Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 Hi Jeanette, The Sheraton Downtown has a hospital rate of 59.00 and it is really nice. The beds are super comfy and the rooms are very clean. The # is 801-401-2000 ask for in house reservations. We are arriving on the 19th, will you still be there? Oh, the hotel also has a starbucks!!!!!!!!! Email me privately if you have any more questions with your # and I will call you. Hope the Phone # is right. Good luck! Crista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 -Thanks Crista I'll check that out! Sincerely, Jeanette - In infantile scoliosis treatment , cristab@a... wrote: > > > Hi Jeanette, > The Sheraton Downtown has a hospital rate of 59.00 and it is really nice. > The beds are super comfy and the rooms are very clean. The # is 801-401-2000 > ask for in house reservations. > We are arriving on the 19th, will you still be there? Oh, the hotel also > has a starbucks!!!!!!!!! > Email me privately if you have any more questions with your # and I will > call you. Hope the Phone # is right. > Good luck! > > Crista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 Hi Jeanette The Shriner's in SLC sent me a list of hotel/motels in the downtown area, plus the Mc House, and even an RV Park! If by chance the Sheraton is full, another choice could be the Best Western (801- 521-2930 or 1-800- 521-9997) The hospital rate is $45 a night, and they give a free self serve breakfast. Good Luck with your visit. Jacki > > > > > > Hi Jeanette, > > The Sheraton Downtown has a hospital rate of 59.00 and it is > really nice. > > The beds are super comfy and the rooms are very clean. The # is > 801-401-2000 > > ask for in house reservations. > > We are arriving on the 19th, will you still be there? Oh, the > hotel also > > has a starbucks!!!!!!!!! > > Email me privately if you have any more questions with your # and I > will > > call you. Hope the Phone # is right. > > Good luck! > > > > Crista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 Thanks Jacki! Shriners sent me a list and map also, but I don't know which of the places on the list are nice and clean. Changing the subject here.......Has anyone had any experience with their kids having alot of leg pain and coughing? Nick complains of leg pain alot and even cries sometimes because of it, the coughing only occurs in the middle of the night. Also, he says his back itches alot. Anybody else have this going on? The first Dr. (surgeon) I mentioned this to doesn't think any of it is connected. Thanks for the help! Sincerely, Jeanette > > > > > > > > > Hi Jeanette, > > > The Sheraton Downtown has a hospital rate of 59.00 and it is > > really nice. > > > The beds are super comfy and the rooms are very clean. The # > is > > 801-401-2000 > > > ask for in house reservations. > > > We are arriving on the 19th, will you still be there? Oh, the > > hotel also > > > has a starbucks!!!!!!!!! > > > Email me privately if you have any more questions with your # > and I > > will > > > call you. Hope the Phone # is right. > > > Good luck! > > > > > > Crista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 Hey Jeanette When was Nick diagnosed?> Was he ever in any kind of brace? martell4council <raymus@...> wrote: Hello Everyone,It's Jeanette, mom to Nick, 4 yr old, infantile idio. scoliosis, approx 55 degree thor/35 degree lumb) hope everyone enjoyed the holidays!We are gearing up for our visit to Sacramento Shriners on the 13th where we'll be sitting in on a conference with our original surgeon and 4 or 5 others to get their opinion on Nick's case. We're heading home (8 hrs drive) immediately after to re-pack for our trip to SLC on the 17th, for an opinion from Dr. D'Astous regarding casting.I need to make hotel reservations very soon and I was wondering if anyone can recommend a nice place to stay that's close to the hospital. (Crista, I can't find the notes I had written when I spoke to you about this.) Thanks alot! Have a Happy New Year everybody! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 Thanks for the info. We arrive on Sunday the 16th, his appt is Monday in the morning and our return flight to CA is Tuesday. Hopefully one of these days we will get to meet some of the great people from this site! I noticed Nicks curve when he was 2 mos. old, and when his ped. said don't worry about it, I listened. Unfortunately it's progressed, We were told by a cardiologist to deal with his PDA first. That's a heart condition he was born with that seems to have resolved itself, which is a common occurence. After that we started to get help with the scoliosis. We went to Shriners for the first time in Sacramento in Sept., back down for an MRI in Oct., then again for another consult 2 wks later. It was at that point, when the surgeon just kept insisting on growth rods, that we decided to go to Utah. We are sitting in on a conference at Sac Shriners a few days before we leave for Utah, so we'll see what happens there. Since we are new to all of this, we had never heard of RVAD, or really any of the terms used on this site, or at least understood enough to check it with the surgeon. All I know is that my son has 2 curves, around 55 thoracic, around 35 lumbar and there seems to be something going on with his neck as well. He seems otherwise very healthy. His development is on track, he's active, intelligent, just a regular 4 year old. He is VERY thin though, always has been. We don't know what to make of that because my husband and I are not tall and are built very solidly, muscular builds, etc. Our daughter is shaped like us. Nick has long fingers, legs, toes, etc. I will be asking SLC about their thoughts on Marfans. I just hate not knowing. My father is tall and skinny, so maybe that's where it's coming from. I hope I answered your questions. Oh, we haven't braced or anything yet. Talk to you later, Jeanette > > > > Hello Everyone, > > It's Jeanette, mom to Nick, 4 yr old, infantile idio. scoliosis, > approx 55 degree thor/35 degree lumb) hope everyone enjoyed the > holidays! > > We are gearing up for our visit to Sacramento Shriners on the 13th > where we'll be sitting in on a conference with our original surgeon > and 4 or 5 others to get their opinion on Nick's case. We're heading > home (8 hrs drive) immediately after to re-pack for our trip to SLC > on the 17th, for an opinion from Dr. D'Astous regarding casting. > > I need to make hotel reservations very soon and I was wondering if > anyone can recommend a nice place to stay that's close to the > hospital. (Crista, I can't find the notes I had written when I spoke > to you about this.) Thanks alot! > > Have a Happy New Year everybody! > > > > > Quote Link to comment Share on other sites More sharing options...
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