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Stacey,

I think most people who have been attracted to group were having

trouble due to mold so thus the emphasis on mold, and also group

owner. However many people with mold problems (including myself who

also had lead paint dust in house and in my blood, and dust mite

allergy) are interested in rebuilding or 'redoing' their existing

homes. If you could share info you gave to poster, perhaps

moderator would put this info in our Files so we can all access it.

>

> I am a bit perplexed why the name of this group is " "

> and the majority of what is discussed here is mold...

>

> Bacteria, VOC's, pesticides, asbestos, lead paint, radon, dust

> mites, and a plethora of other things all contribute to poor

indoor

> air/environmental quality as well you know. It all goes hand in

> hand.

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I know I am many others post information all the time to other

people. I write to many of the writers of articles, government

officials, radio stations , or however I can. I always post info

about the chemicals that are dangerous in our products. I don't know

anything about building a safe home so I didn't answer that one. I

think you are critical to the group for some reason. Many of

us back channel people also. I know I see Carl helping people all of

the time. We all have our talents. Sorry I haven't been able to

post more lately but I am moving again and it is very emotional since

I have been doing this for about nine years

, " barb1283 " <barb1283@...> wrote:

>

> Stacey,

> I think most people who have been attracted to group were having

> trouble due to mold so thus the emphasis on mold, and also group

> owner. However many people with mold problems (including myself

who

> also had lead paint dust in house and in my blood, and dust mite

> allergy) are interested in rebuilding or 'redoing' their existing

> homes. If you could share info you gave to poster, perhaps

> moderator would put this info in our Files so we can all access

it.

>

>

> >

> > I am a bit perplexed why the name of this group

is " "

> > and the majority of what is discussed here is mold...

> >

> > Bacteria, VOC's, pesticides, asbestos, lead paint, radon, dust

> > mites, and a plethora of other things all contribute to poor

> indoor

> > air/environmental quality as well you know. It all goes hand in

> > hand.

>

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Stacey,

This is very pleasant and surprising that you are addressing this

board and myself, HERE on the board, directly to us and not on

another board to where an associate had to inform me. I think that

was your last complaint. And I'll be sure not to take anything out

of text, which that statement is beyond me with what you were

referring to, since I copied and pasted your actual post. But enough

on that, I'll try to answer you questions as best I can.

This board was started in 1998, by the Listowner, Barbara H. because

she had been exposed to mold in her place of employment, at

courthouse in Tallahassee. At that time there were no " mold " support

groups and the term " sicikbuildings " was a term most people were

becoming familiar with. She started this because this is what

effected her life personally, along with her family. It wasn't dust

mites, it wasn't radon, it wasn't asbestos. It was MOLD.

Not everyone is familiar with poor indoor air quality and how it can

affect your life along with your health. If we were, NONE of us

would need to be here. Educating ourselves and trying to stay up to

date with new procedures of prevention, treatment, diagnosis, etc.

Isn't this why you attend supposedly all these conferences, or is

there another reason? As far as the other reasons of sickbuidings,

we had and still do have several qualified IAQuality professionals

on this board who readily address these questions either as an open

statement to the board or one on one via phone or email. We may not

have all the answers to every scenerio, but then again I don't know

anyone who does, do you?

I appreciate you emailing the new member with this fabulous help or

information, but don't you think it may have benefited everybody by

posting it on the board? Yes, I do have some websites

concerning " green building " , but since I have not personally done

indepth research on many of these products and materials, it's the

last thing I would want to do is mislead somebody and cause more

harm. So I try to leave that up to someone who is well educated in

that field. This field of safe products is so unpredictable of what

really is or is not safe or has a lifetime warranty, because it has

not been fully researched by the majority. Some new products that

have come out on the market in the recent past, that claimed to have

great efficiency if used correctly are now being pulled off the

market.??? So you see nothing is 100%.

I do have to correct you on your statement of not answering to this

person, several have on the board did address this person and who

knows how many may have answered by email, like you yourself have

claimed to do. On an open board that may look like a no answer. If

we are lacking in some education like you claim in a round about

way, enlighten us, especially with all the vast conferences you have

attended and the knowledge you were suppose to gather either during

the conference or the " open " affairs after them. Perhaps the

partying after, dulled your senses. Since you do mention quite

frequently on other boards the " fun " that goes on.

As far as getting wrapped up in our own lives, I would have to say

this is normal, because this is how it has destroyed some here

personally. But many are willing to share their knowledge,

experiences, various treatments to all who will listen. Many here

are in need of support of others who understand exactly what they

are going through, unlike many on the " outside " who will scouff at

the mulitude of symptoms, fear, confusion, financial loss, etc.

Also, the only thing many have to offer now, since they themselves

have lost everything, is to lend an ear when needed. On occasion

everyone is entiled to have a " pity party " if it makes them feel

better to get through to the next day. Maybe if we had more

occasions such as this we would not have lost some board members

with the ultimate final end.

The whole idea Stacey, of posting all these news articles is to

inform and educate the public, bottomline. So people see it is not

just happening in their own little world or home town, it's

happening world wide.

It is very easy to come to a support group and criticize what we are

doing and telling us to do this, this and this, to me this is a slap

in the face when even the professional boards can't agree on what to

do, how to test or remediate or even recognize the illnesses that

may be a result of. That's kind of like the pot calling the kettle

black wouldn't you say.

You mentioned that you give advise to people when you are on the job

testing, but then you walk away and your job is over with. Guess

what, we are the ones picking up the pieces of where you left off

and continue to address their concerns. This is all a part of the

solution. Is it an end all, be all, NO. But it's a damn good start.

I would appreciate it and I know many others agree, (my phone is now

ringing off the hook because of your post,) by telling us how to do

our job, when we wouldn't dare tell you how to do yours. Both are

necessary when dealing with " " . You deal mostly with

the buildings, we deal with the people and their lives.

Focusing on " green building " is not going to cure us, that is only a

small piece of the puzzle in our condition and it's not going to

help us regain our health. We need to recover first and do what we

can inbetween. Very few have recovered, fully, to a point where they

can continue adding to the economy, instead of being a liability. I

wish we all had a choice, can you guess what that might be? I'm very

pleased Stacey that you were able to recover to this point, but

there are many who have not been so lucky. Most would like to have

a " green " house, but right now they can barely put food on the

table, get to the doctors or obtain their medication. It's a nasty

choice.

No, mold is not a small part of it, it's a huge part of it, more

than what you are even willing to recognize. Dust mites and other

mild allergens do not cause these symptoms and most are permanent.

Along with continuing to affect many organs.

Perhaps next time I'm talking to a parent who just buried their

child because of mycotoxins I'll give them your phone number and you

can tell them that they should have concentrated on the whole

picture and thought about building a safe home.

Next time you address the group, when you use the

terms you might as well use my name Carstens,

because that is who I am and the two are intertwined.

If you are running a business, you normally put your full contact

information so there is no confusion and those that are in need of

help can contact you directly. So I thought I would help make it

easier for them to help obtain your services.

Stacey Champion

Owner/Consultant

Champion Indoor Environmental Services

PO Box 3332

Cottonwood, AZ 86326

Tel. 928-649-1847 Fax 928-634-1097

sc@...

It's funny Stacey that the 3 times that you have addressed

and it's members, twice here, once on another board,

was just to criticize what we are doing, perhaps on your next post

you would like to offer " real " constructive assistance on indoor air

quality.

KC

>

> I am a bit perplexed why the name of this group is " "

> and the majority of what is discussed here is mold...

>

> Bacteria, VOC's, pesticides, asbestos, lead paint, radon, dust

> mites, and a plethora of other things all contribute to poor

indoor

> air/environmental quality as well you know. It all goes hand in

> hand.

>

> There was a woman who posted saying that she was new to the group

> and wanted to build a healthy house due to her families allergy

> problems. One person posted a reply with the name of a magazine.

> Granted it's a good magazine (I have a subscription,) but my point

I

> guess, is that there was an opportunity to HELP a person from the

> beginning, who doesn't live in a " sick " house, who was looking to

> this group for great resources, etc. on how she could keep her

> family from getting sick. Nobody helped her...

>

> It's very easy to become wrapped up in our own lives, but don't

you

> all want to help other people from going through what you already

> have??? I just emailed her privately with a list of resources and

> websites. It took me 5 minutes. I hope they build a healthy

house

> and I hope that I played a small role in it.

>

> Posting news articles and sharing " mold medications " is great and

> all - but how do you propose that this is going to make a

difference

> in things being handled correctly from the get go, if none of you

> have the time to respond to someone who isn't " sick " ???

>

> Just something to think about... Perspective. Positive

thinking.

> Attitude. If the almost 2000 of you on this group would focus on

> green and healthy building techniques, prevention, and understand

> the " synergy " of everything involved in IAQ/IEQ, we could surely

get

> there a little faster. Mold is just one small piece of the

puzzle,

> like it or not...

>

> Stacey Champion

> Owner/Consultant

> Champion Indoor Environmental Services

>

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-not true, I emailed off line with this person allot of information,

and my telephone #- ALL THE DETAILS THAT GO INTO BUILDING A HOUSE

ARE TOO MUCH TO TYPE .

kAREN-- In , " Stacey Champion "

<schampion@...> wrote:

>

> I am a bit perplexed why the name of this group is " "

> and the majority of what is discussed here is mold...

>

> Bacteria, VOC's, pesticides, asbestos, lead paint, radon, dust

> mites, and a plethora of other things all contribute to poor

indoor

> air/environmental quality as well you know. It all goes hand in

> hand.

>

> There was a woman who posted saying that she was new to the group

> and wanted to build a healthy house due to her families allergy

> problems. One person posted a reply with the name of a magazine.

> Granted it's a good magazine (I have a subscription,) but my point

I

> guess, is that there was an opportunity to HELP a person from the

> beginning, who doesn't live in a " sick " house, who was looking to

> this group for great resources, etc. on how she could keep her

> family from getting sick. Nobody helped her...

>

> It's very easy to become wrapped up in our own lives, but don't

you

> all want to help other people from going through what you already

> have??? I just emailed her privately with a list of resources and

> websites. It took me 5 minutes. I hope they build a healthy

house

> and I hope that I played a small role in it.

>

> Posting news articles and sharing " mold medications " is great and

> all - but how do you propose that this is going to make a

difference

> in things being handled correctly from the get go, if none of you

> have the time to respond to someone who isn't " sick " ???

>

> Just something to think about... Perspective. Positive

thinking.

> Attitude. If the almost 2000 of you on this group would focus on

> green and healthy building techniques, prevention, and understand

> the " synergy " of everything involved in IAQ/IEQ, we could surely

get

> there a little faster. Mold is just one small piece of the

puzzle,

> like it or not...

>

> Stacey Champion

> Owner/Consultant

> Champion Indoor Environmental Services

>

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>We ARE helping others by sharing what we know. Most of the folks on

this board are sick - some very, very sick. Unfortunately, some have

died. Many are broke or close to it, though we don't charge anyone for

the info we pass along. Most here aren't builders and many don't have

the money to remediate let alone build new homes. Glad you helped the

newbie who's not sick looking to build a clean house. You should - you

have the info (which you didn't share with the group)- we don't.

I don't mean to be offensive, but please don't judge us until you've

walked in all of our shoes. My whole family has been sick for close to

8 yrs, we're unable to work or go to school. My husband is facing

cancer from the mold exposure. My story isn't the worst on this board,

we're the lucky ones - we're still alive. We know what positive

attitude is - we don't need to be told.

So, the board isn't named exactly as it should be, 2000 others have

found it ok. We all realize that " " do have other

problems other than mold. No one would argue that - KC does a

fantastic job, which I'm sure takes a lot more than 5 minutes out of

his day.

If you really like to help folks, how about volunteering your services

to needy families in your area that are sick from their 'sick' homes.

SW

Chapion wrote:

> I am a bit perplexed why the name of this group is " "

> and the majority of what is discussed here is mold...

>

> Bacteria, VOC's, pesticides, asbestos, lead paint, radon, dust

> mites, and a plethora of other things all contribute to poor indoor

> air/environmental quality as well you know. It all goes hand in

> hand.

>

> There was a woman who posted saying that she was new to the group

> and wanted to build a healthy house due to her families allergy

> problems. One person posted a reply with the name of a magazine.

> Granted it's a good magazine (I have a subscription,) but my point I

> guess, is that there was an opportunity to HELP a person from the

> beginning, who doesn't live in a " sick " house, who was looking to

> this group for great resources, etc. on how she could keep her

> family from getting sick. Nobody helped her...

>

> It's very easy to become wrapped up in our own lives, but don't you

> all want to help other people from going through what you already

> have??? I just emailed her privately with a list of resources and

> websites. It took me 5 minutes. I hope they build a healthy house

> and I hope that I played a small role in it.

>

> Posting news articles and sharing " mold medications " is great and

> all - but how do you propose that this is going to make a difference

> in things being handled correctly from the get go, if none of you

> have the time to respond to someone who isn't " sick " ???

>

> Just something to think about... Perspective. Positive thinking.

> Attitude. If the almost 2000 of you on this group would focus on

> green and healthy building techniques, prevention, and understand

> the " synergy " of everything involved in IAQ/IEQ, we could surely get

> there a little faster. Mold is just one small piece of the puzzle,

> like it or not...

>

> Stacey Champion

> Owner/Consultant

> Champion Indoor Environmental Services

>

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Janet,

Absolutely not. Please do not blame yourself and no need to

apologize. This has been going on for a very long time, long before

you posted and it's about time we nip it in the bud.

KC

>

> Thank you KC. I feel some of this may be my fault. I posted on the

IEQ board

> about how dare they diss people with mold problems when it takes

away our

> whole lives.

> Janet

>

>

>

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At the end of my last post I wrote:

" If you really like to help folks, how about volunteering your

services to needy families in your area that are sick from their

'sick' homes. "

After thinking more about that - I really think that's a fantastic

idea! Stacey, since you're doing such a great job, you could volunteer

your services to the poor, test their homes for free, line up (or do

it yourself) remediation, and in the evening run a message board for

those wanting info to build a green house! You could also set up a

foundation and do fundraising for those who can't afford the medical

care. AND in your spare time work on lobbying legislators for laws

protecting people from shodding contractors and opportunistic indoor

air inspectors. WOW!

A good friend of mine, who did much of the above for kids affected by

autism, was killed in a car accident in late Dec. Her son was stricken

by autism from vaccines in 1996 - she has epidemilogical and clinical

proof.

In the past 10 years she founded the Coalition for SafeMinds (Sensible

Action for Ending Mercury-Induced Neurological Disorders), Medical

Interventions for Autism, the National Autism Association and the

Illinois Vaccine Awareness Coalition. She also started the Xtreme

Sports Camp, to give autistic children a chance to participate in

sports rarely open to them by other means. She volunteered her time to

the Committee on House Reform and co-wrote a congressional staff

report, " Mercury in Medicines—Taking Unnecessary Risks, " published in

the Congressional Record in 2003. She did endless hours of fund

raising for autism research and to help families that went broke

caring for their stricken children.

She fought to get mercury out of vaccines,something she believed was

a primary cause of her son's autism. Her efforts were chronicled in

Kirby's book " Evidence of Harm, " released in April 2005.

She was a single mom who, no matter how tired and discouraged she

might be, still put one foot in front of the other each day to

advocate for children & adults stricken by autism. She took no money

for any of the work she did for the autism struggle - not one dime.

She never critized anyone for how they were handling their plight -

she listened, she knew everyone's situation was different and she had

no right to tell others how to handle it. She never made those she

helped feel indebted, never. She is a role model for all of us and

will be missed.

Now, what was that you were doing?

In , " wiedb " <wiedb@...> wrote:

>

>

> >We ARE helping others by sharing what we know. Most of the folks on

> this board are sick - some very, very sick. Unfortunately, some have

> died. Many are broke or close to it, though we don't charge anyone for

> the info we pass along. Most here aren't builders and many don't have

> the money to remediate let alone build new homes. Glad you helped the

> newbie who's not sick looking to build a clean house. You should - you

> have the info (which you didn't share with the group)- we don't.

> I don't mean to be offensive, but please don't judge us until you've

> walked in all of our shoes. My whole family has been sick for close to

> 8 yrs, we're unable to work or go to school. My husband is facing

> cancer from the mold exposure. My story isn't the worst on this board,

> we're the lucky ones - we're still alive. We know what positive

> attitude is - we don't need to be told.

> So, the board isn't named exactly as it should be, 2000 others have

> found it ok. We all realize that " " do have other

> problems other than mold. No one would argue that - KC does a

> fantastic job, which I'm sure takes a lot more than 5 minutes out of

> his day.

> If you really like to help folks, how about volunteering your services

> to needy families in your area that are sick from their 'sick' homes.

> SW

>

> Chapion wrote:

> > I am a bit perplexed why the name of this group is " "

> > and the majority of what is discussed here is mold...

> >

> > Bacteria, VOC's, pesticides, asbestos, lead paint, radon, dust

> > mites, and a plethora of other things all contribute to poor indoor

> > air/environmental quality as well you know. It all goes hand in

> > hand.

> >

> > There was a woman who posted saying that she was new to the group

> > and wanted to build a healthy house due to her families allergy

> > problems. One person posted a reply with the name of a magazine.

> > Granted it's a good magazine (I have a subscription,) but my point I

> > guess, is that there was an opportunity to HELP a person from the

> > beginning, who doesn't live in a " sick " house, who was looking to

> > this group for great resources, etc. on how she could keep her

> > family from getting sick. Nobody helped her...

> >

> > It's very easy to become wrapped up in our own lives, but don't you

> > all want to help other people from going through what you already

> > have??? I just emailed her privately with a list of resources and

> > websites. It took me 5 minutes. I hope they build a healthy house

> > and I hope that I played a small role in it.

> >

> > Posting news articles and sharing " mold medications " is great and

> > all - but how do you propose that this is going to make a difference

> > in things being handled correctly from the get go, if none of you

> > have the time to respond to someone who isn't " sick " ???

> >

> > Just something to think about... Perspective. Positive thinking.

> > Attitude. If the almost 2000 of you on this group would focus on

> > green and healthy building techniques, prevention, and understand

> > the " synergy " of everything involved in IAQ/IEQ, we could surely get

> > there a little faster. Mold is just one small piece of the puzzle,

> > like it or not...

> >

> > Stacey Champion

> > Owner/Consultant

> > Champion Indoor Environmental Services

> >

>

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>It's very easy to become wrapped up in our own lives, but don't you

>all want to help other people from going through what you already

>have??? I just emailed her privately with a list of resources and

>websites

Kind of ironic here you went though all that trouble and didn't even

share that information with the group?

With all due respect I think you are being a little harsh on us. A

lot of us are sick and don't have time to read every single post and

take note of ones that go un replied. As in most forms/groups it's a

free market system if the topic is in demand or interesting or as in

your case a little inflammatory, you will get replies.

Clearly you have some good points here. For most of us it's to late

to build a new safe home so that's not a major topic but I would

think talked about alot. Just go into the archives and look I am sure

you will find plenty on this subject. I always try to do this on most

newsgroups so that I can avoid beating an old topic to death and/or

more intelligently post a question. But must admit I am guilty of not

doing it on this group because I can't use google to search the

archives like you can with use net.

This may be a little presumptuous to say on my part and some may

disagree but I believe the majority of us are disabled from MOLD not

dust mites or out gassing of paint's and what not. Not that those

things are not a great concern to us especially as a secondary injury.

Further I believe those components can lead to immune suppression

which can exasperate sensitivity to mold in the first place. And

thus very important subject.

But as so passionately states on this group it's peoples denial

of the mold component that causes so much suffering especially in the

cfs community. I know as personal experience I have lost a lot of

valuable years of my life due to denial of the mold component and how

paramount avoidance is for me.

The way houses are built is very important but mean nothing if your

new home gets mold in the drywall, underneath the flooring, in your

ventilation system on your personal belongings etc. I would even

venture to say if it wasn't for mold the phrase " sick buildings "

would have never been coined.

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Stacey,

A person who is forced to sleep outside their house due to toxigenic

mold is going to put bacteria, VOC's, asbestos, lead paint, radon,

dustmites and everyting else on the 'back burner'.

Building a house free of these factors is fairly straightforward

and considered fairly " normal " . Constructing a house and adding in

bacteria, VOC's, dustmites, asbestos, lead paint, etc. is considered

to be shoddy work and substandard quality, and not nearly as urgent

and pressing as the immediate needs of the people who are just

trying to survive the night.

As we are about to see demonstrated in a fairly spectacular way,

even if one builds a " normal " high quality house, which should be

relatively low risk for these factors, it will avail nothing if the

inhabitants are at a PIR for mycotoxin reactivity that will not

allow them to endure the ambient levels of a moldy neighborhood.

The PIR of the most active members of this group dominates and

dictates the nature of the discussion.

The perspective of the IEQ group shows that they do not understand

advanced PIR's and finds the profound nature of severe mold illness

to be " perplexing " .

We " Extreme mold responders " started and have always dominated this

group because we are so misunderstood elsewhere.

Just as it has been strange that the doctors were the last

profession to recognize mold illness, it is perplexing to us that

Air Quality Experts, who should have been the first to " relate "

have been so slow in doing so.

-

" Stacey Champion " wrote:

I am a bit perplexed why the name of this group is " "

and the majority of what is discussed here is mold...

Bacteria, VOC's, pesticides, asbestos, lead paint, radon, dust

mites, and a plethora of other things all contribute to poor indoor

air/environmental quality as well you know. It all goes hand in

hand.

There was a woman who posted saying that she was new to the group

and wanted to build a healthy house due to her families allergy

problems. One person posted a reply with the name of a magazine.

Granted it's a good magazine (I have a subscription,) but my point

I guess, is that there was an opportunity to HELP a person from

the beginning, who doesn't live in a " sick " house, who was looking

to this group for great resources, etc. on how she could keep her

family from getting sick. Nobody helped her...

It's very easy to become wrapped up in our own lives, but don't

you all want to help other people from going through what you

already have??? I just emailed her privately with a list of

resources and websites. It took me 5 minutes. I hope they build a

healthy house and I hope that I played a small role in it.

Posting news articles and sharing " mold medications " is great and

all - but how do you propose that this is going to make a difference

in things being handled correctly from the get go, if none of you

have the time to respond to someone who isn't " sick " ???

Just something to think about... Perspective. Positive thinking.

Attitude. If the almost 2000 of you on this group would focus on

green and healthy building techniques, prevention, and understand

the " synergy " of everything involved in IAQ/IEQ, we could surely get

there a little faster. Mold is just one small piece of the puzzle,

like it or not...

Stacey Champion

Owner/Consultant

Champion Indoor Environmental Services

>

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I don't understand how people don't get mold being toxic b/c

penicillin meds/shots can kill or cause allergic reations in people.

It almost killed me when younger. Did something to my heart right

after I got a shot and then came the rash all over body and swelling

all over including the throat. I really need to get a bracelet and

wear it all the time. Also, if I got anything with mushrooms in food

when younger, I had bad reactions.

People accept peanuts can kill if allergic but they don't get mold.

Crazy.

Rhonda

>

> >It's very easy to become wrapped up in our own lives, but don't

you

> >all want to help other people from going through what you already

> >have??? I just emailed her privately with a list of resources and

> >websites

> Kind of ironic here you went though all that trouble and didn't

even

> share that information with the group?

>

> With all due respect I think you are being a little harsh on us. A

> lot of us are sick and don't have time to read every single post and

> take note of ones that go un replied. As in most forms/groups it's

a

> free market system if the topic is in demand or interesting or as in

> your case a little inflammatory, you will get replies.

>

> Clearly you have some good points here. For most of us it's to

late

> to build a new safe home so that's not a major topic but I would

> think talked about alot. Just go into the archives and look I am

sure

> you will find plenty on this subject. I always try to do this on

most

> newsgroups so that I can avoid beating an old topic to death and/or

> more intelligently post a question. But must admit I am guilty of

not

> doing it on this group because I can't use google to search the

> archives like you can with use net.

>

> This may be a little presumptuous to say on my part and some may

> disagree but I believe the majority of us are disabled from MOLD

not

> dust mites or out gassing of paint's and what not. Not that those

> things are not a great concern to us especially as a secondary

injury.

> Further I believe those components can lead to immune suppression

> which can exasperate sensitivity to mold in the first place. And

> thus very important subject.

> But as so passionately states on this group it's peoples

denial

> of the mold component that causes so much suffering especially in

the

> cfs community. I know as personal experience I have lost a lot of

> valuable years of my life due to denial of the mold component and

how

> paramount avoidance is for me.

>

> The way houses are built is very important but mean nothing if

your

> new home gets mold in the drywall, underneath the flooring, in your

> ventilation system on your personal belongings etc. I would even

> venture to say if it wasn't for mold the phrase " sick buildings "

> would have never been coined.

>

>

>

>

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