Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 Ashton had her allergy testing just prior to her diagnosis of CVID. We have a tendency to all not show anything on normal skin testing. Our dr does a " gold top " test. It is a stronger solution. Then, boy, what reactions. She still gets her allergy shots every other week. The IVIG is making the biggest difference in her asthma etc. They say that some people have more and some less histamine on the skin. I guess that is why some people, like me and my girls, don't show reactions on the normal skin testing. I am glad to hear that 's port is working so well. It is much better for Ashton since she got hers last June. Right now Ash has the flu. The doctor confirmed it with a swab this afternoon. She is on Tamiflu now. She is coughing terrible. I am praying she does ok, and the rest of us don't get it. L Mom to Ashton 11 CVID, Asthma, Dyslexia & Marina 8 Asthma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 Hi , Our prayers go out to Ashton, we hope she is feeling better soon. mom to - CVID, asthma, GERD RE: Digest Number 2411 Ashton had her allergy testing just prior to her diagnosis of CVID. We have a tendency to all not show anything on normal skin testing. Our dr does a " gold top " test. It is a stronger solution. Then, boy, what reactions. She still gets her allergy shots every other week. The IVIG is making the biggest difference in her asthma etc. They say that some people have more and some less histamine on the skin. I guess that is why some people, like me and my girls, don't show reactions on the normal skin testing. I am glad to hear that 's port is working so well. It is much better for Ashton since she got hers last June. Right now Ash has the flu. The doctor confirmed it with a swab this afternoon. She is on Tamiflu now. She is coughing terrible. I am praying she does ok, and the rest of us don't get it. L Mom to Ashton 11 CVID, Asthma, Dyslexia & Marina 8 Asthma This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. To unsubscribe -unsubscribe@groups<mailto:-unsubscribe@groups>. To search group archives go to: /messages<PedP\ ID/messages> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 nancy, you could also get Tamiflu for the rest of you....but it is more expensive. Libby, my 10 yo healthy child was quite sick with influenza a....spent about three days on the couch.....Once we added zithromax to the ramantidine....she really turned the corner...She had a bilateral ear infection, pharyngitis, and then the cough....avoided pneumonia tho...sending get well wishes. linda Quoting THOMAS RUSSO <rn4premies@...>: > > > > > > Hi , > > Our prayers go out to Ashton, we hope she is feeling better soon. > > mom to - CVID, asthma, GERD > > RE: Digest Number 2411 > > > > > > > > Ashton had her allergy testing just prior to her diagnosis of CVID. We have > a tendency to all not show anything on normal skin testing. Our dr does a > " gold top " test. It is a stronger solution. Then, boy, what reactions. She > still gets her allergy shots every other week. The IVIG is making the biggest > difference in her asthma etc. > > They say that some people have more and some less histamine on the skin. I > guess that is why some people, like me and my girls, don't show reactions on > the normal skin testing. > > > > I am glad to hear that 's port is working so well. It is much > better for Ashton since she got hers last June. > > Right now Ash has the flu. The doctor confirmed it with a swab this > afternoon. She is on Tamiflu now. She is coughing terrible. > > I am praying she does ok, and the rest of us don't get it. > > > > L > > Mom to Ashton 11 CVID, Asthma, Dyslexia & Marina 8 Asthma > > > > > > > > This forum is open to parents and caregivers of children diagnosed with a > Primary Immune Deficiency. Opinions or medical advice stated here are the > sole responsibility of the poster and should not be taken as professional > advice. > > > > To unsubscribe > -unsubscribe@groups<mailto:-unsubscribe@groups>. > > To search group archives go to: > /messages<PedP ID/messages> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2005 Report Share Posted March 11, 2005 Thank you for the info, I could not understand why Noelle would not react during the skin test when she is truly allergic to certain things. The IVIG has helped her asthma greatly also. Since we started Sub-Q 2 months ago she has grown 3/4 of an inch! I will ask the allergist about the stronger skin test so we can verify the drug allergies. I hope that Ashton gets better from the flu soon. Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2009 Report Share Posted March 8, 2009 Dear All, Lecturer Practitioner in School Nursing www.jobs.nhs.uk ref 525-PCNJWL98. Closing date 14th March I would be grateful if you could pass this on to any SCPHN(SN) who might be interested in applying. We are jointly appointing this person with Tower Hamlets PCT and the person appointed will join the team in my department who run the SCPHN/PC programmes. We have recently appointed a new LP in Health Visiting and we have a lot of experience in supporting LPs. If anyone would like further information they can contact myself or Rita Newland: R.M.Bryar@... or R.M.Newland@.... Many thanks, Ros From: [ ] Sent: 07 March 2009 12:41 Subject: Digest Number 2411 SENATE FOR HEALTH VISITING AND SCHOOL NU Messages In This Digest (6 Messages) 1a. Re: Marmot review of health inequalities From: sharman burchell 2a. models of working From: sharman burchell 2b. Re: models of working From: Cowley 2c. Re: models of working From: sharman burchell 3. FW: models of working From: Caan, Woody 4. search for holy grail From: Cowley View All Topics | Create New Topic Messages 1a. Re: Marmot review of health inequalities Posted by: " sharman burchell " sharmanburchell@... matilda21062002 Fri Mar 6, 2009 8:00 am (PST) Thanks , yes the evaluation will be very important and I need to give this some careful thought. On a seperate note I am being involved in organising a DV conference regarding children , but also I think children will be invited to a conference for them. Has anybody done this , seen it , got any ideas. Ideas for speakers in this area would be great , I've got some people in mind , but if any senate members have seen some passionate speakers on the subject of children and Dv ,names on a hat would be great , Thanks Sharman From: colesewcardiff (DOT) ac.uk Date: Fri, 6 Mar 2009 12:42:35 +0000 Subject: RE: Marmot review of health inequalities Well done, Sharman. I see in the BMJ that the US is calling for emphasis on prevention and a wellness agenda in health reforms. There is nothing new about prevention in the UK but it has just never been centre stage till of late in the inequalities agenda. There is a long way to go to demonstrate outcomes. I think you are at the start of such a wonderful innovation and I hope there is funding to evaluate it carefully, so promoting further posts. >>> sharman burchell <sharmanburchellhotmail> 05/03/2009 18:41 >>> Thanks Woody ! That DH stuff enabled me to evidence the need for universal services being preventative with regards Dv. I was able to sell it as us being early adopters ! I forgot to mention Coles as she also sent some really useful links , the forum literally saved my bacon ! Sharm x From: Woody.Caananglia (DOT) ac.uk Date: Thu, 5 Mar 2009 18:22:50 +0000 Subject: RE: Marmot review of health inequalities Congratulations, Sharman! From: [mailto: ] On Behalf Of sharman burchell Sent: 05 March 2009 18:07 Subject: RE: Marmot review of health inequalities These are interesting points. I am seconded to a domestic violence team and have some dealings with the local family intervention team(FIP) and ASBO teams. Of the families they are engaged with whereby children are , or abour to commit crime 75% (ish ) have a background of witnessing family violence. Domestic violence will affect ALL children , however being poor and witnessing DV is a double diadvantage. By the time they reach school their capacity to learn will be greatly reduced , speach and language will be poorer. Significantly these children often get diagnosed with ADHD. This is no longer a medical problem rather it is societal. The emergence of enhanced knowledge regarding neurological development needs to be embedded in other organisations . I am trying to work with our local police regarding this and the importance of information sharing " lower " thresholds of DV. The WHO have stated NO1 action to eliminate violence ahead of alcohol strategies and weopon reduction is increasing nurturing families. If we wait until families are in crisis , then important opportunities for intervention and prevention are lost . The health inequalities for these children will change their whole lives tradjectory. Thanks for your links and Woody , I have heard they have funded my post for 3 years , YAY ! sharman From: sarahcowley183btinternet Date: Tue, 3 Mar 2009 20:14:34 +0000 Subject: Re: Marmot review of health inequalities Maggie thank you for this very considered response. I think there are some ideas for outcomes here, too. On 1 Mar 2009, at 22:45, Maggie Fisher wrote: I would suggest looking at reducing NAI and the lessons learnt from Serious Case Reviews as we don't seem to be translating the lessons learnt into practice!!! In the recently published biennial analysis of serious case reviews 2003-2005 one of the key findings from this research report by et al (2008) was that 2/3 of the 161 children studied died and a 1/3 were seriously injured. 47% of these were children under 1 and only 12% of the 161 children were on the child protection register. This emphasises the necessity of a robust health visiting service delivered by highly trained skilled professionals who are alert to the ways in which difficulties and protective factors interact if they are to understand the infant/child’s experience and how significant harm might arise. The early evidence from the biennial analysis Serious Case Reviews 2005-7 shows that this picture has not changed much from the previous biennial analysis and that 46% of the children were under 1 and over 50% of these were under 6 months with a significant proportion of these under 3 months old.There is a crucial time between coming home from hospital and going to the child health clinic when incidents occurred. InScandinavia, where each baby is seen an average of six times by health visitors, the infant mortality rate is the lowest in the world. In Ofsted’s evaluations of serious case reviews 1 April 2007 to 31 March 2008, they noted that in nine of the cases involving very young babies health staff had missed, or misinterpreted, signs and symptoms of abuse. Too often professionals took the word of parents at face value without considering the effects on the child. There were factors in the families involved related to drug and alcohol misuse, domestic violence, mental illness and learning difficulties which were often not properly taken into account in assessing risk and considering the impact on the child. One of the key findings from “Why Children Die” (CEMACH, 2006) was the importance of continuity of care and the regular review of children in general practice. It was also recommended that primary care professional maintain their skills in the recognition of serious illness in children and proactively follow up children who do not attend appointments. In the 126 cases reviewed by the panel, there were situations were failure to follow up those who did not attend for their appointments was associated with later death. The above must areas must be worthy of exploration for the Marmot review. The other area I think that might prove worth considering is the increasing numbers of young children with diagnosable mental health disorders.Nationally 10% of children aged 5-15 years suffer from a diagnosable and that this is the most common cause of functional disability in this age group. (Office for National Statistics 2004). Older children (aged 11–16 years) are more likely than younger children (aged 5–10) to be affected (12% compared with 8%). Recent studies have suggested that children in England are not developing as well emotionally compared to many other nations. The2007 UNICEF Report showed that the UK came bottom of a league table for child well being across 21 industrialised countries. The recently published Good Childhood Inquiry also suggested we could do better. More effort needs to be going into universal services to prevent 10% of 5-15 years olds suffering from diagnosable mental health disorders. The perintal mental health services are few and far between in many areas of the country and with the massive cuts in the HV service I fear things can only get worse!!! We are all familiar with the consequences for children and families that cuts in the HV service and the inappropriate use of grade mix has on them. Best wishesMaggie Marmot review of health inequalities This review has been set up, to report in the summer; there is a specific group looking at the early years. What should we be feeding into the review? I think there should be something about our universal service, but getting together evidence for that, in the face of RCT evidence thatis all focused on targeted services, is quite a challenge. Full details on the website, http://www.ucl.ac.uk/gheg/marmotreview <http://www.ucl.ac.uk/gheg/marmotreview> and their 'front sheet' pasted below for interest. Professor Sir Marmot has been asked by the Governement to Chair an independent Review to propose the most effective strategies for reducing health inequalities in England from 2010. The Review follows the publication of the global Commission on Social Determinants of Health, also chaired by Sir Marmot and published by the WHO. The CSDH advocated that national governments develop and implement strategies and policies suited to their particular national context aimed at improving health equity. The English review is a response to that recommendation and to the government's commitment to reducing health inequalities in England. The aim of the Review is to propose an evidence based strategy for reducing health inequalities from 2010. The strategy will include policies and interventions that address the social determinants of health inequalities. The Review has four tasks: (i) identify, for the health inequalities challenge facing England, the evidence most relevant to underpinning future policy and action (ii) show how this evidence could be translated into practice (iii) advise on possible objectives and measures, building on the experience of the current PSA target on infant mortality and life expectancy (iv) publish a report of the review's work that will contribute to the development of a post-2010 health inequalities strategy It is anticipated that the Review will also have relevance for other countries developing strategies aimed at tackling health inequalities, following the recommendations of the CSDH. sarahcowley183btinternet <mailto:sarahcowley183btinternet> http://myprofile.cos.com/S124021COn <http://myprofile.cos.com/S124021COn> sarahcowley183btinternet <mailto:sarahcowley183btinternet> http://myprofile.cos.com/S124021COn <http://myprofile.cos.com/S124021COn> Windows Live Hotmail just got better. Find out more! 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Please note that this message has been sent over public networks which may not be a 100% secure communications Email has been scanned for viruses by Altman Technologies' email management service __________________________________________________________ 25GB of FREE Online Storage - Find out more http://clk.atdmt.com/UKM/go/134665320/direct/01/ <http://clk.atdmt.com/UKM/go/134665320/direct/01/> Email has been scanned for viruses by Altman Technologies' email management service <http://www.altman.co.uk/emailsystems> This e-mail and any attachments are intended for the above named recipient(s) only and may be privileged. If they have come to you in error you must take no action based on them, nor must you copy or show them to anyone: please reply to this e-mail to highlight the error and then immediately delete the e-mail from your system. Any opinions expressed are solely those of the author and do not necessarily represent the views or opinions of Anglia Ruskin University. Although measures have been taken to ensure that this e-mail and attachments are free from any virus we advise that, in keeping with good computing practice, the recipient should ensure they are actually virus free. Please note that this message has been sent over public networks which may not be a 100% secure communications Email has been scanned for viruses by Altman Technologies' email management service <http://www.altman.co.uk/emailsystems> ________________________________ Share your photos with Windows Live Photos - Free. Try it Now! <http://clk.atdmt.com/UKM/go/134665338/direct/01/> Email has been scanned for viruses by Altman Technologies' email management service <http://www.altman.co.uk/emailsystems> This e-mail and any attachments are intended for the above named recipient(s)only and may be privileged. 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Please note that this message has been sent over public networks which may not be a 100% secure communications-- Email has been scanned for viruses by Altman Technologies' email management service - www.altman.co.uk/emailsystems Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (1) 4. search for holy grail Posted by: " Cowley " sarahcowley183@... senatehvsn1 Fri Mar 6, 2009 12:16 pm (PST) I have been asked to post this job advert, and you may notice a slight element of scepticism in the subject line! Actually, they have some very good people working on the project, and need another good person who is willing to accept this poisoned chalice (excuse mixed metaphors). Job Advert Project Lead ‘PREview’ PROJECT: developing predictive tools for child health and well-being The Family Nurse Partnership and Healthy Child Programme Department of Health We are looking for a leader in child health promotion to take forward this exciting project to develop a predictive tool for child health and well-being that supports the Healthy Child Programme at individual, community and population levels. This is a full time fixed term appointment or secondment opportunity until 31 March 2010 with the possibility of an extension. Secondment or fixed term contract (8c) For an application form visit www.nhsjobs.nhs.uk For further details contact: familynursepartnership@....gov.uk Closing date: 18 March 2009  sarahcowley183btinternet http://myprofile.cos.com/S124021COn Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (1) Recent Activity Visit Your Group Ads on Learn more now. Reach customers searching for you. 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