[csda] First official death from CFS (fwd)

[Guest guest]

---------- Forwarded message ----------

Date: Fri, 16 Jun 2006 10:08:20 EDT

From: EBBToxins@...

chemicalinjurysupport , Freedom-to-Know

Subject: [csda] First official death from CFS

I am sending this full article in case some can't access it. This one is a

keeper for sure--when ill-informed people (including medical professionals)

smirk at CFS. I have to wonder how many uncounted deaths there are from our

various and sundry health issues. It is an unjust abomination.

Maggie

http://www.newscientist.com/article/dn9342-first-official-death-from-chronic-f

atigue-syndrome-.html

First official death from chronic fatigue syndrome

16:18 15 June 2006

NewScientist.com news service

Rowan Hooper

Chronic fatigue syndrome has been given as an official cause of death –

apparently for the first time in the world. On Tuesday, coroner

Hamilton-Deeley of Brighton and Hove Coroners Court, UK, recorded the cause of

death of

a 32-year-old woman as acute aneuric renal failure (failure to produce urine)

due to dehydration as a result of CFS. The deceased woman, Sophia Mirza, had

suffered from CFS for six years.CFS, which is also known as myalgic

encephalomyelitis (ME), has a variety of devastating symptoms ranging from

extreme

weakness, inability to concentrate and persistent headache. Sufferers can have

the

disease for years, but its cause remains controversial, with fiercely opposing

views from psychiatrists on one side and biologically minded physicians on the

other.The coroner’s verdict is a breakthrough for those who argue that CFS is

a physical condition, possibly with its roots in the immune system. Dominic O’

Donovan, a neuropathologist at Oldchurch Hospital in Romford, UK, who gave

evidence at the inquest, said that Sophia’s spinal cord showed inflammation

caused by dorsal root ganglionitis - a clear physical manifestation of the

disease. Overactive immune responseCFS specialist Kerr of St 's,

University of London, says he is not surprised that inflammation in the spinal

cord

has been found in someone with the disease, as it is known to be associated

with it. He says that the immune system tends to be over-activated in people

with CFS and this may underlie the inflammation of the neurological tissue. “

People have been reluctant to subscribe to the biological side because of the

power of the psychiatric lobby,†says Kerr. “Doctors are sceptical about the

existence of CFS and there is controversy about its underlying cause.â€Abhijit

Chaudhuri, a consultant neurologist at the Essex Centre of Neurological Science

who worked with O’Donovan on Sophia’s case, says the changes to her spinal

cord may have resulted in symptoms of chronic fatigue.“Sophia’s case sheds

light

on CFS because there were changes in her dorsal ganglia – the gatekeepers to

sensation in the brain – and we know that fatigue depends on sensory

perception,†he says. “What we need to understand is what happens that makes

fatigue

more persistent, without there being an obvious systemic disturbance.â€Rigorous

inquestThe inquest was rigorous, Chaudhuri says, and considered all other

potential causes of death consistent with the post-mortem results, such as sleep

apnoea and drug use, and rejected them.The verdict was welcomed by Sophia’s

mother, Criona , who had to fight for recognition that her daughter was

physically - rather than mentally - ill. Sophia was sectioned for two weeks

under

the Mental Health Act in 2003.“I’m extremely pleased that CFS/ME was

identified on the death certificate as one of the primary causes of Sophia’s

death,â€

she says, “because this can be used to reinforce the need for biomedical

research into the disease.â€

Maggie MacRaven

The most sincere and honest way to express your deep love and respect for all

of creation is to not contribute to its destruction. MMCM

[Guest guest]

thanks, I just read something the other day that brought spinal

infection into the picture of cronic infection from fungus and am

realizing that this may of been the case with my extreme back pain

and it may explain the swelling and knots in my lower back. I had

came across a article on stiff man syndrome that discribe my back

problems pretty close, bet there the same thing or close. I know some

others here suffered extreme back pain too. I believe this spinal

infection is why. makes perfect sence. no dought in my mind now that

spinal infection was the cause of my back swelling, stiff, hot with

infection and radiated in all directions. lots of the time I couldn't

bend because my back side was stiff as a board and very tight and

tenced. the 2 spots on my lower back that the doctor poked while

testing me for fibromyalgia would often swell into knots and even

when the knots would go down it remained swollen in that area. often

went up my back and into arms and legs. this has me thinking that

this spinal infection might play into the fibromyalgia type illness,

will have to dig deeper on

this.

>

>

>

> ---------- Forwarded message ----------

> Date: Fri, 16 Jun 2006 10:08:20 EDT

> From: EBBToxins@...

> chemicalinjurysupport , Freedom-to-

Know

> Subject: [csda] First official death from CFS

>

> I am sending this full article in case some can't access it. This

one is a

> keeper for sure--when ill-informed people (including medical

professionals)

> smirk at CFS. I have to wonder how many uncounted deaths there are

from our

> various and sundry health issues. It is an unjust abomination.

>

> Maggie

>

> http://www.newscientist.com/article/dn9342-first-official-death-

from-chronic-f

> atigue-syndrome-.html

>

> First official death from chronic fatigue syndrome

>

>

> 16:18 15 June 2006

> NewScientist.com news service

> Rowan Hooper

>

>

>

> Chronic fatigue syndrome has been given as an official cause of

death †"

> apparently for the first time in the world. On Tuesday, coroner

> Hamilton-Deeley of Brighton and Hove Coroners Court, UK, recorded

the cause of death of

> a 32-year-old woman as acute aneuric renal failure (failure to

produce urine)

> due to dehydration as a result of CFS. The deceased woman, Sophia

Mirza, had

> suffered from CFS for six years.CFS, which is also known as myalgic

> encephalomyelitis (ME), has a variety of devastating symptoms

ranging from extreme

> weakness, inability to concentrate and persistent headache.

Sufferers can have the

> disease for years, but its cause remains controversial, with

fiercely opposing

> views from psychiatrists on one side and biologically minded

physicians on the

> other.The coroner’s verdict is a breakthrough for those who argue

that CFS is

> a physical condition, possibly with its roots in the immune system.

Dominic O’

> Donovan, a neuropathologist at Oldchurch Hospital in Romford, UK,

who gave

> evidence at the inquest, said that Sophia’s spinal cord showed

inflammation

> caused by dorsal root ganglionitis - a clear physical manifestation

of the

> disease. Overactive immune responseCFS specialist Kerr of

St 's,

> University of London, says he is not surprised that inflammation in

the spinal cord

> has been found in someone with the disease, as it is known to be

associated

> with it. He says that the immune system tends to be over-activated

in people

> with CFS and this may underlie the inflammation of the neurological

tissue. “

> People have been reluctant to subscribe to the biological side

because of the

> power of the psychiatric lobby,†says Kerr. “Doctors are

sceptical about the

> existence of CFS and there is controversy about its underlying

cause.â€Abhijit

> Chaudhuri, a consultant neurologist at the Essex Centre of

Neurological Science

> who worked with O’Donovan on Sophia’s case, says the changes to

her spinal

> cord may have resulted in symptoms of chronic fatigue.“Sophia’s

case sheds light

> on CFS because there were changes in her dorsal ganglia †" the

gatekeepers to

> sensation in the brain †" and we know that fatigue depends on

sensory

> perception,†he says. “What we need to understand is what

happens that makes fatigue

> more persistent, without there being an obvious systemic

disturbance.â€Rigorous

> inquestThe inquest was rigorous, Chaudhuri says, and considered all

other

> potential causes of death consistent with the post-mortem results,

such as sleep

> apnoea and drug use, and rejected them.The verdict was welcomed by

Sophia’s

> mother, Criona , who had to fight for recognition that her

daughter was

> physically - rather than mentally - ill. Sophia was sectioned for

two weeks under

> the Mental Health Act in 2003.“I’m extremely pleased that

CFS/ME was

> identified on the death certificate as one of the primary causes of

Sophia’s death,â€

> she says, “because this can be used to reinforce the need for

biomedical

> research into the disease.â€

>

>

>

>

> Maggie MacRaven

> The most sincere and honest way to express your deep love and

respect for all

> of creation is to not contribute to its destruction. MMCM

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

> ---------- Forwarded message ----------

> Date: Fri, 16 Jun 2006 10:08:20 EDT

> From: EBBToxins@...

> chemicalinjurysupport , Freedom-to-

Know

> Subject: [csda] First official death from CFS

>

> I am sending this full article in case some can't access it. This

one is a

> keeper for sure--when ill-informed people (including medical

professionals)

> smirk at CFS. I have to wonder how many uncounted deaths there

are from our

> various and sundry health issues. It is an unjust abomination.

>

> Maggie

When the " Yuppie Flu " hit Incline Village and started the chain of

events that led to calling it " CFS " , I was working part time as a

snow shoveler saving houses that were collapsing from heavy winter

snows at Tahoe.

" Sierra cement " we called it. There was so much snow that in order

to save houses, we were using double-handed crosscut saws with one

handle removed to saw the snow into huge blocks that we rolled off

the roofs.

People would come up to our teams with tears in their eyes, pleading

with us to save their house next, saying that they can hear the roof

beams cracking under the weight of the snow. It was hard work and

we did what we could, and managed to keep a lot of houses from

collapsing.

We were working 10-12 hours a day, and you couldn't do this kind of

work unless you were in reasonably good shape.

One of our team got the same damned " weird flu " that I did. He just

disappeared. Somebody went to check on him and he was dead.

The official report was that he died of heart failure.

" What about that horrible flu that is making me almost sick to

death, he had that too. Doesn't that count for anything? " and the

answer was " Flu doesn't kill unless you have something wrong, so it

doesn't matter. That flu hasn't killed YOU yet, has it? "

It didn't matter that I had become so sick that I couldn't predict

when I could stand up, and stayed that way for years. As far as

they were concerned, if the flu didn't kill outright, anyone who

died must " obviously " have succumbed to something else.

So even though he had that same " flu " that came to be called " CFS " ,

the very fact that he had it was used as evidence that it was not a

primary or significant factor in his death.

-