urticaria- a mycoplasmal infection can be caused by mold

[Guest guest]

http://www.womenfitness.net/beauty/skin/urticaria.htm

urticaria- a mycoplasmal infection can be caused by mold

[Guest guest]

This is how my illness started. I was suffering from sinus pain and

took an antibiotic but was finished the antibiotic. Just took a shower

one night and all of a sudden I started getting the large hives things

all over my body. After a few hours my eyelids looked like I was 100

years old. Went to the hospital and they gave me benedryl injection

and some prendizone. It came back a few days later just as severe and

went back to the hospital. They told me to make a emergency allergist

appointment. They called it severe uticaria.

>

> http://www.womenfitness.net/beauty/skin/urticaria.htm

>

> urticaria- a mycoplasmal infection can be caused by mold

>

[Guest guest]

" who " wrote:

> http://www.womenfitness.net/beauty/skin/urticaria.htm

> urticaria- a mycoplasmal infection can be caused by mold <

It's like Barbara said years ago, you'd think that researchers

would be beating down our doors..., but it hasn't happened.

But at least now we have " The Sherlock Holmes of Investigators "

working on the case: Dr Shoemaker.

-

Message 7396 of 36663 < Previous | Next >

Sickbuildings

From: " bherk " <bherk@...>

Date: Tue Feb 6, 2001 7:31 am

Subject: Re: Mycoplasmaa bherk@...

So, if I understand what you are saying Stanley, you are saying you

haven't run across any research connecting mycoplasma fermentans and

susceptibility to toxic mold poisoning. As you know, many of us

worked in offices, schools or lives in homes that became

contaminated with this stuff. I can't think of one case yet where

everyone became ill. Probably the closest was the Job Journal.

In my case, it was primarily the women, in particular pregnant women

who were the most severely affected, along with immuno-compromised

people, including those with health problems, diabetes and the

like. But there were folks who didn't seem to show any indication

of stachy illness.

If you want to go back in the archives, you can read 's history

of how he became ill at the same time a lot of people were coming

down with something in Incline Village. I can't remember exactly

which year that was, but I think sometime in the early 80's. Dr.

was the one who treated a lot of people and ended up

calling in the CDC. As I understand it, the CDC poked around a bit,

and since folks weren't dying they didn't do much or follow up.

According to Dr. , none of these folks have ever

recovered. I have no idea how many of them, if any were ever tested

for mycoplasma except for who has been very diligently trying

to get well.

We all can't help but notice the similarity in symptoms between us

and the folks on Albert Donnay's " Immune " support group - most of

whom suffer from the symptoms of MCS. On the CFIDS support group,

we tend to see the same thing. You might recall that there was a

big donnybrook a few years ago, when the CDC made off with millions

in research dollars earmarked for CFIDS research and used it for

something else, saying it was needed somewhere else. I haven't yet

seen any big study that investigates these three somewhat

overlapping disorders, even though estimates are that one in 20 has

this. I would expect the NIH to be looking into this - but the CDC

has basically said they could care less.

Recently, several of the researchers like Drs. Kipen and Fiedler, as

well as Dr. Hodgson who have been investigating the CFIDS

epidemic and/or SBS like illnesses in America attended a seminar at

Rutgers, for all these " mysterious " (their word, not mine) symptoms

for which they cannot find a specific disease. These include

chronic fatigue, irritable bowel syndrome, fibromyalgia, Gulf War

Syndrome, Lyme disease, sick building syndrome, multiple chemical

sensitivity, sensitivity to the gasoline additive MTBE, or

connective tissue disorder, as in women with silicone breast

implants. The most common symptoms, at least in patients ill enough

to seek medical help, include headaches, fatigue, trouble

concentrating or remembering things, nausea, unusual chest pain,

shortness of breath, trouble sleeping and musculoskeletal pain.

I can understand the pure pleasure that epidemiologists derive out of

finding a true cancer cluster where everyone develops the same type

of brain or organ cancer, because it is a direct link that was

expected and fits the profile. However, for the life of me, I can't

understand why so few people are drawn to the excitement of

ferreting out the cause of an illness when we learn that a building

or school is contaminated with an immunosuppressive toxin. You, of

course, would have to be the Sherlock Holmes of investigators, but

it would be a puzzle well worth tackling and hypothesizing about.

To me, as a non-medical person - it doesn't take a leap of faith

(certainly not like the one we are being asked to make in mad cow

disease) to see the pattern and then worktowards trying to disprove

it.

Since stachy has had so little attention, having only emerged in

full force the past 20 or so years, I would think researchers would

be beating down our door trying to study us and take tissue and

blood samples, trying to find out why us and not our co-workers

are affected. But that hasn't been the case - so we have tried

in our own limited way to gather as much evidence as we could -

telling each other intimate details of what our symptom

constellations are - in order to leave a living archive for others.

It is important to know what happens with long term exposure - after

the runny noses and sore throats and coughing - what happens then.

I have talked with people who think it is incredibly odd that there

is a lot of us in the same age group - leaving them to wonder what,

perhaps in our past did we all have in common that might have

weakened our immune systems making us more susceptible to stachy -

like the live polio vaccines. While others wonder if perhaps the

stachy itself has changed. Someone needs to utilize the PCR

technology and whatever other testing is out there and compare our

group with normal populations. On that we can all agree.

I don't know enough about the pure science behind Dr. Nicholson's

research to comment on it but I find it really odd that when he

started seriously looking into mycoplasma,

the Cancer Institute started giving him problems. A man with his

medical credentials - like Dr. Dorr Dearborn when he made the link

between stachy and bleeding lungs getting the cold shoulder from the

power elite in his profession tell those of us who read between the

lines a lot more than anything else that is said. Since Dr.

Nicholson set up his lab, there have been other problems too

including a professional break in and intimidation

tactics. This give me a lot of hope. Why? Well look at

what happened to the scientists who didn't go along with party line

on mad cow disease - like Mark Purdey and who have been cut off from

funding and marginalized from main stream medicine. Since you have

the credentials, maybe you could help get us on the track by

designing a form for us to use that will prove useful to other

epidemiologists - one that might entice them to take a second look

at what is happening to us and seek out funding to see if they can

figure it out. I'm sure you can tell from the kind of posts we

get day in and day out around here - there is a whole lot of

misinformation out there and a long way to go before people can feel

safe working where

they have no control over air quality. If taking antibiotics and

avoiding mold works for , I say more power to him because he

sure is doing a hell of a lot better these days than I am or the

other folks who lost their health that season at Incline Village.

Barbara

[Guest guest]

,

Yes, an interesting post from the past. I am new to this group -- only person

of several ill in an FAA Control Tower in Detroit that tested positive for

stachy. My list of illnesses are a mile (ok, half mile) long. Others have

serious breathing issue and many other very strange medical issues such as mine

-- but none as far as I know test + for stachy. Some of us test + for other

items that cause issues -- but I am the only one with stachy.

I have off work now for nearly 10 months and who knows what the Feds have in

mind -- I suspect giving me the boot after they made me ill.

I am getting somewhat better -- but am now part of the asthma crowd and other

issues (nerve, C Pnu, ILD, SOB, etc...).

Nice reading this info -- I hope to learn much and push a few buttons if I can

help.

Dave

erikmoldwarrior <erikmoldwarrior@...> wrote:

" who " wrote:

> http://www.womenfitness.net/beauty/skin/urticaria.htm

> urticaria- a mycoplasmal infection can be caused by mold <

It's like Barbara said years ago, you'd think that researchers

would be beating down our doors..., but it hasn't happened.

But at least now we have " The Sherlock Holmes of Investigators "

working on the case: Dr Shoemaker.

-

Message 7396 of 36663 < Previous | Next >

Sickbuildings

From: " bherk " <bherk@...>

Date: Tue Feb 6, 2001 7:31 am

Subject: Re: Mycoplasmaa bherk@...

So, if I understand what you are saying Stanley, you are saying you

haven't run across any research connecting mycoplasma fermentans and

susceptibility to toxic mold poisoning. As you know, many of us

worked in offices, schools or lives in homes that became

contaminated with this stuff. I can't think of one case yet where

everyone became ill. Probably the closest was the Job Journal.

In my case, it was primarily the women, in particular pregnant women

who were the most severely affected, along with immuno-compromised

people, including those with health problems, diabetes and the

like. But there were folks who didn't seem to show any indication

of stachy illness.

If you want to go back in the archives, you can read 's history

of how he became ill at the same time a lot of people were coming

down with something in Incline Village. I can't remember exactly

which year that was, but I think sometime in the early 80's. Dr.

was the one who treated a lot of people and ended up

calling in the CDC. As I understand it, the CDC poked around a bit,

and since folks weren't dying they didn't do much or follow up.

According to Dr. , none of these folks have ever

recovered. I have no idea how many of them, if any were ever tested

for mycoplasma except for who has been very diligently trying

to get well.

We all can't help but notice the similarity in symptoms between us

and the folks on Albert Donnay's " Immune " support group - most of

whom suffer from the symptoms of MCS. On the CFIDS support group,

we tend to see the same thing. You might recall that there was a

big donnybrook a few years ago, when the CDC made off with millions

in research dollars earmarked for CFIDS research and used it for

something else, saying it was needed somewhere else. I haven't yet

seen any big study that investigates these three somewhat

overlapping disorders, even though estimates are that one in 20 has

this. I would expect the NIH to be looking into this - but the CDC

has basically said they could care less.

Recently, several of the researchers like Drs. Kipen and Fiedler, as

well as Dr. Hodgson who have been investigating the CFIDS

epidemic and/or SBS like illnesses in America attended a seminar at

Rutgers, for all these " mysterious " (their word, not mine) symptoms

for which they cannot find a specific disease. These include

chronic fatigue, irritable bowel syndrome, fibromyalgia, Gulf War

Syndrome, Lyme disease, sick building syndrome, multiple chemical

sensitivity, sensitivity to the gasoline additive MTBE, or

connective tissue disorder, as in women with silicone breast

implants. The most common symptoms, at least in patients ill enough

to seek medical help, include headaches, fatigue, trouble

concentrating or remembering things, nausea, unusual chest pain,

shortness of breath, trouble sleeping and musculoskeletal pain.

I can understand the pure pleasure that epidemiologists derive out of

finding a true cancer cluster where everyone develops the same type

of brain or organ cancer, because it is a direct link that was

expected and fits the profile. However, for the life of me, I can't

understand why so few people are drawn to the excitement of

ferreting out the cause of an illness when we learn that a building

or school is contaminated with an immunosuppressive toxin. You, of

course, would have to be the Sherlock Holmes of investigators, but

it would be a puzzle well worth tackling and hypothesizing about.

To me, as a non-medical person - it doesn't take a leap of faith

(certainly not like the one we are being asked to make in mad cow

disease) to see the pattern and then worktowards trying to disprove

it.

Since stachy has had so little attention, having only emerged in

full force the past 20 or so years, I would think researchers would

be beating down our door trying to study us and take tissue and

blood samples, trying to find out why us and not our co-workers

are affected. But that hasn't been the case - so we have tried

in our own limited way to gather as much evidence as we could -

telling each other intimate details of what our symptom

constellations are - in order to leave a living archive for others.

It is important to know what happens with long term exposure - after

the runny noses and sore throats and coughing - what happens then.

I have talked with people who think it is incredibly odd that there

is a lot of us in the same age group - leaving them to wonder what,

perhaps in our past did we all have in common that might have

weakened our immune systems making us more susceptible to stachy -

like the live polio vaccines. While others wonder if perhaps the

stachy itself has changed. Someone needs to utilize the PCR

technology and whatever other testing is out there and compare our

group with normal populations. On that we can all agree.

I don't know enough about the pure science behind Dr. Nicholson's

research to comment on it but I find it really odd that when he

started seriously looking into mycoplasma,

the Cancer Institute started giving him problems. A man with his

medical credentials - like Dr. Dorr Dearborn when he made the link

between stachy and bleeding lungs getting the cold shoulder from the

power elite in his profession tell those of us who read between the

lines a lot more than anything else that is said. Since Dr.

Nicholson set up his lab, there have been other problems too

including a professional break in and intimidation

tactics. This give me a lot of hope. Why? Well look at

what happened to the scientists who didn't go along with party line

on mad cow disease - like Mark Purdey and who have been cut off from

funding and marginalized from main stream medicine. Since you have

the credentials, maybe you could help get us on the track by

designing a form for us to use that will prove useful to other

epidemiologists - one that might entice them to take a second look

at what is happening to us and seek out funding to see if they can

figure it out. I'm sure you can tell from the kind of posts we

get day in and day out around here - there is a whole lot of

misinformation out there and a long way to go before people can feel

safe working where

they have no control over air quality. If taking antibiotics and

avoiding mold works for , I say more power to him because he

sure is doing a hell of a lot better these days than I am or the

other folks who lost their health that season at Incline Village.

Barbara

FAIR USE NOTICE:

[Guest guest]

--Welcome to SBS group . would be interested in knowing who you

were sent to for testing and if your being treated and with what. I

hope you dont lose your job, but they may never get it clean enough

for you to work there again, without it makeing you ill. I hope the

best for you, sounds like a very sticky situation your

in.

- In ,

<dlpgppmi@...> wrote:

>

> ,

>

> Yes, an interesting post from the past. I am new to this group --

only person of several ill in an FAA Control Tower in Detroit that

tested positive for stachy. My list of illnesses are a mile (ok,

half mile) long. Others have serious breathing issue and many other

very strange medical issues such as mine -- but none as far as I know

test + for stachy. Some of us test + for other items that cause

issues -- but I am the only one with stachy.

>

> I have off work now for nearly 10 months and who knows what the

Feds have in mind -- I suspect giving me the boot after they made me

ill.

>

> I am getting somewhat better -- but am now part of the asthma

crowd and other issues (nerve, C Pnu, ILD, SOB, etc...).

>

> Nice reading this info -- I hope to learn much and push a few

buttons if I can help.

>

> Dave

>

>

>

> erikmoldwarrior <erikmoldwarrior@...> wrote:

> " who " wrote:

> > http://www.womenfitness.net/beauty/skin/urticaria.htm

> > urticaria- a mycoplasmal infection can be caused by mold <

>

> It's like Barbara said years ago, you'd think that researchers

> would be beating down our doors..., but it hasn't happened.

> But at least now we have " The Sherlock Holmes of Investigators "

> working on the case: Dr Shoemaker.

> -

>

>

>

> Message 7396 of 36663 < Previous | Next >

> Sickbuildings

> From: " bherk " <bherk@>

> Date: Tue Feb 6, 2001 7:31 am

> Subject: Re: Mycoplasmaa bherk@

>

>

> So, if I understand what you are saying Stanley, you are saying you

> haven't run across any research connecting mycoplasma fermentans

and

> susceptibility to toxic mold poisoning. As you know, many of us

> worked in offices, schools or lives in homes that became

> contaminated with this stuff. I can't think of one case yet where

> everyone became ill. Probably the closest was the Job Journal.

> In my case, it was primarily the women, in particular pregnant

women

> who were the most severely affected, along with immuno-compromised

> people, including those with health problems, diabetes and the

> like. But there were folks who didn't seem to show any indication

> of stachy illness.

>

> If you want to go back in the archives, you can read 's history

> of how he became ill at the same time a lot of people were coming

> down with something in Incline Village. I can't remember exactly

> which year that was, but I think sometime in the early 80's. Dr.

> was the one who treated a lot of people and ended up

> calling in the CDC. As I understand it, the CDC poked around a

bit,

> and since folks weren't dying they didn't do much or follow up.

> According to Dr. , none of these folks have ever

> recovered. I have no idea how many of them, if any were ever

tested

> for mycoplasma except for who has been very diligently trying

> to get well.

>

> We all can't help but notice the similarity in symptoms between us

> and the folks on Albert Donnay's " Immune " support group - most of

> whom suffer from the symptoms of MCS. On the CFIDS support group,

> we tend to see the same thing. You might recall that there was a

> big donnybrook a few years ago, when the CDC made off with millions

> in research dollars earmarked for CFIDS research and used it for

> something else, saying it was needed somewhere else. I haven't yet

> seen any big study that investigates these three somewhat

> overlapping disorders, even though estimates are that one in 20 has

> this. I would expect the NIH to be looking into this - but the

CDC

> has basically said they could care less.

>

> Recently, several of the researchers like Drs. Kipen and Fiedler,

as

> well as Dr. Hodgson who have been investigating the CFIDS

> epidemic and/or SBS like illnesses in America attended a seminar at

> Rutgers, for all these " mysterious " (their word, not mine) symptoms

> for which they cannot find a specific disease. These include

> chronic fatigue, irritable bowel syndrome, fibromyalgia, Gulf War

> Syndrome, Lyme disease, sick building syndrome, multiple chemical

> sensitivity, sensitivity to the gasoline additive MTBE, or

> connective tissue disorder, as in women with silicone breast

> implants. The most common symptoms, at least in patients ill

enough

> to seek medical help, include headaches, fatigue, trouble

> concentrating or remembering things, nausea, unusual chest pain,

> shortness of breath, trouble sleeping and musculoskeletal pain.

>

> I can understand the pure pleasure that epidemiologists derive out

of

> finding a true cancer cluster where everyone develops the same type

> of brain or organ cancer, because it is a direct link that was

> expected and fits the profile. However, for the life of me, I can't

> understand why so few people are drawn to the excitement of

> ferreting out the cause of an illness when we learn that a building

> or school is contaminated with an immunosuppressive toxin. You, of

> course, would have to be the Sherlock Holmes of investigators, but

> it would be a puzzle well worth tackling and hypothesizing about.

> To me, as a non-medical person - it doesn't take a leap of faith

> (certainly not like the one we are being asked to make in mad cow

> disease) to see the pattern and then worktowards trying to disprove

> it.

> Since stachy has had so little attention, having only emerged in

> full force the past 20 or so years, I would think researchers would

> be beating down our door trying to study us and take tissue and

> blood samples, trying to find out why us and not our co-workers

> are affected. But that hasn't been the case - so we have tried

> in our own limited way to gather as much evidence as we could -

> telling each other intimate details of what our symptom

> constellations are - in order to leave a living archive for

others.

> It is important to know what happens with long term exposure -

after

> the runny noses and sore throats and coughing - what happens then.

>

> I have talked with people who think it is incredibly odd that there

> is a lot of us in the same age group - leaving them to wonder what,

> perhaps in our past did we all have in common that might have

> weakened our immune systems making us more susceptible to stachy -

> like the live polio vaccines. While others wonder if perhaps the

> stachy itself has changed. Someone needs to utilize the PCR

> technology and whatever other testing is out there and compare our

> group with normal populations. On that we can all agree.

>

> I don't know enough about the pure science behind Dr. Nicholson's

> research to comment on it but I find it really odd that when he

> started seriously looking into mycoplasma,

> the Cancer Institute started giving him problems. A man with his

> medical credentials - like Dr. Dorr Dearborn when he made the link

> between stachy and bleeding lungs getting the cold shoulder from

the

> power elite in his profession tell those of us who read between the

> lines a lot more than anything else that is said. Since Dr.

> Nicholson set up his lab, there have been other problems too

> including a professional break in and intimidation

> tactics. This give me a lot of hope. Why? Well look at

> what happened to the scientists who didn't go along with party line

> on mad cow disease - like Mark Purdey and who have been cut off

from

> funding and marginalized from main stream medicine. Since you have

> the credentials, maybe you could help get us on the track by

> designing a form for us to use that will prove useful to other

> epidemiologists - one that might entice them to take a second look

> at what is happening to us and seek out funding to see if they can

> figure it out. I'm sure you can tell from the kind of posts we

> get day in and day out around here - there is a whole lot of

> misinformation out there and a long way to go before people can

feel

> safe working where

> they have no control over air quality. If taking antibiotics and

> avoiding mold works for , I say more power to him because he

> sure is doing a hell of a lot better these days than I am or the

> other folks who lost their health that season at Incline Village.

>

> Barbara

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> FAIR USE NOTICE:

>

>

>

>

>

>

[Guest guest]

Dr. Harbut (Royal Oak, MI) is my lung treating doctor -- and he has been

great for my mental support as well -- I have had my share of " crashes " lately.

I agree, they may never get that hole clean enough for me -- time will tell. As

you may have read here, they are planning another questionable remediation

TONIGHT. Sure glad I am not working or anywhere near that place.

I am on a multitude of " standard " breathing meds, some things for my anxiety,

nerve pain down my left leg -- and then just vitamins, etc... -- nothing fancy

yet -- though I have been reading the comments and considering....

Nothing but lies and deception -- from our Federal Government -- you name em

and they are part of the cover-up and slowdown. I have about 30 years of civil

and military service -- sure am disgusted.

Thanks for the welcome!!

who <jeaninem660@...> wrote:

--Welcome to SBS group . would be interested in knowing who you

were sent to for testing and if your being treated and with what. I

hope you dont lose your job, but they may never get it clean enough

for you to work there again, without it makeing you ill. I hope the

best for you, sounds like a very sticky situation your

in.

- In ,

<dlpgppmi@...> wrote:

>

> ,

>

> Yes, an interesting post from the past. I am new to this group --

only person of several ill in an FAA Control Tower in Detroit that

tested positive for stachy. My list of illnesses are a mile (ok,

half mile) long. Others have serious breathing issue and many other

very strange medical issues such as mine -- but none as far as I know

test + for stachy. Some of us test + for other items that cause

issues -- but I am the only one with stachy.

>

> I have off work now for nearly 10 months and who knows what the

Feds have in mind -- I suspect giving me the boot after they made me

ill.

>

> I am getting somewhat better -- but am now part of the asthma

crowd and other issues (nerve, C Pnu, ILD, SOB, etc...).

>

> Nice reading this info -- I hope to learn much and push a few

buttons if I can help.

>

> Dave

>

>

>

> erikmoldwarrior <erikmoldwarrior@...> wrote:

> " who " wrote:

> > http://www.womenfitness.net/beauty/skin/urticaria.htm

> > urticaria- a mycoplasmal infection can be caused by mold <

>

> It's like Barbara said years ago, you'd think that researchers

> would be beating down our doors..., but it hasn't happened.

> But at least now we have " The Sherlock Holmes of Investigators "

> working on the case: Dr Shoemaker.

> -

>

>

>

> Message 7396 of 36663 < Previous | Next >

> Sickbuildings

> From: " bherk " <bherk@>

> Date: Tue Feb 6, 2001 7:31 am

> Subject: Re: Mycoplasmaa bherk@

>

>

> So, if I understand what you are saying Stanley, you are saying you

> haven't run across any research connecting mycoplasma fermentans

and

> susceptibility to toxic mold poisoning. As you know, many of us

> worked in offices, schools or lives in homes that became

> contaminated with this stuff. I can't think of one case yet where

> everyone became ill. Probably the closest was the Job Journal.

> In my case, it was primarily the women, in particular pregnant

women

> who were the most severely affected, along with immuno-compromised

> people, including those with health problems, diabetes and the

> like. But there were folks who didn't seem to show any indication

> of stachy illness.

>

> If you want to go back in the archives, you can read 's history

> of how he became ill at the same time a lot of people were coming

> down with something in Incline Village. I can't remember exactly

> which year that was, but I think sometime in the early 80's. Dr.

> was the one who treated a lot of people and ended up

> calling in the CDC. As I understand it, the CDC poked around a

bit,

> and since folks weren't dying they didn't do much or follow up.

> According to Dr. , none of these folks have ever

> recovered. I have no idea how many of them, if any were ever

tested

> for mycoplasma except for who has been very diligently trying

> to get well.

>

> We all can't help but notice the similarity in symptoms between us

> and the folks on Albert Donnay's " Immune " support group - most of

> whom suffer from the symptoms of MCS. On the CFIDS support group,

> we tend to see the same thing. You might recall that there was a

> big donnybrook a few years ago, when the CDC made off with millions

> in research dollars earmarked for CFIDS research and used it for

> something else, saying it was needed somewhere else. I haven't yet

> seen any big study that investigates these three somewhat

> overlapping disorders, even though estimates are that one in 20 has

> this. I would expect the NIH to be looking into this - but the

CDC

> has basically said they could care less.

>

> Recently, several of the researchers like Drs. Kipen and Fiedler,

as

> well as Dr. Hodgson who have been investigating the CFIDS

> epidemic and/or SBS like illnesses in America attended a seminar at

> Rutgers, for all these " mysterious " (their word, not mine) symptoms

> for which they cannot find a specific disease. These include

> chronic fatigue, irritable bowel syndrome, fibromyalgia, Gulf War

> Syndrome, Lyme disease, sick building syndrome, multiple chemical

> sensitivity, sensitivity to the gasoline additive MTBE, or

> connective tissue disorder, as in women with silicone breast

> implants. The most common symptoms, at least in patients ill

enough

> to seek medical help, include headaches, fatigue, trouble

> concentrating or remembering things, nausea, unusual chest pain,

> shortness of breath, trouble sleeping and musculoskeletal pain.

>

> I can understand the pure pleasure that epidemiologists derive out

of

> finding a true cancer cluster where everyone develops the same type

> of brain or organ cancer, because it is a direct link that was

> expected and fits the profile. However, for the life of me, I can't

> understand why so few people are drawn to the excitement of

> ferreting out the cause of an illness when we learn that a building

> or school is contaminated with an immunosuppressive toxin. You, of

> course, would have to be the Sherlock Holmes of investigators, but

> it would be a puzzle well worth tackling and hypothesizing about.

> To me, as a non-medical person - it doesn't take a leap of faith

> (certainly not like the one we are being asked to make in mad cow

> disease) to see the pattern and then worktowards trying to disprove

> it.

> Since stachy has had so little attention, having only emerged in

> full force the past 20 or so years, I would think researchers would

> be beating down our door trying to study us and take tissue and

> blood samples, trying to find out why us and not our co-workers

> are affected. But that hasn't been the case - so we have tried

> in our own limited way to gather as much evidence as we could -

> telling each other intimate details of what our symptom

> constellations are - in order to leave a living archive for

others.

> It is important to know what happens with long term exposure -

after

> the runny noses and sore throats and coughing - what happens then.

>

> I have talked with people who think it is incredibly odd that there

> is a lot of us in the same age group - leaving them to wonder what,

> perhaps in our past did we all have in common that might have

> weakened our immune systems making us more susceptible to stachy -

> like the live polio vaccines. While others wonder if perhaps the

> stachy itself has changed. Someone needs to utilize the PCR

> technology and whatever other testing is out there and compare our

> group with normal populations. On that we can all agree.

>

> I don't know enough about the pure science behind Dr. Nicholson's

> research to comment on it but I find it really odd that when he

> started seriously looking into mycoplasma,

> the Cancer Institute started giving him problems. A man with his

> medical credentials - like Dr. Dorr Dearborn when he made the link

> between stachy and bleeding lungs getting the cold shoulder from

the

> power elite in his profession tell those of us who read between the

> lines a lot more than anything else that is said. Since Dr.

> Nicholson set up his lab, there have been other problems too

> including a professional break in and intimidation

> tactics. This give me a lot of hope. Why? Well look at

> what happened to the scientists who didn't go along with party line

> on mad cow disease - like Mark Purdey and who have been cut off

from

> funding and marginalized from main stream medicine. Since you have

> the credentials, maybe you could help get us on the track by

> designing a form for us to use that will prove useful to other

> epidemiologists - one that might entice them to take a second look

> at what is happening to us and seek out funding to see if they can

> figure it out. I'm sure you can tell from the kind of posts we

> get day in and day out around here - there is a whole lot of

> misinformation out there and a long way to go before people can

feel

> safe working where

> they have no control over air quality. If taking antibiotics and

> avoiding mold works for , I say more power to him because he

> sure is doing a hell of a lot better these days than I am or the

> other folks who lost their health that season at Incline Village.

>

> Barbara

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> FAIR USE NOTICE:

>

>

>

>

>

>

[Guest guest]

-your welcome and you should fit right in with all of us and our

disgust at our goverment on this subject. better stop there on that

subject. good luck with what ever you try. I'm not sure but it sounds

like those of us with allergies, & food allergys, may have a harder

time trying these different things than others. avoid those crashes

the best you can, right now your symptoms might all run together,

avioding mold is the main thing, and chemicals because if you dont

have MCS your body might be primed for it. good luck, fell free to

ask questions, you most always get a answer, weather its right or

not,, we all

try.

-- In ,

<dlpgppmi@...> wrote:

>

> Dr. Harbut (Royal Oak, MI) is my lung treating doctor --

and he has been great for my mental support as well -- I have had my

share of " crashes " lately. I agree, they may never get that hole

clean enough for me -- time will tell. As you may have read here,

they are planning another questionable remediation TONIGHT. Sure

glad I am not working or anywhere near that place.

>

> I am on a multitude of " standard " breathing meds, some things for

my anxiety, nerve pain down my left leg -- and then just vitamins,

etc... -- nothing fancy yet -- though I have been reading the

comments and considering....

>

> Nothing but lies and deception -- from our Federal Government --

you name em and they are part of the cover-up and slowdown. I have

about 30 years of civil and military service -- sure am disgusted.

>

> Thanks for the welcome!!

>

> who <jeaninem660@...> wrote:

> --Welcome to SBS group . would be interested in knowing who

you

> were sent to for testing and if your being treated and with what.

I

> hope you dont lose your job, but they may never get it clean enough

> for you to work there again, without it makeing you ill. I hope the

> best for you, sounds like a very sticky situation your

>

in.

>

> - In ,

> <dlpgppmi@> wrote:

> >

> > ,

> >

> > Yes, an interesting post from the past. I am new to this

group --

> only person of several ill in an FAA Control Tower in Detroit that

> tested positive for stachy. My list of illnesses are a mile (ok,

> half mile) long. Others have serious breathing issue and many

other

> very strange medical issues such as mine -- but none as far as I

know

> test + for stachy. Some of us test + for other items that cause

> issues -- but I am the only one with stachy.

> >

> > I have off work now for nearly 10 months and who knows what the

> Feds have in mind -- I suspect giving me the boot after they made

me

> ill.

> >

> > I am getting somewhat better -- but am now part of the asthma

> crowd and other issues (nerve, C Pnu, ILD, SOB, etc...).

> >

> > Nice reading this info -- I hope to learn much and push a few

> buttons if I can help.

> >

> > Dave

> >

> >

> >

> > erikmoldwarrior <erikmoldwarrior@> wrote:

> > " who " wrote:

> > > http://www.womenfitness.net/beauty/skin/urticaria.htm

> > > urticaria- a mycoplasmal infection can be caused by mold <

> >

> > It's like Barbara said years ago, you'd think that researchers

> > would be beating down our doors..., but it hasn't happened.

> > But at least now we have " The Sherlock Holmes of Investigators "

> > working on the case: Dr Shoemaker.

> > -

> >

> >

> >

> > Message 7396 of 36663 < Previous | Next >

> > Sickbuildings

> > From: " bherk " <bherk@>

> > Date: Tue Feb 6, 2001 7:31 am

> > Subject: Re: Mycoplasmaa bherk@

> >

> >

> > So, if I understand what you are saying Stanley, you are saying

you

> > haven't run across any research connecting mycoplasma fermentans

> and

> > susceptibility to toxic mold poisoning. As you know, many of us

> > worked in offices, schools or lives in homes that became

> > contaminated with this stuff. I can't think of one case yet

where

> > everyone became ill. Probably the closest was the Job Journal.

> > In my case, it was primarily the women, in particular pregnant

> women

> > who were the most severely affected, along with immuno-

compromised

> > people, including those with health problems, diabetes and the

> > like. But there were folks who didn't seem to show any

indication

> > of stachy illness.

> >

> > If you want to go back in the archives, you can read 's

history

> > of how he became ill at the same time a lot of people were coming

> > down with something in Incline Village. I can't remember exactly

> > which year that was, but I think sometime in the early 80's. Dr.

> > was the one who treated a lot of people and ended up

> > calling in the CDC. As I understand it, the CDC poked around a

> bit,

> > and since folks weren't dying they didn't do much or follow up.

> > According to Dr. , none of these folks have ever

> > recovered. I have no idea how many of them, if any were ever

> tested

> > for mycoplasma except for who has been very diligently

trying

> > to get well.

> >

> > We all can't help but notice the similarity in symptoms between

us

> > and the folks on Albert Donnay's " Immune " support group - most of

> > whom suffer from the symptoms of MCS. On the CFIDS support

group,

> > we tend to see the same thing. You might recall that there was a

> > big donnybrook a few years ago, when the CDC made off with

millions

> > in research dollars earmarked for CFIDS research and used it for

> > something else, saying it was needed somewhere else. I haven't

yet

> > seen any big study that investigates these three somewhat

> > overlapping disorders, even though estimates are that one in 20

has

> > this. I would expect the NIH to be looking into this - but the

> CDC

> > has basically said they could care less.

> >

> > Recently, several of the researchers like Drs. Kipen and Fiedler,

> as

> > well as Dr. Hodgson who have been investigating the CFIDS

> > epidemic and/or SBS like illnesses in America attended a seminar

at

> > Rutgers, for all these " mysterious " (their word, not mine)

symptoms

> > for which they cannot find a specific disease. These include

> > chronic fatigue, irritable bowel syndrome, fibromyalgia, Gulf War

> > Syndrome, Lyme disease, sick building syndrome, multiple chemical

> > sensitivity, sensitivity to the gasoline additive MTBE, or

> > connective tissue disorder, as in women with silicone breast

> > implants. The most common symptoms, at least in patients ill

> enough

> > to seek medical help, include headaches, fatigue, trouble

> > concentrating or remembering things, nausea, unusual chest pain,

> > shortness of breath, trouble sleeping and musculoskeletal pain.

> >

> > I can understand the pure pleasure that epidemiologists derive

out

> of

> > finding a true cancer cluster where everyone develops the same

type

> > of brain or organ cancer, because it is a direct link that was

> > expected and fits the profile. However, for the life of me, I

can't

> > understand why so few people are drawn to the excitement of

> > ferreting out the cause of an illness when we learn that a

building

> > or school is contaminated with an immunosuppressive toxin. You,

of

> > course, would have to be the Sherlock Holmes of investigators,

but

> > it would be a puzzle well worth tackling and hypothesizing

about.

> > To me, as a non-medical person - it doesn't take a leap of faith

> > (certainly not like the one we are being asked to make in mad cow

> > disease) to see the pattern and then worktowards trying to

disprove

> > it.

> > Since stachy has had so little attention, having only emerged in

> > full force the past 20 or so years, I would think researchers

would

> > be beating down our door trying to study us and take tissue and

> > blood samples, trying to find out why us and not our co-workers

> > are affected. But that hasn't been the case - so we have tried

> > in our own limited way to gather as much evidence as we could -

> > telling each other intimate details of what our symptom

> > constellations are - in order to leave a living archive for

> others.

> > It is important to know what happens with long term exposure -

> after

> > the runny noses and sore throats and coughing - what happens then.

> >

> > I have talked with people who think it is incredibly odd that

there

> > is a lot of us in the same age group - leaving them to wonder

what,

> > perhaps in our past did we all have in common that might have

> > weakened our immune systems making us more susceptible to stachy -

> > like the live polio vaccines. While others wonder if perhaps the

> > stachy itself has changed. Someone needs to utilize the PCR

> > technology and whatever other testing is out there and compare

our

> > group with normal populations. On that we can all agree.

> >

> > I don't know enough about the pure science behind Dr. Nicholson's

> > research to comment on it but I find it really odd that when he

> > started seriously looking into mycoplasma,

> > the Cancer Institute started giving him problems. A man with his

> > medical credentials - like Dr. Dorr Dearborn when he made the

link

> > between stachy and bleeding lungs getting the cold shoulder from

> the

> > power elite in his profession tell those of us who read between

the

> > lines a lot more than anything else that is said. Since Dr.

> > Nicholson set up his lab, there have been other problems too

> > including a professional break in and intimidation

> > tactics. This give me a lot of hope. Why? Well look at

> > what happened to the scientists who didn't go along with party

line

> > on mad cow disease - like Mark Purdey and who have been cut off

> from

> > funding and marginalized from main stream medicine. Since you

have

> > the credentials, maybe you could help get us on the track by

> > designing a form for us to use that will prove useful to other

> > epidemiologists - one that might entice them to take a second

look

> > at what is happening to us and seek out funding to see if they

can

> > figure it out. I'm sure you can tell from the kind of posts we

> > get day in and day out around here - there is a whole lot of

> > misinformation out there and a long way to go before people can

> feel

> > safe working where

> > they have no control over air quality. If taking antibiotics and

> > avoiding mold works for , I say more power to him because he

> > sure is doing a hell of a lot better these days than I am or the

> > other folks who lost their health that season at Incline Village.

> >

> > Barbara

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > FAIR USE NOTICE:

> >

> >

> >

> >

> >

> >

[Guest guest]

Does anyone know what groups these are, from below post from archive?

" Albert Donnay's " Immune " support group - most of

whom suffer from the symptoms of MCS. On the CFIDS support group,

we tend to see the same thing. "

>

>

> Message 7396 of 36663 < Previous | Next >

> Sickbuildings

> From: " bherk " <bherk@>

> Date: Tue Feb 6, 2001 7:31 am

> Subject: Re: Mycoplasmaa bherk@

>

> We all can't help but notice the similarity in symptoms between us

> and the folks on Albert Donnay's " Immune " support group - most of

> whom suffer from the symptoms of MCS. On the CFIDS support group,

> we tend to see the same thing.