thoughts about getting treatment for mold and neurotoxicity

[Guest guest]

The problem here is when you go to a conventional doctor with a wide range

of symptoms that run across the diagnostic criteria of various illnesses.

You see the same problem when trying to get approved for social security or

employment disability when your symptoms don't mirror or exactly match a

defined set of impairments.

Unfortunately often the focus of treatment and diagnosis has to be on

treating you for illnesses that are accepted by the general medical

community and/or are listed in the SSA listed impairments or in various

medical disability handbook manuals. More alternative type MDs will also

note the real reason but they are the ones who will still need an approved

diagnosis code to properly order medical tests or even get your disability

approved etc. Stinks doesn't it. They use my MS for example and then

evaluate whatever based on symptoms associated with that disease. Imagine

that I get the cachet of having an approved and well understood illness

(chronic relapsing progressive form of MS when it seems obvious to those

around me that the illness occurred based on my repeated exposures to mold,

chemicals, pesticides etc.

So what do you tell a doctor when you first see them when you have many

symptoms? How do you get the care you need?

I don't know exactly how to answer the question but most layman don't know

what sick building syndrome means anyway.....so you focus on the symptoms as

they align with a legitimate disease....I used to focus on the 1000

symptoms I had instead of focusing on the symptoms that led to the MS

diagnosis, then they stripped off those symptoms and disease naming ceremony

and came up with the next constellation of symptoms...oh that's

arthritis...which then became arthritis and fibromyalgia to others.....and

so and ....That was my experience.....except by then I was too sick to

tolerate any of the convention treatments.....

Wondered about other people's thoughts on this topic?

With love

[Guest guest]

,

Good description. The same general pattern of difficulties applies

when dealing with consultants and remediators. What stinks in both

instances is we, the ones needinghelp, end up taking care of not only

ourselves but also the doctor and the consultant and the remediator.

And our family and friends, those that are left, that is.

Carl Grimes

Healthy Habitats LLC

-----

> The problem here is when you go to a conventional doctor with a wide

> range of symptoms that run across the diagnostic criteria of various

> illnesses. You see the same problem when trying to get approved for

> social security or employment disability when your symptoms don't

> mirror or exactly match a defined set of impairments.

>

>

>

> Unfortunately often the focus of treatment and diagnosis has to be on

> treating you for illnesses that are accepted by the general medical

> community and/or are listed in the SSA listed impairments or in

> various medical disability handbook manuals. More alternative type MDs

> will also note the real reason but they are the ones who will still

> need an approved diagnosis code to properly order medical tests or

> even get your disability approved etc. Stinks doesn't it. They use my

> MS for example and then evaluate whatever based on symptoms associated

> with that disease. Imagine that I get the cachet of having an approved

> and well understood illness (chronic relapsing progressive form of MS

> when it seems obvious to those around me that the illness occurred

> based on my repeated exposures to mold, chemicals, pesticides etc.

>

>

>

> So what do you tell a doctor when you first see them when you have

> many symptoms? How do you get the care you need?

>

>

>

> I don't know exactly how to answer the question but most layman don't

> know what sick building syndrome means anyway.....so you focus on the

> symptoms as they align with a legitimate disease....I used to focus

> on the 1000 symptoms I had instead of focusing on the symptoms that

> led to the MS diagnosis, then they stripped off those symptoms and

> disease naming ceremony and came up with the next constellation of

> symptoms...oh that's arthritis...which then became arthritis and

> fibromyalgia to others.....and so and ....That was my

> experience.....except by then I was too sick to tolerate any of the

> convention treatments.....

>

>

>

> Wondered about other people's thoughts on this topic?

>

>

>

> With love

>

>

>

>

>

>

[Guest guest]

you are so right , crazy when you dont even know what to call

your diease. Im leaning toward environmental illness, only because

sickbuilding covers exposure to other toxins and could also be

considered exposure in workplaces to other toxins. also because

insurance companys are supposed to cover environmental hazards.

enviromental hazards are anything caused by nature that harms your

health, mold is a act of nature. mycotoxins are a biochemical of

warfare. toxic molds/mycotoxins are a natural hazard. and Im pissed

because my own insurance company has cut off my insurance to my 2

homes and have not gave me one cent toward medical expences, loss of

homes or belongings, emergency shelter, nothing. also, because

www.aaem.com Dr. Rea from EHC in Dallas Texas calls it this, and Dr.

Rea is going to be teaching classes in Kansas City Missouri on MCS in

april, so Im hopeing I'll find a doctor through this route that is

opened minded enough to take these classes and other related to

environmental illness, which does cover all the illnesses related to

toxic mold exposure. and hopefully if they dont know about something,

they could contact Dr. Rea and get advice. Dr. Rea has a very

impressive CV. and please dont take this as offencive, I know the

history, and when this group was started, and its great that it is

here, and it has a name that covers all toxin exposure in buildings

and thats very important. and I have the upmost respeck for KC, he

works so hard to help us. I just believe that mold exposed illnesses

needs to have its own name and from my research I think this is the

right term. others may have a different view, and it might depend on

what medical help you have

recieved.

>

> The problem here is when you go to a conventional doctor with a

wide range

> of symptoms that run across the diagnostic criteria of various

illnesses.

> You see the same problem when trying to get approved for social

security or

> employment disability when your symptoms don't mirror or exactly

match a

> defined set of impairments.

>

>

>

> Unfortunately often the focus of treatment and diagnosis has to be

on

> treating you for illnesses that are accepted by the general medical

> community and/or are listed in the SSA listed impairments or in

various

> medical disability handbook manuals. More alternative type MDs will

also

> note the real reason but they are the ones who will still need an

approved

> diagnosis code to properly order medical tests or even get your

disability

> approved etc. Stinks doesn't it. They use my MS for example and then

> evaluate whatever based on symptoms associated with that disease.

Imagine

> that I get the cachet of having an approved and well understood

illness

> (chronic relapsing progressive form of MS when it seems obvious to

those

> around me that the illness occurred based on my repeated exposures

to mold,

> chemicals, pesticides etc.

>

>

>

> So what do you tell a doctor when you first see them when you have

many

> symptoms? How do you get the care you need?

>

>

>

> I don't know exactly how to answer the question but most layman

don't know

> what sick building syndrome means anyway.....so you focus on the

symptoms as

> they align with a legitimate disease....I used to focus on the 1000

> symptoms I had instead of focusing on the symptoms that led to the

MS

> diagnosis, then they stripped off those symptoms and disease naming

ceremony

> and came up with the next constellation of symptoms...oh that's

> arthritis...which then became arthritis and fibromyalgia to

others.....and

> so and ....That was my experience.....except by then I was too sick

to

> tolerate any of the convention treatments.....

>

>

>

> Wondered about other people's thoughts on this topic?

>

>

>

> With love

>

>

>

>

>

>

[Guest guest]

The description that I saw used in a paper by the RAND corporation on

the effects of mycotoxin use in warfare was " Total Metabolic Chaos " or

something like that..

But back to the question.. I think the best approach is to buy several

copies of Mold Warriors, and use one for yourself and lend the others

out to doctors who treat you.. Also, be willing to spend time

documenting every aspect of what you feel and trying to make the

connections yourself.

But then of course, as you expend those effors in an attempt to find

help in finding a cure for yourself, as you know you are being

poisoned by the situation, but its hard to explain it technically,

barring that comprehensive understanding of the concept of

'life-sucking-toxins' you run into the problem of people seeing you

(as you fight for your health) as being 'so functional' that in their

eyes you 'can't be sick'..

In other words, you are dammed if you do or dammed if you don't.

Our culture doesn't even really recognize the possibility that

substances can age people, just like time does.. stealing their

quality of life..

(With mycotoxins its particularly difficult because many of the damage

caused by biotoxins resemble aging, however, they are accellerated..

and far ijn excess of what simple aging is.)

So the result is that if a treatment might be available, you don't get

it.. and you don't get better, and you are still miserable...

And of course, you never get compensated for the ruined lives..

broken up families.. lost jobs, etc.