Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 Went pretty well. Discussed having another 3D CT to get the info that we need. But Dr. Crawford was going to talk to Radiology and see if we can get the info from the one that was done in January. If they can't, we will schedule another as the 3D Model was never made in Jan when we had the CT done. Per our trip to Boston, and talking with Dr. Crawford, it looks as if is not a candidate for the VEPTR (Titanium Rib) so we are going to look into growing rods. Dr. Crawford is going to submit 's name for inclusion in a group study they have at the hospital, and that will be done in August. Then we will see him again at the end of September (before he heads to Argentina) - the main thing that we are all agreed on is that something will have to be done before she is 5. That gives us about 2 1/2 years to figure out what we are going to do. We do know it will include some type of instrumentation, we just don't know what the best course of action is going to be until we get this 3D model. Gail*****************************************************Mom to: , 11/28/98 , 02/02/02 "I live in my own little world, but it's okay. They know me here." Quote Link to comment Share on other sites More sharing options...
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