Re:IVIG; building your immune system

[Guest guest]

I wanted to provide input regarding IVIG treatments. I received 5 sets of 5

day IVIG treatments while in hospital during June -October 2005 at a cost

covered by my insurance of some $25,000 per treatment. I then received 3

more monthly IVIG boosters in the infusion lab at my MS neuro. I did not

respond well to the medicine and my insurance told my doc that as of Nov

2005 they would no longer cover these treatments and they were discontinued.

They helped tremendously immediately after the treatment but the results did

not stay and I would keep going back into MS exacerbation.

I am not able to tolerate solumedrol which is often used for MS exacerbation

treatment because I get steroid induced psychosis so this leaves my neuro

docs with few options.

_____

[Guest guest]

Our son, at the age of 10, was (unknown to us) already exposed to

mycotoxins for 2-3 yrs then given the hep B shot for school (mercury &

aluminum). His immune system crashed. Neurological problems were the

worst, although just about every organ system was involved. One doc

told me he had MS, except " 10 yr olds don't get MS. " That was in 1998.

(Now they have pediatric MS clinics - no one takes the time to ask

where is all of this MS coming from?).

Anyway, we found a treating dr in Houston (we live near Chicago) who

put him on IVIG - he prescribes IVIG a bit differently so the body can

handle it easier- slow IV of 1/3 of your total dose given weekly - it

lasts about 3 weeks in your body. So, after 3 weeks you have a full

dose. It's slower, but perhaps more effective. The dr believes the

body can heal itself with support. Our son was on the IVIG for about 4

years. At the time he started, he was only months away from being in a

wheelchair. He made some progress, but the real improvement came after

we identified the mold source and got him away from it. He was off of

IVIG 10 months later.

Now my husband is on it. He was in contact with the mold source daily

for about 8 yrs - it was coming from the heating/ac unit in our

vehicle. He has a host of problems from it, congestive heart failure,

kidney cancer, CNS demylinating, progressive degenerative

polyneuropaphies, etc. He's on the IVIG - 250lb man on 45g/week. It's

a slow process, it won't cure you in a few weeks, it'll take months,

perhaps years. We had to fight the ins co orginally, but now they

fully agree he needs it. He's been on weekly IVIG since about April.

It seems to have slowed the degeneration down - time will tell.

If you're on ins and getting IVIG, note the difference between what is

charged and what is paid. My husband gets his infusion at home so we

don't have the hospital charges. The gamma itself runs around $2500/wk

-we have a ppo and that's what the ins pays. Call around to different

providers - or ask your ins company if they know of providers of gamma

that charge less. I've found huge differences in price.

SW

If you need gamma & don't have ins or ins won't pay, the maker's have

programs to help. Also, if you're in a 3rd world country, I can point

you to groups that can help you get it for free.

In , " L " <knightshotter@...> wrote:

>

> I wanted to provide input regarding IVIG treatments. I received 5

sets of 5

> day IVIG treatments while in hospital during June -October 2005 at a

cost

> covered by my insurance of some $25,000 per treatment. I then received 3

> more monthly IVIG boosters in the infusion lab at my MS neuro. I did not

> respond well to the medicine and my insurance told my doc that as of Nov

> 2005 they would no longer cover these treatments and they were

discontinued.

> They helped tremendously immediately after the treatment but the

results did

> not stay and I would keep going back into MS exacerbation.

>

>

>

> I am not able to tolerate solumedrol which is often used for MS

exacerbation

> treatment because I get steroid induced psychosis so this leaves my

neuro

> docs with few options.

>

>

>

> _____

>