Roll Call!

[Guest guest]

We haven't had a roll call in a while, and things are getting a little slow. Please check in if you can, and tell us how you are doing, and if you need some extra support from us.

Hugs,

[Guest guest]

Hello

It's probably because I ran out of " roll " puns.

Regards,

Don and wrote:

> We haven't had a roll call in a while, and things are getting a little

> slow. Please check in if you can, and tell us how you are doing, and

> if you need some extra support from us.

>

> Hugs,

>

>

>

>

....

[Guest guest]

I am around. The week has been a hectic one. In addition to a busy class week, I had an MRI on Wednesday afternoon for my knee. I had a previously scheduled appointment with a doctor yesterday. It was to make sure the extreme fatigue and weak immune system really are part of the endo package and not some other problem that could be easily fixed. I go back in tomorrow morning so they can draw blood (after an 8 hour fast) to check a variety of things that could explain the fatigue as well as the general health things like chloresterol levels.

In some ways I liked the doctor I saw yesterday. He actually believes in things like vitamins and is knowlegable about them. The only thing I didn't like was that he immediately fixated on my weight and that I needed to loose weight. I don't disagree but I also know that before I started having so much pain I was much fitter and healthier. Up until now, all the bad things that are upposed to result from being fat were fine (chloresterol levels, blood surgar levels, blood pressure, etc.)

It seems that helping me manage the pain, fatiuge and now my knee injury would be a good start in dealing with wight since less pain and more energy would translate to more activity in my life which will lead to being more fit.

He wants me to start taking an appetite supressant called adipex. I am not comfortable with that idea for a couple of reasons (1) I haven't done research to try and determine if the particular medication is reasonably safe and (2) I don't know that I really need it--today I have had coffee, a pile of grapes and a handful of almonds for lunch, and forced myself to eat maybe a cup of bean soup tonight. That doesn't really seem excessive to me. Yesterday I had coffee, a pile of grapes and a burger and fries; while the last wasn't healthy that doesn't seem like much for an entire day either. So far today I have had less than 1/2 a cup of mixed dried fruit and nuts.

He also is setting up a referral to a weight loss program. I don't know enough about it yet to know how I feel about it specifically.

I suppose if taking this pill for a few weeks and at least checking out the program lead to me being taken more seriously by medical professionals it might be worth it. In terms of actuallly becoming healthier fix my blasted knee so it doesn't hurt to walk and help me figure out ways to manage the pain and fatigue so it doesn't control my life. As for the prescription, I am not going to have it filled for a couple of days. I need to think about it and research adipex more.

In good news, since going off the aygestin the pelvic pain and pressure has improved some.

Otherwise, I am still slowly trying to unpack boxes from the stuff I moved up from Florida a couple of weeks ago.

That is it from my corner of the world. Hope everyone has a wonderful weekend.

Shirley

[Guest guest]

Shirley

It will be no good starving yourself to lose weight, never worked with me,try putting less on your plate each day and eat a well balanced diet to boot, that way weight loss happens and your body does not go into' starvation' mode where it can exist on much less without losing more weight In any case 2lbs weekly is much better even if slower.

Anne ( been there done that)

[Guest guest]

Good girl!

You knew exactly what to do when the choking happened. A lot of people do not know this simple procedure and should learn, we never know when it may save a life

Anne

[Guest guest]

LOL!!! Just needed to get things ROLLing....

Re: Roll Call!

Hello It's probably because I ran out of "roll" puns.Regards,Don and wrote:> We haven't had a roll call in a while, and things are getting a little > slow. Please check in if you can, and tell us how you are doing, and > if you need some extra support from us.> > Hugs,> > >>...~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./links Personal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

Hi all. I've been very anti-social lately....not leaving the house at all. Insomnia is really becoming a problem. I've slept at night for three nights in a row, and it must be some kind of record. My tail bone region is still extremely sore, and my teeth are still bothering me. Had a scare this morning. Don was eating breakfast and swallowed some cereal wrong. I thought he would be able to clear it himself, but I ended up having to give him the heimlich maneuver. It scared him pretty good. He's never had the heimlich before, and he didn't understand what I had done. I had to explain it to him, but he is still not feeling well. Odd...this is the second time this year I've had to use the heimlich on someone. Boy is it murder on my back though!

Hugs,

Roll Call!

We haven't had a roll call in a while, and things are getting a little slow. Please check in if you can, and tell us how you are doing, and if you need some extra support from us.

Hugs,

~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

Choking is one of my biggest fears!!!!I am glad Don is fine.

I sure hope that tail bone of yours eases up soon.Poor girl.

-- Re: Roll Call!

Hi all. I've been very anti-social lately....not leaving the house at all. Insomnia is really becoming a problem. I've slept at night for three nights in a row, and it must be some kind of record. My tail bone region is still extremely sore, and my teeth are still bothering me. Had a scare this morning. Don was eating breakfast and swallowed some cereal wrong. I thought he would be able to clear it himself, but I ended up having to give him the heimlich maneuver. It scared him pretty good. He's never had the heimlich before, and he didn't understand what I had done. I had to explain it to him, but he is still not feeling well. Odd...this is the second time this year I've had to use the heimlich on someone. Boy is it murder on my back though!

Hugs,

Roll Call!

We haven't had a roll call in a while, and things are getting a little slow. Please check in if you can, and tell us how you are doing, and if you need some extra support from us.

Hugs,

~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

Thanks, Donna!

Ling

Re: Roll Call!

> >

> >

> > In a message dated 10/26/2004 3:16:41 PM Central Daylight Time,

> >bopeep1955@... writes:

> > Oh my! How I can relate! Yes, with the dizziness I have found myself

> >in many

> > predicaments. I finally agreed to using a walker in public, and for

> >inside

> > the grocery store, I have learned to use the electric carts. It

really

> >has

> > helped, because even though I do get dizzy sometimes even with the

> >walker,

> > it is easier to ask for help because people can see that you really

do

> >need

> > help. Without the walker, no one can visibly tell that I have any

> >illness,

> > and just seem to look at me like I am crazy!

> > My family is really good about helping me, however there have been

> >times

> > that someone will just stand in my way, forgetting that I need to

ho;d

> >onto

> > counters etc. in the house, and cannot walk around them.

> > That is great that you learned to use the cart. I look at them at

> >walmart and they have a bunch I found out I just think I am afraid I will

> >run over someone. I think it is also the whole looking disabled thing. I

am

> >still working on that. It is great that you can ask for help. I am having

> >the same problem with my son. He will be fourteen in Feb and needs to

learn

> >to advocate for himself. For those of you that don't know he has autism.

He

> >really needs to do this before he turns 18 because I don't want to get

> >gaurdianship on him. I want him to be independent. Well the problem with

> >that is that he has always had a healthy self esteem and will not even

> >discuss being disabled. I guess both him and I can both work on this.

lol.

> >

> > Amylee

> >

> >

> > ~~~~ *** ~~~ *** ~~~ *** ~~~~

> > The Being Sick Community

> >

> >

> > Message Archives-/messages

> >

> > Chat:- Scheduled Chats at

> > /chat

> >

> > Bookmarks:-

> > Add a website URL you have found useful.

> > /links

> >

> > Personal Complaints or problems:-

> > Please contact a moderator

> > email: -owner

> >

> > Subscription Details:-

> > 1) Individual email - means that every email sent to the list you

> >receive.

> > 2) Daily Digest - sends you 25 messages in one single email for you to

> >browse. This is an excellent option if you receive alot of email.

> > 3) Web only/No mail - means that you can pop into groups at your

> >convenience and receive no email.

> >

> > To modify your subscription settings please visit:-

> > /join

> >

> > To subscribe or unsubscribe please email:-

> > -subscribe

> > -unsubscribe

> >

> > This group is not intended to diagnose or treat illnesses. No one on

> >this group is qualified to diagnose medical conditions. If you feel you

> >need medical attention, seek the advice of a qualified physician.

> > ~~~~ *** ~~~ *** ~~~ *** ~~~~

> > When nothing is sure, everything is possible.

> >

> > --- Margaret Drabble

> >

> > ~~~~ *** ~~~ *** ~~~ *** ~~~~

> >

> >

> >

> >

>

>---------------------------------------------------------------------------

---

> >

[Guest guest]

Hi ,

Thanks, much better today!

Hope everything's ok at your side too!

Ling

Re: Roll Call!

In a message dated 10/26/2004 3:16:41 PM Central Daylight Time, bopeep1955@... writes:

Oh my! How I can relate! Yes, with the dizziness I have found myself in many predicaments. I finally agreed to using a walker in public, and for inside the grocery store, I have learned to use the electric carts. It really has helped, because even though I do get dizzy sometimes even with the walker, it is easier to ask for help because people can see that you really do need help. Without the walker, no one can visibly tell that I have any illness, and just seem to look at me like I am crazy!My family is really good about helping me, however there have been times that someone will just stand in my way, forgetting that I need to ho;d onto counters etc. in the house, and cannot walk around them.

That is great that you learned to use the cart. I look at them at walmart and they have a bunch I found out I just think I am afraid I will run over someone. I think it is also the whole looking disabled thing. I am still working on that. It is great that you can ask for help. I am having the same problem with my son. He will be fourteen in Feb and needs to learn to advocate for himself. For those of you that don't know he has autism. He really needs to do this before he turns 18 because I don't want to get gaurdianship on him. I want him to be independent. Well the problem with that is that he has always had a healthy self esteem and will not even discuss being disabled. I guess both him and I can both work on this. lol.

Amylee~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~

~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

I'm very depressed because I feel like such a burden to everyone and

feel like I am not doing anybody any good. I feel so very overwhelmed

and when I ask for help, people give me tasks to do, which just

overwhelms me even more. I feel so very lonely and isolated.

--

the Dreamer

http://www.visi.com/~unique

[Guest guest]

,

You'd never be removed from this list unless you remove yourself. It is understood here that since we are all ill we can't post all the time. Some people never post, and that's okay. I hope they get the help that they need from here. That is what this list is about. Some people may forget who you are or what your illnesses are, some people forget because they have memory problems (like me) or some people may just forget because there is over 200 members here I did remember you were helping your mother and had depression. I remember you most for the depression part, I was worried about you. I hope you found some relief.

Hugs,

Re: Roll Call!> >> >> >> >>> >>I'm very depressed because I feel like such a burden to everyone and> >>feel like I am not doing anybody any good. I feel so very> overwhelmed> >>and when I ask for help, people give me tasks to do, which just> >>overwhelms me even more. I feel so very lonely and isolated.> >>--> >> the Dreamer> >>http://www.visi.com/~unique> >>~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./links Personal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

In a message dated 10/30/2004 5:32:17 PM Central Standard Time, unique@... writes:

I have a good therapist, just started with a new one recently who seems pretty good. I was just having a tough time with having Asperger Syndrome and how it limits me and wishing I could perform as well in my life as other people are able to. Sometimes it feels like my high IQ is being wasted by the limitations of the Aspergers. I was telling someone this morning that if I never got stressed, I wouldn't know I had Aspergers.

My son is the same way. I think in HIS case the high IQ is a defecit. This is mainly since he is still young. He sees too much of the difference and really doesn't know what to do about it. He has kids in school that try to be his friend but he would basically rather hang around adults.

Amylee

[Guest guest]

Hello

The world is not structured for people with high IQ. Everything is

geared towards the average and the below average IQ as the thinking is

that they are the ones that need help. Consequently, high IQ people

tend to develop bad study and behavioural habits as well as identity

problems. I can safely say this because I test out in the 99

percentile. Being excused from class in the first ten minutes of class

because you already know the material even though it's the first time

you've been introduced to it does not make one feel included in any

way, I spent most of my school years in the library, cafeteria, arcade

and the local Radio Shack without being a truant.

Regards,

penguinexchange@... wrote:

> In a message dated 10/30/2004 5:32:17 PM Central Standard Time,

> unique@... writes:

>

> I have a good therapist, just started with a new one recently who

> seems

> pretty good. I was just having a tough time with having Asperger

> Syndrome and how it limits me and wishing I could perform as well

> in my

> life as other people are able to. Sometimes it feels like my high

> IQ is

> being wasted by the limitations of the Aspergers. I was telling

> someone

> this morning that if I never got stressed, I wouldn't know I had

> Aspergers.

>

> My son is the same way. I think in HIS case the high IQ is a defecit.

> This is mainly since he is still young. He sees too much of the

> difference and really doesn't know what to do about it. He has kids in

> school that try to be his friend but he would basically rather hang

> around adults.

>

> Amylee

>

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Being Sick Community

>

>

> Message Archives-/messages

>

> Chat:- Scheduled Chats at

> /chat

>

> Bookmarks:-

> Add a website URL you have found useful.

> /links

>

> Personal Complaints or problems:-

> Please contact a moderator

> email: -owner

>

> Subscription Details:-

> 1) Individual email - means that every email sent to the list you receive.

> 2) Daily Digest - sends you 25 messages in one single email for you to

> browse. This is an excellent option if you receive alot of email.

> 3) Web only/No mail - means that you can pop into groups at your

> convenience and receive no email.

>

> To modify your subscription settings please visit:-

> /join

>

> To subscribe or unsubscribe please email:-

> -subscribe

> -unsubscribe

>

> This group is not intended to diagnose or treat illnesses. No one on

> this group is qualified to diagnose medical conditions. If you feel

> you need medical attention, seek the advice of a qualified physician.

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> When nothing is sure, everything is possible.

>

> --- Margaret Drabble

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

>

>

>

> ------------------------------------------------------------------------

> *

[Guest guest]

In a message dated 11/2/2004 8:36:34 PM Central Standard Time, creepyzucchini@... writes:

i do have to be careful what i say. i have to consciously think to make what i say tactful and sometimes if i am tired or annoyed or overloaded some cruel but true things can come out of my mouth or keyboard.

Honey Bunny I have that same problem. I am the worse person to ask "how do I look in this?" cause I will say. On the weight issue some of my chunky friends just treat me way too different since I lost all the weight. This was a personal choice of mine. I am 47, have a good husband so I am not on the prowl. My body was just telling me you may live in an area where fat is common but the body don't like it. My attitude hasn't changed. I went into a store since I had no idea what size to get. The saleslady handed me something and I thought there is no way in Hades that this will fit. I tried it on and it fit but I still see myself as close to 300 pounds. I still have a way to go but now the chunky friends are trying to sabotage with candy. After three years of limiting it the stuff just don't really taste that great anymore. One told me that I am just getting too stuck up for my own good. Geez if they asked me I would diet buddy with them.

Amylee

[Guest guest]

CZ,

Wow. I don't really know what to say. That was very sweet, and I'm going to keep that message to read when I feel down. But you know, you can include yourself in that area as well. You are a moderator of the group, and that is an important part of this group, I know I could not do this without all of you. We all take our turns doing chores in the group but all of the moderators are what I consider to be a prime example of the ideals of this group. That means that all of the moderators are what I envision to be a wonderful role model for the members. Not to mention helping me with all the tasks when I just can't be here. The members, the moderators and I are what makes this group great. It isn't just me alone. Personally, I think this group has become better than it has ever been, and I just love it. I can't wait to get up in the morning just to see how everyone is doing. I never had that in my life before. I just hope we can continue to grow as a group and be able to lean on each other for support. Thanks again, you made my day.

Hugs,

* Re: Re: Roll Call!>>> the parent who raised me until i was 13 raised me to believe i was> better than everybody else. my birth was unusual and i wasn't> expected> to live and then when they decided i would live they told my> parents i> would have mental retardation because of how long my brain had gone> without any oxygen. my father formed a very intense and eventually> sick> bond with me (and none of his other children). i turned out not to> have> any retardation but to have an extremely high iq but a lot of> problems> related to autism. instead of trying to socialise me with others or> teach me the ways of the world he isolated me and pushed me to> excel in> schoolwork by correspondance years ahead of my age level and> pushed me> to a music career. in reality i was better than most other people. i> could have had a successful career as an international performing> artist> had i not quit.>> but when i was 13 it all got too much and i started to have a> breakdown> because of the pressure i had been under for years with very little> sleep and the sexual abuse and total control over my likes and> dislikes> and who i was. i ran away and then lived with my mother and my father> was prosecuted. he didn't stop making my life hell and in 2002 i took> out an other 2 year restraining order which finishes this month so> i'm> quite nervous about what will happen and whether he will come> after me> again.>> i developed anorexia nervosa as a result of immense pressure and> overbearing control over every part of my life and controlling my> food> was one way that i felt good. my mother contributed to my eating> disorder in not so subtle ways but she alone wasn't the cause. it> went> on for years longer than it should have before coming to the> attention> of medical staff because of my mother's enabling of it and blatant> jealousy of it. she's always wanted to be able to diet> successfully and> for whatever psychological reason never does. i felt like i was> better> than others because of my anorexia as well. i had self control that> other "fat pigs" didn't and i know that is very warped and stupid> thinking but it was some kind of coping mechanism for me at the> time. 14> years on i wish that i was like the other people i used to scorn who> don't have anorexia who can enjoy a meal without beating> themselves up> and not constantly feel horrid about every piece of flesh on their> bodies.>> it wasn't really until my late teens and early 20s that i started to> really think that perhaps i wasn't better than everybody else.> perhaps i> was just another messed up person who under extreme pressure exhibits> talent. most of my attitude to others about being better than them> really stemmed from feeling that nothing i ever did was ever good> enough> for my father. he said it as overtly as "always strive for 110%> because> then you will be more likely to attain 100%". i partly acted and> thought> that i was better than others to hide how bad i really felt about> myself. it wasn't a conscious process but i understood it as i> grew up.>> sometimes i wonder what my life would have been like had i been> taught> to socialise instead of my autistic behaviours encouraged and> channeled> into creating a mozart-like performing monkey with more academic> facts> and music in its memory than most adults ever have. but i wouldn't> be me> and despite constantly struggling with my body image and trying to> fight> off the anorexia i do quite like who i am these days. but i'm 27> now and> i've had a lot of years since 13 to grow and learn and be more> accepting> of other people.>> i agree about ABA and i don't think i would want to be forced through> involuntary training to learn to act normal. but i do try to learn> how> to get along with other people and mingle in society because i like> living independantly without carers and the only way to do that is to> learn some tact and communication skills. there are plenty of> disputes> or problems that arise in living in your own house and having> meltdowns> or hissy fits and refusing to make any attempt to communicate> aren't the> way to solve them. i know that i do have the ability to learn more> about> how to function in society and i keep trying to. it's got nothing> to do> with wanting to be less autistic because despite the limitations> autism> is part of what makes me who i am. it's just skills to make life more> pleasant for me and others around me.>> CZ>>> penguinexchange@... <mailto:penguinexchange@...> wrote:>> > In a message dated 11/1/2004 6:47:27 PM Central Standard Time,> > creepyzucchini@... <mailto:creepyzucchini@...>> writes:> >> >> > a lot of people with hfa or asperger's seem to think it> makes them> > better than others and that it isn't a disability but i> don't see it> > that way. although i don't wish i was diagnosed as a fetus and> > aborted> > or anything drastic like that i do wish i didn't have the> limitations> > that autism puts on me.> >> > <clipped some great stuff>> > You sound a little like my son. But I wish he had your attitude. I> > think a lot of s problems come from the fact that he was a> miracle> > child. I did it also a little but it came more from the> community. It> > was a shock that I even carried a child full term and the fact that> > even though he is chunky his hair and skin is perfect. He really> is a> > beautiful child. He is also a bit stuck up. He doesn't have the> > tolerance for people that are different and that includes ones that> > are plain. We have been working on this and even though he has a> great> > self esteem it is bordering on selfishness. Not the kind that comes> > with autism either. It is really hard to explain.> > On the acceptance thing. I don't want cured. I do want him to> > socialize as much as he can tolerate just because the world is> > like that. As with most 13 year olds what his friends can do for> him> > is more important than the friends themselves.> > I know about arguments between AC's and such since it is a major> > personal subject. Especially for new parents. When I found out> about> > I hit all the emotions from sad to angry. After awhile I just> > found it to be a waste of time. I have never gone overboard on> > treatments. I think ABA is a very small step from dog training. We> > basically just treated him like a kid. I learned real quick what> was a> > meltdown and what was a spoilt hissy fit. He also has that spoilt> > child disease you know. lol.> > > > Amylee> >> >> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> > The Being Sick Community> >> >> > Message Archives-/messages> >> > Chat:- Scheduled Chats at> > /chat> >> > Bookmarks:-> > Add a website URL you have found useful.> > /links> >> > Personal Complaints or problems:-> > Please contact a moderator> > email: -owner > <mailto:-owner >> >> > Subscription Details:-> > 1) Individual email - means that every email sent to the list> you receive.> > 2) Daily Digest - sends you 25 messages in one single email for> you to> > browse. This is an excellent option if you receive alot of email.> > 3) Web only/No mail - means that you can pop into groups at> your> > convenience and receive no email.> >> > To modify your subscription settings please visit:-> > /join> >> > To subscribe or unsubscribe please email:-> > -subscribe > <mailto:-subscribe >> > -unsubscribe > <mailto:-unsubscribe >> >> > This group is not intended to diagnose or treat illnesses. No> one on> > this group is qualified to diagnose medical conditions. If you> feel> > you need medical attention, seek the advice of a qualified> physician.> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> > When nothing is sure, everything is possible.> >> > --- Margaret Drabble> >> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> >> >> >> >> ------------------------------------------------------------------------> > *

[Guest guest]

the work you do with this group and how caring you are with all the

members and with your husband and i am sure plenty other areas of your

life show that you are a very compassionate and understanding person. i

think many people either couldn't or wouldn't do what you do to be there

for other people who need it. and it is even harder when you have

illnesses and problems of your own to deal with but still with all that

you find the time to care for others. you are a very special lady.

CZ

Don and wrote:

> CZ,

>

> You sure have been through a lot. I'm just hoping that all we go

> through as children will be worthwhile someday. I already feel like

> I've tried to learn from things that happened in my childhood. I

> guess we can only hope that as we grow older we can put it to use.

>

>

>

> * Re: Re: Roll Call!

>

>

> the parent who raised me until i was 13 raised me to believe i was

> better than everybody else. my birth was unusual and i wasn't

> expected

> to live and then when they decided i would live they told my

> parents i

> would have mental retardation because of how long my brain had gone

> without any oxygen. my father formed a very intense and eventually

> sick

> bond with me (and none of his other children). i turned out not to

> have

> any retardation but to have an extremely high iq but a lot of

> problems

> related to autism. instead of trying to socialise me with others or

> teach me the ways of the world he isolated me and pushed me to

> excel in

> schoolwork by correspondance years ahead of my age level and

> pushed me

> to a music career. in reality i was better than most other people. i

> could have had a successful career as an international performing

> artist

> had i not quit.

>

> but when i was 13 it all got too much and i started to have a

> breakdown

> because of the pressure i had been under for years with very little

> sleep and the sexual abuse and total control over my likes and

> dislikes

> and who i was. i ran away and then lived with my mother and my father

> was prosecuted. he didn't stop making my life hell and in 2002 i took

> out an other 2 year restraining order which finishes this month so

> i'm

> quite nervous about what will happen and whether he will come

> after me

> again.

>

> i developed anorexia nervosa as a result of immense pressure and

> overbearing control over every part of my life and controlling my

> food

> was one way that i felt good. my mother contributed to my eating

> disorder in not so subtle ways but she alone wasn't the cause. it

> went

> on for years longer than it should have before coming to the

> attention

> of medical staff because of my mother's enabling of it and blatant

> jealousy of it. she's always wanted to be able to diet

> successfully and

> for whatever psychological reason never does. i felt like i was

> better

> than others because of my anorexia as well. i had self control that

> other " fat pigs " didn't and i know that is very warped and stupid

> thinking but it was some kind of coping mechanism for me at the

> time. 14

> years on i wish that i was like the other people i used to scorn who

> don't have anorexia who can enjoy a meal without beating

> themselves up

> and not constantly feel horrid about every piece of flesh on their

> bodies.

>

> it wasn't really until my late teens and early 20s that i started to

> really think that perhaps i wasn't better than everybody else.

> perhaps i

> was just another messed up person who under extreme pressure exhibits

> talent. most of my attitude to others about being better than them

> really stemmed from feeling that nothing i ever did was ever good

> enough

> for my father. he said it as overtly as " always strive for 110%

> because

> then you will be more likely to attain 100% " . i partly acted and

> thought

> that i was better than others to hide how bad i really felt about

> myself. it wasn't a conscious process but i understood it as i

> grew up.

>

> sometimes i wonder what my life would have been like had i been

> taught

> to socialise instead of my autistic behaviours encouraged and

> channeled

> into creating a mozart-like performing monkey with more academic

> facts

> and music in its memory than most adults ever have. but i wouldn't

> be me

> and despite constantly struggling with my body image and trying to

> fight

> off the anorexia i do quite like who i am these days. but i'm 27

> now and

> i've had a lot of years since 13 to grow and learn and be more

> accepting

> of other people.

>

> i agree about ABA and i don't think i would want to be forced through

> involuntary training to learn to act normal. but i do try to learn

> how

> to get along with other people and mingle in society because i like

> living independantly without carers and the only way to do that is to

> learn some tact and communication skills. there are plenty of

> disputes

> or problems that arise in living in your own house and having

> meltdowns

> or hissy fits and refusing to make any attempt to communicate

> aren't the

> way to solve them. i know that i do have the ability to learn more

> about

> how to function in society and i keep trying to. it's got nothing

> to do

> with wanting to be less autistic because despite the limitations

> autism

> is part of what makes me who i am. it's just skills to make life more

> pleasant for me and others around me.

>

> CZ

>

>

> penguinexchange@... <mailto:penguinexchange@...> wrote:

>

> > In a message dated 11/1/2004 6:47:27 PM Central Standard Time,

> > creepyzucchini@... <mailto:creepyzucchini@...>

> writes:

> >

> >

> > a lot of people with hfa or asperger's seem to think it

> makes them

> > better than others and that it isn't a disability but i

> don't see it

> > that way. although i don't wish i was diagnosed as a fetus and

> > aborted

> > or anything drastic like that i do wish i didn't have the

> limitations

> > that autism puts on me.

> >

> > <clipped some great stuff>

> > You sound a little like my son. But I wish he had your attitude. I

> > think a lot of s problems come from the fact that he was a

> miracle

> > child. I did it also a little but it came more from the

> community. It

> > was a shock that I even carried a child full term and the fact that

> > even though he is chunky his hair and skin is perfect. He really

> is a

> > beautiful child. He is also a bit stuck up. He doesn't have the

> > tolerance for people that are different and that includes ones that

> > are plain. We have been working on this and even though he has a

> great

> > self esteem it is bordering on selfishness. Not the kind that comes

> > with autism either. It is really hard to explain.

> > On the acceptance thing. I don't want cured. I do want him to

> > socialize as much as he can tolerate just because the world is

> > like that. As with most 13 year olds what his friends can do for

> him

> > is more important than the friends themselves.

> > I know about arguments between AC's and such since it is a major

> > personal subject. Especially for new parents. When I found out

> about

> > I hit all the emotions from sad to angry. After awhile I just

> > found it to be a waste of time. I have never gone overboard on

> > treatments. I think ABA is a very small step from dog training. We

> > basically just treated him like a kid. I learned real quick what

> was a

> > meltdown and what was a spoilt hissy fit. He also has that spoilt

> > child disease you know. lol.

> >

> > Amylee

> >

> >

> > ~~~~ *** ~~~ *** ~~~ *** ~~~~

> > The Being Sick Community

> >

> >

> > Message Archives-/messages

> >

> > Chat:- Scheduled Chats at

> > /chat

> >

> > Bookmarks:-

> > Add a website URL you have found useful.

> > /links

> >

> > Personal Complaints or problems:-

> > Please contact a moderator

> > email: -owner

> <mailto:-owner >

> >

> > Subscription Details:-

> > 1) Individual email - means that every email sent to the list

> you receive.

> > 2) Daily Digest - sends you 25 messages in one single email for

> you to

> > browse. This is an excellent option if you receive alot of email.

> > 3) Web only/No mail - means that you can pop into groups at

> your

> > convenience and receive no email.

> >

> > To modify your subscription settings please visit:-

> > /join

> >

> > To subscribe or unsubscribe please email:-

> > -subscribe

> <mailto:-subscribe >

> > -unsubscribe

> <mailto:-unsubscribe >

> >

> > This group is not intended to diagnose or treat illnesses. No

> one on

> > this group is qualified to diagnose medical conditions. If you

> feel

> > you need medical attention, seek the advice of a qualified

> physician.

> > ~~~~ *** ~~~ *** ~~~ *** ~~~~

> > When nothing is sure, everything is possible.

> >

> > --- Margaret Drabble

> >

> > ~~~~ *** ~~~ *** ~~~ *** ~~~~

> >

> >

> >

> >

> ------------------------------------------------------------------------

> > *

[Guest guest]

i never was diagnosed adhd but i was very hyperactive as a child and

without my pills i still am. i don't have ritalin. i have one called

seroquel that calms me down and helps me to not get so badly overloaded

with visual and auditory stimuli. i know not everybody agrees with using

those pills in autism but it does help me a lot. i have trouble

concentrating whether something interests me or not but i think that is

a sensory thing. reading long paragraphs is hard because of scotopic

sensitivity syndrome and while i have special glasses for that they

don't completely solve the problem. i have a very intense interest in

computer programming but i hardly ever have the focus to sit down and do

it. i think that this is just the autism sensory problems not adhd

though but i am not a doctor.

i do have to be careful what i say. i have to consciously think to make

what i say tactful and sometimes if i am tired or annoyed or overloaded

some cruel but true things can come out of my mouth or keyboard. the

most horrible example of that recently was when i said something very

cruel to a friend who is very overweight and while what i said was true

it was something i never would say if i thought about it first because i

know how much that sort of things hurts people. sometimes it is good to

be able to say exactly what you think without worrying about how other

people will take it but other times it causes unnecessary hurt which i

wish i could take back.

the computer is easier for me to mix with people on because there is

very little nonverbal communication. most of the time i take what is

written literally without imagining what emotion is behind it. that

doesn't happen all the time but most of it. with real life conversations

i don't accurately interpret what the " between the lines " stuff is and

i'm told i don't express my own nonverbal communication stuff correctly.

i have been told i seemed angry and disgusted during a conversation i

was having with someone about programming where he was writing stuff

down to explain. in reality i was happy to be there sharing an interest

with someone who has a very good brain and i was concentrating on what

he was writing. but my body language said something completely different

to him. in the past i have been told i was " making eyes at " people (same

sex even!) when i was just trying to look at them so they would know i

was listening. i find it easier to dispense with trying to do the

nonverbal stuff at all because even if i do it i do it wrong.

i communicate with my mother and brother on the computer most of the

time instead of phone or in person because of that same problem. what

can be logically explained in typing without nonverbal signals and be a

pleasant conversation can quickly become a screaming match on the phone

because of what my mother thinks i mean with my tone of voice or look on

my face and my frustration at her reading me wrong gets me angry and all

hell breaks loose. usually after those fights i write an email

explaining what i was on about and why i got frustrated and it makes

perfect sense to her. she and i have a lot of nasty history between us

but the communication problems make it a lot worse than it needs to be.

people on mailing lists have no right to tell you what your body and

brain can and can't do. it would be frustrating to have lots of people

asking you what to do with their kids. it's not really fair to expect

people on internet groups to know what is right for a person they have

never met and i think there is a good reason why diagnosis and

prescriptions are left to doctors who have studied a lot. because while

general public can sometimes get things right that doctors get wrong and

there are some people who know more than some doctors about specific

things there is a lot more to knowing how to manage medical conditions

and give drugs than what most lay people can do. and then there is legal

things where it could be dangerous for someone who isn't qualified to

tell someone what to give their children then if something bad happens

to the child where does it leave the person who told the parent what to do.

CZ

Don and wrote:

> CZ,

>

> I think you are too hard on yourself. I feel very close to you,

> though I suspect our relationship may be easier on both of us because

> we can simply turn off the computers if we need to. I have ADD. I

> understand it isn't the same, but I think there are many

> similarities. My biggest problem has been impulse control. Have you

> ever said something and then a split-second later cringed because you

> cannot believe you said it? Happens to me all the time. School was

> always very difficult for me because of my short attention span. If

> something interests me then I can pay attention. If I find it boring,

> no matter how hard I try I cannot make myself pay attention to it. I

> can, however (as I've learned) make it more interesting, therefore I'd

> be able to pay attention. I don't discuss my ADD to many people

> because of the stigma that surrounds it and debates on treatment. I

> did have an ADD support group, but I found that parents would want me

> to decide for them whether or not to put their children on Ritalin or

> a similar stimulant. I can tell them my experiences with Ritalin and

> without, but I refuse to tell them how to parent their children. I

> had joined other groups of adults with children who have ADD or ADHD

> but when they'd ask my opinion, I'd be attacked for how I felt and

> they'd try to mother me. For example, a common problem is that I used

> to be ADHD. Now I'm not hyperactive, but I do show the signs of ADD.

> A woman asked me if I thought I had grown out of the hyperactivity,

> and for all purposes I feel that I have. I'm not sure how or why, but

> I am no longer hyperactive. I got many Reponses of people saying 'no,

> you didn't grow out of it'. Who are they to tell me what I've done or

> haven't done? I grew tired of it and left. It is easier for me to

> have relationships on the computer because I can simply turn the

> computer off when I've had my fill of people. I can't do that in real

> life. What I do have a hard time with on the computer is emails don't

> convey emotion. What I mean by that is I can make a concise statement

> to the group, and everyone will take it a different way. I have to

> look at my emails very carefully to be sure that it says what I mean

> it to say. My brother, as you know, has autism. He is a very high

> functioning autistic, but it has been interesting watching us

> interact. Sometimes I feel like he absolutely hates me. He can be

> very cruel. I know he doesn't mean it though. Our age difference

> also plays a role, I'm 7 years older than he is. I'm sure that as he

> grows older we will have a better relationship, but for the time

> being, he can barely stand me.

>

> Hugs,

>

>

>

> * Re: Re: Roll Call!

>

>

> a lot of people with hfa or asperger's seem to think it makes them

> better than others and that it isn't a disability but i don't see it

> that way. although i don't wish i was diagnosed as a fetus and

> aborted

> or anything drastic like that i do wish i didn't have the limitations

> that autism puts on me. it definitely does make for unique

> differences

> that aren't all negative but on the whole it restricts me from being

> able to use my high iq effectively because of learning

> disabilities and

> sensory problems. if iq was any measure of ability to study i

> should be

> a ph.d. instead of a 10th grade dropout. i've never really had

> friends

> and i live a very isolated life which i prefer because of the autism

> making socialising difficult. but i would like to be able to bond

> with

> other people and communicate seamlessly without having to work my

> brain

> so hard to figure out all the different layers of communication when

> someone speaks. and also having autism makes it harder to have

> successful treatment for other problems i had like post traumatic

> stress

> disorder and anorexia nervosa and ocd because therapists or

> psychologists aren't exempt from my communication problems.

>

> i know if i wrote all this post on an autism group i would

> probably be

> jumped on by heaps of people telling me i need to learn to stop

> denying

> who i am and see my autism as a gift but i know on this group that

> won't

> happen. on the internet i only have one mildly autistic friend.

> all the

> rest of my online friends are " nt " (people without autism) and i

> don't

> see them as lesser people than myself i really treasure their

> friendship. in real life i have no friends but a lot of people who i

> stop and say hi to when i go out to shops. most of them i don't

> remember

> from looks alone because i'm face-blind (www.prosopagnosia.com

> <http://www.prosopagnosia.com> for

> explanation of that) but i do like the short conversations i have

> with

> them. eventually i will know everybody because i live in a very small

> town but so far there are only a couple i recognise without help from

> where i see them or stuff they say. usually it's just hi how are you

> isn't it a lovely day today summer's on its way type conversations.

>

> CZ

>

>

> penguinexchange@... <mailto:penguinexchange@...> wrote:

>

> > In a message dated 10/30/2004 5:32:17 PM Central Standard Time,

> > unique@... <mailto:unique@...> writes:

> >

> > I have a good therapist, just started with a new one

> recently who

> > seems

> > pretty good. I was just having a tough time with having

> Asperger

> > Syndrome and how it limits me and wishing I could perform as

> well

> > in my

> > life as other people are able to. Sometimes it feels like

> my high

> > IQ is

> > being wasted by the limitations of the Aspergers. I was telling

> > someone

> > this morning that if I never got stressed, I wouldn't know I had

> > Aspergers.

> >

> > My son is the same way. I think in HIS case the high IQ is a

> defecit.

> > This is mainly since he is still young. He sees too much of the

> > difference and really doesn't know what to do about it. He has

> kids in

> > school that try to be his friend but he would basically rather hang

> > around adults.

> >

> > Amylee

> >

> >

> > ~~~~ *** ~~~ *** ~~~ *** ~~~~

> > The Being Sick Community

> >

> >

> > Message Archives-/messages

> >

> > Chat:- Scheduled Chats at

> > /chat

> >

> > Bookmarks:-

> > Add a website URL you have found useful.

> > /links

> >

> > Personal Complaints or problems:-

> > Please contact a moderator

> > email: -owner

> <mailto:-owner >

> >

> > Subscription Details:-

> > 1) Individual email - means that every email sent to the list

> you receive.

> > 2) Daily Digest - sends you 25 messages in one single email for

> you to

> > browse. This is an excellent option if you receive alot of email.

> > 3) Web only/No mail - means that you can pop into groups at

> your

> > convenience and receive no email.

> >

> > To modify your subscription settings please visit:-

> > /join

> >

> > To subscribe or unsubscribe please email:-

> > -subscribe

> <mailto:-subscribe >

> > -unsubscribe

> <mailto:-unsubscribe >

> >

> > This group is not intended to diagnose or treat illnesses. No

> one on

> > this group is qualified to diagnose medical conditions. If you

> feel

> > you need medical attention, seek the advice of a qualified

> physician.

> > ~~~~ *** ~~~ *** ~~~ *** ~~~~

> > When nothing is sure, everything is possible.

> >

> > --- Margaret Drabble

> >

> > ~~~~ *** ~~~ *** ~~~ *** ~~~~

> >

> >

> >

> >

> ------------------------------------------------------------------------

> > *

[Guest guest]

CZ,

I have the reverse problem. I'm very (almost overly so) perceptive of non-verbal cues. I think this may be due to my hearing problem, since many times if I don't know exactly what was said I have to judge by the tone and facial expressions. As far as the ADD group, yes it was very difficult. The biggest thing was whether or not to use Ritalin. I have my own opinions, but these people would want me to tell them whether or not to have their children put on Ritalin. I've used ritalin before, and while it is helpful for me, it may not be helpful for everyone. I don't take ritalin when I am not in school, but when in school it helps immensely. The biggest debate is Ritalin vs illegal drugs. There have been studies that found that parents who keep their kids from Ritalin end up with their kids self-medicating with illegal drugs. While I'm sure this is not always the case, I can see how that could happen. People feel that they are 'drugging' thier kids, but their kids don't have the same reactions to stimulants as do non-ADHD people. People get very defensive when they feel that someone (whether they actually are or not) is telling them how to raise their children, or how they are raising them is wrong. I don't believe in that. There is no "right" way to raise children except when it comes to abuse. That is why I left the group and haven't returned. I thought they'd be happy to hear what an adult ADHD had so say about her own childhood, but I guess I was wrong. I was only trying to help, but I won't help people who don't want help. Waste of energy!

Hugs,

* Re: Re: Roll Call!>>> a lot of people with hfa or asperger's seem to think it makes them> better than others and that it isn't a disability but i don't see it> that way. although i don't wish i was diagnosed as a fetus and> aborted> or anything drastic like that i do wish i didn't have the limitations> that autism puts on me. it definitely does make for unique> differences> that aren't all negative but on the whole it restricts me from being> able to use my high iq effectively because of learning> disabilities and> sensory problems. if iq was any measure of ability to study i> should be> a ph.d. instead of a 10th grade dropout. i've never really had> friends> and i live a very isolated life which i prefer because of the autism> making socialising difficult. but i would like to be able to bond> with> other people and communicate seamlessly without having to work my> brain> so hard to figure out all the different layers of communication when> someone speaks. and also having autism makes it harder to have> successful treatment for other problems i had like post traumatic> stress> disorder and anorexia nervosa and ocd because therapists or> psychologists aren't exempt from my communication problems.>> i know if i wrote all this post on an autism group i would> probably be> jumped on by heaps of people telling me i need to learn to stop> denying> who i am and see my autism as a gift but i know on this group that> won't> happen. on the internet i only have one mildly autistic friend.> all the> rest of my online friends are "nt" (people without autism) and i> don't> see them as lesser people than myself i really treasure their> friendship. in real life i have no friends but a lot of people who i> stop and say hi to when i go out to shops. most of them i don't> remember> from looks alone because i'm face-blind (www.prosopagnosia.com> <http://www.prosopagnosia.com> for> explanation of that) but i do like the short conversations i have> with> them. eventually i will know everybody because i live in a very small> town but so far there are only a couple i recognise without help from> where i see them or stuff they say. usually it's just hi how are you> isn't it a lovely day today summer's on its way type conversations.>> CZ>>> penguinexchange@... <mailto:penguinexchange@...> wrote:>> > In a message dated 10/30/2004 5:32:17 PM Central Standard Time,> > unique@... <mailto:unique@...> writes:> >> > I have a good therapist, just started with a new one> recently who> > seems> > pretty good. I was just having a tough time with having> Asperger> > Syndrome and how it limits me and wishing I could perform as> well> > in my> > life as other people are able to. Sometimes it feels like> my high> > IQ is> > being wasted by the limitations of the Aspergers. I was telling> > someone> > this morning that if I never got stressed, I wouldn't know I had> > Aspergers.> >> > My son is the same way. I think in HIS case the high IQ is a> defecit.> > This is mainly since he is still young. He sees too much of the> > difference and really doesn't know what to do about it. He has> kids in> > school that try to be his friend but he would basically rather hang> > around adults.> > > > Amylee> >> >> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> > The Being Sick Community> >> >> > Message Archives-/messages> >> > Chat:- Scheduled Chats at> > /chat> >> > Bookmarks:-> > Add a website URL you have found useful.> > /links> >> > Personal Complaints or problems:-> > Please contact a moderator> > email: -owner > <mailto:-owner >> >> > Subscription Details:-> > 1) Individual email - means that every email sent to the list> you receive.> > 2) Daily Digest - sends you 25 messages in one single email for> you to> > browse. This is an excellent option if you receive alot of email.> > 3) Web only/No mail - means that you can pop into groups at> your> > convenience and receive no email.> >> > To modify your subscription settings please visit:-> > /join> >> > To subscribe or unsubscribe please email:-> > -subscribe > <mailto:-subscribe >> > -unsubscribe > <mailto:-unsubscribe >> >> > This group is not intended to diagnose or treat illnesses. No> one on> > this group is qualified to diagnose medical conditions. If you> feel> > you need medical attention, seek the advice of a qualified> physician.> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> > When nothing is sure, everything is possible.> >> > --- Margaret Drabble> >> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> >> >> >> >> ------------------------------------------------------------------------> > *

[Guest guest]

raising kids would be very hard work and a lot of guess work. i know i

could never do it.

CZ

Don and wrote:

> CZ,

>

> I have the reverse problem. I'm very (almost overly so) perceptive of

> non-verbal cues. I think this may be due to my hearing problem, since

> many times if I don't know exactly what was said I have to judge by

> the tone and facial expressions. As far as the ADD group, yes it was

> very difficult. The biggest thing was whether or not to use Ritalin.

> I have my own opinions, but these people would want me to tell them

> whether or not to have their children put on Ritalin. I've used

> ritalin before, and while it is helpful for me, it may not be helpful

> for everyone. I don't take ritalin when I am not in school, but when

> in school it helps immensely. The biggest debate is Ritalin vs

> illegal drugs. There have been studies that found that parents who

> keep their kids from Ritalin end up with their kids self-medicating

> with illegal drugs. While I'm sure this is not always the case, I can

> see how that could happen. People feel that they are 'drugging' thier

> kids, but their kids don't have the same reactions to stimulants as do

> non-ADHD people. People get very defensive when they feel that

> someone (whether they actually are or not) is telling them how to

> raise their children, or how they are raising them is wrong. I don't

> believe in that. There is no " right " way to raise children except

> when it comes to abuse. That is why I left the group and haven't

> returned. I thought they'd be happy to hear what an adult ADHD had so

> say about her own childhood, but I guess I was wrong. I was only

> trying to help, but I won't help people who don't want help. Waste of

> energy!

>

> Hugs,

>

>

>

> * Re: Re: Roll Call!

> >

> >

> > a lot of people with hfa or asperger's seem to think it

> makes them

> > better than others and that it isn't a disability but i

> don't see it

> > that way. although i don't wish i was diagnosed as a fetus and

> > aborted

> > or anything drastic like that i do wish i didn't have the

> limitations

> > that autism puts on me. it definitely does make for unique

> > differences

> > that aren't all negative but on the whole it restricts me

> from being

> > able to use my high iq effectively because of learning

> > disabilities and

> > sensory problems. if iq was any measure of ability to study i

> > should be

> > a ph.d. instead of a 10th grade dropout. i've never really had

> > friends

> > and i live a very isolated life which i prefer because of

> the autism

> > making socialising difficult. but i would like to be able to

> bond

> > with

> > other people and communicate seamlessly without having to

> work my

> > brain

> > so hard to figure out all the different layers of

> communication when

> > someone speaks. and also having autism makes it harder to have

> > successful treatment for other problems i had like post

> traumatic

> > stress

> > disorder and anorexia nervosa and ocd because therapists or

> > psychologists aren't exempt from my communication problems.

> >

> > i know if i wrote all this post on an autism group i would

> > probably be

> > jumped on by heaps of people telling me i need to learn to stop

> > denying

> > who i am and see my autism as a gift but i know on this

> group that

> > won't

> > happen. on the internet i only have one mildly autistic friend.

> > all the

> > rest of my online friends are " nt " (people without autism) and i

> > don't

> > see them as lesser people than myself i really treasure their

> > friendship. in real life i have no friends but a lot of

> people who i

> > stop and say hi to when i go out to shops. most of them i don't

> > remember

> > from looks alone because i'm face-blind

> (www.prosopagnosia.com <http://www.prosopagnosia.com>

> > <http://www.prosopagnosia.com> for

> > explanation of that) but i do like the short conversations i

> have

> > with

> > them. eventually i will know everybody because i live in a

> very small

> > town but so far there are only a couple i recognise without

> help from

> > where i see them or stuff they say. usually it's just hi how

> are you

> > isn't it a lovely day today summer's on its way type

> conversations.

> >

> > CZ

> >

> >

> > penguinexchange@... <mailto:penguinexchange@...>

> <mailto:penguinexchange@...> wrote:

> >

> > > In a message dated 10/30/2004 5:32:17 PM Central Standard

> Time,

> > > unique@... <mailto:unique@...>

> <mailto:unique@...> writes:

> > >

> > > I have a good therapist, just started with a new one

> > recently who

> > > seems

> > > pretty good. I was just having a tough time with having

> > Asperger

> > > Syndrome and how it limits me and wishing I could

> perform as

> > well

> > > in my

> > > life as other people are able to. Sometimes it feels like

> > my high

> > > IQ is

> > > being wasted by the limitations of the Aspergers. I

> was telling

> > > someone

> > > this morning that if I never got stressed, I wouldn't

> know I had

> > > Aspergers.

> > >

> > > My son is the same way. I think in HIS case the high IQ is a

> > defecit.

> > > This is mainly since he is still young. He sees too much

> of the

> > > difference and really doesn't know what to do about it. He has

> > kids in

> > > school that try to be his friend but he would basically

> rather hang

> > > around adults.

> > >

> > > Amylee

> > >

> > >

> > > ~~~~ *** ~~~ *** ~~~ *** ~~~~

> > > The Being Sick Community

> > >

> > >

> > > Message

> Archives-/messages

> > >

> > > Chat:- Scheduled Chats at

> > > /chat

> > >

> > > Bookmarks:-

> > > Add a website URL you have found useful.

> > > /links

> > >

> > > Personal Complaints or problems:-

> > > Please contact a moderator

> > > email: -owner

> <mailto:-owner >

> > <mailto:-owner >

> > >

> > > Subscription Details:-

> > > 1) Individual email - means that every email sent to the list

> > you receive.

> > > 2) Daily Digest - sends you 25 messages in one single

> email for

> > you to

> > > browse. This is an excellent option if you receive alot of

> email.

> > > 3) Web only/No mail - means that you can pop into

> groups at

> > your

> > > convenience and receive no email.

> > >

> > > To modify your subscription settings please visit:-

> > > /join

> > >

> > > To subscribe or unsubscribe please email:-

> > > -subscribe

> <mailto:-subscribe >

> > <mailto:-subscribe >

> > > -unsubscribe

> <mailto:-unsubscribe >

> > <mailto:-unsubscribe >

> > >

> > > This group is not intended to diagnose or treat illnesses. No

> > one on

> > > this group is qualified to diagnose medical conditions.

> If you

> > feel

> > > you need medical attention, seek the advice of a qualified

> > physician.

> > > ~~~~ *** ~~~ *** ~~~ *** ~~~~

> > > When nothing is sure, everything is possible.

> > >

> > > --- Margaret Drabble

> > >

> > > ~~~~ *** ~~~ *** ~~~ *** ~~~~

> > >

> > >

> > >

> > >

> >

> ------------------------------------------------------------------------

> > > *

[Guest guest]

they are probably just jealous.

CZ

penguinexchange@... wrote:

> In a message dated 11/2/2004 8:36:34 PM Central Standard Time,

> creepyzucchini@... writes:

>

> i do have to be careful what i say. i have to consciously think to

> make

> what i say tactful and sometimes if i am tired or annoyed or

> overloaded

> some cruel but true things can come out of my mouth or keyboard.

>

> Honey Bunny I have that same problem. I am the worse person to ask

> " how do I look in this? " cause I will say. On the weight issue some of

> my chunky friends just treat me way too different since I lost all the

> weight. This was a personal choice of mine. I am 47, have a good

> husband so I am not on the prowl. My body was just telling me you may

> live in an area where fat is common but the body don't like it. My

> attitude hasn't changed. I went into a store since I had no idea what

> size to get. The saleslady handed me something and I thought there is

> no way in Hades that this will fit. I tried it on and it fit but I

> still see myself as close to 300 pounds. I still have a way to go but

> now the chunky friends are trying to sabotage with candy. After three

> years of limiting it the stuff just don't really taste that great

> anymore. One told me that I am just getting too stuck up for my own

> good. Geez if they asked me I would diet buddy with them.

>

> Amylee

>

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Being Sick Community

>

>

> Message Archives-/messages

>

> Chat:- Scheduled Chats at

> /chat

>

> Bookmarks:-

> Add a website URL you have found useful.

> /links

>

> Personal Complaints or problems:-

> Please contact a moderator

> email: -owner

>

> Subscription Details:-

> 1) Individual email - means that every email sent to the list you receive.

> 2) Daily Digest - sends you 25 messages in one single email for you to

> browse. This is an excellent option if you receive alot of email.

> 3) Web only/No mail - means that you can pop into groups at your

> convenience and receive no email.

>

> To modify your subscription settings please visit:-

> /join

>

> To subscribe or unsubscribe please email:-

> -subscribe

> -unsubscribe

>

> This group is not intended to diagnose or treat illnesses. No one on

> this group is qualified to diagnose medical conditions. If you feel

> you need medical attention, seek the advice of a qualified physician.

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> When nothing is sure, everything is possible.

>

> --- Margaret Drabble

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

>

>

>

> ------------------------------------------------------------------------

> *

[Guest guest]

In a message dated 11/3/2004 3:26:00 AM Central Standard Time, creepyzucchini@... writes:

they are probably just jealous.CZ

That is a stupid thing but I guess it is human nature. If I knew someone before I did it that was able to I would be picking their brain for ideas.

Amylee

[Guest guest]

a lot of people instead of trying to learn from the person they are

jealous of or wish they could be like will try to bring the person down

instead and make themself feel better. it's nasty but it's just how a

lot of people work.

CZ

penguinexchange@... wrote:

> In a message dated 11/3/2004 3:26:00 AM Central Standard Time,

> creepyzucchini@... writes:

>

> they are probably just jealous.

>

> CZ

>

> That is a stupid thing but I guess it is human nature. If I knew

> someone before I did it that was able to I would be picking their

> brain for ideas.

>

> Amylee

>

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Being Sick Community

>

>

> Message Archives-/messages

>

> Chat:- Scheduled Chats at

> /chat

>

> Bookmarks:-

> Add a website URL you have found useful.

> /links

>

> Personal Complaints or problems:-

> Please contact a moderator

> email: -owner

>

> Subscription Details:-

> 1) Individual email - means that every email sent to the list you receive.

> 2) Daily Digest - sends you 25 messages in one single email for you to

> browse. This is an excellent option if you receive alot of email.

> 3) Web only/No mail - means that you can pop into groups at your

> convenience and receive no email.

>

> To modify your subscription settings please visit:-

> /join

>

> To subscribe or unsubscribe please email:-

> -subscribe

> -unsubscribe

>

> This group is not intended to diagnose or treat illnesses. No one on

> this group is qualified to diagnose medical conditions. If you feel

> you need medical attention, seek the advice of a qualified physician.

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> When nothing is sure, everything is possible.

>

> --- Margaret Drabble

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

>

>

>

> ------------------------------------------------------------------------

> *

[Guest guest]

In a message dated 11/3/2004 11:50:18 PM Central Standard Time, creepyzucchini@... writes:

a lot of people instead of trying to learn from the person they are jealous of or wish they could be like will try to bring the person down instead and make themself feel better. it's nasty but it's just how a lot of people work.

There are also the ones that will ask how I did it and then they expect some kind of magic miracle answer. Not the fact that it takes a long time and it basically a change of lifestyle not diet.

Amylee

[Guest guest]

I am okay , one Friday a couple of weeks ago I had some fish for dinner, the pains, the vomiting and Diarrhoea started a few hours later, the pains were terrible I went to the doctor, he examined me, suggested a colonoscopy in a couple of days,( he and I are no longer friends) I got a scrip for Prevacid, been taking that faithfully

The sickness took one week to go and I still feel weak from it all,.but getting stronger each day.

I put myself on a strict diet of chicken broth and sips of milk until I felt I could eat again, now I am very careful eating a lot of yogurt and soups, I can eat regular meals but my appetite is way down. Lost 7 lbs in that week, now its back. No more pains!

I took the fish pkg back to the store, they were not surprised, customers pick up these sealed frozen packs, decide at home they do not want it, let it thaw out, freeze again and bring it back, the store has no idea what happened to that fish and put it back into stock, not knowing that they may have a potential epidemic on their hands. Nice huh?

Anne