Re: Question to all these people suddenly having problems when they take cholestyramine to bind mycotoxins

[Guest guest]

Hello,

Sorry I have not posted lately. It has been very hectic over here. But, I

did mean to chime in on the effects of CSM. I do not work for anyone, but

myself. hehehe

My children and myself were put on CSM last year. After 2 days my daughter

only was getting worse and worse - we finally had to take her off of it. She

was bed ridden she got so sick. My son was not as sick, but couldn't take

it either. I also got sick on it immediately after taking it. We quit for

awhile and started it in very low doses. My daughter got violently ill

again. Could not get any answers as to why. So, we have went a different

route. It does help some people. But, you have to remember that not

everyone's bodies are the same. Some people cannot tolerate even a small

pill of any sort as my daughter cannot. It is just like every other

medication, in my opinion. Some will tolerate it well and it will help.

Some will not be able to tolerate it well, and will need to find

alternatives. That's just my opinion. No one medication can work for

everyone. Kind of like inhalers. We have tried several types. They all

cause my daughter to stop breathing, make her dizzy, she throws up. So, we

have had to find alternatives that work for her. We worked hard and she is

doing just fine. But, the inhalers work well for tons of people. They even

save some lives, but for my daughter it does just the opposite. We just have

to find what works for us. We are all unique. Nothing is a cure all for

everyone.

[Guest guest]

and everyone,

You are right, not everyone is going to have a good response to CSM

and even Dr.S. is aware of this. But this can hold true for any

medication that you take whether it be natural or synthetic. Again

there are just so many variables. Not only with the toxins

themselves that we are trying to remove, but each individuals immune

system. This is a tough battle and I'm very sorry for those that had

a negative reaction, but again science and treatment and new

medication is continuously being discovered. Hopefully one day soon

new treatment will surface that many of us will benefit from. But

again, you will probably always have several suffers with a negative

reaction. We just have to keep trying.

KC

>

> Hello,

> Sorry I have not posted lately. It has been very hectic over

here. But, I

> did mean to chime in on the effects of CSM. I do not work for

anyone, but

> myself. hehehe

> My children and myself were put on CSM last year. After 2 days my

daughter

> only was getting worse and worse - we finally had to take her off

of it. She

> was bed ridden she got so sick. My son was not as sick, but

couldn't take

> it either. I also got sick on it immediately after taking it. We

quit for

> awhile and started it in very low doses. My daughter got

violently ill

> again. Could not get any answers as to why. So, we have went a

different

> route. It does help some people. But, you have to remember that

not

> everyone's bodies are the same. Some people cannot tolerate even

a small

> pill of any sort as my daughter cannot. It is just like every

other

> medication, in my opinion. Some will tolerate it well and it will

help.

> Some will not be able to tolerate it well, and will need to find

> alternatives. That's just my opinion. No one medication can work

for

> everyone. Kind of like inhalers. We have tried several types.

They all

> cause my daughter to stop breathing, make her dizzy, she throws

up. So, we

> have had to find alternatives that work for her. We worked hard

and she is

> doing just fine. But, the inhalers work well for tons of people.

They even

> save some lives, but for my daughter it does just the opposite. We

just have

> to find what works for us. We are all unique. Nothing is a cure

all for

> everyone.

>

>

[Guest guest]

---I cant do inhalers

either.

In , " " <blackmold@...>

wrote:

>

> Hello,

> Sorry I have not posted lately. It has been very hectic over

here. But, I

> did mean to chime in on the effects of CSM. I do not work for

anyone, but

> myself. hehehe

> My children and myself were put on CSM last year. After 2 days my

daughter

> only was getting worse and worse - we finally had to take her off

of it. She

> was bed ridden she got so sick. My son was not as sick, but

couldn't take

> it either. I also got sick on it immediately after taking it. We

quit for

> awhile and started it in very low doses. My daughter got violently

ill

> again. Could not get any answers as to why. So, we have went a

different

> route. It does help some people. But, you have to remember that

not

> everyone's bodies are the same. Some people cannot tolerate even a

small

> pill of any sort as my daughter cannot. It is just like every

other

> medication, in my opinion. Some will tolerate it well and it will

help.

> Some will not be able to tolerate it well, and will need to find

> alternatives. That's just my opinion. No one medication can work

for

> everyone. Kind of like inhalers. We have tried several types.

They all

> cause my daughter to stop breathing, make her dizzy, she throws

up. So, we

> have had to find alternatives that work for her. We worked hard

and she is

> doing just fine. But, the inhalers work well for tons of people.

They even

> save some lives, but for my daughter it does just the opposite. We

just have

> to find what works for us. We are all unique. Nothing is a cure

all for

> everyone.

>

>

[Guest guest]

If you don't mind me asking, what do the inhalers do to you?

[] Re: Question to all these people suddenly having

problems when they take cholestyramine to bind mycotoxins

> ---I cant do inhalers

> either.

> In , " " <blackmold@...>

> wrote:

>>

>> Hello,

>> Sorry I have not posted lately. It has been very hectic over

> here. But, I

>> did mean to chime in on the effects of CSM. I do not work for

> anyone, but

>> myself. hehehe

>> My children and myself were put on CSM last year. After 2 days my

> daughter

>> only was getting worse and worse - we finally had to take her off

> of it. She

>> was bed ridden she got so sick. My son was not as sick, but

> couldn't take

>> it either. I also got sick on it immediately after taking it. We

> quit for

>> awhile and started it in very low doses. My daughter got violently

> ill

>> again. Could not get any answers as to why. So, we have went a

> different

>> route. It does help some people. But, you have to remember that

> not

>> everyone's bodies are the same. Some people cannot tolerate even a

> small

>> pill of any sort as my daughter cannot. It is just like every

> other

>> medication, in my opinion. Some will tolerate it well and it will

> help.

>> Some will not be able to tolerate it well, and will need to find

>> alternatives. That's just my opinion. No one medication can work

> for

>> everyone. Kind of like inhalers. We have tried several types.

> They all

>> cause my daughter to stop breathing, make her dizzy, she throws

> up. So, we

>> have had to find alternatives that work for her. We worked hard

> and she is

>> doing just fine. But, the inhalers work well for tons of people.

> They even

>> save some lives, but for my daughter it does just the opposite. We

> just have

>> to find what works for us. We are all unique. Nothing is a cure

> all for

>> everyone.

>>

>>

>

>

>

>

>

>

>

>

>

> FAIR USE NOTICE:

>

>

>

[Guest guest]

I don't understand your question and you may want

to reread the original response. The person was

saying " just like inhalers which work for some and

not for others " . I also had to go off CSM after

severely worsening CNS and detox slow down

problems after being on the CSM. But I am not on

inhalers either but I read through her message and

she was just using it as an example.

_____

From:

[mailto: ] On Behalf

Of Eaglestone

Sent: Friday, April 28, 2006 8:30 AM

Subject: Re: [] Re: Question to all

these people suddenly having problems when they

take cholestyramine to bind mycotoxins

If you don't mind me asking, what do the inhalers

do to you?

[] Re: Question to all these

people suddenly having

problems when they take cholestyramine to bind

mycotoxins

> ---I cant do inhalers

> either.

> In ,

" " <blackmold@...>

> wrote:

>>

>> Hello,

>> Sorry I have not posted lately. It has been

very hectic over

> here. But, I

>> did mean to chime in on the effects of CSM. I

do not work for

> anyone, but

>> myself. hehehe

>> My children and myself were put on CSM last

year. After 2 days my

> daughter

>> only was getting worse and worse - we finally

had to take her off

> of it. She

>> was bed ridden she got so sick. My son was not

as sick, but

> couldn't take

>> it either. I also got sick on it immediately

after taking it. We

> quit for

>> awhile and started it in very low doses. My

daughter got violently

> ill

>> again. Could not get any answers as to why.

So, we have went a

> different

>> route. It does help some people. But, you

have to remember that

> not

>> everyone's bodies are the same. Some people

cannot tolerate even a

> small

>> pill of any sort as my daughter cannot. It is

just like every

> other

>> medication, in my opinion. Some will tolerate

it well and it will

> help.

>> Some will not be able to tolerate it well, and

will need to find

>> alternatives. That's just my opinion. No one

medication can work

> for

>> everyone. Kind of like inhalers. We have

tried several types.

> They all

>> cause my daughter to stop breathing, make her

dizzy, she throws

> up. So, we

>> have had to find alternatives that work for

her. We worked hard

> and she is

>> doing just fine. But, the inhalers work well

for tons of people.

> They even

>> save some lives, but for my daughter it does

just the opposite. We

> just have

>> to find what works for us. We are all unique.

Nothing is a cure

> all for

>> everyone.

>>

>>

>

>

>

>

>

>

>

>

>

> FAIR USE NOTICE:

>

>

>

[Guest guest]

---they did not help my asthma symptoms at all and actually seamed to

make it worse. its kindof hard to explain, haven't tried any for

almost 2 years now, but as I remember,and I tried several different

ones, each effected me a little different, but I just had a strange

reaction to them. it was just a felling of not felling well, overall.

kind of like a reaction of a chemical. let me put it this way, some

made my lungs hurt and maybe because of my chemical sensativity, to

me it was like putting another toxin in my body and my body reacted

to it. sorry, its been a few years, basicly It was like MCS effects

but without the caughing. I was still so ill at the time and all my

symptoms ran together, but remember them makeing me fell worse. more

weak, and strange felling to my body as a whole. sorry, just dont

know how else to describe

it.

In

, " Eaglestone " <eaglestone@...> wrote:

>

> If you don't mind me asking, what do the inhalers do to you?

>

> [] Re: Question to all these people suddenly

having

> problems when they take cholestyramine to bind mycotoxins

>

>

> > ---I cant do inhalers

> > either.

> > In , " " <blackmold@>

> > wrote:

> >>

> >> Hello,

> >> Sorry I have not posted lately. It has been very hectic over

> > here. But, I

> >> did mean to chime in on the effects of CSM. I do not work for

> > anyone, but

> >> myself. hehehe

> >> My children and myself were put on CSM last year. After 2 days

my

> > daughter

> >> only was getting worse and worse - we finally had to take her off

> > of it. She

> >> was bed ridden she got so sick. My son was not as sick, but

> > couldn't take

> >> it either. I also got sick on it immediately after taking it.

We

> > quit for

> >> awhile and started it in very low doses. My daughter got

violently

> > ill

> >> again. Could not get any answers as to why. So, we have went a

> > different

> >> route. It does help some people. But, you have to remember that

> > not

> >> everyone's bodies are the same. Some people cannot tolerate

even a

> > small

> >> pill of any sort as my daughter cannot. It is just like every

> > other

> >> medication, in my opinion. Some will tolerate it well and it

will

> > help.

> >> Some will not be able to tolerate it well, and will need to find

> >> alternatives. That's just my opinion. No one medication can

work

> > for

> >> everyone. Kind of like inhalers. We have tried several types.

> > They all

> >> cause my daughter to stop breathing, make her dizzy, she throws

> > up. So, we

> >> have had to find alternatives that work for her. We worked hard

> > and she is

> >> doing just fine. But, the inhalers work well for tons of people.

> > They even

> >> save some lives, but for my daughter it does just the opposite.

We

> > just have

> >> to find what works for us. We are all unique. Nothing is a cure

> > all for

> >> everyone.

> >>

> >>

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > FAIR USE NOTICE:

> >

> >

> >

[Guest guest]

I'm a patient of Dr Shoemaker's and he did not question my

experience. He said my tests showed long term exposure plus I am

susceptible type. I had trouble with CSM within a week, so not much

time to have much of a positive affect from CSM. I did within a

couple days of taking it have relief from very painful arm joint

injury. It came back later and is now gone due to other efforts.

Although I am politely answering your question, I don't think it is

appropriate to get angry because other people have different

experience than you. Although Dr Shoemaker's work is impressive and

invaluable to mold sufferers, there is merit to exploring other

approaches to one problem. Usually there is more than one solution.

I do hope there are other substances out there besides CSM to

removing mycotoxins since I haven't been able to tolerate it. It

would be hard to believe that in all the world there is but one way

to remove mycotoxins. Since before I had even heard of Dr Shoemaker

and CSM a urine test showed mycotoxins in my urine, that means that

just water or something I was already eating was taking them out

already, otherwise they wouldn't have been in my urine (i.e. they

were already being excreted, however slowly). As for me, I don't

care if I find something BETTER than CSM, just anything that would

speed up the natural rate my body would naturally excrete the toxins

by itself, that I can tolerate.

--- In , LiveSimply <quackadillian@...>

wrote:

>

> I have a question to all of these people who have not been getting

the kind of positive lessening of their symptoms when they take

> cholestyramine (also known hereabouts as CSM, which I suppose can

be a

> bit misleading..) that I have.