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RE: And the meds begin... rite behind ya Rhonda...; CSM me too

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I started CSM in mid January. I had some immediate results but it is not

addressing everything at least for me. I go back for my 12 week followup in

a few weeks. I also have MS and doc had thought CSM would address all of

this but this really isn't holding true from what I can see. I had another

follow-up 90 day MRI today after what seems to be 7 straight days of

exacerbation. Still having trouble with walking and such but trying to hang

in there. Anyway, like I said CSM did initially seem to address certain

problems and some addressed that hadn't been addressed in a along time but

it is not proving to be the total cure for me.A bit frustrated but hanging

in there.

_____

From: [mailto: ]

On Behalf Of unitedstatesvet

Sent: Friday, March 24, 2006 4:16 PM

Subject: [] And the meds begin... rite behind ya Rhonda...

I will be starting my medication protocal in the morning. This will

include diflucan and CSM. I will also be starting the diet plan for

candidas and taking probiotics, flax seed oils, garlic, a good solid

multi vitamin, DEHA, and yeastzyme. I am sure there are a supliment

or two I have forgotten but this is the direction I am going. While

I know it will be no joy ride I am exstatic about begining. I have

found it very " interesting " to say the least watching the decline of

so many different things from energy, mood swings, headaches, vision,

and even simple motor skills (like typing). In the military I was

trained it was all mind over matter and for the most part it has been

true, this on the other hand has been very frustrating due to the

lack of mind and a whole lot of matter. All you vets out there know

exactly what I mean I am sure. No control, no sanity. It is easy to

feel like a complete failure.

So onward, to the next step I go. I have high hopes, good attitude as

I begin this next venture in the saga of " Another one bites the

musk " I know Rhonda has began her meds recently as I will tomorow.

I am not sure of who else has just started but I know it is nice to

hear the progress and if we feel any better so I will try to keep

everyone up to speed of my progresion. Rhonda sounds like you are

doing great so far (Except for the green teeth... lol) so I am ready

and excited.

Chris....

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Well, first I hope you do figure out the other issues soon. I personally think

this might be the same with me. I have a feeling there will be some other

issues with my lungs and/or sinus' but then again you never know. I am used to

there not being a silver bullet so nothing could be that easy although at this

point progress is progress and one less is welcomed here at any cost...

what was it you were doing top exacerbate the issue? You have hung in this long

I know you can go some more. It at least seems like you are heading in the rite

direction but I know that does not keep you from being frustrated. I have been

told that frustration is a great motivator though :)

Keep me posted and best of luck on your follow ups...

Chris...

L <knightshotter@...> wrote:

I started CSM in mid January. I had some immediate results but it is not

addressing everything at least for me. I go back for my 12 week followup in

a few weeks. I also have MS and doc had thought CSM would address all of

this but this really isn't holding true from what I can see. I had another

follow-up 90 day MRI today after what seems to be 7 straight days of

exacerbation. Still having trouble with walking and such but trying to hang

in there. Anyway, like I said CSM did initially seem to address certain

problems and some addressed that hadn't been addressed in a along time but

it is not proving to be the total cure for me.A bit frustrated but hanging

in there.

_____

From: [mailto: ]

On Behalf Of unitedstatesvet

Sent: Friday, March 24, 2006 4:16 PM

Subject: [] And the meds begin... rite behind ya Rhonda...

I will be starting my medication protocal in the morning. This will

include diflucan and CSM. I will also be starting the diet plan for

candidas and taking probiotics, flax seed oils, garlic, a good solid

multi vitamin, DEHA, and yeastzyme. I am sure there are a supliment

or two I have forgotten but this is the direction I am going. While

I know it will be no joy ride I am exstatic about begining. I have

found it very " interesting " to say the least watching the decline of

so many different things from energy, mood swings, headaches, vision,

and even simple motor skills (like typing). In the military I was

trained it was all mind over matter and for the most part it has been

true, this on the other hand has been very frustrating due to the

lack of mind and a whole lot of matter. All you vets out there know

exactly what I mean I am sure. No control, no sanity. It is easy to

feel like a complete failure.

So onward, to the next step I go. I have high hopes, good attitude as

I begin this next venture in the saga of " Another one bites the

musk " I know Rhonda has began her meds recently as I will tomorow.

I am not sure of who else has just started but I know it is nice to

hear the progress and if we feel any better so I will try to keep

everyone up to speed of my progresion. Rhonda sounds like you are

doing great so far (Except for the green teeth... lol) so I am ready

and excited.

Chris....

FAIR USE NOTICE:

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Guest guest

I didn’t follow your email. I have multiple sclerosis. I have other

diseases. There has been a belief that some of my issues were mycotoxins

mediated (not just mold) but also overexposure to chemical and pesticide for

example). My doc following Dr. Shoemaker’s protocol found that I badly

failed the VCS visual contrast testing. After 30 and 60 day follow-ups while

on CSM, my VCS visual testing had improved dramatically. I saw that you are

also following a yeast and diflucan protocol but for me, yeast and Candida

are not issues for me. I do follow a strict food allergy program based on a

profile as well.

It was hoped that I would see huge progress after continuing to use CSM.

Initially I did see some huge progress but much of that has let up. You said

you hope they figure out the other issues soon but I think these other

issues have been figured out. It is just that we had hoped that the CSM

would help or alleviate more symptoms which at the moment it has not. I

think our health issues are so very complicated and no magic bullet is going

to address all of them and so here we are.

There is nothing specific I am doing to exacerbate my issues so again can’t

answer your questions. I do find that at times, my symptoms exacerbate at

times of heat (hot weather, over exertion, stress, fatigue etc) but those

are really not big issues right now but for whatever reason, my MS symptoms

are worsening dramatically. An regency MRI was in fact ordered and done this

morning to see if they can find something specific.

I am frustrated having gone from wheelchair to walker to cane and then to

walking unassisted and now back needing to use assistance to walk all over

again and fear about what this means over the long-term.

I see my doc that does the CSM protocol in a few weeks. My neuro did his

usual well at least you aren’t in assisted living just yet parody which

makes me want to scream. Anyway that is all here but just wanted to chime

in….It is hard for me because I have health issues which sit on top of the

chemical and mold exposure so it all comes on top of each other and crates

problems and hard to differentiate at times between what is causing one

thing vs another.

_____

From: [mailto: ]

On Behalf Of Tazin Round

Sent: Friday, March 24, 2006 6:13 PM

Subject: RE: [] And the meds begin... rite behind ya Rhonda...;

CSM me too

Well, first I hope you do figure out the other issues soon. I personally

think this might be the same with me. I have a feeling there will be some

other issues with my lungs and/or sinus' but then again you never know. I

am used to there not being a silver bullet so nothing could be that easy

although at this point progress is progress and one less is welcomed here at

any cost...

what was it you were doing top exacerbate the issue? You have hung in this

long I know you can go some more. It at least seems like you are heading in

the rite direction but I know that does not keep you from being frustrated.

I have been told that frustration is a great motivator though :)

Keep me posted and best of luck on your follow ups...

Chris...

L <knightshotter@...> wrote:

I started CSM in mid January. I had some immediate results but it is not

addressing everything at least for me. I go back for my 12 week followup in

a few weeks. I also have MS and doc had thought CSM would address all of

this but this really isn't holding true from what I can see. I had another

follow-up 90 day MRI today after what seems to be 7 straight days of

exacerbation. Still having trouble with walking and such but trying to hang

in there. Anyway, like I said CSM did initially seem to address certain

problems and some addressed that hadn't been addressed in a along time but

it is not proving to be the total cure for me.A bit frustrated but hanging

in there.

_____

From: [mailto: ]

On Behalf Of unitedstatesvet

Sent: Friday, March 24, 2006 4:16 PM

Subject: [] And the meds begin... rite behind ya Rhonda...

I will be starting my medication protocal in the morning. This will

include diflucan and CSM. I will also be starting the diet plan for

candidas and taking probiotics, flax seed oils, garlic, a good solid

multi vitamin, DEHA, and yeastzyme. I am sure there are a supliment

or two I have forgotten but this is the direction I am going. While

I know it will be no joy ride I am exstatic about begining. I have

found it very " interesting " to say the least watching the decline of

so many different things from energy, mood swings, headaches, vision,

and even simple motor skills (like typing). In the military I was

trained it was all mind over matter and for the most part it has been

true, this on the other hand has been very frustrating due to the

lack of mind and a whole lot of matter. All you vets out there know

exactly what I mean I am sure. No control, no sanity. It is easy to

feel like a complete failure.

So onward, to the next step I go. I have high hopes, good attitude as

I begin this next venture in the saga of " Another one bites the

musk " I know Rhonda has began her meds recently as I will tomorow.

I am not sure of who else has just started but I know it is nice to

hear the progress and if we feel any better so I will try to keep

everyone up to speed of my progresion. Rhonda sounds like you are

doing great so far (Except for the green teeth... lol) so I am ready

and excited.

Chris....

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