Guest guest Posted March 29, 2006 Report Share Posted March 29, 2006 I have diagnosed progressive form of multiple sclerosis although I have my own opinions re the cause etc of my continued progressive nature of my disease, continued progression without remission, and non-response and continued worsening after trials with avonex and copaxone. Western Blot test was negative and tested twice. Actually my doc tested me again for Lyme from labcorp this time yesterday once again. I have very elevated Zoster titers and IgG and IgM for Zoster and doc believes I continue to have shingles type exasperation causing my issues but doesn’t understand why and my clueless MS neuro is mostly well simply clueless. .. Initially I felt much much better on the CSM. I am back on the CSM as of yesterday. He also did my fifth magnesium shot yesterday. Thinks I don’t absorb it properly now. . My latest MRI showed 5 new lesions last Friday since the Oct 05 MRI and much exasperated symptoms. LDN did not work for me (much increased spasticity and not willing to pursue it again)…. _____ From: [mailto: ] On Behalf Of jay krishnaa Sent: Wednesday, March 29, 2006 10:02 AM Subject: RE: [] question for the group; CSM vs welchol Hi , Have you been tested for lyme ? If you have lyme, the symptoms can get exacerbated when on CSM. MS and lyme are VERY much linked. Jay L <knightshotter@...> wrote: I have been on CSM for 3 months. Began having a MS exacerbation with extreme weakness in arms and legs in past 2 weeks and my Dr following shoemaker protocol said he would look into other options but otherwise wanted me back on CSM for now. (I had stopped for a week while waiting for 3rd follow-up appt). I am on the CSM yellow power btw. Quote Link to comment Share on other sites More sharing options...
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