L. Re: Belated intro from and Ricky & Question

March 29, 2005

Hi Jen,

thank you for your reply and I wish you and Mason all the best too,

my heart goes out to you I woudl be a basket case if Ricky needed

surgery! Especially with the back and heart! Best wishes,

> Hi

> My name is Jen, I am also new to the group. My son Mason is 12

months. The scoliosis he has is only at a 20 degree curve and has not

progressed in 4 mths. They are not going to intervene with any type

of treatment yet. With congenital scoli I believe it can go either

way. It can either stay the same or worsen as he grows. But

continuing to get xrays to follow it and to look for the physical

signs of it would be the best way to follow. I'm sure you know what

to look for physically as you have it too. My goodness I am sorry for

have gone thru all that when you were so young.

> Mason also has congenital kyphosis which is at 35 degrees. They are

trying to treat it with a spika cast right now hopefully trying to

avoid surgery.

> He has a heart defect too, named HypoPlastic Left Heart Syndrome.

He literally only has half a heart. He has had 2 open heart surgeries

and will have at least one more, which will probably be in Sep. this

year. He has had a few complications dealing with his heart but all

in all completely happy and fully content with life.

> Good luck...please let us know what happens in June.

> Talk to you soon

> Jen and Mason

>

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