Re: Chemical Brain Injury and Rx Drugs Help Please

March 26, 2006

Rosie,

It's been a while since I've been around this stuff,

but it sounds like his evaluation is right out of the

" DSM " and I'm not trying to be funny here, that's

what it's called, the Diagnostic & Statistical Manual.

When it comes to Prozac, you could look that up online

in the " PDR " again, not being smart. That is the

Physicians Desk Reference, and it will give you a

great deal of info. about the drug.

Wish I could be of more help.

Barb

--- healthier4all <Healthier4All@...>

wrote:

> I need help please!

>

> I have a friend who is seeing her HMO neurologist

> this Wednesday for

> follow-up for some tests done to determine the cause

> of her cognitive

> dysfunctions. We all know toxic mold and chemicals

> can and do damage our

> brains. She had a neuropsychological evaluation (6

> hour test) by a PhD who

> is uneducated in toxic mold and chemical brain

> damage, had follow-up

> telephone consult and he said he is suggesting to

> the neurologist to start

> her immediately on Prozak or similar drug.

>

> I know such Rx drugs will not help with her

> chemically injured brain damage;

> but probably worsen the damage and her symptoms. I

> want to give her an

> article which she can take to her neurologist

> Wednesday when she declines

> the pharmacotherapy. Does anyone have an article or

> report they would share

> with me to give to my friend please stating why she

> should not take the Rx

> drug and why it would only worsen her symptoms.

>

> The PhD's evaluation of her:

>

> " Her cognitive complaints are buried beneath a

> prominent psychiatric overlay

> that includes somatization in response to stress,

> depressed and anxious

> mood, insomnia, and poignant fears she is losing her

> mind. She lacks

> insight concerning the causes of her symptoms,

> motives and feelings.

>

> His official recommendations:

>

> 1. Under guidance of physician, pharmacotherapy for

> her depression and

> somatization is recommended.

> 2. Patient education and self-treatment. General

> stress management

> techniques including yoga, massage therapy and

> soothing music and scents.

> 3. Physical exercise

> 4. Cognitive coping strategies. Until she

> experiences improvement in

> her mood and stress level, she will likely need to

> write down information to

> enhance the probability of subsequent recall.

> Patient should be encouraged

> to carry a notebook with her and record important

> information. "

>

> Thanks for your help in advance. This means much to

> me,

>

> Rosie

>

> [Non-text portions of this message have been

> removed]

>

__________________________________________________

March 27, 2006

Rosie,

I am not to up on the articles, but will try to help find something.

[] Chemical Brain Injury and Rx Drugs Help Please

>I need help please!

>

> I have a friend who is seeing her HMO neurologist this Wednesday for

> follow-up for some tests done to determine the cause of her cognitive

> dysfunctions. We all know toxic mold and chemicals can and do damage our

> brains. She had a neuropsychological evaluation (6 hour test) by a PhD

> who

> is uneducated in toxic mold and chemical brain damage, had follow-up

> telephone consult and he said he is suggesting to the neurologist to start

> her immediately on Prozak or similar drug.

>

> I know such Rx drugs will not help with her chemically injured brain

> damage;

> but probably worsen the damage and her symptoms. I want to give her an

> article which she can take to her neurologist Wednesday when she declines

> the pharmacotherapy. Does anyone have an article or report they would

> share

> with me to give to my friend please stating why she should not take the Rx

> drug and why it would only worsen her symptoms.

>

> The PhD's evaluation of her:

>

> " Her cognitive complaints are buried beneath a prominent psychiatric

> overlay

> that includes somatization in response to stress, depressed and anxious

> mood, insomnia, and poignant fears she is losing her mind. She lacks

> insight concerning the causes of her symptoms, motives and feelings.

>

> His official recommendations:

>

> 1. Under guidance of physician, pharmacotherapy for her depression and

> somatization is recommended.

> 2. Patient education and self-treatment. General stress management

> techniques including yoga, massage therapy and soothing music and scents.

> 3. Physical exercise

> 4. Cognitive coping strategies. Until she experiences improvement in

> her mood and stress level, she will likely need to write down information

> to

> enhance the probability of subsequent recall. Patient should be

> encouraged

> to carry a notebook with her and record important information. "

>

> Thanks for your help in advance. This means much to me,

>

> Rosie

>

March 27, 2006

Thanks . Would appreciate if you have time and the energy after your

massive housecleaning today for Bianca. You did great!

Rosie

On Behalf Of

I am not to up on the articles, but will try to help find something.

March 27, 2006

Going to a PhD who knows nothing about CI, is analogous to going to a

veteranian for a charley horse in ones calf.

THe government has got a lock on those who are applying for SS with the

catch all psych diagnosis.

They play the wait game so that people will take ANY rating just to get

the money.

It's interesting to note that SSA has on staff, at least here in NV

psyhcologist who do their *INDEPENDENT EVAL* for the 200 and some odd

dollars that they pay for such services. It does not matter that these

people know jack poop about chemcial injury let alone jhuman physiology,

but they diagnosis what they are familiar with.

IT's a game of who can last the longest. After my initial go around with

the morons in Cartoon, oopsk I mean Carson City, NV, and my threatening

legal action for their chief medical officer making medical judgments

without eval on me they backed down and I got to go and see someone I

AGRRED to see.

It was a 10 month run of hell, but, it was done my way with me being in

control of the already biased system.

Do not let anyone who is not familiar with this illness make you take

drugs that are not made for this.

If this is *IMO* any depression, it would most likely be secondary to

hacving anillness that is misunderstood. Depression didn't casue it, the

illness cause, if any depression.

On Sun, 26 Mar 2006, healthier4all wrote:

> Date: Sun, 26 Mar 2006 16:19:22 -0600

> From: healthier4all <Healthier4All@...>

> Reply-

>

> Subject: [] Chemical Brain Injury and Rx Drugs Help Please

>

> I need help please!

>

> I have a friend who is seeing her HMO neurologist this Wednesday for

> follow-up for some tests done to determine the cause of her cognitive

> dysfunctions. We all know toxic mold and chemicals can and do damage our

> brains. She had a neuropsychological evaluation (6 hour test) by a PhD who

> is uneducated in toxic mold and chemical brain damage, had follow-up

> telephone consult and he said he is suggesting to the neurologist to start

> her immediately on Prozak or similar drug.

>

> I know such Rx drugs will not help with her chemically injured brain damage;

> but probably worsen the damage and her symptoms. I want to give her an

> article which she can take to her neurologist Wednesday when she declines

> the pharmacotherapy. Does anyone have an article or report they would share

> with me to give to my friend please stating why she should not take the Rx

> drug and why it would only worsen her symptoms.

>

> The PhD's evaluation of her:

>

> " Her cognitive complaints are buried beneath a prominent psychiatric overlay

> that includes somatization in response to stress, depressed and anxious

> mood, insomnia, and poignant fears she is losing her mind. She lacks

> insight concerning the causes of her symptoms, motives and feelings.

>

> His official recommendations:

>

> 1. Under guidance of physician, pharmacotherapy for her depression and

> somatization is recommended.

> 2. Patient education and self-treatment. General stress management

> techniques including yoga, massage therapy and soothing music and scents.

> 3. Physical exercise

> 4. Cognitive coping strategies. Until she experiences improvement in

> her mood and stress level, she will likely need to write down information to

> enhance the probability of subsequent recall. Patient should be encouraged

> to carry a notebook with her and record important information. "

>

> Thanks for your help in advance. This means much to me,

>

> Rosie

>

March 27, 2006

Some antidepressants can have neurogenic activity - they can help

promote new dendrite growth, which might be a good thing for people

who have been exposed to toxic substances.

Every person is different, and even good doctors are not so

experienced with this stuff that they 'know' what is going (or not

going) to happen..

Trust is THE crucial issue between a patient and a physician. The

patient has to trust that the doctor will try to help and not simply

do 'cookie cutter medicine' (so few doctors have time to do this

anymore) and the doctor has to trust that the patient will try to

relate significant experiences and not try to manipulate the

situation. (its been my experience that so few doctors know enough

about mold that I find myself trying to explain things and they don't

have the time to even get the context they need, let alone go farther

than I have..and then offer treatments..)

Poisons in our environment are a hot button issue.. There is NO

getting around that.

March 27, 2006

As someone who has spent a good chunk of my life living in a mold

hell, I think that the symptoms the doctor describes could very well

be caused by mold illness, and that the doctor should not be condemmed

for not knowing about it.

All of us need to be very careful because we carry around a lot of

resentment at a system which is very slow to learn about things like

this..

You know the expression, you catch more flies with honey than ..

(something else, i forget what)

If you treat the doctor with some respect, AND BRING ALONG SUPPORTING

DATA TO EXPLAIN THE SITUATION MORE EFFECTIVELY you might find the

doctor understanding you and us better..

In my experience doctors are just like the rest of us, they just have

degrees.. its not rocket science.. They also have to cover their asses

in this mixed up bureaucratic world.. if you understand that it helps

a lot..

March 27, 2006

I am still looking for stories about neurotin and those with chem injury

who have taken it.

Considering its a drug for seizures and it is not researxched for chem

injury...have those who have been on it gone off of it and what were the

effects.

In my gut I can't understand how they can do a guinea pig test on people

without trying it out on animal models.

IF you do not have seizures, take it, then go off of it can it trigger

seizures?

No double blind studies have been done and its very scary....just like

them using the public to test the effects of pesticides on people under

the guise of oh it's safe....then after usage by humans its proven toxic.

On Sun, 26 Mar 2006, LiveSimply wrote:

> Date: Sun, 26 Mar 2006 22:55:58 -0800

> From: LiveSimply <quackadillian@...>

> Reply-

>

> Subject: Re: [] Chemical Brain Injury and Rx Drugs Help Please

>

> Some antidepressants can have neurogenic activity - they can help

> promote new dendrite growth, which might be a good thing for people

> who have been exposed to toxic substances.

>

> Every person is different, and even good doctors are not so

> experienced with this stuff that they 'know' what is going (or not

> going) to happen..

>

> Trust is THE crucial issue between a patient and a physician. The

> patient has to trust that the doctor will try to help and not simply

> do 'cookie cutter medicine' (so few doctors have time to do this

> anymore) and the doctor has to trust that the patient will try to

> relate significant experiences and not try to manipulate the

> situation. (its been my experience that so few doctors know enough

> about mold that I find myself trying to explain things and they don't

> have the time to even get the context they need, let alone go farther

> than I have..and then offer treatments..)

>

> Poisons in our environment are a hot button issue.. There is NO

> getting around that.

>

> FAIR USE NOTICE:

>

March 27, 2006

How about this one. Quit lengthy. But, VERY surprising what they have

found.

http://www.rense.com/general/pro.htm

Re: [] Chemical Brain Injury and Rx Drugs Help

>> Please

>>

>> Some antidepressants can have neurogenic activity - they can help

>> promote new dendrite growth, which might be a good thing for people

>> who have been exposed to toxic substances.

>>

>> Every person is different, and even good doctors are not so

>> experienced with this stuff that they 'know' what is going (or not

>> going) to happen..

>>

>> Trust is THE crucial issue between a patient and a physician. The

>> patient has to trust that the doctor will try to help and not simply

>> do 'cookie cutter medicine' (so few doctors have time to do this

>> anymore) and the doctor has to trust that the patient will try to

>> relate significant experiences and not try to manipulate the

>> situation. (its been my experience that so few doctors know enough

>> about mold that I find myself trying to explain things and they don't

>> have the time to even get the context they need, let alone go farther

>> than I have..and then offer treatments..)

>>

>> Poisons in our environment are a hot button issue.. There is NO

>> getting around that.

>>

>> FAIR USE NOTICE:

>>

March 27, 2006

Well this is very interesting! A few months ago, my

doctor gave me a script for Neurontin, because I have

neuropaathy in both my legs and feet from when I fell

last July, but my ins. wouldn't cover the Neurontin,

said I had to try a number of different

antidepressants first, such as Amitriptyline,

Nortriptyline, etc. Well, I wasn't about to take that

stuff, so ended up not taking anything.

Then last week the doctor gave me a script for Lyrica

(50 mg caps) and said it is new and beter than

Neurontin. Haven't had a chance to check that out yet,

so haven't taken it.

Have a neighbor that took Neurontin for quite a while

for Neuropathy and was fine when she stopped.

Barb

--- Angel!! <jap2bemc@...> wrote:

> I am still looking for stories about neurotin and

> those with chem injury

> who have taken it.

>

> Considering its a drug for seizures and it is not

> researxched for chem

> injury...have those who have been on it gone off of

> it and what were the

> effects.

>

> In my gut I can't understand how they can do a

> guinea pig test on people

> without trying it out on animal models.

>

> IF you do not have seizures, take it, then go off of

> it can it trigger

> seizures?

>

> No double blind studies have been done and its very

> scary....just like

> them using the public to test the effects of

> pesticides on people under

> the guise of oh it's safe....then after usage by

> humans its proven toxic.

__________________________________________________

March 27, 2006

On Behalf Of LiveSimply

>>As someone who has spent a good chunk of my life living in a mold

hell, I think that the symptoms the doctor describes could very well

be caused by mold illness, and that the doctor should not be condemmed

for not knowing about it.>>

Well said and I am not condemning my friend's neurologist nor the other

physicians she has seen. Dr. Schaller's e-book which he so graciously gave

us discusses this. I hope you took advantage of his offer.

I know 100% she has had mold and chemical exposure which has damaged her

brain. My only concern is that her HMO group of physicians, after reviewing

the results from the neuropsychological evaluation will label her as a

depressed, anxious woman whose physical systems are " in her head " and she

needs anti-depressants rather than looking at the cause of her many physical

symptoms as well as her cognitive impairment due to chemical and toxic mold

brain injury.

My only objectives are to support my friend and many like her that her

illness is caused by toxic mold and chemicals and to give her(them) some

credible literature they can share with their physicians. I'm hoping this

group will be able to compile and share such literature for physicians and

online links. Physicians are very busy, those in HMO's are forced to see

more patients than is wise and they have limited time to read.

>>>All of us need to be very careful because we carry around a lot of

resentment at a system which is very slow to learn about things like

this..>>

I feel the same way. Totally agree with you. Anger, bitterness and

resentment are not healthy for us.

>>You know the expression, you catch more flies with honey than ..

(something else, i forget what)

If you treat the doctor with some respect, AND BRING ALONG SUPPORTING

DATA TO EXPLAIN THE SITUATION MORE EFFECTIVELY you might find the

doctor understanding you and us better..>>>>

Exactly! Well stated and that's why I'm asking this great group for help to

compile credible data. Will help not only my friend but many in similar

situations.

Rosie

March 27, 2006

LiveSimply wrote:

> As someone who has spent a good chunk of my life living in a mold

hell, I think that the symptoms the doctor describes could very well

be caused by mold illness, and that the doctor should not be condemmed

for not knowing about it.

Even if you tell doctors what you are reacting to, bring in a sample

of the offending irritant, and offer to inhale it so they can see that

the response is exactly as you describe?

In a newspaper article eight years ago, Dr Marinkovich described

dozens of angry mold victims carrying samples in ziplock bags to

doctors and school board meetings.

As you can see by the amount of time that has passed, the " Honey " and

asking nicely didn't work.

One of the points made in my chapter is that after being rebuffed by

the top CFS doctors in the world, it took total rejection of the

medical establishment to get past their obstinence and finally get

some answers.

That is the entire basis for the title " Mold Warriors " .

-

March 27, 2006

I also want to point out that doctors may(and many do) know more

about this illness than they want to admit to. I posted a story but

it got lost in syber space, may post it later, showing a sample of

doctors knowing but not admitting to it. if you think about how this

illness being brought to the public could effect the medical and drug

industry, you could see that theres many reasons why this illness has

been played down and

ignored.

> > As someone who has spent a good chunk of my life living in a mold

> hell, I think that the symptoms the doctor describes could very well

> be caused by mold illness, and that the doctor should not be

condemmed

> for not knowing about it.

>

> Even if you tell doctors what you are reacting to, bring in a

sample

> of the offending irritant, and offer to inhale it so they can see

that

> the response is exactly as you describe?

> In a newspaper article eight years ago, Dr Marinkovich described

> dozens of angry mold victims carrying samples in ziplock bags to

> doctors and school board meetings.

> As you can see by the amount of time that has passed, the " Honey "

and

> asking nicely didn't work.

> One of the points made in my chapter is that after being rebuffed

by

> the top CFS doctors in the world, it took total rejection of the

> medical establishment to get past their obstinence and finally get

> some answers.

> That is the entire basis for the title " Mold Warriors " .

> -

>

March 28, 2006

Neurontin is not only for seizure activity, Angel. It's also for neurogenic

pain. I was on it for a few yrs after my spinal cord injury/illness, & it

helped a little--but not much. It also, I think, made me gain weight. As

far as going off it abruptly, only YOUR doc has the answer to that. NONE of

us should be abruptly discontinuing our meds, without our docs approval.

Take care,