Guest guest Posted March 3, 2005 Report Share Posted March 3, 2005 Just a note to say that Braydon will be in SLC (at PCMC) having VEPTR/TRP expansion surgery on March 21. Since Shriners is so close by, we'd love to come and visit anyone who may be in the area that week. It was WONDERFUL to meet Miss Olivia and H. Olivia is adorable. She and Braydon may hook up to talk about scoliosis issues... sounds good to me! - thanks so much for letting us intrude on your lunch. It was so nice to finally meet you! I hope Olivia got some fries to go with her fry sauce - LOL. Keep me posted about the upcoming events... Thanks! ===== Carmell mom to Kara 18, idiopathic scoliosis, Blake 13, GERD and Braydon 9, VACTERL, GERD, DGE, Titanium Rib Project patient #137 (dbl implant 8/01), thoracic insufficiency, rib anomalies, congenital scoliosis (fusion surgery 5/96), missing coccyx, fatty filum/TC (released 4/99), anal stenosis, chronic constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney, ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion, clubfoot with 8 toes (reconstructed 2/96, 3/96, 1/97, 3/04), pes cavus, single umblilical artery, tonsil-adnoidectomy and ear tubes (3/98), etc. __________________________________ Celebrate 's 10th Birthday! Netrospective: 100 Moments of the Web http://birthday./netrospective/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2005 Report Share Posted March 4, 2005 Carmell, Kylie and I would love to meet you and Braydon. We won't be having anything done at Shriner's that week but we only live 20 min. away. We could come to PCMC and visit you and Braydon. Let us know what day would work best for you. Talk to you later, --- Carmell Burns <cjbmom23@...> wrote: > Just a note to say that Braydon will be in SLC (at > PCMC) having VEPTR/TRP expansion surgery on March > 21. > Since Shriners is so close by, we'd love to come and > visit anyone who may be in the area that week. It > was > WONDERFUL to meet Miss Olivia and H. Olivia > is adorable. She and Braydon may hook up to talk > about scoliosis issues... sounds good to me! > > - thanks so much for letting us intrude on your > lunch. > It was so nice to finally meet you! I hope Olivia > got some fries to go with her fry sauce - LOL. Keep > me posted about the upcoming events... Thanks! > > > > ===== > Carmell > mom to Kara 18, idiopathic scoliosis, Blake 13, GERD > and Braydon 9, VACTERL, GERD, DGE, Titanium Rib > Project patient #137 (dbl implant 8/01), thoracic > insufficiency, rib anomalies, congenital scoliosis > (fusion surgery 5/96), missing coccyx, fatty > filum/TC (released 4/99), anal stenosis, chronic > constipation, horseshoe (cross-fused) kidney, dbl > ureter in left kidney, ureterocele (excized 6/95), > kidney reflux (reimplant surgery 1/97), neurogenic > bladder, bilateral hip dysplasia, right leg/foot > dyplasia, tibial torsion, clubfoot with 8 toes > (reconstructed 2/96, 3/96, 1/97, 3/04), pes cavus, > single umblilical artery, tonsil-adnoidectomy and > ear tubes (3/98), etc. > > > > > __________________________________ > Celebrate 's 10th Birthday! > Netrospective: 100 Moments of the Web > http://birthday./netrospective/ > __________________________________ Celebrate 's 10th Birthday! Netrospective: 100 Moments of the Web http://birthday./netrospective/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2005 Report Share Posted March 4, 2005 Carmell, Kylie and I would love to meet you and Braydon. We won't be having anything done at Shriner's that week but we only live 20 min. away. We could come to PCMC and visit you and Braydon. Let us know what day would work best for you. Talk to you later, --- Carmell Burns <cjbmom23@...> wrote: > Just a note to say that Braydon will be in SLC (at > PCMC) having VEPTR/TRP expansion surgery on March > 21. > Since Shriners is so close by, we'd love to come and > visit anyone who may be in the area that week. It > was > WONDERFUL to meet Miss Olivia and H. Olivia > is adorable. She and Braydon may hook up to talk > about scoliosis issues... sounds good to me! > > - thanks so much for letting us intrude on your > lunch. > It was so nice to finally meet you! I hope Olivia > got some fries to go with her fry sauce - LOL. Keep > me posted about the upcoming events... Thanks! > > > > ===== > Carmell > mom to Kara 18, idiopathic scoliosis, Blake 13, GERD > and Braydon 9, VACTERL, GERD, DGE, Titanium Rib > Project patient #137 (dbl implant 8/01), thoracic > insufficiency, rib anomalies, congenital scoliosis > (fusion surgery 5/96), missing coccyx, fatty > filum/TC (released 4/99), anal stenosis, chronic > constipation, horseshoe (cross-fused) kidney, dbl > ureter in left kidney, ureterocele (excized 6/95), > kidney reflux (reimplant surgery 1/97), neurogenic > bladder, bilateral hip dysplasia, right leg/foot > dyplasia, tibial torsion, clubfoot with 8 toes > (reconstructed 2/96, 3/96, 1/97, 3/04), pes cavus, > single umblilical artery, tonsil-adnoidectomy and > ear tubes (3/98), etc. > > > > > __________________________________ > Celebrate 's 10th Birthday! > Netrospective: 100 Moments of the Web > http://birthday./netrospective/ > __________________________________ Celebrate 's 10th Birthday! Netrospective: 100 Moments of the Web http://birthday./netrospective/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2005 Report Share Posted March 4, 2005 Hi ! We'd love to meet you. Braydon will be having surgery on Monday, March 21, and will probably go home on Wednesday. He's usually up (and bored) and ready for visitors on Tuesday afternoon. Email me privately - I'd love to have your phone number in case we need to adjust the schedule. I look forward to seeing you and Kylie! Carmell __________________________________ Celebrate 's 10th Birthday! Netrospective: 100 Moments of the Web http://birthday./netrospective/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 Hi , We will likely be discharged by then... however, we'd love to come and visit anyway. We live 2 hours north of SLC, so driving down for a visit may work. Privately email me a phone number and I'll call and talk details with you. Take care and travel safe! Carmell Carmell mom to Kara 18, idiopathic scoliosis, Blake 13, GERD and Braydon 9, VACTERL, GERD, DGE, Titanium Rib Project patient #137 (dbl implant 8/01), thoracic insufficiency, rib anomalies, congenital scoliosis (fusion surgery 5/96), missing coccyx, fatty filum/TC (released 4/99), anal stenosis, chronic constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney, ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion, clubfoot with 8 toes (reconstructed 2/96, 3/96, 1/97, 3/04), pes cavus, single umblilical artery, tonsil-adnoidectomy and ear tubes (3/98), etc. __________________________________ Celebrate 's 10th Birthday! Netrospective: 100 Moments of the Web http://birthday./netrospective/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2010 Report Share Posted October 1, 2010 I'm waiting to hear from her after Dr. Has a chance to look over the X-rays..I hate this waiting game when I know in my heart this is right for my son. Im going to keep sitting on my hands and hope for the best, I just really hate waiting any longer than we already have. :(On Sep 30, 2010, at 4:34 PM, NIck Guthe <nickguthe@...> wrote: So sorry! Did Angie say when you might hear? I know they are always incredibly busy. Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast)From: crazerach <crazerach29@...>infantile scoliosis treatment Sent: Thu, September 30, 2010 3:08:09 PMSubject: SLC So I just got off the phone w/ the care coordinator at SLC and I am so upset. She had told me awhile ago that they were holding a spot for Tommy on Oct. 5th for his first cast, pending an eval of his X-rays by Dr.... Well they have the X-rays but Dr...hasnt had a chance to review them and with that date fast approaching I was informed that the 5th will not work. I am so let down so while my stomach has been in knots for weeks it was all for nothing....I had hoped to get a few casts in before next summer but with this delay I'm not so sure anymore.... Quote Link to comment Share on other sites More sharing options...
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