it's time to go. To teach her what it meant to "go", I let her run around in the back yard with nothing on until she went outside. Not exactly scientific or classy....but it worked. Good Luck!!!

Jendmlmlm <dmayes1@...> wrote:

Hi! My daughter, , is 2 1/2 and I would like to start potty training soon. Does anyone have any helpful hints that you have learned potty training your toddler in a cast?The biggest challenge that I see is:'s diaper tends to come out from under the cast. We use a larger diaper on the outside to hold the smaller diaper up under the cast. (Wonderful advise from a mom on this site!) When bends over, the outside diaper will come down below the cast unless she has on a shirt that snaps between the legs. So we have a shirt to unsnap between her legs, a large diaper to remove and a small diaper to remove! I'm not even sure that I would be able to hold it while I did all that - I am sure that will have already taken care of business before that process is over!Any

pointers?Thanks, and

Start your day with - make it your home page

Start your day with - make it your home page

__________________________________________________