RE: CSM, testing for lyme/

[Guest guest]

,

Igenex is the best lab for lyme WB as they have 'all' the borrelia specific

bands that CDC does not acknowledge. So, from what I understand they are the

most reliable and also in chronic lyme, unless it is provoked (with two weeks of

Antibiotics), one may not show positive for the bands.

People with lyme do HORRIBLY on LDN. My son who has lyme started to get facial

tics on LDN which didn't have before. It went away, after one week of stopping

the LDN. The LDN we used was transdermal at 0.5 mg. We saw the bad effects

within 3 days !

CSM can deplete some minerals and fat soluble vitamins which are already

scarce in lyme patients. So, one needs to replete minerals like magnesium and

zinc and B vitamins.

HTH

Jay

L <knightshotter@...> wrote:

I have diagnosed progressive form of multiple sclerosis although I have my

own opinions re the cause etc of my continued progressive nature of my

disease, continued progression without remission, and non-response and

continued worsening after trials with avonex and copaxone.

Western Blot test was negative and tested twice. Actually my doc tested me

again for Lyme from labcorp this time yesterday once again. I have very

elevated Zoster titers and IgG and IgM for Zoster and doc believes I

continue to have shingles type exasperation causing my issues but doesn’t

understand why and my clueless MS neuro is mostly well simply clueless.

.. Initially I felt much much better on the CSM. I am back on the CSM as of

yesterday. He also did my fifth magnesium shot yesterday. Thinks I don’t

absorb it properly now. . My latest MRI showed 5 new lesions last Friday

since the Oct 05 MRI and much exasperated symptoms. LDN did not work for me

(much increased spasticity and not willing to pursue it again)….

_____

From: [mailto: ]

On Behalf Of jay krishnaa

Sent: Wednesday, March 29, 2006 10:02 AM

Subject: RE: [] question for the group; CSM vs welchol

Hi ,

Have you been tested for lyme ? If you have lyme, the symptoms can get

exacerbated when on CSM. MS and lyme are VERY much linked.

Jay

L <knightshotter@...> wrote:

I have been on CSM for 3 months. Began having a MS exacerbation with

extreme

weakness in arms and legs in past 2 weeks and my Dr following shoemaker

protocol said he would look into other options but otherwise wanted me back

on CSM for now. (I had stopped for a week while waiting for 3rd follow-up

appt). I am on the CSM yellow power btw.

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