Re: Digest Number 240

[Guest guest]

Re: " Poop " exposures and SI issues

Imaginal exposures, as a parent noted yesterday, have not been to be as

effective

as in-vivo exposure for OCD. I find, however, that what imaginal exposures do

provide is an opportunity for kids to generate their boss back talk. Uusally

when

we do imaginal exposure we take turns " role-playing the OCD " - so for example I

will be goading the child (with his permission of course) " Keep making

everything

even, you don't mind do you, so what if other kids are having fun, this is so

much

more important, you know that you better not take a risk, it;s no big deal if

you

have to follow different rules, even-ness is more important than anything else "

The child can then get really mad at me (OCD) and tell me to knock it off, shut

up, leave me alone, you're wrong etc. Then we've got the ammunition to do the

real exposure. I will repeat the role play several times having the child play

the OCD, himself etc until I hear a resounding tone of assertiveness and

conviction in the child's voice, then we are ready to do the exposure for real.

I don't remember the specific " poop " issue- I have several kids in my practice

now

with variations on the theme. If we are talking about desensitizing to poop ,

how

I might approach the poop issue is finding poop that is " less " frightening to

the

child- e.g., fake poop (they have fake vomit too!)- available from Oriental

Trading Co (800) 228-2269, or go visit a pet store- gerbil poop, rabbit poop-

Putting a small amount of poop on an index card and putting it in a ziploc

bag to help the child get closer to touching poop.

Loop tapes are generally used when a person has obsessions without compulsions-

e.g., a thought of killing someone, disturbing sexual thoughts etc- by listening

to the tape over and over the person habituates or gets used to the awful

message

of the obsession and no longer fears or avoids it- it's more like " Oh, you

again,

I know you, yeh, what are you going to tell me this time? That's right, the

same

old thing. Go right ahead, if that's what you want to do, I am immune. "

To Beth in IN:

You asked about why SI issues could appear and then disappear. I know when we

spoke I thought your grand daughter may have had a PANDAS episode last year.

Increased or new development of SI symptoms can occur with PANDAS, when the

auto-immune reaction resolves so do the SI symptoms- I would wonder whether your

grandaughter's SI symptoms and OCD symptoms get worse when she has a strep or

viral infection. SSRIs may impact the SI symptoms but because this is not

studied

in the main stream psychopharmocology (medication) studies- we only have

anectdotal information.

Re: will you have to brush her her whole life... Usually the rx for brushing

is

1-2 years. After that time the threshold for tactile sensitivity has been

properly regulated and children can function with normal levels of tactile

input.

What's happening to e sounds like what happens with my smoke detector- my

smoke detector goes off when I'm just making toast (not burning it) so the

threshold is too low- it reads as an emergency when it detects heat- not smoke

or

flames. So e's brain is registering danger when she feels any sensation on

the skin. By doing the brushing you get the nerve endings used to input

(contact)

and eventually she will only register real danger, or pain. The other

sensations

will be filtered out and she won't even be aware of them. e's nervous

system

is very capable of being retrained - kids really really do get better-- on the

other hand, my hypersensitive smoke detector will never change!

I was just sent a new book that looks great (for all of us to read in our spare

time ???) Passing for Normal by Amy Wilensky. This is a moving, thoughtful

memoir of a young woman's experience (victorious) with OCD and Tourette

Syndrome.

Best to all

Tamar Chansky, Ph.D.

[Guest guest]

I agree with Dr. Jenike that this part of Indiana at least, is a

wasteland as far as trying to find a behavior therapist for . Even the

people who say they know about OCD want to come to them for treatment

and don't seem to understand that he is stuck in the house at present. So I

decided to ask the OC Foundation for a bunch of brochures about the Behavior

Therapy Institute and have been going around to various psychological

practices leaving the brochures as well as my name and phone number.

At a couple of them the receptionist had seen the 48 Hours show and had

some interest in knowing that the case was a local one. I am waiting to see

if my efforts produce any results. I plan to also go to the University and

hopefully talk to some people there so as to possibly interest either some

counselors or students in becoming behavior therapists. The Foundation sent

me about 25 brochures and I am sure would be glad to send them to others. If

we can't find appropriate professional help, maybe we can help develop some.

Just an idea in case anyone else wants to try it.

Jackie

[Guest guest]

HI Jackie:

You are doing very important work here advocating for and others with

OCD in your state. Consumer pressure is very important IMO. Your approach

to the clinical psychology department at your local university sounds a

great idea. Do the schools in Indiana look for imported blood in their

departments? That way you might be able to target newly transferred

faculty trained elsewhere who still have fire in the belly and want to make

their mark.

I had another doc who is a new clinical psychology professor in my back

pocket in case Steve's present psychologist didn't work out. He was

trained in New York state and wanted to teach his grad students how to do

CBT and E & RP. He very generously offered to treat Steve for free!

What worked here was to find a non-Ph.D. psychologist who was willing and

interested in learning how to do CBT/ERP and add them to the treatment

team. That way we have been able to get CBT in our geographical location

and this allowed much more intensive therapy than the weekly therapy we

started with. I am very pleased to report that Steve's CBT therapist has

identified another child with OCD in her practice and has arranged to fly

Steve's psychologist over here for a consult and assessment. This is being

paid for by the state.

I think if we hadn't pulled this treatment team together this child would

not be about to get the correct treatment. The child is from a very low

income household, actually being raised by a grandmother who is barely

functional herself. So in a very small way we are starting to make a

difference in OCD treatment in our isolated rural area.

You are really a trailblazer Jackie with your willingness to go public on

national TV. That way you are recognized and I am sure docs will be more

willing to help and learn more. After all you have Dr. J. and Dr. C. who

will consult with them!

Please keep us posted how your advocacy is going. How is doing?

Please send him all good wishes. Take care, aloha, Kathy (H)

kathyh@...

At 01:19 AM 09/26/1999 EDT, you wrote:

>From: Jackie48hr@...

>

> I agree with Dr. Jenike that this part of Indiana at least, is a

>wasteland as far as trying to find a behavior therapist for . Even the

>people who say they know about OCD want to come to them for treatment

>and don't seem to understand that he is stuck in the house at present. So I

>decided to ask the OC Foundation for a bunch of brochures about the Behavior

>Therapy Institute and have been going around to various psychological

>practices leaving the brochures as well as my name and phone number.

> At a couple of them the receptionist had seen the 48 Hours show and

had

>some interest in knowing that the case was a local one. I am waiting to see

>if my efforts produce any results. I plan to also go to the University and

>hopefully talk to some people there so as to possibly interest either some

>counselors or students in becoming behavior therapists. The Foundation sent

>me about 25 brochures and I am sure would be glad to send them to others.

If

>we can't find appropriate professional help, maybe we can help develop

some.

>Just an idea in case anyone else wants to try it.

> Jackie

[Guest guest]

GO Jackie, I'm with you doesn't anyone care about us in IN. If your efforts

do produce results let me know .I know so many mothers in IN>. looking for

HELP. Beth in Auburn IN.

Re: Digest Number 240

> From: Jackie48hr@...

>

> I agree with Dr. Jenike that this part of Indiana at least, is a

> wasteland as far as trying to find a behavior therapist for . Even

the

> people who say they know about OCD want to come to them for

treatment

> and don't seem to understand that he is stuck in the house at present. So

I

> decided to ask the OC Foundation for a bunch of brochures about the

Behavior

> Therapy Institute and have been going around to various psychological

> practices leaving the brochures as well as my name and phone number.

> At a couple of them the receptionist had seen the 48 Hours show and

had

> some interest in knowing that the case was a local one. I am waiting to

see

> if my efforts produce any results. I plan to also go to the University

and

> hopefully talk to some people there so as to possibly interest either some

> counselors or students in becoming behavior therapists. The Foundation

sent

> me about 25 brochures and I am sure would be glad to send them to others.

If

> we can't find appropriate professional help, maybe we can help develop

some.

> Just an idea in case anyone else wants to try it.

> Jackie

>

> > You may subscribe to the OCD-L by emailing

> listserv@... .

> In the body of your message write:

> subscribe OCD-L your name.

> The archives for the OCD and

> Parenting List may be accessed by going to

> .

> Enter your email address and password.

> Click on the highlighted list name and then click on index.

>

[Guest guest]

I know this is a really stupid question but what is a synchrometer?

[Guest guest]

Thanks Sara for the good laugh!!

love debbi

[Guest guest]

Thanks Becca,

I will give the magnesium a try.....now is there anything good for the

nerves that jump? Sometimes these things stay all day....and are very

annoying especially the ones I have that jump around my eyes.

Also how many of you need a ceiling fan going on you at night to help

you breath better? My Husband is about ready to throw me out of the

house...LOL!! I am freezing him out but it does help.

CSCluv**

http://community.webtv.net/cat926/CATHYSCOOLCATCORNER

[Guest guest]

-----Original Message-----

From: cat926@... <cat926@...>

egroups <egroups>

Date: Wednesday, April 12, 2000 10:41 PM

Subject: Re: [] Digest Number 240

>Thanks Becca,

>I will give the magnesium a try.....now is there anything good for the

>nerves that jump? Sometimes these things stay all day....and are very

>annoying especially the ones I have that jump around my eyes.

>Also how many of you need a ceiling fan going on you at night to help

>you breath better? My Husband is about ready to throw me out of the

>house...LOL!! I am freezing him out but it does help.

>

>

I use a fan at nite too, to help me breath, I don't know why it

helps but it does! >Becky M.

[Guest guest]

, have you had your lung capasity tested. It might be that your lungs

aren't working fully. My dad only has 34% use of his lungs he has to have a

bi-pap machine to push the air into his lungs at night. When he lays down

the breathing is the worst.

I'm sure that even my lungs aren't up to par..... The last time I tried to

swim and hold my breath while going under water, I almost drowned. I

couldn't hold enough air in my lungs. I don't have problems otherwise, so I

haven't had my lungs checked.

Jeanie (from Oregon)

Moonglow21@...

Jeanie421@...

come and visit <A

HREF= " Charcot-Marie-Toothonlinechat " >CMT chat

room</A>

Charcot-Marie-Toothonlinechat

*************

In a message dated 4/12/00 8:54:44 PM Pacific Daylight Time, cat926@...

writes:

<< Also how many of you need a ceiling fan going on you at night to help

you breath better? My Husband is about ready to throw me out of the

house...LOL!! I am freezing him out but it does help.

>>

[Guest guest]

> Is there any substitute for beeswax in lip balm.....

Hi Tina.

You can use Candelilla wax, it is plant derived and should make the vegans

happy.

Pat.

Peace, Joy, Serenity

House of Scents tm. Body Oils, Fragrance Oils, Incense, Candles, Soap, Etc.

achil@...

http://houseofscents.safeshopper.com/

[Guest guest]

> Is there any substitute for beeswax in lip balm.....

Hi Tina.

You can use Candelilla wax, it is plant derived and should make the vegans

happy.

Pat.

Peace, Joy, Serenity

House of Scents tm. Body Oils, Fragrance Oils, Incense, Candles, Soap, Etc.

achil@...

http://houseofscents.safeshopper.com/

[Guest guest]

Dear Suzy:

Your viral load should have decreased long before this and become

undetectable. If it did, that would make you a responder, if not, then,

if you are at 24 weeks, there is no reason to continue with this

therapy. Also, being genotype 1b, if you respond, you should be treated

for the full 48 weeks. Marty

[Guest guest]

Dear Suzy:

Your viral load should have decreased long before this and become

undetectable. If it did, that would make you a responder, if not, then,

if you are at 24 weeks, there is no reason to continue with this

therapy. Also, being genotype 1b, if you respond, you should be treated

for the full 48 weeks. Marty

[Guest guest]

Dear Mickey:

There are several methods of dealing with a brain tumor without

opening up the skull, BUT, it all depends on size, location, what they

think it is, depth, etc. Between the new laser and radiation techniques

there are some brain tumors that can be fully treated without an

" invasive " procedure, but, there are risks to any type of tumor removal.

You could look in Medline and see who is using these techniques. Marty

[Guest guest]

Dear Mickey:

There are several methods of dealing with a brain tumor without

opening up the skull, BUT, it all depends on size, location, what they

think it is, depth, etc. Between the new laser and radiation techniques

there are some brain tumors that can be fully treated without an

" invasive " procedure, but, there are risks to any type of tumor removal.

You could look in Medline and see who is using these techniques. Marty

[Guest guest]

said:

>I see from your

>email address that you live outside of the United States/Canada. I would

>suggest that you go to the Scoliosis Research Society's (SRS) web site at

>WWW.SRS.ORG,

You are right, actually I'm living in Madrid, Spain. Thanks alot for the

link, I've found two doctors in the listing located in my area and I'll try

to get an appoinment. In any case I'm seeing an specialist next week and

will keep informed.

said:

>I had rod removal in December, but did not have a boil or anything like

that,

>my rod had simply broken.

, I hope everything went ok. I would like to ask yo a few questions

about this if you don't mind: is it a very complex operation, are you

facing any complications after the removal, can you carry on with normal

life as before the removal, did it take you time to recover? Thanks.

Thanks everyone for your answers, I'll try to keep you informed.

Inigo.

_________________________________________________________

[Guest guest]

In a message dated 7/5/01 9:56:21 AM Central Daylight Time, ibagur@...

writes:

> , I hope everything went ok. I would like to ask yo a few questions

> about this if you don't mind: is it a very complex operation, are you

> facing any complications after the removal, can you carry on with normal

> life as before the removal, did it take you time to recover? Thanks.

>

>

I had my rods removed due to the fact that they were broken and I was

experiencing increasing pain.My fusion from the previous surgery was not

solid and I have two/three distinct psuedoarthrosis(sp?) sites which I have

been told are the cause for my problems. I was released to go back to work

three weeks after surgery (which in my opinion was too soon). I have been

advised to have a anterior fusion at this point, which I am hesitant to do. I

am still limited in many of my activities.

If you want more information, feel free to ask.

[Guest guest]

Hi,

I'm just a lurker but wanted to remind folks that if you are trying to

eliminate synthetic dyes from your foods, giving them Gatorade, Kool-Aid or

some of the syrups is NOT the way to do it. They have plenty of dye in them.

FYI: <A HREF= " http://www.feingold.org/ " >ADHD Diet, Autism, Asthma</A>

> Parents and/or pharmacists have reported using the following liquids

> for mixing

> enzymes and other supplements:

>

> Water

> Milk or milk substitutes

> Fruit juices

> Soda pop

> Gatorade

> Syrup: chocolate, strawberry, and cherry flavors

> Kool-Aid

>

>

[Guest guest]

In a message dated 12/22/2002 6:47:59 AM Eastern Standard Time,

writes:

> As you know My baby sister Madaleine had a baby Oct 25 she had a c

> section she has some bleeding I am so scared she might die Please PRAY

> FOR

> HER

>

>

you're both in my thoughts and prayers. Love and happy holidays to you all.

Vickie 0:)

[Guest guest]

HI all,

I have thoroughly enjoyed this site since discovering it just a few months ago. I gave it to my ENT doc the other day and he is going to pass it to some of his patients.

I go in Tuesday morning for my second TESS, having had my fist polyp removal in 95. I am sick of Prednisone and want to breath for at lest a few years. Perhaps the biggest thing I am looking forward is to be able to kiss my wife for more than 30 seconds without having to call a time out to breath.

Hopefully I can tell you how great I feel a week form now. After surgery we are going to put me on a neti pot as well as singulair to supplement by serivent and pulmicort.

Tom

[Guest guest]

>I take from what you are saying that you have only had Samter's for a

>short time?

I had my first reaction to aspirin 25 years ago, the same year I first had

my polyps removed. I have had the disease since early childhood. My

children have similar symptoms, though no one has tested them for aspirin

sensitivity - they simply avoid aspirin and the like. I believe it is

hereditary to some degree but I don't know for sure.

>Do you have more of the sinus problems or asthma?

About even. They are all well managed. If I stop taking the drugs both

symptoms flare up, the polyps grow very quickly.

The feingold diet was bad for me in that it allowed grains, which really

seem to muck my body up. I stick to vegies and fruit and nuts and rice now,

with meat proteins. I'm thinking of canning the diary foods again though -

I'm sure they're causing problems. Desense means I can eat fruit and vegies

without worrying, but I'm not one hundred percent sure it's working. I

balance all the stress factors that trigger symptoms - food is only one of

those.

Bad luck about the vinyl - that's sad. HOpe it all sorts itself out soon.

all the best,

Beverley

http://members.ozemail.com.au/~beverleypaine

Homeschool Australia & FAQ

Unschool~Kidz!

Children's Author

Bungala Ridge Permaculture Gardens & FAQ

**Submissions for the Autumn Issue of UNSCHOOL~KIDZ now open**

- contributions from homeschooling and unschooling children required

Send a stamped self addressed envelope for

HOMESCHOOL TODAY!

information on beginning homeschooling:

B Paine, PO Box 371 Yankalilla SA 5203

" War never decides who is right, only who is left. "

[Guest guest]

> I had my first reaction to aspirin 25 years ago, the same year I

first had

> my polyps removed. I have had the disease since early childhood. My

> children have similar symptoms, though no one has tested them for

aspirin

> sensitivity - they simply avoid aspirin and the like. I believe it

is

> hereditary to some degree but I don't know for sure.

I shouldn't have assumed that you had only had Samter's for a short

time. I am the only one in my family with these severe problems but

many cannot take aspirin or they wheeze.

> The feingold diet was bad for me in that it allowed grains, which

really

> seem to muck my body up. I stick to vegies and fruit and nuts and

rice now,

> with meat proteins. I'm thinking of canning the diary foods again

though -

> I'm sure they're causing problems. Desense means I can eat fruit

and vegies

> without worrying, but I'm not one hundred percent sure it's

working. I

> balance all the stress factors that trigger symptoms - food is only

one of

> those.

Have you tried the No-Phenol enzymes for salicylate foods? I have

been trying them out. Can't say that I have seen a difference yet but

have been a chicken to try a higher salicylate food. I want to get

somewhat controlled before I try them. Feingold didn't work for me

either.

Warm Regards,

[Guest guest]

i thought this was a site to discuss heterochromia. What's going on?

--- heterochromia wrote:

> There is 1 message in this issue.

>

> Topics in this digest:

>

> 1. Hooking up with with women online is great!

> From: " kayarna-lopez302@... "

<kayarna-lopez302@...>

>

>

> ________________________________________________________________________

> ________________________________________________________________________

>

> Message: 1

> Date: Fri, 20 Jan 2006 15:43:49 +0100

> From: " kayarna-lopez302@... " <kayarna-lopez302@...>

> Subject: Hooking up with with women online is great!

>

> I know some friends already who have met a few nice honeys off of this kind of

stuff (here

> is the place they use: http://www.thousandslikeyou.info/jcsa , but what do

you think? I

> think it is mad cool from what I saw at my friend’s house, and am thinking of

signing up

> later today. Basically it's a regular personalssite, but with an instant

message and Webcams

> system built in. Basically you join their chat-room on their site it gives you

a link to

> those people online in the chat-room, their location, their picture, etc and

at one click

> you can start chatting to them over Webcam (even if you don't have one).

Pretty nifty

> stuff I think!

>

>

>

> ________________________________________________________________________

> ________________________________________________________________________

>

>

>

> ------------------------------------------------------------------------

>

[Guest guest]

I think it's just spam. Those messages are invasive advertising. It's happened before in other I've been in.

But anyway, I've been in this group for some months and I haven't messaged a whole lot. I'm ne, I'm 15, and I have heterochromia iridis... only in one eye. I think there's a picture of my eyes somewhere in the picture section. My right eye is a greenish blue with a small, blended patch of brown, and my left is half greenish blue and half medium-brown, with a clear division down the centre.

I personally think any form of heterochromia is stunning. It's something that sets you apart from a crowd. It's like physical individuality. Mine is more subtle, there are people who I've known for years that didn't notice it, and even people (like my math teacher) who claim they can't see it at all.

Anyone who might taunt someone for having heterochromia is just jealous.

I can understand people not wanting to have it, to better fit in, but myself, I thrive on being different. When someone calls me weird (though it's never happened because of my eyes... mostly because I'll do something stupid or say something completely off-topic) I always say thank you. I'm lucky to have found friends who are just as weird as me in their own ways.

Any of you have similar outlooks? Different outlooks? I'd love to hear about them.

From: " I. Morrill" <mmorrill29@...>Reply-heterochromia To: heterochromia Subject: Re: Digest Number 240Date: Sat, 21 Jan 2006 10:08:57 -0800 (PST)i thought this was a site to discuss heterochromia. What's going on?--- heterochromia wrote:> There is 1 message in this issue.> > Topics in this digest:> > 1. Hooking up with with women online is great!> From: "kayarna-lopez302@..." <kayarna-lopez302@...>> > > ________________________________________________________________________> ________________________________________________________________________> > Message: 1 > Date: Fri, 20 Jan 2006 15:43:49 +0100> From: "kayarna-lopez302@..." <kayarna-lopez302@...>> Subject: Hooking up with with women online is great!> > I know some friends already who have met a few nice honeys off of this kind of stuff (here > is the place they use: http://www.thousandslikeyou.info/jcsa , but what do you think? I> think it is mad cool from what I saw at my friend’s house, and am thinking of signing up> later today. Basically it's a regular personalssite, but with an instant message and Webcams> system built in. Basically you join their chat-room on their site it gives you a link to> those people online in the chat-room, their location, their picture, etc and at one click> you can start chatting to them over Webcam (even if you don't have one). Pretty nifty> stuff I think!> > > > ________________________________________________________________________> ________________________________________________________________________> > > > ------------------------------------------------------------------------>

[Guest guest]

I just banned this kayarna-lopez user. I'm going to have to switch

this group to make people apply to join, instead of just getting

right in.

>

> > There is 1 message in this issue.

> >

> > Topics in this digest:

> >

> > 1. Hooking up with with women online is great!

> > From: " kayarna-lopez302@h... " <kayarna-lopez302@h...>

> >

> >

> >

_____________________________________________________________________

___

> >

_____________________________________________________________________

___

> >

> > Message: 1

> > Date: Fri, 20 Jan 2006 15:43:49 +0100

> > From: " kayarna-lopez302@h... " <kayarna-lopez302@h...>

> > Subject: Hooking up with with women online is great!

> >

> > I know some friends already who have met a few nice honeys off

of this kind of stuff (here

> > is the place they use:

http://www.thousandslikeyou.info/jcsa , but what do you think? I

> > think it is mad cool from what I saw at my friend's house, and

am thinking of signing up

> > later today. Basically it's a regular personalssite, but with an

instant message and Webcams

> > system built in. Basically you join their chat-room on their

site it gives you a link to

> > those people online in the chat-room, their location, their

picture, etc and at one click

> > you can start chatting to them over Webcam (even if you don't

have one). Pretty nifty

> > stuff I think!

> >

> >

> >

> >

_____________________________________________________________________

___

> >

_____________________________________________________________________

___

> >

> >

> >

> > -----------------------------------------------------------------

-------

> >