Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Hi Debbie--I " m demyelinated too..... & can't think worth a SQUAT! Where is your level of demyelination? take care, [] Insurance Appeal letter > Hello, I am currently being treated by Dr. due to toxic mold. > My antibodies are abnormally high from 17 different kinds of molds and > toxins. I have demylanization and suppressed immune system. > Here is my problem. My Insurance denied my claim based on medical > tests don't match diagnosis, prices charged are 3 to 4 times what they > should be and not a medical necessity. A board of " Medical doctors " > made the decision. Dr. 's office is appealing on my behalf and > his clinic has asked me to write an appeal letter also. Has anyone > here had to do this and if so been successful in overturning the appeal? > > My brain doesn't operate very well on putting things together and I > don't want to mess this up. > I have nothing without insurance. > > thanks so much for any help. > Debbie > > > > > > > > > > > > FAIR USE NOTICE: > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 We've been with Dr. & have had past ins problems - his office is great on working with you & the ins co. I wrote the ins company & finally the final review board agreed that we really did need everything has prescribed. This has happened 2 different times. These review medical boards are rarely specialists in the field they're reviewing. It was an orth surgeon that was reviewing our neurological records for the ins co. Go figure.... Anything that is expensive is going to be reviewed - bottom line is that ins co's don't want to pay - whether it's home ins, car ins or health ins. That takes away from their bottom line. By state law in our state, IL, the patient has to ask for the appeal - that's probably why his office has asked you to write the letter. Basically, you're stating how sick you are, your symptoms and how desperatley you need medical help and you'd like them to take another look. The post that suggested getting an attorney might be a good idea if you can afford it. It might not cost too much to get him to do a letter. Check your policy for the guidelines of an appeal. Good luck, SW In , " panhandlepeddlers " <djdeen@...> wrote: > > Hello, I am currently being treated by Dr. due to toxic mold. > My antibodies are abnormally high from 17 different kinds of molds and > toxins. I have demylanization and suppressed immune system. > Here is my problem. My Insurance denied my claim based on medical > tests don't match diagnosis, prices charged are 3 to 4 times what they > should be and not a medical necessity. A board of " Medical doctors " > made the decision. Dr. 's office is appealing on my behalf and > his clinic has asked me to write an appeal letter also. Has anyone > here had to do this and if so been successful in overturning the appeal? > > My brain doesn't operate very well on putting things together and I > don't want to mess this up. > I have nothing without insurance. > > thanks so much for any help. > Debbie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 Where is > your level of demyelination? > I guess I don't know where my level is. I have good days and other days I can't think, spell, write or talk. I have some nerve problems along my right side and I try and deal with the pain. My MRI's show white matter on the brain. I am doing much better since getting away from the mold source. 2 of my past doctors thought I was in the beginings of MS. Dr. explained that my symptoms only mimic MS. I am supposed to start IVIG treatments for it. How about you? Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 -Thank you so much. This has helped me a lot. I am trying not to stress about being denied and Dr. 's office has been very great. Suck's to know that an insurance company will pay countless claims as long as the doctor is in network, who cares if you get better..............I am hoping that will work to my benefit. Debbie -- In , " wiedb " <wiedb@...> wrote: > > We've been with Dr. & have had past ins problems - his office > is great on working with you & the ins co. I wrote the ins company & > finally the final review board agreed that we really did need > everything has prescribed. This has happened 2 different > times. These review medical boards are rarely specialists in the field > they're reviewing. It was an orth surgeon that was reviewing our > neurological records for the ins co. Go figure.... Anything that is > expensive is going to be reviewed - bottom line is that ins co's don't > want to pay - whether it's home ins, car ins or health ins. That takes > away from their bottom line. > > By state law in our state, IL, the patient has to ask for the appeal - > that's probably why his office has asked you to write the letter. > Basically, you're stating how sick you are, your symptoms and how > desperatley you need medical help and you'd like them to take another > look. The post that suggested getting an attorney might be a good idea > if you can afford it. It might not cost too much to get him to do a > letter. Check your policy for the guidelines of an appeal. > Good luck, > SW > > In , " panhandlepeddlers " <djdeen@> wrote: > > > > Hello, I am currently being treated by Dr. due to toxic mold. > > My antibodies are abnormally high from 17 different kinds of molds and > > toxins. I have demylanization and suppressed immune system. > > Here is my problem. My Insurance denied my claim based on medical > > tests don't match diagnosis, prices charged are 3 to 4 times what they > > should be and not a medical necessity. A board of " Medical doctors " > > made the decision. Dr. 's office is appealing on my behalf and > > his clinic has asked me to write an appeal letter also. Has anyone > > here had to do this and if so been successful in overturning the appeal? > > > > My brain doesn't operate very well on putting things together and I > > don't want to mess this up. > > I have nothing without insurance. > > > > thanks so much for any help. > > Debbie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 --- Hi Debbie, sounds like you have MCS (multiple chemical sensativity), have you been dignosed with it? In , " panhandlepeddlers " <djdeen@...> wrote: > > Where is > > your level of demyelination? > > > I guess I don't know where my level is. I have good days and other days > I can't think, spell, write or talk. I have some nerve problems along > my right side and I try and deal with the pain. My MRI's show white > matter on the brain. I am doing much better since getting away from the > mold source. > 2 of my past doctors thought I was in the beginings of MS. Dr. > explained that my symptoms only mimic MS. I am supposed to > start IVIG treatments for it. > > How about you? > > Debbie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 I have not been dignosed with it. I don't know a whole lot about MCS. The biggest problem for me at this moment is food. Any food that I put into my body I have some reaction to. Nausea, bloating, almost immediate vison disturbance, runny right side of nose,fatige and just overall bad feeling. I drink a protien supplement for breakfast and lunch and then I don't have to deal with most of those problems. Actually I feel pretty good as long as I don't eat solid food. Sometimes my fatigue is a drug like induced state. I consume about 1000 calories a day (for months) and can't lose a pound. I have been dignosed with Hasimoto's thyrodidus and just started thyroid meds, but can't tell that is helping so far. > > > > Where is > > > your level of demyelination? > > > > > I guess I don't know where my level is. I have good days and other > days > > I can't think, spell, write or talk. I have some nerve problems > along > > my right side and I try and deal with the pain. My MRI's show > white > > matter on the brain. I am doing much better since getting away from > the > > mold source. > > 2 of my past doctors thought I was in the beginings of MS. Dr. > > explained that my symptoms only mimic MS. I am supposed > to > > start IVIG treatments for it. > > > > How about you? > > > > Debbie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 From: panhandlepeddlers Sent: Thursday, 2006.4.27 7:12 PM Subject: [] Re: Insurance Appeal letter The biggest problem for me at this moment is food. Any food that I put into my body I have some reaction to. Nausea, bloating, almost immediate vison disturbance, runny right side of nose,fatige and just overall bad feeling. I drink a protien supplement for breakfast and lunch and then I don't have to deal with most of those problems. Actually I feel pretty good as long as I don't eat solid food. * That's interesting. What protein supplement do you use? Generally, it's the proteins in food that we react to. Presumably you're using a supplement with predigested (ie hydrolyzed) protein. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 ---my stomach is in bad shape to, I used to have dierrhia many times a day, often with blood. I had dierrhia from the start of my exposure that got continually worse. I'd have dierrhia within 5 to 10 minutes after I ate. the pain was bad, rolling,bloating, growling(people could hear it ) gassy. I finally was dignosed with food allergies to corn and yeast by the same doctor that dignosed my MCS. omitting all corn products and yeast products helped my stomach a lot. I to hardly eat much but cant lose wieght. I think a lot of us here have stomach problems. In , " panhandlepeddlers " <djdeen@...> wrote: > > I have not been dignosed with it. I don't know a whole lot about MCS. > > The biggest problem for me at this moment is food. Any food that I > put into my body I have some reaction to. Nausea, bloating, almost > immediate vison disturbance, runny right side of nose,fatige and just > overall bad feeling. I drink a protien supplement for breakfast and > lunch and then I don't have to deal with most of those problems. > Actually I feel pretty good as long as I don't eat solid food. > Sometimes my fatigue is a drug like induced state. > I consume about 1000 calories a day (for months) and can't lose a > pound. I have been dignosed with Hasimoto's thyrodidus and just > started thyroid meds, but can't tell that is helping so far. > > > > > > > > --- Hi Debbie, sounds like you have MCS (multiple chemical > > sensativity), have you been dignosed with it? In > > , " panhandlepeddlers " <djdeen@> wrote: > > > > > > Where is > > > > your level of demyelination? > > > > > > > I guess I don't know where my level is. I have good days and > other > > days > > > I can't think, spell, write or talk. I have some nerve problems > > along > > > my right side and I try and deal with the pain. My MRI's show > > white > > > matter on the brain. I am doing much better since getting away > from > > the > > > mold source. > > > 2 of my past doctors thought I was in the beginings of MS. Dr. > > > explained that my symptoms only mimic MS. I am supposed > > to > > > start IVIG treatments for it. > > > > > > How about you? > > > > > > Debbie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 I was IgG tested and stayed on a diet relative to these foods avoiding those I was intolerant. I was finally able to stop my diarrhea after 10 years of being plagued with this problem. _____ From: [mailto: ] On Behalf Of who Sent: Friday, April 28, 2006 12:54 AM Subject: [] Re: Insurance Appeal letter * ---my stomach is in bad shape to, I used to have dierrhia many times a day, often with blood. I had dierrhia from the start of my exposure that got continually worse. I'd have dierrhia within 5 to 10 minutes after I ate. the pain was bad, rolling,bloating, growling(people could hear it ) gassy. I finally was dignosed with food allergies to corn and yeast by the same doctor that dignosed my MCS. omitting all corn products and yeast products helped my stomach a lot. I to hardly eat much but cant lose wieght. I think a lot of us here have stomach problems. ........rest snipped _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 I s]aw your words re demylination. Initially I was diagnose some years ago with demylination based on MRI . Over a few years ,this diagnosis was changed to multiple sclerosis and now a chronic relapsing form of multiple sclerosis. Personally I was put on IVIG treatments for a period of time during hospitalization, received early relief but quick relapses so after about 5 months ,it was discontinued from my treatment protocol. It is expensive and many insurance companies are denying claims or being very careful to continue the protocol/. _____ From: [mailto: ] On Behalf Of who Sent: Thursday, April 27, 2006 8:57 PM Subject: [] Re: Insurance Appeal letter --- Hi Debbie, sounds like you have MCS (multiple chemical sensativity), have you been dignosed with it? In , " panhandlepeddlers " <djdeen@...> wrote: > > Where is > > your level of demyelination? > > > I guess I don't know where my level is. I have good days and other days > I can't think, spell, write or talk. I have some nerve problems along > my right side and I try and deal with the pain. My MRI's show white > matter on the brain. I am doing much better since getting away from the > mold source. > 2 of my past doctors thought I was in the beginings of MS. Dr. > explained that my symptoms only mimic MS. I am supposed to > start IVIG treatments for it. > > How about you? > > Debbie > FAIR USE NOTICE: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 Hi debbie--my level is at L 1-2. i'm completely demyelinated, very nearly NEVER walked again. i have many symptoms, debbie-- & it all STINKS. nothing below my waist works, except my legs.....after MONTHS of physical therapy. and even now there are numerous parts of me that are still paralyzed. :>( take care, victoria [] Re: Insurance Appeal letter > Where is >> your level of demyelination? >> > I guess I don't know where my level is. I have good days and other days > I can't think, spell, write or talk. I have some nerve problems along > my right side and I try and deal with the pain. My MRI's show white > matter on the brain. I am doing much better since getting away from the > mold source. > 2 of my past doctors thought I was in the beginings of MS. Dr. > explained that my symptoms only mimic MS. I am supposed to > start IVIG treatments for it. > > How about you? > > Debbie > > > > > > > > > FAIR USE NOTICE: > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2006 Report Share Posted April 29, 2006 I use a Weight loss drink mix called Slimstyles. It is a Whey protien supplement with something called PGX. I still have some bloating after ingesting this product, but it is by far the best thing my body will tolerate and not cause me severe fatigue and I will stay full for about 4 hours. I have tried food eliminations for a couple of years and no matter what solid foods I eat I have reactions to. I believe my worst reactions comes from my body actually having to digest food. I take digestive enzymes to help me some. During digestion my gut is very loud with grinding and churning. That is interesting about the protien. Debbie --- In , " Bjerring " <jamesbj@...> wrote: > > From: panhandlepeddlers > > Sent: Thursday, 2006.4.27 7:12 PM > Subject: [] Re: Insurance Appeal letter > > > The biggest problem for me at this moment is food. Any food that I > put into my body I have some reaction to. Nausea, bloating, almost > immediate vison disturbance, runny right side of nose,fatige and just > overall bad feeling. I drink a protien supplement for breakfast and > lunch and then I don't have to deal with most of those problems. > Actually I feel pretty good as long as I don't eat solid food. > > * That's interesting. What protein supplement do you use? Generally, it's the proteins in food that we react to. Presumably you're using a supplement with predigested (ie hydrolyzed) protein. Thanks. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2006 Report Share Posted April 29, 2006 I know all of those symptoms you suffer from. I will alternate between dierriha and constipation. I have done food eliminations and nothing seems to make it any better. my fatigue seems to be worst with anything that might be starchy. i try to stay away from those type foods. It is so hard sometimes. I fly to Houston to see my doctor and I hardly eat because I am afraid of a fatige onset so I wait until I can get to my room before I eat. It makes for a very long and stressful trip. > > > > > > > > Where is > > > > > your level of demyelination? > > > > > > > > > I guess I don't know where my level is. I have good days and > > other > > > days > > > > I can't think, spell, write or talk. I have some nerve problems > > > along > > > > my right side and I try and deal with the pain. My MRI's show > > > white > > > > matter on the brain. I am doing much better since getting away > > from > > > the > > > > mold source. > > > > 2 of my past doctors thought I was in the beginings of MS. Dr. > > > > explained that my symptoms only mimic MS. I am > supposed > > > to > > > > start IVIG treatments for it. > > > > > > > > How about you? > > > > > > > > Debbie > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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