update on SLC and re: ped. neuro.

[Guest guest]

,

Don't worry about getting into SLC. It sounds very positive to me, and Dr. D'Astous is our Dr. The veggie thing cracked me up because had the same thing about 6 months ago. Don't panic because it takes about 3 months to completely go away. Our fingers and toes are crossed for you!!

Crista

[Guest guest]

Hello all, and thanks Carmell!

I guess I just needed someone to give me their opinion as to whether

I was just being " paranoid " . Getting her seen, or at least her

latest MRI/CAT scans seen, by a ped. neur. is next on the agenda.

I'll have to have my doc referr me or my insurance wont pay! Thats a

whole other tangent, LOL, I best not even start! The latest on her

SLC app is that dr. D's nurse coordinator called me and let me know

Elian's records are in his office, and had been given to him, and he

wanted to confer with some other docs, but that her status

was " priority 1 " ,(whatever that means)? I told her that my doc here

was going to call and see about expediting things, and she said that

things were already classified as status one, and she would be in

touch when any decisions were made. I'm assuming that is good, but

it seems as though everytime I " assume " something, I'm wrong. These

little angels of ours cetainly keep us on our toes don't they?,

LOL. I pray she is not to severe to be casted, everyone says Dr. D

is a compassionate man, so I'm trying to be optimistic. I'm just

still concerned with the whole " transferred denied app. " business.

Oh, and by the way, the thread I posted regarding jaundice....I took

her to the doc and found out she is not juandiced, but has

kerotinitis, I probably just totally mispelled that, oh well, it

just means she eats LOTS of yellow and orange veggies, which she

does! Funny, didnt even know that could happen, like I said, on my

toes! LOL, anyway, thanks again everyone for your support.

, mom of Eliana

[Guest guest]

Hi ,

I just sent you an email privately.

Crista

[Guest guest]

>

Thanks Crista! I really appeciate the support! Thanks for all the

crossed fingers and toes! They worked cause we got approved and an

appt. date set. What do you think of Dr. D's bedside manner? All

the orthos weve seen are very dry and matter of fact, almost

abrasive. Just curious :-)

>

>

> ,

> Don't worry about getting into SLC. It sounds very positive to

me, and Dr.

> D'Astous is our Dr. The veggie thing cracked me up because

had the

> same thing about 6 months ago. Don't panic because it takes about

3 months to

> completely go away. Our fingers and toes are crossed for you!!

>

> Crista

[Guest guest]

It sounds like Christa is helping answer some of your questions re

transportation to SLC.

I'll let you know our experiences - The Vancouver Shrine wouldn't

help us get to and from SLC, as they would only cover us getting to

and from our closest Shriner's Hospital.

We have flown Angel Flights a couple of times, and had a wonderful

experience. Their info is in the " Links " section of the group. I've

heard that Miracle Flights is good, but they wouldn't help us

" foreigners " up here in Canada! But I do highly recommend checking

out Angel Flights.

Hope that helps a little. And keep us posted on your appointment.

Jacki

> >

> Thanks Crista! I really appeciate the support! Thanks for all the

> crossed fingers and toes! They worked cause we got approved and an

> appt. date set. What do you think of Dr. D's bedside manner? All

> the orthos weve seen are very dry and matter of fact, almost

> abrasive. Just curious :-)

>

>

> >

> >

> > ,

> > Don't worry about getting into SLC. It sounds very positive to

> me, and Dr.

> > D'Astous is our Dr. The veggie thing cracked me up because

> had the

> > same thing about 6 months ago. Don't panic because it takes

about

> 3 months to

> > completely go away. Our fingers and toes are crossed for you!!

> >

> > Crista