report on 2nd Shoemaker consult

[Guest guest]

Thanks to Shoemaker's office not receiving my November followup blood test

results until February, I was not have another phone consult with him until last

week.

I noticed that I was not feeling better (perhaps even more fatigued) than when I

started the CSM in August. When I saw the followup test results, the numbers

actually looked worse than the first ones. However, Shoemaker told me that the

original tests were done at Quest and the followup ones were done at Labcorp (so

the numbers are different between the 2 labs) - and actually I had improved a

little. I remember Shoemaker telling me that since I was one of his more

difficult cases, eventually my test results would show normal, but I would

probably not feel better - and that's when he would put me on procrit. But I am

not there yet.

1. He is putting me on Actos for a month and then I will be retested -

including a nasal culture retest and his newer test panels. This time I will

agressively followup on the lab to make sure they get the results to Shoemaker

in a timely manner.

2. I told him that a friend of mine, who has diabetes and had recently been put

on Actos, could hardly eat anything because she gained so much weight when on

Actos. Shoemaker said I won't have that problem if I stick to the no amylose

diet. I told him I had been trying it on my own and had some questions. I

asked him first that since wild rice is really a seed, could I eat that. He

said that since it took so long to cook wild rice, the amylose would be broken

down and it would not be a problem. Then I asked him what about potatoes,

carrots and other root vegetables cooked in stews or soups? Would I be able to

eat the stews or soups if I removed the offending vegetables or would the stews

and soups be " contaminated? " Shoemaker's answer surprised me. He said that as

long as those vegetables were " overcooked, " the amylose would be broken down and

I could eat them, too!

I told him that Passover was coming in a month and would I be able to have a

small taste of matzah for the first two nights of the holiday. He told me to go

off the actos a few days before and " eat, drink and be merry to enjoy the

holiday! " I was pleased at his kind and understanding response, but since I

really want to get better, I will start the Actos ASAP and if I don't finish the

one month supply in time for the holiday, so be it. My health is more

important.

3. I also told him that I had read about reading his post Katrina report on

this list. He was very pleased to know that I was aware of it. He very unhappy

that he has not been able to get this info into the press. I understand this

well - with everything that my brother-in-law, Aubrey, is going thru trying to

get the actonel story aired. (By the way, if any one ones more updated info on

Aubrey's progress, please contact me).

4. On Friday we had the person Shoemaker reccommends for our area come to our

house to do mold testing. It will take 2 weeks to get the results and in the

meantime we have to get a structural engineer in to check on the entry point for

rain water and other issues. Shoemaker said that additional treatment depends

on those test results.

Saralee Rosen

homerorse@...

[Guest guest]

Saralee - Dr. Shoemaker is a great doctor who wears many hats but it would

seem he is not a nutritionist. Amylose is a polysaccharide - that is, a

chain of sugars. It takes ENZYMES to break down amylose into simpler

sugars, not HEAT. Cooking rice, potatoes, carrots, etc. for a longer period

will not change the structure of the polysaccharide. Amylase, the enzyme

specific to amylose, is contained in our saliva & intestines and breaks down

amylose into smaller sugars such as sucrose, which are broken down by

sucrase (digestive enzyme) into glucose, which is then absorbed by the body

and which will trigger the release of insulin. And yes, wild rice contains

amylose too.

The no-amylose diet is a variation of the Specific Carbohydrate Diet, which

is described in detail in Elaine Gottschall's book Breaking The Vicious

Cycle. Elaine's diet, geared towards healing colitis, eliminates

polysaccharides from the diet; she was very knowledgeable about starches and

never suggested that cooking starchy foods for a long period made them

acceptable.

____________________________________________________

Thanks to Shoemaker's office not receiving my November followup blood test

results until February, I was not have another phone consult with him until

last week.

I noticed that I was not feeling better (perhaps even more fatigued) than

when I started the CSM in August. When I saw the followup test results, the

numbers actually looked worse than the first ones. However, Shoemaker told

me that the original tests were done at Quest and the followup ones were

done at Labcorp (so the numbers are different between the 2 labs) - and

actually I had improved a little. I remember Shoemaker telling me that

since I was one of his more difficult cases, eventually my test results

would show normal, but I would probably not feel better - and that's when he

would put me on procrit. But I am not there yet.

1. He is putting me on Actos for a month and then I will be retested -

including a nasal culture retest and his newer test panels. This time I

will agressively followup on the lab to make sure they get the results to

Shoemaker in a timely manner.

2. I told him that a friend of mine, who has diabetes and had recently been

put on Actos, could hardly eat anything because she gained so much weight

when on Actos. Shoemaker said I won't have that problem if I stick to the

no amylose diet. I told him I had been trying it on my own and had some

questions. I asked him first that since wild rice is really a seed, could I

eat that. He said that since it took so long to cook wild rice, the amylose

would be broken down and it would not be a problem. Then I asked him what

about potatoes, carrots and other root vegetables cooked in stews or soups?

Would I be able to eat the stews or soups if I removed the offending

vegetables or would the stews and soups be " contaminated? " Shoemaker's

answer surprised me. He said that as long as those vegetables were

" overcooked, " the amylose would be broken down and I could eat them, too!

I told him that Passover was coming in a month and would I be able to have a

small taste of matzah for the first two nights of the holiday. He told me

to go off the actos a few days before and " eat, drink and be merry to enjoy

the holiday! " I was pleased at his kind and understanding response, but

since I really want to get better, I will start the Actos ASAP and if I

don't finish the one month supply in time for the holiday, so be it. My

health is more important.

3. I also told him that I had read about reading his post Katrina report on

this list. He was very pleased to know that I was aware of it. He very

unhappy that he has not been able to get this info into the press. I

understand this well - with everything that my brother-in-law, Aubrey, is

going thru trying to get the actonel story aired. (By the way, if any one

ones more updated info on Aubrey's progress, please contact me).

4. On Friday we had the person Shoemaker reccommends for our area come to

our house to do mold testing. It will take 2 weeks to get the results and

in the meantime we have to get a structural engineer in to check on the

entry point for rain water and other issues. Shoemaker said that additional

treatment depends on those test results.

Saralee Rosen

homerorse@...