Thanks shellie

[Guest guest]

ThanksShellie for all that great info on Dr. ,

Sounds like you have had some great experiences with them. You mentioned that they couldn't accept youyet, why was that? I imagine that with the VEPTR you have to have a certain type of curve etc.. Good luck to you and I appreciate all theinfo.

Take care,

Kelli and Santiago

Just wanted to put my 2 cents in re: Texas. I think they are wonderful. We took Moriah for an assessment in Jan. They were unable to accept her at that point, but it may still be an option for her. The best thing about them in my opinion is their thoroughness. She had a lot of different radiology done so they could know as much about her spine as possible. I just requested her info and they sent it plus all the radiology for free. After reading their reports we are discovering things about Moriah's spine that no one has told us about before. I am thankful we had her assessed so we could catch this misdiagnosis and have time to turn in a right direction for her treatment. I would definitely look into it. As someone else said, go to the links section. Best wishes to you and Santiago.

Shellie Grantkelli peasley <santiamor2002@...> wrote:

Hi everyone me again,

Thanks for the info. I re-read my message and I made it sound as if Santis curve was back like it was before, not at all.... It is much much less then before we did the casting, he went from 50 degrees to 22 degrees and you can tell the difference with his back. This is the first time Santiago has been without anything during the day. Before casting we did the boston which he wore all day and all night, and then directly to the casting, thus this is the first time I have ever noticed him for long periods of time with his curve. I miss the casts and am ready NOW to get him into another one. The doctor said he doesn't usually cast in the hot summer months, but he wanted Santiago to get in them A.S.A.P. Once we start the casting in the winter months we won't have a problem with having to wait 3 months for the next one. I have a question, my doctor mentioned that he sat in on the first two extension rod surgerys (the type of rod that grows with

the spine) that they did in TX, I believe he mentioned at San childrens hospital. They were performed by a Dr. . He mentioned that this appears to be having a lot of success and that the two surgerys that they performed were a success. Does anyone know anything about this procedure? I am just curious, I didn't get all the info I wanted because Santi was screaming and we were in hurry to catch our plane. Any feedback on what this procedure holds for us with our little ones... thanks all,

Kelli and Santiago

Do you ?New and Improved - Send 10MB messages!

Do you ?New and Improved - 100MB free storage!

__________________________________________________