Re: Toxic Mold Illness and MCS Question

March 26, 2006

I sure have noticed a difference, I start coughing when ever around smokers

who have it on their clothing, from smoking in a car before meeting with

them, many perfumes and after shaves make it hard for me to breathe, one

afternoon was so bad my supervisor had to ask the person with the perfume

overdose to go home, as I could not be at my desk. I avoid going to bars,

and any night spots due to the use of perfumes and have to run quickly past

the displays in dept stores and shop only on the other floor levels, the

main floors are toxic to me. It makes it hard to shop, go out for evening

entertainment, it really limits your life style, I have become much of a

home body as that is where I feel safe.

-- [] Toxic Mold Illness and MCS Question

I'm curious how many of you who have toxic mold illness progressed to

becoming reactive to everyday chemicals and fragrances? Would love to hear

from some of you and your experiences.

Thanks so much,

Rosie

FAIR USE NOTICE:

March 26, 2006

I have Rosie,

One was last night when my daughter came in from work. She works at

Chilies and the smell from the cigarette smoke in the smoking section

that she worked at, made me very ill. I had her to bag her clothing

in a trash bag until she could wash them. I can't stand purfumes or

any cleaning products anymore. I use mostly water and vinegar for

cleaning and Ivory dish washing soap when I need " soapy " cleaning. I

usually rinse my clothes twice.

I am more sensitive to odors now.

>

> I'm curious how many of you who have toxic mold illness progressed

to

> becoming reactive to everyday chemicals and fragrances? Would love

to hear

> from some of you and your experiences.

> Thanks so much,

> Rosie

>

March 26, 2006

" healthier4all " < wrote:

>

> I'm curious how many of you who have toxic mold illness progressed

to becoming reactive to everyday chemicals and fragrances? Would love

to hear from some of you and your experiences.

> Thanks so much,

> Rosie

>

This was the manner in which my illness progressed.

The secondary reactivities abated in the reverse order of appearance

as a result of mold avoidance.

I make no particular effort to avoid fragrances, petrol fumes or any

of the other chemical irritants anymore.

Dr Shoemaker described the basis for this phenomenon.

-

March 26, 2006

Rosie,

As you already know we were all exposed in our family. However, my husband

and daughter have become VERY re-active. Especially, my daughter. But, it

wasn't until after starting the diet and getting a few of her symptoms under

control, that is started to rear it's ugly head where I could recognize it

with the help of you and Sharon. She gets sick every Thursday, like clock

work. Has done this since the start of school. But, she had sooo many

other things going on I couldn't figure it out. Now, with many symptoms

better this week we were able to put our finger on it. Thursdays, she has

gym class. She also has it on Wednesday. Wednesday she doesn't feel to

bad. But, Thursday the minute she walks in she starts shaking, dizzy,

nausea, headache, stomach ache, sweating. It usually takes 4-5 days for her

to somewhat recover. Just in time to go back to the gym. Also, January we

took her to an indoor water park. Well, she got sick. That was the week

she ended up in the hospital. But, didn't link it all together until now

when I look back. 8 weeks ago, took her to an indoor pool. With in 5

minutes she was sick. I think that was when I started wondering what it

could be, but had not a clue until this week. So, she will not be going to

the gym this week. I can pull this off for a couple of weeks with the

school. But, they are going to soon be asking for a letter from a doctor.

Not quit sure how I will pull this one off. But, I have to try. It is

imperative to her health.

Today, I cleaned out all my cupboards-soaps, shampoo, hairspray, nail

polish, laundry det., perfumes, smelly room sprays, any chemical I could

find, and so forth. Got my ALL. Got her some protective face masks, just

incase. Am going to start washing her bedding 1st, and her clothes for 3

days. Have removed all clothing out of her room for now, until I can wash

it properly. As, I know everything has to be washed properly now, but there

is only so many hours in one day.

I have learned alot from you and the others. I believe my daughters life

was not only changed, and will continue, but her quality of life will be

better because of this group. Thank God for all of you. Thank you so much.

I know I will find a doctor to write a letter for the school, because I will

not give up. That's what all of you have taught me. Don't give

up!!!!!!!!!!!!!!

Thank you,

[] Toxic Mold Illness and MCS Question

> I'm curious how many of you who have toxic mold illness progressed to

> becoming reactive to everyday chemicals and fragrances? Would love to

> hear

> from some of you and your experiences.

> Thanks so much,

> Rosie

>

> FAIR USE NOTICE:

>

March 27, 2006

erikmoldwarrior <erikmoldwarrior@...> wrote:

This was the manner in which my illness progressed.

The secondary reactivities abated in the reverse order of appearance

as a result of mold avoidance.

I make no particular effort to avoid fragrances, petrol fumes or any

of the other chemical irritants anymore.

Dr Shoemaker described the basis for this phenomenon.

-

Ok I've been lurking for a while trying to figure out why I'm so sick.

my brain isn't too good so would you use smaller words. Are you saying

you used to get sick from odors and chemicals but not any more? What did you

do.

Everything makes me sick; dizzy, hurts my chest, my muscles, my brain is mush,

everything and I mean everything and stay sick. I don't know what to do.

What did this Dr. S say causes this. Does Dr.S have problems like we do with

odors and chemicals and molds or he is well?

Lin

FAIR USE NOTICE:

March 27, 2006

Im still VERY sick from mold symptoms to MCS. All my other allergies have

gone haywire as well. And I have been out of my moldy work place for two and a

half years. But I was there eight years.

Janet

March 27, 2006

Hi Lin, I think what is talking about is the second stage of

when you get out of the mold . with me, my illnesses all ran together

and olny after I got out of the mold for a while did they start

seperateing a little, when some improved and others got worse or just

showed theri selfs more.. you sound like your pretty sick. I haven't

read moldworriers or seen dr. shoemaker, but do agree that there is a

secondary effects after you get out of mold, or maybe its explained

better by saying that while in the mold the toxins are damageing all

your organs, I think , with each person, depending on types, lenth

and amounts of exposure, plus each persons own body make-up, will

deturmine how well they recover after getting out. I know with me,

the effects that I now suffer from a MCS attack is very close to the

effects I had while in the mold, except the allergy type symptoms are

not there(like the runny nose,) MCS is caused by exposure to 2 or

more toxins, but that doesn't mean that everyone that has more than 2

toxic molds in theri home well get it. there is some evidence that

the most toxic mold in your home (its mycotoxins) may overtake the

others. I fell this was true in my first home,to trichathecene

mycotoxins, because I have linked most of my symptoms and illnesses,

while in that home to it. Im not saying the others did not effect me

too, but were much lesser. in my second home, aflatoxins,and ?? (cant

remember other one) and from what I read they explain most of my

illnesses from that home, but there was some others there too. and

yeast and candida played theri role in both homes. humm, I need to go

back and reread what molds produce what mycotoxins. maybe could

explain the secound stage to us. I know I suffered withdrawal when I

got away from the mold, and basically didn't fell like I got out of

the mold at all. the only symptoms that went away was the, what I

call allergy type symptoms. watery eyes, nose, sore throat and my

ears recovered some, and the white and black flashes in my eyes went

away.

> This was the manner in which my illness progressed.

> The secondary reactivities abated in the reverse order of

appearance

> as a result of mold avoidance.

> I make no particular effort to avoid fragrances, petrol fumes or

any

> of the other chemical irritants anymore.

> Dr Shoemaker described the basis for this phenomenon.

> -

>

> Ok I've been lurking for a while trying to figure out why I'm so

sick.

> my brain isn't too good so would you use smaller words. Are

you saying you used to get sick from odors and chemicals but not any

more? What did you do.

> Everything makes me sick; dizzy, hurts my chest, my muscles, my

brain is mush, everything and I mean everything and stay sick. I

don't know what to do.

> What did this Dr. S say causes this. Does Dr.S have problems like

we do with odors and chemicals and molds or he is well?

> Lin

>

> FAIR USE NOTICE:

>

March 31, 2006

Rosie,

This is totally my history. The aching, coughing, joint pain, breathing

pain etc began in the " renovated " library-

but the damage sent me fainting when i entered the room. Ive not been

there since June 0f 2004 when they began more testing etc.

I had sent books to the texas tech university labs, got carpet readings

- lots of mold exposure.

Then about a month - maybe a bit longer- after being home I began with

the the ned for isolation.

Ive lived pretty isolated now going on 20 motnhs I guess.

My sophomore daughter moved out - couldnt tolarate anything and pretty

much lived in one empty room with a non treated mattress on a metal

frame. still have that, still sleep there, but the world is more

accessable now as Ive learned to use my respirator to block

laundry/bounce/cars/all fragrances.

My daughter moved back and now strips and showers and uses a room behind

plastic and aluminum to contain her " smells

this is our reality now.

Ive had a handful of successful dinners out, but we call in advance, we

go at an odd hour and insist on unfragranct environments. A handful of

places do this for us -

So yes - toxic mold exposures (was fit, healthy, productuve before this

leaking ) and then MCS - and its so debilitating.

Meanwhile, those who let the leaks persist suffer in no way. They still

work. I suffer from it.

healthier4all wrote:

I'm curious how many of you who have toxic mold illness progressed to

becoming reactive to everyday chemicals and fragrances? Would love to hear

from some of you and your experiences.Thanks so much, Rosie

>

April 1, 2006

Rosie,

I was exposed to Stachybotrys Mold as I am sure you know.

Recently I have been noticing an increased level to certain chemicals or

smells. I never really paid much attention to it before but it is getting a lot

worse. I mentioned this to KC the other night. Weird?

Marcie

erikmoldwarrior <erikmoldwarrior@...> wrote:

" healthier4all " < wrote:

>

> I'm curious how many of you who have toxic mold illness progressed

to becoming reactive to everyday chemicals and fragrances? Would love

to hear from some of you and your experiences.

> Thanks so much,

> Rosie

>

This was the manner in which my illness progressed.

The secondary reactivities abated in the reverse order of appearance

as a result of mold avoidance.

I make no particular effort to avoid fragrances, petrol fumes or any

of the other chemical irritants anymore.

Dr Shoemaker described the basis for this phenomenon.

-

FAIR USE NOTICE:

April 1, 2006

On Behalf Of Marcie McGovern

Rosie, I was exposed to Stachybotrys Mold as I am sure you know.

Recently I have been noticing an increased level to certain chemicals or

smells. I never really paid much attention to it before but it is getting a

lot worse. I mentioned this to KC the other night. Weird? Marcie>>

Hi Marcie:

No it's not weird at all. Quite " normal " really. Often we don't think

about causes of our symptoms because we are so ill. It's good to discuss

reactions to chemicals, fragrances, perfumes, etc so we become more aware

and can try to avoid them if at all possible. With each exposure we become

more sensitized and more reactive. Having a non-toxic home really isn't

that hard nor expensive.

I consulted with a Mom today on the phone for a while. Has a very ill 6

year old plus the Mom is ill and loosing her vision. She doesn't have a

qualified physician to diagnose nor treat and thought she only has MCS

(multiple chemical sensitivities). I asked a few questions and symptoms and

sure sounded as if they both had been exposed to toxic mold. Turns out they

did live in a very toxic mold home which they had to leave; the next home

had mold in it also. Current home they are renting she said is mold free.

No one ever discussed toxic mold with her. What's fascinating; she said she

has a friend who is a Vet and ill from mold. I sent her lots of email links

and invited her to our group. We just have to be open enough to look for

all causative factors rather than just one.

Rosie

April 1, 2006

This was the manner in which my illness progressed.

> The secondary reactivities abated in the reverse order of

appearance

> as a result of mold avoidance.

> I make no particular effort to avoid fragrances, petrol fumes or

any

> of the other chemical irritants anymore.

> Dr Shoemaker described the basis for this phenomenon.

> -

>

> , does Dr. Shoemaker go into any details on MCS? Im wondering

if re-exposure might play a role in why some get better and some

dont. I was exposed 7 years in first home, 4 months in seconds home,

out a month than tried staying there again when the insurance

adjuster sprayed something on the moldy sheetrock and told me he had

killed it,NOT, one night re-exposed, sicker than before.

one month out of there , than moved back into first home, where the

symptoms came back with this home and were much worse, which is when

it dawned on my that there had to be mold there too. I am a believer

of re exposure being really bad, because it was for me. but dont

know if it plays a part in how well you recover.

>

> FAIR USE NOTICE:

>

April 1, 2006

" who " <jeaninem660@...> wrote:

> > , does Dr. Shoemaker go into any details on MCS? <

" Many SBS patients also begin to notice that they become more

sensitive to fumes, smells and chemicals. With repeated exposures,

the sensitivity for some becomes more pronounced. In the full-blown

sensitive patient, someone with Multiple Chemical Sensitivity

(MCS), just a few seconds of smelling fumes is overwhelming. Mere

seconds of " off-gassing " coming from computers and phones, new

paint, new carpet, freshly printed reading material, or even just a

ream of copy paper , can make patients sick for weeks. Our

treatment protocols for " multiple Chemical Sensitivity " may bring

order to this difficult-to-confirm diagnosis if the illnesss is

caught quickly after it appears. To date, having seen over 500 MCS

patients, I have yet to find one who wasn't made ill early in the

illness by exposure to water-damaged buildings.

I continue to look for sources of the origin of MCS other than mold

exposure - so far without success "

Page 53 " Why the Courthouse was Dangerous "

Mold Warriors.

Now you have to look carefully at what Dr Shoemaker is saying here.

MCSers who had a triggering chemical exposure recoil, and get angry

at this paragraph because their perception is that this claims " Mold

is the Cause of Everything " - which is obviously not the case.

If you read the ENTIRE book, what Dr Shoemaker says that the HLA

susceptibility to molds is " unveiled " by a cytokine storm from

various infections and toxic exposures.

So different " Triggers " unleashes the inflammatory " overkill " and

the biotoxins - which include mycotoxins then become the chronic

mediators of the illness.

Perhaps the chemically sensitized patient managed to successfully

avoid the exposure that initially unleashed the illness, but if he

has the genetic susceptibility for cytokine storm from mycotoxins,

the immune system is kept upregulated by a completely different,

very prevalent and ubiquitous-difficult-to-avoid toxin.

Read Chapt. 24 " 21st Century Medicine:

" It's the Inflammation, Stupid " for an explanation of this.

-

April 1, 2006

" It's the Inflammation, Stupid " for an explanation of this.

> -

> Mr. Expert, how many letters have you wrote to goverment angencys,

doctors, exc.? regarding your expertise of the matter.

and gee, sence I have a neighbor sick with MCS from working with

chemicals from work, Im fully aware of MCs being caused by more than

exposure to toxic molds. Im also fully aware that some exposed to toxic

molds in theri home are also getting exposed to other toxins that put

out tiny particles in the air and are also inhaled. dont put me in your

stupied list so quick, garenteed I give give you a run for your money.

Mr. smart azz

April 1, 2006

so , your saying you went to the mountains and your inflamation

went away and so did your MCS? hummm, not in my case, but I didnt go to

the mountains, lol's maybe you can, in your own words, tell us your

exposure history, and of your great recovery from MCS, even though you

just stated a few days ago that you were suffering from a flare up of

MCS.

-

-- In , " who " <jeaninem660@...> wrote:

>

> " It's the Inflammation, Stupid " for an explanation of this.

> > -

> > Mr. Expert, how many letters have you wrote to goverment angencys,

> doctors, exc.? regarding your expertise of the matter.

> and gee, sence I have a neighbor sick with MCS from working with

> chemicals from work, Im fully aware of MCs being caused by more than

> exposure to toxic molds. Im also fully aware that some exposed to

toxic

> molds in theri home are also getting exposed to other toxins that put

> out tiny particles in the air and are also inhaled. dont put me in

your

> stupied list so quick, garenteed I give give you a run for your

money.

> Mr. smart azz

>

April 2, 2006

still waiting , how many letters conserning mold illness and

your great cure for it have you wrote. Dr. Shoemaker suffers from

MCS, have you told him of your cure? which other than saying extreme

advoidance, you haven't really explained. and what have you done as

far as sending letters to any goverment angencys, doctors, important

people who might get

involved.

--- In

April 2, 2006

" who " wrote:

> Mr. Expert, how many letters have you wrote to goverment

angencys, doctors, exc.? regarding your expertise of the matter.

and gee, sence I have a neighbor sick with MCS from working with

chemicals from work, Im fully aware of MCs being caused by more than

exposure to toxic molds. Im also fully aware that some exposed to

toxic molds in theri home are also getting exposed to other toxins

that put out tiny particles in the air and are also inhaled. dont

put me in your stupied list so quick, garenteed I give give you a

run for your money.

> Mr. smart azz

Who, I wasn't calling you stupid - That's the title of the chapter.

Mold Warriors Chapt. 24 - " 21st Century Medicine:

" It's the Inflammation, Stupid "

Honest! - That's what it's called.

-

April 2, 2006

allritey than, good answer, now how about answers to the other

questions, in your own words

please.

> > Mr. Expert, how many letters have you wrote to goverment

> angencys, doctors, exc.? regarding your expertise of the matter.

> and gee, sence I have a neighbor sick with MCS from working with

> chemicals from work, Im fully aware of MCs being caused by more

than

> exposure to toxic molds. Im also fully aware that some exposed to

> toxic molds in theri home are also getting exposed to other toxins

> that put out tiny particles in the air and are also inhaled. dont

> put me in your stupied list so quick, garenteed I give give you a

> run for your money.

> > Mr. smart azz

>

> Who, I wasn't calling you stupid - That's the title of the chapter.

> Mold Warriors Chapt. 24 - " 21st Century Medicine:

> " It's the Inflammation, Stupid "

>

> Honest! - That's what it's called.

>

> -

>

April 2, 2006

,

I think that some are expressing irritation on the board. I'm sure that it

is obvious to you, as it is to all of us. I respect KC as a moderator/owner

or the group, and by no means want to start anything. However, it seems

that you are not understanding where the irritation is coming from. Let me

explain, so that we can all appreciate your wealth of knowledge, and

experience.

It is very frustrating to ask questions for months that get no answers. Ex:

Many have ask if you work, are you married, do you have kids,

why haven't you went and seen Dr. S since you endorse his book at every

chance you get, plus others I can't even remember. We all answer the

questions when asked, why not you? Why can't you share with us?

Why is when asked point blank questions you always refer to the book? Not

everyone has a copy or can they afford it. You tell people to run for the

mountains and live a life style that they cannot even begin to imagine.

Many wonder how you afford it. I think if you came on here and told us you

inherited millions of dollars and that allows you to live this life style.

Then we could all understand your ignorance for those of us who can barely

afford food, let alone living your life style.

If you are not married, and have no kids that would also help with the

irritation. We could then understand why you don't understand family, and

kids. We would see that you could not even in a trillion years put yourself

in any of our shoes. Ex: running with kids, moving from place to place,

buying books to feed/clothes/rent for your family, and so forth.

I think we all just want to understand you better. We would like to see an

who is not so full of knowledge, and judgment against us. But a

compassionate, caring, understanding . Everyone who comes here needs

this. Even you . You need our understanding, and compassion for you

when you are sick. Allow us to understand you better. So we can help you

too.

[] Re: Toxic Mold Illness and MCS Question

> " who " wrote: