Re: SURVEY: Life after mold

[Guest guest]

I think a survey of life 5 years or so after is great idea. I's sure we

could get other websites and some of the doctors to direct people to a website

where they could take a survey.

Sharon

[Guest guest]

With all due respect, I think we need to be inclusive to the very best of

our ability.

What about all the people who fell off the map and don't have computers, now

or then, and don't even know what a mailing list is?

Or who don't know mold made them sick, or who are in prisons or homeless

because the mold made it so they coudn't work but they didn't die? But they

never figured it out. They just lived in that moldy place and never

complained or complained and were never listened to. Or the ones who knew

from day 1 that they could never afford a lawyer...

Also, look at the statistical issues..

5 years? Many people's mold exposure ended much longer periods or shorter

periods ago or is still ongoing.

I think that its important to cast a wide net and not qualify the request by

anything that might make potential respondents say 'no, thats not me' and

not respond.

The thing to do is survey as many people as possible and ask them explicitly

whether the exposure has ended, and if so, how long ago did it end. Then the

responses can be analyzed accordingly.

Another thought. How many mold sufferers know mold is what is making them

sick. I would say less than 1% Our enemies are doing their jobs VERY well.

For example, I think the survey should also survey CFS sufferers since it

seems the chances of someone's CFS having been caused by hidden mold they

never found to test is pretty high..

It should also try to survey people who don't see mold in their homes - who

have never seen visible mold - or who have easily identifiable mold

symptoms, but who live in substandard housing or who have any of the issues

we would associate with mold illness (like unexpected fatigue, headaches or

memory loss) Or who have smelt moldy smells but never seen anything.. (How

many renters can just go off poking around in their walls. None..)

Then, the responses could be analyzed and the information gleaned would be

substantially more useful and meaningful. (if it was done correctly)

There WOULD be connections....

What do people think ???

On 5/19/06, snk1955@... <snk1955@...> wrote:

>

> I think a survey of life 5 years or so after is great idea. I's sure we

> could get other websites and some of the doctors to direct people to

> a website

> where they could take a survey.

>

> Sharon

>

>

>

[Guest guest]

Sharon,

Thanks for your response and interest in this subject.

I think it's needed for all of us. Will keep in touch.

snk1955@... wrote:

I think a survey of life 5 years or so after is great idea. I's sure we

could get other websites and some of the doctors to direct people to a website

where they could take a survey.

Sharon

[Guest guest]

I am interested in helping you with your survey. My 3 children and myself were

all exposed to mold in our home from November 2000 to evacuation in May of 2005.

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[Guest guest]

June 2002 till July 2005 wouldn't count??? I'd love to be included.

One moldy air controller.

Sharon Morningstar <willowinwind2002@...> wrote:

To KC, Sharon, and ALL members:

I need everyone's help and networking abilities.

I know that most of us that still post after years have lingering health

issues after our exposure to molds. This forum has a lot of good information

that has helped immensely for thousands over the years.

What I am proposing to do, is a survey (not limited to Sickbuildings), but for

all the persons that can be contacted somehow, in how mold exposure has affected

their lives. This is to include general questions of financial, social,

career, health, family, how have you chosen recovery- western medicine or

homeopathic, how exposed, length of exposure, and other areas. This is to be

aimed at persons or families 5 years after exposure or longer.

It is important that this to be a demographic across the board, if at all

possible.

I know there was a survey done several years ago, but it has been lost in

" cyber space. " From Shoemaker's book, " Mold Warriors, " in 2005, his office felt

as if over 25 million persons were affected in the US. If 80 to 90 % of those

people have really totally recovered, wouldn't that be worth something, but if

that recovery percentage is inaccurate, wouldn't that be worth something too?

Some of the recovery information that even the " known " doctors are touting I

think is questionable. How on target is Shoemaker's recovery percentages? How

many persons have been to any of the environmental doctors? How many are too

sick or financially are just trying to make it themselves.

As on member recently posted, possibly this could be a way to network and have

a " friend " to talk to, because I know with all I've been through, in the last 5

years; if it were not for my " mold support group; " I would not be here.

I think it's time for there to be serious constructive feedback from victims

as to the ramifications of mold that need to be funneled to the medical, health

and government as to what has happened to our lives as a result of our little

fungal friends.

This is to be a confidential survey. I have already created an initial draft

of the survey.This is a HUGE undertaking, I have a few persons interested in

working with me to gather and correlate the incoming information. And I have

connections with the right persons to get this information routed properly.

Please contact me directly by e-mail and we'll connect and I'll discuss my

proposal, and also take into consideration any pertinent information that should

be included in this survey that I may not as of yet considred.

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[Guest guest]

Is ther life after mold? I have been sick three yrears and no end in sight

yet!!!!

Janet

[Guest guest]

Are you still being exposed? I recovered a couple of weeks after mold illness,

but I moved right away within 6 weeks of moving into the place and realizing it

was the mold making me sick.

Lourdes " Sal " Salvador, salvadorlourdes@...

www.mcs-awareness.org, www.mcs-awareness.org/19670.html

Is ther life after mold? I have been sick three yrears and no end in sight

yet!!!!

Janet

[Guest guest]

no...it was at work and I left three years ago then been through three

apartments before I found a mold free one. My immune system is so screwed up.

Janet

[Guest guest]

-what I want to know is if mold/mycotoxin exposure leaves us all with

canserous cells in our bodys, because its sure looking that way.

weather its from pathogenic, toxic or even the allergenic molds. is

canser cells caused by our cells being attacked by fungi,is this all

it takes? with exposure to mycotoxins it seems very reasonable that

toxins would kill bacteria and viruses that inter your body because

it over takes your body. I read and have seen with my self that

mycotoxins in your body seem to keep you from getting sick from

viruses or bacteria. while in the moldy homes, I thought I was very

sesceptable to germs and was catching something everytime I turned

around, but I'm now wondering if it was more a reaction to bacteria

and viruses trying to infect my body and the mycotoxins were fighting

them and killing them and that was what was makeing me ill, not the

bacteria or virus itself. makes sence that once molds/mycotoxins

establish theirselfs in the body, they would have the same defence

machanisisums as they do in your home when they are protecting their

space. so maybe we are immune to getting the bird flu too. makes

sence to me. and it sure seems that some already know this. gee,

their wanting to use mycotoxins for controll of insects that carry

diseases. what does that say? sounds to me that some already know

that mycotoxins can kill off other bacteria and viruses. problem is

they cant find something to than kill the mycotoxins, so the

solutition to that is to pretend that its not a

problem.

-- In ,

Gingersnap1964@... wrote:

>

> Is ther life after mold? I have been sick three yrears and no end

in sight

> yet!!!!

> Janet

>

>

>

[Guest guest]

-Janet, I relate, we are about the same age. this disease is hard on

the social life. hang in

there.

-- In ,

Gingersnap1964@... wrote:

>

> no...it was at work and I left three years ago then been through

three

> apartments before I found a mold free one. My immune system is so

screwed up.

> Janet

>

>

>