Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 I started CSM in mid January. I had some immediate results but it is not addressing everything at least for me. I go back for my 12 week followup in a few weeks. I also have MS and doc had thought CSM would address all of this but this really isn't holding true from what I can see. I had another follow-up 90 day MRI today after what seems to be 7 straight days of exacerbation. Still having trouble with walking and such but trying to hang in there. Anyway, like I said CSM did initially seem to address certain problems and some addressed that hadn't been addressed in a along time but it is not proving to be the total cure for me.A bit frustrated but hanging in there. _____ From: [mailto: ] On Behalf Of unitedstatesvet Sent: Friday, March 24, 2006 4:16 PM Subject: [] And the meds begin... rite behind ya Rhonda... I will be starting my medication protocal in the morning. This will include diflucan and CSM. I will also be starting the diet plan for candidas and taking probiotics, flax seed oils, garlic, a good solid multi vitamin, DEHA, and yeastzyme. I am sure there are a supliment or two I have forgotten but this is the direction I am going. While I know it will be no joy ride I am exstatic about begining. I have found it very " interesting " to say the least watching the decline of so many different things from energy, mood swings, headaches, vision, and even simple motor skills (like typing). In the military I was trained it was all mind over matter and for the most part it has been true, this on the other hand has been very frustrating due to the lack of mind and a whole lot of matter. All you vets out there know exactly what I mean I am sure. No control, no sanity. It is easy to feel like a complete failure. So onward, to the next step I go. I have high hopes, good attitude as I begin this next venture in the saga of " Another one bites the musk " I know Rhonda has began her meds recently as I will tomorow. I am not sure of who else has just started but I know it is nice to hear the progress and if we feel any better so I will try to keep everyone up to speed of my progresion. Rhonda sounds like you are doing great so far (Except for the green teeth... lol) so I am ready and excited. Chris.... FAIR USE NOTICE: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 Well, first I hope you do figure out the other issues soon. I personally think this might be the same with me. I have a feeling there will be some other issues with my lungs and/or sinus' but then again you never know. I am used to there not being a silver bullet so nothing could be that easy although at this point progress is progress and one less is welcomed here at any cost... what was it you were doing top exacerbate the issue? You have hung in this long I know you can go some more. It at least seems like you are heading in the rite direction but I know that does not keep you from being frustrated. I have been told that frustration is a great motivator though Keep me posted and best of luck on your follow ups... Chris... L <knightshotter@...> wrote: I started CSM in mid January. I had some immediate results but it is not addressing everything at least for me. I go back for my 12 week followup in a few weeks. I also have MS and doc had thought CSM would address all of this but this really isn't holding true from what I can see. I had another follow-up 90 day MRI today after what seems to be 7 straight days of exacerbation. Still having trouble with walking and such but trying to hang in there. Anyway, like I said CSM did initially seem to address certain problems and some addressed that hadn't been addressed in a along time but it is not proving to be the total cure for me.A bit frustrated but hanging in there. _____ From: [mailto: ] On Behalf Of unitedstatesvet Sent: Friday, March 24, 2006 4:16 PM Subject: [] And the meds begin... rite behind ya Rhonda... I will be starting my medication protocal in the morning. This will include diflucan and CSM. I will also be starting the diet plan for candidas and taking probiotics, flax seed oils, garlic, a good solid multi vitamin, DEHA, and yeastzyme. I am sure there are a supliment or two I have forgotten but this is the direction I am going. While I know it will be no joy ride I am exstatic about begining. I have found it very " interesting " to say the least watching the decline of so many different things from energy, mood swings, headaches, vision, and even simple motor skills (like typing). In the military I was trained it was all mind over matter and for the most part it has been true, this on the other hand has been very frustrating due to the lack of mind and a whole lot of matter. All you vets out there know exactly what I mean I am sure. No control, no sanity. It is easy to feel like a complete failure. So onward, to the next step I go. I have high hopes, good attitude as I begin this next venture in the saga of " Another one bites the musk " I know Rhonda has began her meds recently as I will tomorow. I am not sure of who else has just started but I know it is nice to hear the progress and if we feel any better so I will try to keep everyone up to speed of my progresion. Rhonda sounds like you are doing great so far (Except for the green teeth... lol) so I am ready and excited. Chris.... FAIR USE NOTICE: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2006 Report Share Posted March 25, 2006 I didn’t follow your email. I have multiple sclerosis. I have other diseases. There has been a belief that some of my issues were mycotoxins mediated (not just mold) but also overexposure to chemical and pesticide for example). My doc following Dr. Shoemaker’s protocol found that I badly failed the VCS visual contrast testing. After 30 and 60 day follow-ups while on CSM, my VCS visual testing had improved dramatically. I saw that you are also following a yeast and diflucan protocol but for me, yeast and Candida are not issues for me. I do follow a strict food allergy program based on a profile as well. It was hoped that I would see huge progress after continuing to use CSM. Initially I did see some huge progress but much of that has let up. You said you hope they figure out the other issues soon but I think these other issues have been figured out. It is just that we had hoped that the CSM would help or alleviate more symptoms which at the moment it has not. I think our health issues are so very complicated and no magic bullet is going to address all of them and so here we are. There is nothing specific I am doing to exacerbate my issues so again can’t answer your questions. I do find that at times, my symptoms exacerbate at times of heat (hot weather, over exertion, stress, fatigue etc) but those are really not big issues right now but for whatever reason, my MS symptoms are worsening dramatically. An regency MRI was in fact ordered and done this morning to see if they can find something specific. I am frustrated having gone from wheelchair to walker to cane and then to walking unassisted and now back needing to use assistance to walk all over again and fear about what this means over the long-term. I see my doc that does the CSM protocol in a few weeks. My neuro did his usual well at least you aren’t in assisted living just yet parody which makes me want to scream. Anyway that is all here but just wanted to chime in….It is hard for me because I have health issues which sit on top of the chemical and mold exposure so it all comes on top of each other and crates problems and hard to differentiate at times between what is causing one thing vs another. _____ From: [mailto: ] On Behalf Of Tazin Round Sent: Friday, March 24, 2006 6:13 PM Subject: RE: [] And the meds begin... rite behind ya Rhonda...; CSM me too Well, first I hope you do figure out the other issues soon. I personally think this might be the same with me. I have a feeling there will be some other issues with my lungs and/or sinus' but then again you never know. I am used to there not being a silver bullet so nothing could be that easy although at this point progress is progress and one less is welcomed here at any cost... what was it you were doing top exacerbate the issue? You have hung in this long I know you can go some more. It at least seems like you are heading in the rite direction but I know that does not keep you from being frustrated. I have been told that frustration is a great motivator though Keep me posted and best of luck on your follow ups... Chris... L <knightshotter@...> wrote: I started CSM in mid January. I had some immediate results but it is not addressing everything at least for me. I go back for my 12 week followup in a few weeks. I also have MS and doc had thought CSM would address all of this but this really isn't holding true from what I can see. I had another follow-up 90 day MRI today after what seems to be 7 straight days of exacerbation. Still having trouble with walking and such but trying to hang in there. Anyway, like I said CSM did initially seem to address certain problems and some addressed that hadn't been addressed in a along time but it is not proving to be the total cure for me.A bit frustrated but hanging in there. _____ From: [mailto: ] On Behalf Of unitedstatesvet Sent: Friday, March 24, 2006 4:16 PM Subject: [] And the meds begin... rite behind ya Rhonda... I will be starting my medication protocal in the morning. This will include diflucan and CSM. I will also be starting the diet plan for candidas and taking probiotics, flax seed oils, garlic, a good solid multi vitamin, DEHA, and yeastzyme. I am sure there are a supliment or two I have forgotten but this is the direction I am going. While I know it will be no joy ride I am exstatic about begining. I have found it very " interesting " to say the least watching the decline of so many different things from energy, mood swings, headaches, vision, and even simple motor skills (like typing). In the military I was trained it was all mind over matter and for the most part it has been true, this on the other hand has been very frustrating due to the lack of mind and a whole lot of matter. All you vets out there know exactly what I mean I am sure. No control, no sanity. It is easy to feel like a complete failure. So onward, to the next step I go. I have high hopes, good attitude as I begin this next venture in the saga of " Another one bites the musk " I know Rhonda has began her meds recently as I will tomorow. I am not sure of who else has just started but I know it is nice to hear the progress and if we feel any better so I will try to keep everyone up to speed of my progresion. Rhonda sounds like you are doing great so far (Except for the green teeth... lol) so I am ready and excited. Chris.... FAIR USE NOTICE: Quote Link to comment Share on other sites More sharing options...
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