Re: chronic fungal sinusitus

[Guest guest]

---Hi, I have been dignosed with cronic sinusitis and C. rinositis. by

the time I was tested, only scareing of past possable fungal balls was

found. Do you have a reaction to steriods shots? I had bad reactions to

them and

antibiotics.

In

, " toxsickniagara " <toxsickniagara@...>

wrote:

>

> Has anyone been diagnosed with fungal sinusitis? Can this be a

result

> of exposure to Apsergillus and/or Stachybotrys? Dr. Sherris took a

> sample from my sinuses and made this diagnosis. His testing did not

> indicate which type of fungus was in my nose. We do have Aspergillus

> and Stachybotrys growing in our workplace. He told me to get out of

> my basement office as soon as possible. The doctor is treating me

> with one injection of steroid in the hip and 2x daily nasal

irrigation

> with 20 ml of Amphotericin. He suggested that I may need sinus

> surgery. Has anyone been diagnosed with this and/or been given this

> treatment? What was the result?

>

[Guest guest]

I have a friend in New York who said there was a fungal ball just

discovered in the sinuses of a friend of his. I didn't get the

details yet on what treatment will be. If you are interested, I will

ask. It sounds like you are getting good treatment though.

>

> Has anyone been diagnosed with fungal sinusitis? Can this be a

result

> of exposure to Apsergillus and/or Stachybotrys?

[Guest guest]

In a message dated 4/29/2006 11:15:18 AM Pacific Standard Time,

toxsickniagara@... writes:

Has anyone been diagnosed with fungal sinusitis? Can this be a result

of exposure to Apsergillus and/or Stachybotrys? Dr. Sherris took a

sample from my sinuses and made this diagnosis. His testing did not

indicate which type of fungus was in my nose. We do have Aspergillus

and Stachybotrys growing in our workplace. He told me to get out of

my basement office as soon as possible. The doctor is treating me

with one injection of steroid in the hip and 2x daily nasal irrigation

with 20 ml of Amphotericin. He suggested that I may need sinus

surgery. Has anyone been diagnosed with this and/or been given this

treatment? What was the result?

Hi,

My daughter has that. She has had 6 sinus surgeries - but NONE since she

started using an antifungal nasal spray. Sounds like you have much mucus

built up in your sinuses that may need to be " roto rootered " and then nasal

spray so it doesn't come back. Also, sounds like you need to get away from

what

is causing the problem in the first place.

Sharon

[Guest guest]

sinus surgery is a nightmare and didnt help me much

Janet

[Guest guest]

get the helll out of your workplace....I didnt and it ruined whats left of my

life.

Janet

[Guest guest]

Sharon, what test is done to diagnose fungal sinusitis and what is the name

of the nasal spray? My mother complains of many sinus problems. Maybe I could

have her Dr. test her.

Sue

He suggested that I may need sinus

surgery. Has anyone been diagnosed with this and/or been given this

treatment? What was the result?

Hi,

My daughter has that. She has had 6 sinus surgeries - but NONE since she

started using an antifungal nasal spray. Sounds like you have much mucus

built up in your sinuses that may need to be " roto rootered " and then nasal

spray so it doesn't come back. Also, sounds like you need to get away from

what

is causing the problem in the first place.

Sharon

[Guest guest]

In a message dated 4/29/2006 6:19:41 PM Pacific Standard Time,

ssr3351@... writes:

Sharon, what test is done to diagnose fungal sinusitis and what is the name

of the nasal spray? My mother complains of many sinus problems. Maybe I

could

have her Dr. test her.

Sue

Sue,

I don't know the name of the test. But do know that they can culture for

this. I would make an appointment with Dr. Sherris and Dr. Ponikau. They

are ENT surgeons. They also have developed a spray that is effective to stave

off the need for surgery.

Sharon

[Guest guest]

Like I said before, my daughter has had FESS (functional endoscopic sinus

surgery) six times. The first one was really tough because they also did some

work with the bone within the nose to try and open up the passages. She did

not feel well for about two weeks. She was hospitalized for this one.

The second one was better. She was only down for about three days. She was

hospitalized for this one, too. (Although I think it was more because they

thought I needed for that to happen, more than they did) She was little and I

was scared.

The third one was no big deal. In and out. Up and around the next day.

The fourth one, we stopped at Mc's on the way home from the out

patient surgery.

The fifth one, was scary. This is when all the stuff with our house

happened and she was having pulmonary and headache problems as well. We had

never

had a surgery before when something else was also going on. As much as I

bitch about the leaders of UC Medical system being behind alot of the

misinformation that is driving this issue, our personal UC physicians are

wonderful men.

They got her in for surgery very quickly because they wanted to stop it

from going into her lungs.

The sixth one was not done by our UC ENT. Change in insurance. The guy

botched the job and took out a turbinate. He was not used to dealing with CF

patients. She was bleeding alot and was in much pain. She ended up in the

hospital at UCSD where the CF Center and our doctors are.

Ever since she started using the nasal spray, there has been no need for

surgery.

So there you have it. The surgery can be nothing or it can be much. The

key is to go to a surgeon with a strong background in FESS.

Sharon

[Guest guest]

I am way overdue on my post, I have been in California at my Grandads funeral

but I just read this and it hit home like a bat in the head. I have had sinus

problems for the last 10 years, I went through every possible test there is

(Except for fungus) and went through surgery after about six years. I am not a

doctor but I know personally and from many others I have spoken with that the

surgery was a nightmare and not only did not help it seemed to make things

worse. this trip from Alabama to Cali. seemed to play havoc with all my

problems. I have not been tested for lung or sinus fungus yet and intend to do

so in my next Dr. visit due to the black stuff I cough up and constant sinus

probs which were at least exacerbated with my exposure to asp. and stacky. High

levels at that. I am Leary of recommending surgery but maybe if the surgery is

specifically for the mold this might be a godsend for you I am not sure? But I

suggest if it is in your sinus's maybe a lung check

would be in order as well. Please keep me informed, due to my situation I am

very interested also.

Chris...

toxsickniagara <toxsickniagara@...> wrote:

Has anyone been diagnosed with fungal sinusitis? Can this be a result

of exposure to Apsergillus and/or Stachybotrys? Dr. Sherris took a

sample from my sinuses and made this diagnosis. His testing did not

indicate which type of fungus was in my nose. We do have Aspergillus

and Stachybotrys growing in our workplace. He told me to get out of

my basement office as soon as possible. The doctor is treating me

with one injection of steroid in the hip and 2x daily nasal irrigation

with 20 ml of Amphotericin. He suggested that I may need sinus

surgery. Has anyone been diagnosed with this and/or been given this

treatment? What was the result?

FAIR USE NOTICE:

[Guest guest]

http://www.emedicine.com/ent/NASAL_AND_SINUS_DISEASES.htm

> Has anyone been diagnosed with fungal sinusitis? Can this be a

result

> of exposure to Apsergillus and/or Stachybotrys? Dr. Sherris took a

> sample from my sinuses and made this diagnosis. His testing did

not

> indicate which type of fungus was in my nose. We do have

Aspergillus

> and Stachybotrys growing in our workplace. He told me to get out

of

> my basement office as soon as possible. The doctor is treating me

> with one injection of steroid in the hip and 2x daily nasal

irrigation

> with 20 ml of Amphotericin. He suggested that I may need sinus

> surgery. Has anyone been diagnosed with this and/or been given

this

> treatment? What was the result?

>

>

>

>

>

>

>

> FAIR USE NOTICE:

>

>

>

>

>

>

[Guest guest]

A couple of weeks ago I did a survey of PubMed articles on the topic. I thought

I posted

the links here. The gist of what I found is that most doctors are taking their

same old

approach of surgery and steroids and antibiotics (decades of this type

treatment) and

using it for the fungal problem. Many people here can tell you that setriods are

one of the

last things a person sufffering from fungal disorders should be taking esp if

there are

alternatives.

Mayo Clinic discovered this and published on it in 1999, they treated patients

with a

combo of oral or local (nose spray) antifungals.

Mine is a direct result of mold in my home (aspergillus, etc) and I became

infected and re-

infected. You can become reinfected if you go back into the environment.

My doctor believes in a long term treatment with low dose oral antifungals (

note the " low " )

along with allergy desensitization. It is working for me so far. I think there

is more to my

issues with mold than allergy or infection, but it is a good start for me.

But not much works very well if you continue exposing yourself to a toxic

environment.

There are people that use a " neti pot " to irrigate the sinus, and they are found

in health

food stores or coops. My MIL uses a waterpik for teeth that has a special

fitting for sinus

irrigation. It usually keeps her sinuses open.

I guess the standard ENT doc thinks that surgery to ream it out, then

antibiotics and

steriods to get rid of the rest of the infection/inflammation, then using

irrigation for the

rest of your life.

One of the problems many have is from the fungal infection migrating around like

it likes

to do- mine went from my sinuses to my gut, and wreaked havok there over time

until I

was close to the END. I favor my antifungals, and get nervous when I start to

run out. They

have been a lifesaver for me, literally.

--- In , " toxsickniagara " <toxsickniagara@...>

wrote:

>

> Has anyone been diagnosed with fungal sinusitis? Can this be a result

> of exposure to Apsergillus and/or Stachybotrys? Dr. Sherris took a

> sample from my sinuses and made this diagnosis. His testing did not

> indicate which type of fungus was in my nose. We do have Aspergillus

> and Stachybotrys growing in our workplace. He told me to get out of

> my basement office as soon as possible. The doctor is treating me

> with one injection of steroid in the hip and 2x daily nasal irrigation

> with 20 ml of Amphotericin. He suggested that I may need sinus

> surgery. Has anyone been diagnosed with this and/or been given this

> treatment? What was the result?

>

[Guest guest]

I had sinus surgery 2 times, before. It helped in some respects.

>

> Has anyone been diagnosed with fungal sinusitis? Can this be a

result

> of exposure to Apsergillus and/or Stachybotrys? Dr. Sherris took a

> sample from my sinuses and made this diagnosis. His testing did not

> indicate which type of fungus was in my nose. We do have

Aspergillus

> and Stachybotrys growing in our workplace. He told me to get out of

> my basement office as soon as possible. The doctor is treating me

> with one injection of steroid in the hip and 2x daily nasal

irrigation

> with 20 ml of Amphotericin. He suggested that I may need sinus

> surgery. Has anyone been diagnosed with this and/or been given this

> treatment? What was the result?

>