Re: viral menengitis and encephalitis

[Guest guest]

wow lori it is great to hear of your success. i know what it is like to participate in clinical trials and such. my son has cystic fibrosis and whenever something comes our way we participate. i am searching for that one thing that will really make a difference in his health and hope to one day have the success that you have. keep us posted.

evelynlmatles <lmatles@...> wrote:

Hi, my name is Lori. I am now 38 and got very sick a year ago. It began with what I thought was a bladder infection. I became sicker and sicker. The night before I checked myself into the hospital I started hallucinating and have no idea how I got home. When I went to the hospital I had a fever and could not keep anything down. Once in the hospital I don't remember what happenend for about three weeks. My family was told to pray. Once I started getting better I had hallucinations again. One of them was that I believed I ran away from the hospital in the middle of the night. After four weeks I went to a Rehabilitation Center in the neurology unit. I was told that if I tried to get out of bed myself I would be tied down and I wasn't allowed to get up from the toilet myself either. I am a very proud person. After being wheeled in my whell

chair for a day and getting shot twice daily to eliminate clots I decided that I needed to go home no matter how hard it was going to be. So I went home after ten days there. Once home the real work began. I needed to teach myself everything all over again, I mean everything. Before I was sick I was a lap swimmer and I had to teach myself how to swim all over again. I was then tested for vestibular function and learned that my balance on my right side was gone and was told I was lucky that I still had balance on my left side. WHOPPEE !!!!! So I began a life acknowledging my disability and trying to learn to compensate for it. Imagine draggging half your body around on one side and compensating on that side all at once. No picnic. And so I was exhausted and out of it most of the time. Information was difficult to retain and everday was a challenge. Then I received a wonderful gift. There is a device called the Brain Port that is

currently being researched in patients similar to me. I participated in trials. They said I was their most advanced patient. I knew I had worked hard between Yoga, machines and swimming. Life was hard. It was about to get better. The Brain Port stimulates your brain stem and cerebellum. It is a gift I hope to bring to others. I feel this is my job to give back because of this gift that has been given to me.~~~~ *** ~~~ *** ~~~ *** ~~~~The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to

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[Guest guest]

Hi Lori,

Welcome to the group, I'm Helen 54 from NW Ohio... YOu sure have had a lot to deal with... You sound like a very strong person...

((( Welcoming Hugs )))

Helen

Hi, my name is Lori. I am now 38 and got very sick a year ago. It began with what I thought was a bladder infection. I became sicker and sicker. The night before I checked myself into the hospital I started hallucinating and have no idea how I got home. When I went to the hospital I had a fever and could not keep anything down. Once in the hospital I don't remember what happenend for about three weeks. My family was told to pray. Once I started getting better I had hallucinations again. One of them was that I believed I ran away from the hospital in the middle of the night. After four weeks I went to a Rehabilitation Center in the neurology unit. I was told that if I tried to get out of bed myself I would be tied down and I wasn't allowed to get up from the toilet myself either. I am a very proud person. After being wheeled in my whell chair for a day and getting shot twice daily to eliminate clots I decided that I needed to go home no matter how hard it was going to be. So I went home after ten days there. Once home the real work began. I needed to teach myself everything all over again, I mean everything. Before I was sick I was a lap swimmer and I had to teach myself how to swim all over again. I was then tested for vestibular function and learned that my balance on my right side was gone and was told I was lucky that I still had balance on my left side. WHOPPEE !!!!! So I began a life acknowledging my disability and trying to learn to compensate for it. Imagine draggging half your body around on one side and compensating on that side all at once. No picnic. And so I was exhausted and out of it most of the time. Information was difficult to retain and everday was a challenge. Then I received a wonderful gift. There is a device called the Brain Port that is currently being researched in patients similar to me. I participated in trials. They said I was their most advanced patient. I knew I had worked hard between Yoga, machines and swimming. Life was hard. It was about to get better. The Brain Port stimulates your brain stem and cerebellum. It is a gift I hope to bring to others. I feel this is my job to give back because of this gift that has been given to me.

"When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate." - Ann Landers